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User Reviews for Topiramate

Also known as: Qudexy XR, Topamax, Topamax Sprinkle, Topiragen, Trokendi XR

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Topiramate.

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Condition Avg. Ratings Reviews Compare
Seizures
9.0
   
11 reviews 49 medications
Obesity
7.7
   
148 reviews 62 medications
Bipolar Disorder
7.4
   
94 reviews 30 medications
Diabetic Peripheral Neuropathy
6.8
   
9 reviews 41 medications
Bulimia
6.8
   
11 reviews 7 medications
Trigeminal Neuralgia
6.8
   
12 reviews 9 medications
Tourette's Syndrome
6.5
   
4 reviews 7 medications
Fibromyalgia
6.4
   
33 reviews 20 medications
Seizure Prevention
6.3
   
58 reviews 32 medications
Migraine Prevention
6.2
   
477 reviews 29 medications
Borderline Personality Disorder
6.2
   
5 reviews 0 medications
Vulvodynia
6.0
   
2 reviews 9 medications
Smoking Cessation
2.0
   
3 reviews 18 medications
Summary of Topiramate reviews 6.5 867 reviews

Reviews for Topiramate

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For Migraine Prevention: "As a migraine prevention it worked wonders for me, hadn’t had a migraine since I was put on them 3 months ago! Now here’s the downside...I’ve had to come off them as they’ve made me severely depressed, paranoid and I would cry over the slightest thing, I haven’t got the energy or I can’t be bothered to do anything! So back to speak to my neurologist to find an alternative."

   
6.0

Squeeze (taken for 1 to 6 months) February 18, 2018

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For Bipolar Disorder: "On Topamax 8 years. 200 mg daily. Bipolar 1 with psychotic features. It levelled my moods and I lost 165 pounds in 20 months. Maybe a little brief mental fog rarely, but I can live with it."

Jallo February 17, 2018

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For Seizures: "I was put on this for epilepsy. It has stopped my grandmal seizures. That's cool. Being in combo with keppra. But it was also supposed to help with weight loss. It hasn't. I have been on it starting in November at 25mg every two weeks adding another 25mg. Till now its at 100 mg in morning and 100mg at night. And that dose has been for a month now. Still no weight loss. When will I see weight loss?"

Bayba (taken for 1 to 6 months) February 16, 2018

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For Migraine Prevention: "Trokendi has work wonders for my migraines. That being said, why can't there be a migraine prevention that does not affect hair or having it thin out??"

   
7.0

Lisa RB (taken for 1 to 6 months) February 10, 2018

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For Trigeminal Neuralgia: "Drug worked fine but side effects almost killed me. I had over 73 kidney stones, two stents and 2 laproscopic Treatments. My renal doctor and urologist couldn't figure out why. Then I saw a magazine article, topamax now used for headaches at 25mg Caution-May Cause Kidney Stones. Was never a warning when I was on 375mg. Stopped it and never another Kidney Stone."

   
1.0

KenWoods (taken for 2 to 5 years) February 9, 2018

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Topamax (topiramate) for Seizure Prevention: "My doctor put me on Topamax because I could no longer afford Lacmictal for my bipolar disorder. It was the worst experience of my life. It gave me a severe headache, loss of coordination -- if I was walking forward I would suddenly start waking on my tiptoes in a sideways direction. I couldn't spell or form sentences. I had slurred speech and my eyes were glazed over. I also had mild anxiety the whole time I was on it. The only good thing was that I literally had no appetite and lost a lot of weight. I only took it for about ten days week and went back to Lamictal. I'd rather be poor than have to be on Topamax"

   
1.0

Butterbean63 (taken for less than 1 month) February 5, 2018

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For Migraine Prevention: "Having come off Propranolol as it ceased to be effective in controlling my migraines I was prescribed Topiramate by my neurologist. I was started on a low dose which was increased over time. I didn't notice any substantial improvement - I still needed to take Sumatriptan - but what I did encounter was a whole heap of side effects: inability to form words; struggling to complete a sentence because I couldn't remember the word I needed; slurred speech and my mind being foggy and my memory being non-existent. Those were the ones which caused me the most problem. I also experienced more anxiety and irritability. However, my wife and son noticed me losing my temper (something I never used to do) and I became aggressive and snappy and generally not a nice person to be around. I eventually saw my GP and agreed a timetable to wean myself off the drugs."

   
1.0

Marc59 (taken for 1 to 6 months) February 2, 2018

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For Obesity: "I have been on Topiramate for 4.5 months for appetite suppressant. It has been great! I also am on Weight Watchers and I work out regularly, but I was unable to continually lose weight until I started Topiramate. I did have the side effects of tingling in the hands and feet occasionally, but that has pretty much gone away. It has been my miracle drug. I have lost 25 pounds and and have another 20 or so to go. The weight loss has slowed down in the last month, but I did make it through the holidays losing weight which has never happened before! It doesn’t take all my cravings away, but just helps turn it down some."

   
9.0

Gram Gail January 29, 2018

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For Obesity: "I started taking Topamax & Phentermine back in July of 2016, & when I saw my new Dr.on January 2, 2018, I have now lost a total of 50 pounds!!!! I'm so excited, because I know that the slower I take it off, the more apt I am to keep it off. I'm not quite at my goal weight yet, but I know in time I'll get there."

Shortbrowneyedgal (taken for 1 to 2 years) January 29, 2018

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Topamax Sprinkle (topiramate) for Tourette's Syndrome: "after taking it makes my blood pressure low"

   
2.0

Cobra1414 January 22, 2018

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For Diabetic Peripheral Neuropathy: "I was prescribed topiramate for neuropathic itch. Continuous itching all over my body caused by damaged nerves. I got every bad side effect. I can't remember simple things. I'll go to do something and forget what it was. I misspelled my own name. I had a 4.0 in high school and suddenly I can't spell.... I feel like I have dementia. My thoughts escape my mind so frequently I can't have a conversation with anyone. I feel dumb. My eyes hurt. My hair is coming out in large amounts. I want my clarity and my health back. This medicine really should not be on the market. I will never take another medicine again! It helps block the nerves but the site effects aren't worth it."

   
3.0

SuddenlyASimpleton January 11, 2018

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For Obesity: "My shrink gave me this pill to stop my binging I am overweight right now I am 186 lbs and my goal is to get to 135 lbs So I started this medicine yesterday It is too early to say if it works but I am happy I have not seen any side effects on me. I am also taking escitalopram, Lexapro 100mg a day because I had panic attacks. At first I thought Topiramate was gonna make them reappear but it did not so I am happy. I am still hungry all the time but My stomach hurts and I am going to the bathroom every time I eat anything. I am still waiting for it to do some effect I am slowly going up with my dose I am on 25 mg twice a day and in 4 days I will start with 50mg twice a day and then 100mg twice a day... so I guess that's where I'll feel it"

   
6.0

bingeeater91 (taken for less than 1 month) January 4, 2018

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For Bipolar Disorder: "Topirimate nearly killed me! I was put on it by a psychiatrist who never saw me again after prescribing it. I suffered severe weight loss and lack of appetite- I went from a healthy size 10 to 48 kg and was almost size zero. After discontinuing topirimate I began having bulimia symptoms and am sure I would have starved to death if I wasn't taken off it. It did not help my depression or other bipolar symptoms. It made me not able to empty my bladder properly resulting in kidney stones and severe urine infection. I would urge anyone considering taking this drug to do your research into physically devastating side effects carefully and only do so with regular monitoring by a psychiatrist and not for it to be left to GP to monitor."

   
1.0

Rted (taken for 1 to 6 months) January 3, 2018

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Topamax (topiramate) for Obesity: "It’s a little early for a review. It’s currently December 27th, 2017 and started Topamax on Dec. 7th. It’s been 20 days and I am a total binge eater. I’ve never been overweight, it’s not even in my genes to be overweight. I’m going through an extreme depression and being on over 12 different medications the past 5 years has been rough. I was 115-120lbs all the way up until I was 18. Started getting medicated when I was 18 and started gaining ever since. It’s normal to gain weight with age obviously, i’ve seen just about everyone I graduated with has gained weight. I blame Seroquel for my weight gain. HOWEVER. I weigh 161lbs starting topamax, it’s been 20 days, haven’t shifted in weight. Will post update later on."

   
7.0

heyitsmeee (taken for less than 1 month) December 28, 2017

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Topamax (topiramate) for Migraine Prevention: "WOW! AMAZING! helped with migraines so much!!!! I really hope it helps curb my appetite like others have said! i’m 5’3, 163lbs and have the most severe back pain from fibromyalgia."

   
10

Mereanne (taken for 1 to 6 months) December 28, 2017

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For Migraine Prevention: "Started a little over 2 weeks ago. 25mg twice for a week & went up to 50mg twice a week. No migraines since! My migraines use to last from 5 up to 48 hours! I’m sure others are wondering about weight loss: I usually eat A LOT, esp snacking at night. In the past 2 yrs I gained plenty of weight cause of it. Also due to my anxiety. 50lbs to be exact. I read reviews that people lost weight within the first few days & I was so optimistic! However for me it took two weeks before I noticed & I’ve only lost 4 pounds so far. I was eating a lot until about yesterday. The only “bad” side effects I get are a dry throat, needing to ALWAYS drink wter & peeing a lot. I recommend whoever takes this to take multivitamins (w calcium, iron, vitamin D) & omega 3"

   
9.0

Yeezus88 December 13, 2017

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For Seizures: "I used topamax/trokendi for seizures it works wonders considering I have uncontrolled seizures. I have only taken it for 3 months and also lost 10 lbs in it as well I am back to my pre baby weight which I wasn’t even trying but that’s a blessing in disguise. I’m finally experiencing some relief considering the misery I live in on a daily basis which if you don’t have seizures you’ll never understand the pain and suffering"

Seizures and migraines (taken for 1 to 6 months) December 9, 2017

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Topamax (topiramate) for Obesity: "First- there is absolutely no difference between brand and generic. There can't be legally. It is the same active ingredient and the same strength. It's just the name and cost and inactive ingredinets. This being said... I don't understand where negative remarks come from. This medicine is amazing. I took it a while ago then asked to be changed to something else. I gained 20lbs and the other med didn't so anything. So I asked to be changed back. My leg muscles hurt and I have a few word issues but it's an amazing medicine."

   
9.0

Teetzytotz December 4, 2017

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For Migraine Prevention: ">>>A MUST READ<<<If you are thinking of taking ----Topiromate ER. I would NOT recommend to anyone to take Topiramate ER. In my personal experience, I started taking it, on a Thursday, took the second on on Friday and on Saturday night when getting up I experienced severe dizziness, felt like I had to throw up as well as could not even open my eyes because the room was spinning. Worst feeling I have ever had in my life. When I awoke this AM (Sunday) I still felt dizzy when I simply sat up from bed and still was experiencing mild++ dizziness and did not feel well. Trust me and DO NOT take this medication."

Tara H L H (taken for less than 1 month) December 3, 2017

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Topamax (topiramate) for Obesity: "My original intent with Topamax was never weight loss, (mood) nor would have I ever believed the results I've obtained 19 months later. Quick negatives-my mental agility decreased significantly, I misspell my own name; most food & beverages taste like rubbish; and, the generic version is subpar. I was always overweight, I'm mid-30s, male, & slimmed from 275 to low 180s, size 42 to 32, XXL to L. It stays off! Still drop a few lbs. every month. However it's impossible for me to get off, I tried once and I went into a severe depression, but I'm a healthy weight now with perfect blood pressure."

   
7.0

crazydude81 (taken for 1 to 2 years) December 2, 2017

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For Migraine Prevention: "Just started yesterday at 25mg for one week then will move up to 50mg second week.I had a good day not tired except now very tired but it's 7:30 also taking tons of vitamins to help reduce all possible side effects. I will keep you posted current weight 135kg although taking for migraines I would love to lose some weight in the process even if it's a pound a day. Definitely not starving today small breakfast, small lunch, small dinner in good."

   
4.0

Deemal November 29, 2017

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For Obesity: "I started at 25 mg and slowly increased to 100 mg my appetite is much decreased . I do still crave sweets but find I have more control. I have went from 175 to 153 in 5 months and am still losing weight. I don't exercise and try to eat healthy which I do believe helps"

   
8.0

Cg12 November 23, 2017

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Topamax (topiramate) for Migraine Prevention: "Have been on Topamax 100mg twice a day since July of this year. Once in the morning, once in the evening. Have been a chronic migraine sufferer for at least ten years. Having at least 8-10 migraines per month, lasting at least 24 hours at a time. Unable to leave dark room and often ending up in hospital. Dr started me off on 25 mg twice a day, gradually working me up to 100 mg twice a day. This is the best thing that has ever happened to me!! migraines are down to about 1 to two a month. I can actually live my life!!! Yes, I have lost about 30 pounds since July (almost 5 months) luckily, I had it to lose. But I feel like a new person! Memory was slightly foggy at first but body adjusted and I feel great!!"

   
9.0

neely52 (taken for 1 to 6 months) November 22, 2017

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For Diabetic Peripheral Neuropathy: "I actually take it for my Psoriatic arthritis for neuropathy. Took only 30 for days worked great but my blood pressure went from 128/78 before starting to 178/116 the day I stopped it . My Doctor told me it probably wasn't the Trokendi XR because there is no listing of raising blood pressure in the list of side effects, but 1 week after stopping it my BP is back to normal . USERS BEWARE !!!"

   
1.0

PiggyMom (taken for 1 to 6 months) November 18, 2017

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For Migraine Prevention: "Started taking this drug 25mg to help prevent migraines. After 1 month was advised by my doctor to increase to 50mg. Whoa!! This was the worst thing I could have done. Side effects kicked in massively so I decided to stop taking it not realising I needed to wean myself off slowly. I went into cold turkey and had to go back on to 25mg to settle the side effects down and then slowly come off altogether. HORRIFIC!!This has been the most awful experience of my life. NEVER EVER WILL I TAKE THIS AWFUL DRUG AGAIN"

Kenny boy (taken for 1 to 6 months) November 17, 2017

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