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User Reviews for Topiramate

Also known as: Qudexy XR, Topamax, Topamax Sprinkle, Topiragen, Trokendi XR

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Topiramate.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Seizures 3 reviews 48 medications
   
9.2
Diabetic Peripheral Neuropathy 6 reviews 40 medications
   
8.2
Tourette's Syndrome 3 reviews 12 medications
   
8.0
Obesity 98 reviews 62 medications
   
7.6
Bipolar Disorder 74 reviews 33 medications
   
7.4
Bulimia 8 reviews 7 medications
   
7.0
Trigeminal Neuralgia 9 reviews 9 medications
   
7.0
Seizure Prevention 46 reviews 32 medications
   
6.9
Fibromyalgia 26 reviews 20 medications
   
6.7
Migraine Prevention 370 reviews 30 medications
   
6.3
Borderline Personality Disorder 2 reviews 0 medications
   
6.0
Vulvodynia 2 reviews 9 medications
   
6.0
Smoking Cessation 3 reviews 19 medications
   
2.0
Summary of Topiramate reviews 650 reviews 6.8

Reviews for Topiramate

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Topamax (topiramate) for Migraine Prevention: "I've been on Topamax for probably at least 15 years, 400 mg daily. I'm get debilating migraines. After reading these reviews I guess I am one of the lucky ones as I have not received one side effect. I take it at night. If the migrane is really bad I add one pill of Relpax and that does the job."

   
8.0

Helped (taken for 10 years or more) September 26, 2016

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Topamax (topiramate) for Seizure Prevention: "Great and Keppra too"

   
10

Calluna September 24, 2016

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Topamax (topiramate) for Obesity: "Been on/off topamax since I was 15, I'm now 21. First time I took topamax at 15, I went frm 235lbs to 114lbs. Over time I got used to it & couldn't find something to help w/my binge eating disorder. I gained all the weight I lost & more over a 5yr period of trying to lose it/find the right meds to help. 2012 17 y/o tried topamax & had bad anxiety so that didn't last long. 2015 20 y/o I weighed 248lbs, the biggest I've been. Was on phentermine (diet pill, 37.5mg) for a few months but was starting to get used to it. Decided to try topamax again (50mg 2x a day) along w/vyvanse (ADHD/binge eating, 70mg) & lexapro (depression, 20mg). Currently 160lbs. Always adjusting my meds though, I seem to get used to them quickly."

   
5.0

britt21any (taken for 1 to 2 years) September 22, 2016

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For Migraine Prevention: "My migraines always last 8 & 1/2 hours of pain & nausea with 1/2 hour aura and 2 - 3 days of pain after. I started on this 10 years ago at 1 x 25mg pill each night before bed. Since starting I've only suffered from 4 or 5 migraines. I used to have 1 migraine every week or 2. I've spent less time worrying about when I'd next be suffering. But the side effects were terrible. Brain fog / slowing of mental & physical activity / memory issues / confusion / speech & language issues / trouble concentrating / increased anxiety were the worst, haven't felt like myself in years. Also had: fatigue, insomnia, depression, eye problems, tingling extremities, weight gain & occasional dizziness. Stopped it 2 months ago & still migraine free so far."

   
7.0

migraineshhhh (taken for 10 years or more) September 22, 2016

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Topamax (topiramate) for Migraine Prevention: "Most fantastic feeling to FINALLY be headache and seizure free. But was scratching myself bloody at night. Allergic to the initial weaning on dose(about 1/4 of aimed for dose), blurred vision..had to be taken off. Can't even attempt a trial again. Want to, but apparently risks are too great. Without the allergic reaction, I'd call it heaven sent."

   
6.0

Almost why bother (taken for less than 1 month) September 21, 2016

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For Migraine Prevention: "My boyfriend of 8 years took this medication for migraine for a year and ahalf. It was great for his migraine but hell on his personality and character as a person. This medication made him confused, unable to make decisions, angry because he was confused. He became argumentative with me , coworkers, and family members. Every task he took on was filled with confusion and his ego. In 8 years I never seen him be so cold ..he was not the same person. I thought his behaviour was cause from some other medicine so I convince him to stop. Then the behaviour continued..after reading on this medicine I convince him to drop it. It had been 3 weeks since he took the medication and it's like night and day. He is slowly returning to the man I know."

   
6.0

Dee112 September 21, 2016

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Topamax (topiramate) for Migraine Prevention: "I've had migraines since I was 25 (am now 68) and my life was hell until I discovered Topomax 18 months ago. I must be one of the lucky ones because I didn't have any horrible side effects, just some mild finger tingling. I lost a little appetite but made no difference (I'm slim anyway and probably lost 5 pounds), otherwise... it has been a miracle!! I started with 25mg, increased to 50, then to 100, didn't like it, went back to 50 and am now on 25 again and feel great. Sometimes I also take the generic and have no problem at all."

   
10

Bezota September 20, 2016

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For Migraine Prevention: "At 42 and suffering migraine attacks with aura from a young age I have tried lots of meds,acupuncture with no real success,I started of on 25mg of topamax then increased a month later to 50 mg which made me like a ticking time bomb towards my family so dropped back to 25mg at night no more and been having excellent results,when I do get a migraine the pain is very minimal if any and can continue working which would never happen before I would be out for days ,just stay on low dose ,I find once well in your system works well."

   
9.0

hd103 (taken for 2 to 5 years) September 20, 2016

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For Obesity: "Day 6 14 pounds lost. !! I haven't put exercise in yet. I take 25 mg 2x a day ."

   
10

Jamie jo (taken for less than 1 month) September 19, 2016

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Topamax (topiramate) for Migraine Prevention: "I'm 16 years old and I've had migraines since I was 2 years old. I was on topamax for a month and already started feeling stupid, constantly drowsy, depressed, I couldn't remember what i had done a day ago. Being 16 and still in high school, this was a problem. I ended up having an allergic relationship to the mediation two weeks after taking it. It had felt like I was about to die. I thought I had taken some kind of horrible drug that was about to kill me. I had rapid heart beat, slurring speak, deplayed responses, I was mentally not there, my vision was messed up, and much more. Worst med ever."

   
1.0

Emilyyy1999 September 18, 2016

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For Obesity: "I am about to start taking the topiramate starting on monday september 19th along with phentermine, I will let you know how it turns out"

G-MONEY THOMAS September 18, 2016

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For Migraine Prevention: "I have been taking Topomax 25mg 2x a day for 2 weeks now. I was prescribed this medication for mainly migraines, but I also have restless leg syndrome which disrupts my sleep schedule. So far the only side effects I have noticed is that it makes my hands tingle (compare to hitting your funny bone). This medication makes me really sleepy so I only take it at night (helps with my sleep schedule). I also have noticed that I don't eat as much, which is fine with me! I haven't had any migraines since I started taking Topomax which is wonderful given the fact that I usually suffer from one atleast daily!"

   
8.0

Mel2070 September 17, 2016

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For Migraine Prevention: "I was prescribed this medication as propranolol, amitryptiline and nortryptiline failed to work. Topirimate was a god send for the headaches, and my migraines were near enough gone by the second dose. But the side effects were unbearable, I went to see my gp who told me to stop immediately and referred my to my nearest a&e.The tingly fingers and toes literally started after the first dose and only got worse to the point where my both arms were tingling from my finger tips to my elbows and my lips and face were tingling. I lost my thoughts, and felt like I had been knocked over by a truck. This drug is by far the worst experience I've had, if you want to lose confrol of your motor skills then by all means this drug will allow you to do that."

   
2.0

Kylied87 (taken for less than 1 month) September 16, 2016

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For Smoking Cessation: "I'm probably a very rare case, I'm being prescribed Topamax 25mg at night as needed for sleep through the withdrawal of a prescribed pain medicine from a car accident. It is being prescribed only temporarily for two months. After reading all of these reviews, I am now terrified of hair loss as I grow my hair to donate for almost 20 years now. I have always had very thick wavy/curly hair and felt others could benefit from it and liked giving back. Can anyone please give their input on if they think the temporary use of this medication will effect my hair ? Thank you so much in advance."

Lil one (taken for less than 1 month) September 15, 2016

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For Migraine Prevention: "I'm a 24 y/o male and have been on Topiramate for almost a month.. Started with 25mg daily increment and increased dosage by 25mg every week. I was suppose to make it up to 100mg daily, but that hasn't happened. . The first week was good. Second week I did notice the pins and needles sensations all over. When I got up to 75mg per day my brain fog was BAD, my anxiety sky rocketed, and I seemed to have more headaches. I've started to have panic attacks and have been scared to drive lately or even go to the store which is so unusual for me. I am also sleeping hours upon hours at a time and I am also getting tingling sensation in face and arm which is scaring the heck out of me. Going to stop taking without consulting doctor."

   
5.0

ArkansasRazorbacks September 14, 2016

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Topamax (topiramate) for Migraine Prevention: "I'm still new to this medicine but i'm still on it. I'm still in high school so I get migraines due to stress a lot. Every morning I'm starting to wake up super early ready to go and super hyper. So hyper that i'm shaking like crazy to the point it looks like i have a tremor. I'm more outgoing on this medication. I am losing little bit of my hair but i'm okay with it. at least i don't have migraines."

   
5.0

Sarah2434653214 September 13, 2016

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Topamax (topiramate) for Migraine Prevention: "This drug isn't for everyone. The side effects are completely crazy. I have been on it for almost 12 months now. It has provided relief from migraines by almost 95% of the time. This has been a big deal for me. Side effects I've experienced: hands and feet tingle periodically (some days are worse than others), hair loss started 3 months after taking it but began to cease 6 months later, definite brain fog (some days I feel like I'm losing my mind), grogginess (I can only take my dose at night otherwise I'm a zombie during the day), changes in vision, loss of appetite, fatigue, irritability. At first I convinced myself the side effects were worth tolerating compared to having a migraine. But as time goes on, I'm beginning to think im wrong"

   
7.0

Juarek (taken for 1 to 2 years) September 11, 2016

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For Migraine Prevention: "The first month was great, started on 25mg and upped to 100mg within 4 weeks. Totally migraine free except when I came to my period. Then I started to have a visual aura which I never previously experienced and had a 3-day intense migraine. My usual vertigo and severe travel sickness completely disappeared. After that, I stayed headache free mostly for a couple of months, apart from my time of month and ovulation. I continue to get the visual auras almost daily. They're not painful so don't bother me. Last month, the headaches came back almost daily with the auras. My doctor increased dose, going to 200mg and headaches are gone already. I'm hoping this will also help with back pain from disk degeneration. Lost 33lbs"

   
8.0

Snouter100 September 4, 2016

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For Migraine Prevention: "Topamax for me worked at preventing headaches but the side effects were unbearable. This medicine worked in the beginning but slowly BAD side effects appeared, I became so depressed, I was angry and sexually numb. I lost my sense of taste all sodas starting tasting flat. I also lost 15 pounds very quickly and I am now underweight do to this medication. I would never recommend it but only as a last resort. There are far better options out there. After failed topamax I then was prescribed the extended release version of it "Trokendi XR" and it was a little better but again over time side effects started appearing. Beware because it seems good in the beggining then side effects! Withdrawals from this med are terrible! Migraines x10!"

   
3.0

Anonymous September 4, 2016

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For Fibromyalgia: "Worked like a dream! I went off of it because I didn't like some of the side effects, and my Fibro symptoms came back with a vengeance, crippling pain... bedridden most of the time, etc. I'm going back on next week. If you take this drug DO drink a lot of water as instructed to avoid kidney stones. I didn't drink hardly any water and got a stone. Also, I didn't have ins when on it so had to get a card from manufacturer (free). As for effectiveness.. it worked for me!"

   
10

Ella Boo Bella (taken for 1 to 2 years) September 4, 2016

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For Migraine Prevention: "I don't really feel any side effects, but I have been experiencing brain fog, fatigue, & rare pins & needles that are painful. I wonder if this is the drug. I've been on it about 3 to 4 years. I do have Lupus, so I have been blaming it for the brain fog and fatigue. Now I'm not sure as I talked to my doc about this * he told me it could be the drug. He is taking me off of it because it's doing nothing for the migraines. I gave it a 3 more for the lack of help for the migraines versus the side effects, since I'm not sure if it's the drugs, the Lupus, or something else. I just felt it did nothing for me & is a waste of time and money. I hope by going off of it, I feel an improvement in those side effects. Wouldn't you know it, no weight loss!"

   
3.0

Raedo (taken for 2 to 5 years) September 3, 2016

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Topamax (topiramate) for Migraine Prevention: "This is my first time taking them I already feel the tingling in my face hands and feet. This is a scary feeling and just by reading the reviews I'm already thinking of not continuing this medication, I'm all for weight loss but hair loss and memory loss OMG that's to much, I just want to feel better I've been battling migraine headaches since middle school and now I'm 33 something has to give."

Lrd23 September 2, 2016

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For Migraine Prevention: "Started topamx back in January of 2014....had 1st panic attack in june of 2014. Didn't really put 2 and 2 together. Meds seemed to slowly start helping my Chronic migraines slowly after getting up to 100mg. Panic attacks continued and developed major anxiety issues over the next 2 years and went from only 148lbs and I'm currently at 108lbs at the moment. Barely able to function and zero appetite and no energy. Had to go to ER MULTIPLE TIMES FOR IV VITAMINS AND SOLUTION. Nuerologist and Primary finally are seeing that it's the topamx NOT AGREEING WITH MY BODY. While this med may work wonders for others, it has destroyed over 2 3/4 yrs of my life. I'm slowly titrating off by 6.25mg every 2 weeks, because that's all my depleted body can handle"

   
3.0

murfette74 (taken for 2 to 5 years) September 2, 2016

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For Obesity: "This is my second check in. I started Topiramate on July 4th with minor success but high hopes taking 25mg 2x daily. Now I am at 100 mg, 50 a.m. & p.m. This seems to be the turning point for me. The weight is finally starting to noticeably go down. I eat a breakfast with protein, barely hungry until dinner but make wiser choices and still enjoy desserts. Very thirsty for water all night and still biking. Good luck all!"

   
8.0

Karlatte (taken for 1 to 6 months) August 30, 2016

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Topamax (topiramate) for Migraine Prevention: "have been researching and researching for so many years and I have to say that Topamax saved my life. I am currently 23 years old, and I started having these migraines when I was 15. I didn't know that this would be a lifelong thing that would eventually lead me to be on daily medication. The frequency that I would get them,would be more than six times a month. Anyway, I went on propannalol? (Beta blocker), NO SUCESS. & then doctors prescribed me topamax. I didn't have any side effects. At all. No tingling. Nothing. And GUESS WHAT, I didn't have a migraine for 3 years!!!! NOT ONE. but I got off of it, thinking they were "gone" & now I'm suffering with new hormonal migraines. Going back on topamax & hoping for same results!!!!"

   
10

Over migraines (taken for 1 to 2 years) August 29, 2016

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