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User Reviews for Topiramate

Also known as: Qudexy XR, Topamax, Topamax Sprinkle, Topiragen, Trokendi XR

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Topiramate.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Seizures 5 reviews 48 medications
   
9.2
Diabetic Peripheral Neuropathy 6 reviews 40 medications
   
8.2
Tourette's Syndrome 3 reviews 12 medications
   
8.0
Obesity 113 reviews 62 medications
   
7.5
Bipolar Disorder 80 reviews 33 medications
   
7.4
Trigeminal Neuralgia 10 reviews 9 medications
   
7.3
Bulimia 9 reviews 7 medications
   
7.0
Seizure Prevention 49 reviews 32 medications
   
6.7
Fibromyalgia 28 reviews 20 medications
   
6.4
Migraine Prevention 402 reviews 30 medications
   
6.3
Borderline Personality Disorder 2 reviews 0 medications
   
6.0
Vulvodynia 2 reviews 9 medications
   
6.0
Smoking Cessation 3 reviews 19 medications
   
2.0
Summary of Topiramate reviews 712 reviews 6.8

Reviews for Topiramate

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Topamax (topiramate) for Bulimia: "Update: this is an update to the previous review, see below. I have been on topiramate and 20 mg prozac since 3 plus years now. I have been tapering on and off all meds and have to say the combo 20 mg prozac with 100 mg topiramate twice daily does work best. It is not perfect, but I am better. Since I am still quite symptomatic I will have an upcoming visit yet another psychiater who is screening ,me for adult add. There is a possibility that if this is the case a stimulant might actually help me out (after 35 years of treatment refractory anorexia and bulimia nervosa). I keep updated."

Ms treatment resistant (taken for 2 to 5 years) January 16, 2017

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For Bipolar Disorder: "I feel normal and am at my best functionality in years. I've been on 150 mg for 4yrs. I'm so grateful. Hypomania sustained and managed. I sleep 9hours a night ,I own my own business and am a single parent. I'm very calm."

   
10

Anonymous (taken for 2 to 5 years) January 16, 2017

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For Obesity: "I was prescribed phentermine and lost 20 pounds in my first month with that, a crap ton of vitamins, diet and exercise. On my 30 day follow up the doc decided to add 25mg Topomax into the mix. Only lasted a week on it.I found myself experiencing extreme emotions . I took it before bed as instructed, however I did not sleep at all for the duration of taking the pill. My nose would run randomly-like mid conversation with clients at work. I felt high, lethargic, irritable, and when not working laid around like a bump on a log. Not possible to function on this stuff with anything or anyone that required my undivided attention. Thanks to this pill I lost a week of exercise and my to-do things are through the roof."

   
1.0

Kaysong20 January 14, 2017

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For Migraine Prevention: "I was placed on Topamax (aka Topiramate) several years ago for Migraines. For the most part (during that time), it seems to have worked with minimal adverse effects like slight tingling. In late 2016 while I was asleep, I experienced the most awful leg pain (as if my thigh muscle did a flip flop or wanted to rip out of my leg). After various conversative methods which included Vitamin D 5000mg, it was suggested that I cease the Topiramate as a process of eliminating things. It has been 5 days since being off of the medication and the numbness/tingling in that single quadrant of my thigh went away. Now, I have migraine headaches that are coming back."

   
5.0

LRJB January 11, 2017

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Topamax (topiramate) for Migraine Prevention: "I got put on Topamax about 3 years ago, I felt it wasn't helping with my migraines so I took myself off. Then I had a seizure because I didn't have it. So I started back on it and had no luck with migraines. I quit taking it again and more seizures. Ever since I've been on it I have had seizures and they are not in my family at all."

   
2.0

KaylaMichelle January 6, 2017

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For Migraine Prevention: "Side effects in first 3 months included tingling feet, loss of sensation in hands, some minor hair loss, weight loss (11kg), appetite loss, loss of words (especially nouns), inability to taste carbonated drinks. Almost all of these disappeared after 3ish months. I am left with a somewhat reduced appetite, occasional pins & needles and I can't drink fizzy drinks. Weight loss was short lived. Effect on migraines was instant and measurable - reduced severity/frequency. Not to zero, but to a more manageable level. I am left with regular headaches, which I now think are Medication Overuse Headaches which will pass as I reduce painkiller use. I still get menstrual migraines which can be tricky to shift, but with sumatriptan I can usually cope."

   
7.0

oohthesuze (taken for 6 months to 1 year) January 4, 2017

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For Bipolar Disorder: "After so many years of trying I finally start to function as a ( almost) normal human being. Topamax is my lifesaver."

   
10

DebsD January 2, 2017

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Topamax (topiramate) for Migraine Prevention: "Have taken 10mg Topamax for 4 months, I thought I had found a preventative but after 3 months my hair was shedding more then usual. Thought I was stressed out and overwhelmed with small kiddos and hubby deployed, my dermatologist didn't see anything very serious, like alopecia, so I continued. I began taking biotin and vitamins, but hair still kept coming out and scalp was starting to show more. I stopped completely and only lasted 4 days before a migraine wanted to come on. Luckily I took a rizatriptan in time to fight it off. Topamax worked beside the side effects of hair loss, forgetfulness, some leg cramps. Has anyone had any luck with another migraine preventative?"

   
3.0

Dmp1 January 2, 2017

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Topamax (topiramate) for Obesity: "I did/am experiecing the tingling everyday in my fingers, I am not hungry. I did have the brain fog to where I wouldn't drive. I wouldn't make any decisions about anything without talking it over with someone I trusted first. I am now up to 75 in the morning and at bedtime and I still have the tingling but the fog has been lifted the headaches are SO much less BUT I have only lost 3 pounds. Can't seem to stop smoking even with this. Still hoping this will help with the smoking. Wish me luck"

   
7.0

Still here December 30, 2016

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For Migraine Prevention: " I feel robotic - soul less stripped of all motivation and feeling in life. " I do not even feel depressed; I don't desire food. I can be thirsty and not bother getting up to get a drink. I am a zombie. This drug has killed what has made me me."

nobody1234566 December 30, 2016

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For Migraine Prevention: "I've been taking this medication for a little under two weeks. To give you a background, I'll be 20 in a week, and have had migraines with auras since I was about 10. I've had numerous prescription meds, from injections to triptans to hydrocodone, etc, I think topomax makes #13? Anyways, over the last year my migraines have increased in frequency, I'm guessing because of the stress of college, but I get them every week, about twice a week, one right after another( triptans for me usually trigger another migraine) I've been dreading starting this medication, but finally decided to give it ago, as I'm on winter break and quite frankly this is all I have left to try. Literally half of my life has been consumed by this. Right now my right foot is tingling, and my chest hurts, I'm rather dizzy and have been forgetting things all week. I've felt super anxious and down all week, but I haven't had a migraine in 20 days. Sprite tastes flat but I don't really drink soda apart from that so I don't mind, so far this is bearable. I noticed when I went up to 50mg the side effects increased so I'm worried about when I inc to 75 and 100mg, but we shall see. :)"

   
5.0

Maddy64000 (taken for less than 1 month) December 30, 2016

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Topamax (topiramate) for Migraine Prevention: "I loved this medication until it gave me stroke like side effects. The side effects kept getting worst to the point where I couldn't stand up, grasp anything, I talked funny and even messed with my throat to the point of chocking. It is a very dangerous drug with crazy side effects, not worth it. I did loose weight about 15 pounds, because I was never hungry while taking it."

   
8.0

Anonymous (taken for 2 to 5 years) December 21, 2016

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For Obesity: "I am on day 4 now and I am pretty spacey. I feel like I have smoked weed honestly. However, I started at 277 and I am at 272 this morning. I am taking 50 mg twice a day. So I think what I will do since I have to work is cut them in have and do half in the morning half at lunch half at dinner and half at bed time so its not so crazy. Lol. It does cause slight memory loss and a little tingly feeling but its not unbearable. I have noticed I do not want any sweets. I crave fruit. And veggies. Or nothing. I had 36 cookies on my desk Friday and didn't eat one of them... This is very worth it. And the side effects do wear off after a while. Thats how I know its time to take another half. I will update later. Yay I extremely happy!!"

   
10

jsece (taken for less than 1 month) December 18, 2016

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For Obesity: "I gained 60 pounds in under 2 years from being on gabapentin for arthritis and fibromyalgia. I learned I had pre diabetes & asked my Dr to put me on it and she was more than willing. 40 pounds melted off me like butter in less than 2 months no problem, UNTIL... MY LONG BLONDE HAIR was clogging the drain every day in the shower! Long story short, what's the point in being skinny if your bald? I HAD pretty hair, now 3/4 of it's gone and still not growing back! Makes me wonder what other damage it's done. Not worth it!!"

   
1.0

Nancy81269 December 18, 2016

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For Seizures: "Topamax is an uncertainty at this time. I took it decades ago and because no med or mixture of meds controls seizures sufficiently for me I'm circling back. I've noticed major neurological feelings (e.g., tingling) transmitting down my legs to the point that it keeps me awake for many hours, which results in sleep deprivation and then seizure activity. It's not good at night. One reason I stopped the med years ago is because it can cause kidney stones. Not anything I want on top of seizures plus the tingling, foginess, and fatigue caused by Topamax."

   
8.0

stex (taken for 1 to 6 months) December 17, 2016

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For : "Topamax warning: As I type this my phone is 5cms from my nose. I started taking 25mg of topamax 11 days ago. Day 7 I started at about 3pm I started to get fuzzy vision. I do not suffer migraines but had been doing some detailed work that day and thought my eyes were tired. By 7pm I could not see my children's faces, by 9pm I was in ER /A&E with almost total loss of vision. Topamax can cause Acute Angle Closure. A very serious side effect which raises the pressure in the eye. I still have very little vision. I had read all the warnings and thought- it won't happen to me, but it did so please consider very careful if the risks are worth the benefits. For me they were not"

   
1.0

Not Worth Being Blind (taken for less than 1 month) December 16, 2016

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Topamax (topiramate) for Migraine Prevention: "I have only been on it for about 6 days and already seen a incredible difference. I had a headache everyday for a year and a half and got bad migraine about 2-3 times a week. I have not had a migraine yet and my everyday headache has calm down. When I first started it did make me very drowsy but that went away as I got use to it"

   
8.0

allison82802 December 15, 2016

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For Fibromyalgia: "I was put on this for my fibromyalgia and all I do is sleep and still in pain. I would rather be awake and somewhat enjoy the holiday. It also makes me walk like I'm drunk! This is on a do not take list"

   
1.0

Sleep all the time December 14, 2016

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For Migraine Prevention: "I have been on Topamax for a little over a year now to treat severe migraines. I started from 25 mg and slowly went up to 150mg. I used to get 3-4 migraines a week and now they are down to maybe once a month, if that. For that it has been a life saver, but there are a few side effects. The tingling in the hands and feet went away completely after a few weeks on the final dose. but the mental fog is a side effect that stayed. I still have trouble concentrating and remembering things, especially details & sometimes have trouble finishing a sentence. I am a student and I use to get A's all the time and now I can study for hours and will not get anything higher then B. To me this is a price to pay for being migraine free."

   
6.0

Anonymous (taken for 1 to 2 years) December 13, 2016

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Topamax (topiramate) for Trigeminal Neuralgia: "Works well with combine with medical Marijuana. I take them at night 2 in the morning. It let's me be able to sleeps at night. I wasn't able to lay down after a fail MVD operations. Since I started the Brand name topomax it help me a great deal."

   
10

Elisabelle December 7, 2016

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For Bipolar Disorder: "This drug almost killed me within the last four months that I have been on it after taking it for five years, and in my own personal opinion, it should be taken off the market!!! I have suffered from extreme soreness in my stomach, extreme exhaustion where I was sleeping almost all the time from being exhausted, dizzy, irritable, lightheaded, very hot hands and feet, swollen throughout my whole body, extremely agitated and angry (which is out of my true character, as i'm normally quite positive and happy) and I was waking up in the middle of the night with a horrible "quiver" in my throat that felt like oxygen was being cut off until I sat up and calmed down until it passed. THIS DRUG SHOULD BE BANNED!!!!!! IT'S POISON!!!"

   
1.0

Sunny.p. (taken for 5 to 10 years) December 4, 2016

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For Migraine Prevention: "I've been using Topiramate for over a month now. I'm 50 years old, female and have hypothyroidism taking 150mcg of Synthroid daily. I suffered from increasing frequency and duration and intensity of migraines. In the past year the Immitrex wasn't working as it used to so my doctor prescribed Topiramate. I'm up to 50mg per day. The only side effect I've had is mild dry mouth. And no migraines. None. I went from 2 or 3 a week to ZERO migraines in over a month. I am very happy with this medication. The only reason I gave it a 9 is because I'm a tough scorer. :)"

   
9.0

JoanneESSEX (taken for 1 to 6 months) November 30, 2016

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Topamax (topiramate) for Seizure Prevention: "I've been on this for over a year. Works very well. I have one side affect, tingling in my feet. I eat alot of greens and bananas to help with that. I lost 45 lbs because of it as well. I take Vitamin B-12 to help with my memory because of the seizure meds...like every seizure meds can affect your memory."

   
8.0

Annloss1970 November 23, 2016

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For Migraine Prevention: "I've been on Topiramate for 3 weeks now and my migraines have stopped. I had them everyday. And I lost weight 5 pounds in this 3 weeks. Coke taste weird too not the same taste. I've notice I eat less junk food as well. So I'm happy with it."

   
10

Adryc November 22, 2016

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Topamax (topiramate) for Migraine Prevention: "Been on this for just a week now at 25 mg also on 50 mg of amitriptalyne of a night. The first few days I felt really spaced out, but sort of kept coming in waves through the day. I also suffer from m.e as well but have found the past few days I have had lots of energy. I don't feel tired at all. Supposed to up dose to 50 mgs on second week, but I'm thinking may stick to the 25 for a little while to see how things go. No migraines up to now. Reading all the reviews most of the side effects seem to come when the dose is increased. Really worried about the hair loss business, don't think I could deal with that one . Think I'm going to give this a go for a few months and see how things go, it's all trial and error, or kill or cure."

   
4.0

Krissies November 21, 2016

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