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User Reviews for Topiramate

Also known as: Qudexy XR, Topamax, Topamax Sprinkle, Topiragen, Trokendi XR

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Topiramate.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Seizures 6 reviews 49 medications
   
8.9
Diabetic Peripheral Neuropathy 6 reviews 40 medications
   
8.2
Tourette's Syndrome 3 reviews 7 medications
   
8.0
Obesity 125 reviews 62 medications
   
7.7
Bipolar Disorder 87 reviews 28 medications
   
7.4
Trigeminal Neuralgia 10 reviews 9 medications
   
7.3
Bulimia 9 reviews 7 medications
   
7.0
Seizure Prevention 52 reviews 32 medications
   
6.7
Fibromyalgia 31 reviews 20 medications
   
6.4
Migraine Prevention 439 reviews 29 medications
   
6.2
Vulvodynia 2 reviews 9 medications
   
6.0
Borderline Personality Disorder 3 reviews 0 medications
   
4.3
Smoking Cessation 3 reviews 18 medications
   
2.0
Summary of Topiramate reviews 776 reviews 6.6

Reviews for Topiramate

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For Bipolar Disorder: "I've been on 50 mg of brand Topamax for two years and the cognitive impairment is significant. I often forget how to spell my last name, I don't remember events of just yesterday, and I can't spell anything anymore for the life of me. I take it for Rapid Cycling Bipolar I & went off it for two weeks to attempt to get my cognition back - by about the 6th day I started to show signs of mania and by day 8 I was full blown manic with psychosis. I'd do anything to get off this brain mush of a drug but it serves a purpose. Oddly, I never went into psychosis until this drug. Oh, and the days that passed without Topamax lead to the worst headaches ever. Buyer beware."

   
3.0

crazydude81 (taken for 2 to 5 years) May 24, 2017

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Topamax (topiramate) for Migraine Prevention: "I used to be on this when it was brand-name, and now I'm on it as a generic. I've found pros and cons with each. With the brand name, I felt like it worked better, but it gave me horrible problems with confusion. I would drive home from work and sometimes not even remember the drive home. I felt completely drugged. When the generic came out, I was switched to it. It didn't make me loopy like the brand name did, but I didn't think it worked as well either. I get more migraines on it by a lot than I got on brand name Topamax and I think I'm on the highest dose. I take one 200 mg pill in the morning and one 200 mg pill at night."

   
7.0

Gastroparesis Girl (taken for 5 to 10 years) May 20, 2017

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For Migraine Prevention: "I take this medication for migraines. I was having having migraines 3 to 5 times a week. Now I have a headache maybe 5-10 times a month which is a relief for me. I have notice weight loss also. Which I am proud of and was not expecting."

   
8.0

engaged again May 19, 2017

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Topamax (topiramate) for Migraine Prevention: "When I first went on Topamax, I thought it was a miracle. I had just been diagnosed withIdiopathic Intracranial Hypertension (IIH) after 9 months of what we had previously thought was a constant migraine. Topamax was the first drug that really made a dent in the pain. However the side effects were... a lot. -at first I could barely eat (for about a month) -the brain fog slowly took me over, turning me into a zombie -the tingling was never just my hands and feet, but my arms, legs, face, and back as well. -I had vision issues, including always seeing a circle in the middle of my vision, eyes opened or closed -I had hallucinations whenever I woke up in the dark Worst of all, the drugs would help for a week or two, then the pain would come back until I increased the dose."

LindsayMcD (taken for 6 months to 1 year) May 16, 2017

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For Migraine Prevention: "I've been on this medication for a few months. Prescribed by neurologist for my chronic migraines. I tapered on slowly and now take 50mg am and pm. I usually got at least a few migraines a month..with aura. I've had them my whole life. Some worse than others, some so bad I could've gone to the hospital. Since I've been on the meds I have not had one migraine with aura. Just a few headaches could maybe be considered very mild migraines. A huge improvement. I've also lost 25lbs. I have noticed I've been a little forgetful and have had some brain farts at work. The medication has given me really bad acid reflux that I'm still struggling with and it's apparently pretty rare. Otherwise it's been ok for me."

   
10

JennCapri May 14, 2017

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For Obesity: "I started topamax in Febuary of 2017 at 248 pounds on 25mg at bed time. Now I take 100 mg at bed time and as of May 2017 I am 230 pounds. When I started I noticed the difference with in a few days, I have not had any bad experiences with this pill."

burlingtonvtgirl May 12, 2017

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For Obesity: "Started weight 287lb and in three months dropped down to 227 with normal life activities. Never thought I would see that again I tried the gym but never could get their with my knees and the weight I had gained"

   
10

J Riley (taken for 1 to 6 months) May 10, 2017

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For Bipolar Disorder: "Was doing pretty well on Trileptal but was not happy with weight gain from AAPs. Greedily decided to ask my Dr to switch me from Trileptal to Topamax in hopes of some weight loss. There was none. I'm thinking this may be one of those meds that just doesn't work with me genetically. Was taking 50mg twice a day, and it was not doing a thing for my weight or moods. It was scary. The anger, irritability, crying, brain fog. I was scared of ending up in the psych ward, so I went back to my Trileptal and left the Topamax behind. Quit it cold turkey after getting back to my regular Trileptal dose. Mentally and emotionally, I'm already feeling better, however, I am having some terrible muscle aches and nausea from quitting the Topamax."

   
1.0

BBP007 (taken for less than 1 month) May 7, 2017

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Topamax (topiramate) for Migraine Prevention: "The drug would get a 10 as it worked miraculously for me. In my case -- and this probably won't happen to you -- the medication caused me kidney stones, the first of which was agonizing and led me to stop using the medication. Then the headaches resumed. I was willing to take an occasional Kidney Stone attack as a tradeoff for frequent migraine so I went back on the drug knowing the risks. Unfortunately, I peed gravel constantly, oddly without pain, but it was a warning. I'm now off the drug. If it did not cause me that side effect, I would have remained on the medication as it was, again, close to 100 percent effective. Not everyone responds the same way; your experience will probably be different."

   
8.0

Mark B. (taken for 6 months to 1 year) May 6, 2017

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Topamax (topiramate) for Seizure Prevention: "Switched to this after getting a nasty mouth rash from Lamictal--and would rather have that that than all the stuff I have to deal with from Topamax... 24/7 EXHAUSTION, breakthrough seizures daily, horrible horrible memory loss (will have taken my medication and no more than 10 minutes later have to count all the tiny things to see if I've taken that half days dose). Living a miserable life on this medication, cannot wait to get onto something else. Tried to give this a chance and it gave me nothing but a terrible time, almost like being unmedicated with a constant dead leg&arm, UGH. I'm a small person in general so the weight loss was not a welcome change either. Topamax does nothing!!! for my complex partials seizures or epilepsy."

   
1.0

mygcem May 6, 2017

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For Migraine Prevention: "I was prescribed this medication for my headaches from a possible concussion, or pinched nerve in my head. In just 4 days I lost 6 pounds or so, and have had all the symptoms: memory loss, confusion even to every day things (like why am I picking this coffee cup, or how do I cook this again?) blurred vision, and the crazy menopausal-emotional-roller coaster #understatement. Except drowsiness, and to some others here, severe depression. My possible concussion (whatever may be) keeps me wide awake, and what I like to call "wired" I was hoping for the drowsy effect, but it what it is. If you are paranoid, relax, its the drug, or just call your doctor for clarification. It seems, less active you are, the less side effects occur, at least for me"

   
10

Netminder101 (taken for less than 1 month) May 4, 2017

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Topamax (topiramate) for Migraine Prevention: "I've been taking this med for almost 10 yrs now. I started when I was 18 it was the first drug my Dr tried...I am almost 28 and I am so upset looking back that I didn't ask more q's or realize that this was the issue. I started at a min dose but I was eventually up to 300mg/day. I thought nothing of this because if the Dr wasn't worried, why should I be? I had been to 3 different Dr that never asked me if at that dose I was having memory problems, etc. I don't remember anyone telling me the major side effect was memory problems, brain fog, etc no kids... I went through college thinking there was something wrong with me My new Dr has put me on something else that is safe if my husband and I get pregnant. She also was in shock that for migraine prevention I was taking such a big dose."

   
2.0

Bella521 (taken for 5 to 10 years) May 2, 2017

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Topamax (topiramate) for Migraine Prevention: "5/1/2017 - I was on Bystolic for BP treatment and it caused me to gain 30lbs. I suspect the high blood pressure was due to use of e-cigarette. I put the e-cig and the bystolic down!! Dr. put me on Topamax 100mg and Wellbuterin 300mg help with the headaches and weight loss. As I ramped up from 25mg to 50mg of Topamax I noticed significant changes in my behavior as did others. I cried continuously and at the most ridiculous things. I was short tempered and wanted to be left alone (to cry). Side notes..it made my face feel numb, carbonated drinks tasted funny, vision was funky and did zero for weightloss. As a mom of 4, I can't continue this medication. 30-40lb weight loss is not worth living this way. "

   
1.0

BusyMomof4 May 1, 2017

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Topamax (topiramate) for Migraine Prevention: "Now in my late 50's, I have been a lifelong migraine sufferer. My new neurologist recommended Topamax (FDA approved for migraine therapy). I am going on week 3 with promising results...for the first time in years I am waking up to no headaches and am not getting headaches as the day wears on. I'm sleeping better. I am experiencing a slight problem with focus/concentration but am told that this side effect should subside over time. Providing the side effects are minimal and non-intrusive, I can see staying on this medication-I'm hopeful."

   
9.0

Anonymous (taken for less than 1 month) April 30, 2017

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For Obesity: "I started Topiramate on March 30 th also alone with Phentermine 15 mg I was not convinced even though all the results I had read were good. I'm 27 days into the diet an I've lost 14 lbs. I weighed 169 anx now down to 155lb I need to lose at least 25 more. I have deteriorated disk and extra weight really makes a difference in your back. I use to weigh 125lb over the years I've gotten to were I can't do very much walking or exercise I'm so thankful my Dr put me on this I can't believe it the Topiramate at nite what really made the difference I was up and down during the nite eating now I eat jello and a little whipping cream that's it. I don't get hungry during day but I do eat. I did have some side effects but after about 5 to 7 days they went away. It Works Thanks"

   
10

lilybugget April 27, 2017

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For Obesity: "Taking topiramate 50 mg daily plus phentermine 15mg daily (Qsyemia) combo plus weight watchers and walking. Lost 50 pounds since mid-November. this med combo works great! helps me not think about food all the time. I was a snacker and will always be one, so I will probably be on this combo for a long, long time..."

   
10

Lalalalalala20172017 April 24, 2017

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For Bipolar Disorder: "Been taking for 3.5 years. Total godsend when I first started during a depression; I felt a calmness I'd never felt before. Got the weight loss side effect, & eventually managed to drop the 70 lbs. that I'd gained from other mental meds (karma!). Starting side effects were hard: Was nauseous 1st week & felt like someone had kicked my butt; the successive titrations over the next few months were the same, minus the nausea, lasting a week or less. Side effects afterwards: I'll occasionally get pins & needles in fingers, slight name/word recall issues but no serious case of the stupids unless I go above 150mg, & constant thirst/ dry mouth. Only 8 stars cuz I'm not sure it's working anymore (possibly cuz pharmacy switched brands)."

   
8.0

Gone Bananas (taken for 2 to 5 years) April 22, 2017

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For Migraine Prevention: "Started on Tuesday of this week so excited to try something different since I had been on bupap for years. I took it around 230pm right after my yearly visit. Around 630pm I couldn't see in my left eye it was so blurry I had to close one eye to read. I was also confused felt like a child on ritalin. I was slow pace doing things. I didn't eat, soda tasted flat. Wednesday I woke up with stomach pains blurry vision diarrhea and nausea..what a day to start. No motivation, ringing in my ears, light sensitivity I'm just plan through with this meditation..Thursday today I'm off but still have the side effects I don't know how long it will wear off. But I'm going back to bupap. Screw this that medication is for people one flew over the cuckoos nest!"

   
1.0

Spidermandy (taken for less than 1 month) April 20, 2017

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For Obesity: "I'm calling this the 'Closer to Perfection Drug!' All since March 13/2017 - Taking 200mg now - Psoriasis has deminished substantially!!! - Went from wearing my hubby's 3x to men's L ( loose fit shirt too!!!) - No more migraines but I have a pressure system in my head like old men do in their knees when storms are coming! (Never wrong on this one) - The trick to all this, I work WITH it. I don't expect the pill to do it all for me. I drink 2-3 liters if not 4 a day and I eat healthy. I have a big protein breakfast and I have a smaller dinner. I exercise. - I have cheat treats but watch my sodium every day. It helps. Take care of your body and it will take care of you in return!"

   
10

Michalle (taken for 1 to 6 months) April 20, 2017

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Topamax (topiramate) for Migraine Prevention: "ONLY 25mg/day 2nd try. Lasted 3 days. Whoa just whoa! Within 1 hour my pain lessened but side effects were already producing. First my vision got really distorted. I couldn't focus on command at all. Then my bottom lip wouldn't stop tingling with a numb feeling. I got extremely dizzy, felt out of it. So I thought let me lay down. Feel asleep 15 min.. Woke up thought an hour passed was completely out of it. Whole left side of face felt palsy completely numb. Tingling/numbness arms, hands, legs + feet. Next day visual less but symptoms still there. Then the suicidal thoughts and worthlessness came. I made it one more day. Missed a day. And took following day. I can't do anything on it. Comatosed n psychiatric mind games. DONE!! I'm better w/o it"

   
2.0

Dest1979 (taken for less than 1 month) April 19, 2017

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For Migraine Prevention: "I have been taking this medication for about 5 weeks now. Regarding the migraines, I have only had one and this is because I was over tired (not a trigger but felt terrible and it was more a bad headache). I suffer from cluster headaches/migraines and have done since about the age of 12 for about 25 years (now 38). Pretty healthy otherwise, normal weight, would like to lose 7lbs (like most) but had Xmas weight to shift. I was put on 25mg a day - at night. Wow, did I experience the crazy side effects! But, these were to be expected. Appetite reduced, about 7lb lost, until Easter...5 day binge! But, hope to get back on track. Will report back soon"

   
8.0

dizzyBee (taken for 1 to 6 months) April 19, 2017

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Topamax (topiramate) for Obesity: "I weighed 230 pounds and felt like a cow.. I started off on 25 mg 1x a day and noticed no change. So asked doc to change me to 100 mg twice a day. I just take the 200mg at once. That's when I finally noticed a change. I've lost 45 pounds in 6 months! I'm continuing to lose and my goal weight is 160 since I'm tall so only 25 more pounds to go. I noticed at first pop tasted different but now it tastes fine. I used to love beer but now I don't want it..which is fine since it's so fattening lol. I only eat once or twice a day and the carb cravings are gone. I don't exercise much at all. I have no side effects at all. I'm so glad I found this medication it really has been a miracle. :)"

   
10

Miracle1Lady (taken for 1 to 6 months) April 18, 2017

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Topamax (topiramate) for Migraine Prevention: "I was diagnosed with vestibular migraines in 2010 and I had severe 24/7 vertigo. I always had "regular" migraines since I was a teen, but after an infection of the inner ear in 2010, my migraines changed and I had both pain and vertigo. For one year I had constant vertigo and I honestly thought I would become housebound. I could not go to theatres, malls, stores, or any areas with lots of people because crowds would make me dizzy. My work was in jeopardy. I tried Topamax and it gave me my life back. The initial side effects were awful but my body slowly adjusted to them. Eventually, the dizziness went away. I now take 225 mg daily. I have some word finding and concentration problems but that sure beats 24/7 vertigo."

   
10

Scarlettsun (taken for 5 to 10 years) April 11, 2017

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For Seizure Prevention: "I'm the only person in the World that gained weight while taking this med. 25mg 2/day for 10 months, gained 30lbs."

   
7.0

Dick Head April 6, 2017

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For Bipolar Disorder: "I have been on Topomax for bipolar II disorder, with lamictal. However Topomax has been a life saver for me. I tend to have racing thoughts and impulsive behavior, as well as bouts of irritability and anxiety, I am also on nuvival which can exacerbate anxiety and klonipine as needed. I am quite used to the cognitive changes, they do not make you stupid. Misconception. Intellectual level is unchanging. However, I had to learn to compensate for word find instances, word pronunciation and some fatigue. I should probably take half in day, but I have days fatigue but would rather not due an extra klonipin added to night dose. But this may be needed. Don't let the bad experiences stop you, we really have to experiment to find what works for us"

   
10

CM Sutton 1966 (taken for 10 years or more) April 6, 2017

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