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User Reviews for Topiramate systemic

Also known as: Qudexy XR, Topamax, Topamax Sprinkle, Topiragen, Trokendi XR

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

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Condition Avg. Ratings Reviews Compare
Seizures
8.6
   
12 reviews 50 medications
Tourette's Syndrome
7.7
   
7 reviews 7 medications
Obesity
7.6
   
160 reviews 62 medications
Bipolar Disorder
7.4
   
101 reviews 30 medications
Borderline Personality Disorder
7.3
   
7 reviews 0 medications
Diabetic Peripheral Neuropathy
7.1
   
10 reviews 41 medications
Bulimia
7.1
   
13 reviews 7 medications
Trigeminal Neuralgia
6.8
   
12 reviews 9 medications
Seizure Prevention
6.3
   
61 reviews 33 medications
Fibromyalgia
6.3
   
37 reviews 20 medications
Migraine Prevention
6.1
   
506 reviews 32 medications
Vulvodynia
6.0
   
2 reviews 9 medications
Smoking Cessation
2.0
   
3 reviews 18 medications
Summary of Topiramate reviews 6.6 931 reviews

Reviews for Topiramate

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For Migraine Prevention: "I am a doctoral student that has carried an A average and ran my own business for 6 years. I started having double vision, memory loss and constipation. My grades declined. I had to wear glasses the first time ever. Even with glasses I still see blurry. I struggle to receive B's in my courses, and no longer work my own business. I have gained 30 pounds in 4 months, look 8 months pregnant and cannot have a bowel movement. A trip to urgent care showed that my stomach and intestines are full and paralyzed. Dr called me this evening and told me to go to er immediately. X-rays showed I have Ileus and my stomach and small intestines are much over extended. I have no blockage but my intestines are paralyzed from constipation resulting from taking this drug to long. I am getting dressed to go now but wanted others to know that unless your condition is serious, take something else for headaches. Loss of memory, eyesight and bowel movements is not worth the trade off."

   
1.0

Jenny November 5, 2018

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For Migraine Prevention: "I was prescribed Topamax for migraine prevention. I have low grade migraines that I treat with sumatriptan. After 3 nights of taking 25mgs of Topamax I had a very strange experience whilst in a work meeting. Very scary. Not sure how to describe it but not exactly light-headedness, more a warping feeling in my brain. I also experienced feeling in steady, brain fog, (couldn’t get sharp cognitively), hot flushes, drowsy espeically in the morning, and worried about driving. After 5 nights I stopped taking it. The side effects are very slowly wearing off, I still strange 4 days after stopping. Would advise against others taking this drug."

   
1.0

Janey (taken for less than 1 month) November 4, 2018

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For Obesity: "I have been on Topamirate for 9 months and have lost 50 pounds. I have been fortunate to have very little side effects. I take 25mg 2x a day but we are considering an increase. I also took phentermine for several months and then I switched to vyvanse. I have had BED and food addiction my entire life and I am almost 48 years old. I do weight watchers and I walk on a treadmill 5-6 hours a week. For the first time in my life I don't think about food constantly and I can identify when I am full, it is such a strange feeling. I have always known there was something wrong in my head that kept me from losing and keeping weight off and I am glad I found a doctor that listened to me and knew how to help me. I will probably be on these medications for the rest of my life but I am ok with that, at least I feel that way right now."

   
10

Shelly (taken for 6 months to 1 year) October 31, 2018

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For Migraine Prevention: "I was prescribed this for almost daily migraines. Reading the reviews has been terrifying! I will admit I agreed to take the drug hoping for weight loss as a side effect. I was prescribed 50mg to start at bedtime and at 2 weeks double to 100mg. After all the reviews I decided to go slower than that. I'm mid 40s female with some other health conditions started the drug weighing at 300lb. I started on 25mg at bedtime 5 days ago. I will double to 50mg after 1 week. I'm still having headaches and I'm not expecting them to be gone at this dose. I notice upon waking my mouth is much drier and I am thirsty! My appetite is a bit decreased. Normally I would want a snack of some sort at night and I haven't. My thirst has increased and I have also tried to drink more water weary of kidney issues therefore I am peeing more. No other side effects to report at this time. I am not a soda drinker so I don't know if that would be different or not. Last but not least, I've lost 5lbs as of this am."

   
7.0

Dystoniagirl October 30, 2018

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For Bipolar Disorder: "I’ve used this medication two separate times for different reasons. The first was for a mood stabilizer. I was on it for around 10 months and I was hypomanic but didn’t realize it bc I was in school so I was putting the energy to good use. I ended up cutting my very long hair off to way above my shoulders with layers. It took 3 years to grow out. I’m still pissed.This most recent usage and more traumatic experience was when I added it to my daily meds for migraines. I took 25 mg of topamax for a week then 50 mg a day for 5 days. I stopped completely after having suicidal thoughts. I should have been more prompt to end the medication bc when I started it I noticed I was more alert and my heartbeat was more pronounced, but I really wanted it to work so I thought I just needed to get used to it. 3days after stopping the medication I checked myself in to the psych ward. Oh also I bleached my hair while on it and I hadn’t colored it in over 10yrs"

   
1.0

Bipolar bipolar bipolar October 18, 2018

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Trokendi XR (topiramate) for Obesity: "Horrible side effects!"

   
1.0

Nanny (taken for 1 to 6 months) October 17, 2018

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Topamax (topiramate) for Migraine Prevention: "After trying everything and failing to get my migraines under control, I was at rock bottom. My doctor suggested Topiramate and it has changed my life. I can go out and live a normal life, and not worry what will happen if I get a migraine or how quickly I can get home. My migraines have completely stopped since I have upped the dose from 25mg to 50mg I get some tingling in my legs but I can cope with that if it means no migraines for ever. It’s a miracle drug"

   
10

Emi93 (taken for less than 1 month) October 12, 2018

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For Not Listed / Other: "Got RSD after an operation. Brain quit pumping blood to my foot. Topamax was prescribed to try to trick brain into pumping blood to my foot which it did; however, my memory went. I found myself making notes because I couldn't remember yesterday. I told the Neurologist it was a horror story, all I wanted to eat was sweet stuff and my memory was impaired. I could remember the past but not what happened shortly after started taking the Topamax. I was getting some blood flow to my foot, some feeling coming back but had to get off Topamax. It's been years and I still have no memory recall during the time I was on Topamax. Never take this med. again! Period."

Scott (taken for 6 months to 1 year) October 8, 2018

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Topamax (topiramate) for Migraine Prevention: "I have had migraines for 31 years that were easily controlled by Sumatriptan a few times a month and 25mg of Amitriptyline daily. While now going through perimenopause my migraines became more severe and harder to control. I was taking many milligrams of OTC pain relievers, tried all natural remedies, my life started being controlled by when I was going to get a migraine. My Neurologist prescribed Topiramate Sprinkle Capsules, started 15mg every three days until target dose reached. The first few weeks I was very tired and I did feel foggy, at 45mg I stopped having migraines and I have stayed at that dose for the last four months. Yes, I still do feel a little foggy at times, and I have to take it at night because it makes me very tired, but it really has been a miracle drug for me, and I'm glad I didn't have to take the full 100mg for the drug to work. I did have two headaches while on topamax, but both were relieved by Ibuprofen."

   
10

Happy October 3, 2018

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For Bulimia: "I was just prescribed this because I’ve struggled with bulimia since I was 12 I binge like crazy and with my anti depressants it’s even worse I gained 10 pounds in a week, 30 since June and it’s the first of October now. I started it tonight , 50 mg , taking it with my oxcarbazepine , then Zoloft in the morning A few hours after I took it my hands felt a bit weird ? Kinda numb and then I felt a little sick but I had a really intense hunger, I hadn’t eaten much so I thought I’d try eating some granola but it made me feel like I wanted to hurl , I’m 190 btw and 5’3 I’ll update u guys"

   
6.0

kitty October 2, 2018

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For Obesity: "Lost 11lbs with Topiramate but slows digestive system. Difficult urination with strong urge. Stool shrinks, tootsie roll sized, often none. After taking a prescription my body weight quickly dropped. Off Rx regained weight without calorie increase. Can't tolerate max dose b/c severe muscle/bone pain. Taken Topiramate since 7/24/16 w/initial wgt @ 260.8. Lowest wgt 245.4 on 100mg 2x/day then loss stopped. Discontinuing 11/27/16, set new high 272.2 by 3/14/18. On/off Topiramate 50mg, adding Phentermine 37.5mg 1x/d 8/8/18. Another Rx break on 9/20/18 downto 248.8 9/24/18 then upto 254.6 9/29/18 stabilizing @ 253.2. Yrs of low cal diet w/wgt gain. PCPs can't comprehend. Reduced cal isn't causing wgt loss w/Rx. Digestive slowdown should cause wgt gain. Seeking answers but uncertain of mechanisms or if causing long term damage. Tried many options. Suffer with FM chronic pain. Trying Phen only wgt loss. Increases metabolism? Unlikely long term solution 4 me."

   
5.0

Nightrider (taken for 1 to 2 years) October 1, 2018

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Topamax (topiramate) for Migraine Prevention: "This medicine made me so slow and drowsy...it also made my grades drop tremendously especially in math subjects"

   
1.0

ac (taken for 2 to 5 years) October 1, 2018

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For Migraine Prevention: "I’ve just increased my Topiramate from 25mg to 75 mg daily for migraine prevention. It’s worked wonders. No migraines in the 8 days since the increase. ( that’s a rarity.) But the weight loss is a surprise & my lack of food cravings. Food is one of my biggest joys, & now, I’m happy to say, I’m eating a lot better, making healthier choices, & no headaches! The only reason I’m not scoring this a 10 is the brain fog & lack of being able to string a cohesive sentence together. Everything takes more concentration, esp. driving and any form of semi intelligent conversation!"

   
9.0

Homebody (taken for 6 months to 1 year) September 29, 2018

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For Obesity: "I started on 50 mg twice daily. I started at 177lb and it had been 2 months and 2 weeks today. Today I weigh 151 pounds and have gone from a size 11/12 to a size 7/8. While I went on this to treat migraines the weight loss has been a great side effect and was effortless. It did change some of my favorite food tastes and most carbonated drinks tastes 100% flat. BUT I DON'T CARE ."

   
10

Robyn (taken for 1 to 6 months) September 27, 2018

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For Bipolar Disorder: "I’m currently on Topamax 600mg/day for anxiety/OCD. I’ve been on this for many years for OCD as an off-label use and along with cognitive-behaviour therapy it’s a life changer. (Note: everyone is different and my friend who took this for anxiety had a side effect of extreme anger. I don’t have that whatsoever.) I do have the tingling but it goes away and when I get it I know it’s just the medication and it’ll subside. The big thing for me is memory loss. I work in film so instructions and continuity are important and it’s difficult to share with people that you’re on a medication that affects that without worrying about your career. Another thing is withdrawal. Always remember to renew your prescription ahead of time. This is important for anxiety because for me after day two of not having it I feel like I can’t leave the house. I’m glad my psychiatrist tried this on me. No sexual or weight gain side effects like SSRIs or SNRIs and for me it’s way more effective."

PolydactylKat (taken for 5 to 10 years) September 26, 2018

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For Bipolar Disorder: "I take 150mg Topmax in the morning and 150mg in the evening for bipolar and it works wonders for me. The only side effect I have is occasional tingling/pins and needles in my hands and/or feet, which can be a bit irritating but I am willing to put up with it as I have lost nearly 2 stone in weight since being on this drug. All other medication for my bipolar made me put on a lot of weight so this drug has really helped me. I guess everyone is different and some people are more susceptible to the side effects, sorry to hear some of you are having a hard time on this drug."

   
9.0

Emma September 23, 2018

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Topamax (topiramate) for Obesity: "3 months ago I was 259lbs and now I am 219lbs now. I take topamax daily, and phentermine 1-2 days a week sometimes, and it’s helped not only my mood but my obsessive thoughts about eating and food. I don’t sit and think about it all day long. I also had an energy drink addiction and broke it because all carbonated drinks taste flat! All soda tastes awful!! I do get bad headaches if I miss a dose. Don’t miss your pills. I used to get bad headaches weekly but not since taking this medication- they don’t come around anymore. I’m topped off at 50/twice a day but I’d happily take 100/twice a day. I do get brain farts but after 3 months it’s not as bad."

   
10

Elle (taken for 1 to 6 months) September 18, 2018

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For Migraine Prevention: "I was on Toprimate for 5 months for cervicogenic headaches/Post concussion headaches. I did not notice any difference in my headaches. I started at 25mg, then up to 50mg. I did not have any side effects at 50mg. When I was upped to 100mg, after about 4 weeks my mood completely changed, I was very irritable and felt anxious. Although the medication helped me sleep, I started waking up in the middle of night having panic attacks, completely confused as to where I was and feeling like I was in a dream. This would happen 2-3 times per week. My doctor immediately took me off the medication when I told him about that side effect. I also researched it and found that other people have night terrors from the medication. Everyone reacts different to medications. Hope it works for others, just didn't work for me!"

   
1.0

Kay (taken for 1 to 6 months) September 15, 2018

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For Migraine Prevention: "No noticeable change in pain level, also this medication makes me feel very strange."

   
1.0

Avalon11 (taken for less than 1 month) September 14, 2018

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For Obesity: "Hi folks...It's only been a week on 25 mg x 2 times per day of Topiramate. I suffer Bipolar Depression, PTSD from Childhood Trauma, ADHD and Anxiety. I have had emotional problems and leaning on food most of my adult lifetime. Medications and Mood Stabilisers don't help or episodes of deep depression. I decided this year was it I've seemed professional help. Councillors, Doctors, Phycologists, Therapists. I've always exercised daily. But carry 20 kg of emotional baggage weight. I've had no side effects. No grogginess, numbness. Nothing. I just don't feel hungry at all which is a weird feeling I must say. Considering I usually and still think of food most of the time. I don't know what to do at the moment instead and am cleaning like mad to distract myself from my bad ways. I know getting some weight off will help but its only a band aid and not a solution to my emotional eating disorder. Anyone know of any help I could seek please??"

   
7.0

Rebecca (taken for less than 1 month) September 7, 2018

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For Diabetic Peripheral Neuropathy: "Got this to help with nerve pain and I lost over 50 lbs in 6 months. Ididn't even try. Just didn't want to eat crappy food anymore. Strangest thing really..."

   
10

Doc (taken for 6 months to 1 year) September 3, 2018

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Topamax (topiramate) for Obesity: "I gained a lot of weight from depression medications. They put me on Topamax to fix that. I’ve been on it for several weeks. Twice a day, 25 mg. Now the first day I immediately noticed an appetite change. I haven’t craved food all day, every day. Haven’t craved as much junk or sweets. And I have dropped a little weight. So it definitely works wonders. I am definitely struggling with the side effects so I think I am going to ween off it. As much as I’d love to continue to eat regular amounts and lose weight. The side effects are too much. Before I started this I had tingles in my hands and feet. But this intensified a LOT. I’m also having a lot of head pressure. Tiredness. And I feel functionally slow. I feel like I can’t think, can’t remember anything, can’t do simple tasks. Hopefully there is another medicine that can have the same effect for weight loss & appetite without these severe side effects."

   
3.0

ChronicallyChill (taken for 1 to 6 months) August 25, 2018

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Topamax (topiramate) for Migraine Prevention: "My migraines seemed to get worse with topamax. More frequent too."

   
1.0

thrbbr (taken for 1 to 6 months) August 22, 2018

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For Fibromyalgia: "This is the only thing that has helped my fibromyalgia and migraines. I find that a lower dose works best otherwise the side effects, especially aphasia becomes really bad but 50mg strikes a good balance between helping with the aches and pains as well as migraine prevention without too much off the commom side effects."

   
8.0

Poodding (taken for 5 to 10 years) August 18, 2018

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Topamax (topiramate) for Migraine Prevention: "Reduced my migraines by about 1/3, but also reduced my weight. I struggled greatly with the side effects. As someone who already struggles to keep weight on, the weight loss with the Topamax was too much for me. It was somewhat effective. If you are not concerned about keeping weight on then this will probably serve you better than it served me."

   
6.0

any mouse (taken for less than 1 month) August 17, 2018

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