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User Reviews for Topiramate

Also known as: Qudexy XR, Topamax, Topamax Sprinkle, Topiragen, Trokendi XR

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Topiramate.

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Condition Avg. Ratings Reviews Compare
Seizures
9.0
   
9 reviews 49 medications
Tourette's Syndrome
8.0
   
3 reviews 7 medications
Obesity
7.7
   
141 reviews 62 medications
Bipolar Disorder
7.5
   
92 reviews 30 medications
Trigeminal Neuralgia
7.3
   
11 reviews 9 medications
Diabetic Peripheral Neuropathy
7.2
   
8 reviews 41 medications
Bulimia
6.8
   
10 reviews 7 medications
Seizure Prevention
6.4
   
56 reviews 32 medications
Fibromyalgia
6.4
   
33 reviews 20 medications
Migraine Prevention
6.2
   
469 reviews 29 medications
Borderline Personality Disorder
6.2
   
5 reviews 0 medications
Vulvodynia
6.0
   
2 reviews 9 medications
Smoking Cessation
2.0
   
3 reviews 18 medications
Summary of Topiramate reviews 6.7 842 reviews

Reviews for Topiramate

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For Diabetic Peripheral Neuropathy: "I actually take it for my Psoriatic arthritis for neuropathy. Took only 30 for days worked great but my blood pressure went from 128/78 before starting to 178/116 the day I stopped it . My Doctor told me it probably wasn't the Trokendi XR because there is no listing of raising blood pressure in the list of side effects, but 1 week after stopping it my BP is back to normal . USERS BEWARE !!!"

   
1.0

PiggyMom (taken for 1 to 6 months) November 18, 2017

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For Migraine Prevention: "Started taking this drug 25mg to help prevent migraines. After 1 month was advised by my doctor to increase to 50mg. Whoa!! This was the worst thing I could have done. Side effects kicked in massively so I decided to stop taking it not realising I needed to wean myself off slowly. I went into cold turkey and had to go back on to 25mg to settle the side effects down and then slowly come off altogether. HORRIFIC!!This has been the most awful experience of my life. NEVER EVER WILL I TAKE THIS AWFUL DRUG AGAIN"

Kenny boy (taken for 1 to 6 months) November 17, 2017

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For Seizure Prevention: "Follow up comment, finally got on scale. 25 weight loss so far."

Sunshine_paisley_pink (taken for 1 to 6 months) November 16, 2017

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Topamax (topiramate) for Migraine Prevention: "I've been on Topamax since 2010. I started taking 50 mg but I was given the generic and had a really bad allergic reaction to it. My skin broke out and I had to see a dermatologist. I was eventually given Topamax (the brand name) and I no longer had the allergic reaction. The 50 mg wasn't strong enough and eventually I ramped up to 200 mg. I had weight loss in the beginning (close to 90 lbs, which I could afford). I've gained about 20 of it back but I've not lost any since. I do feel that I get somewhat spacey and suffer from some memory loss. I've asked my doctor if I can come off of the medication beginning next year. I've been on it too long and I am concerned with the memory side effects."

   
8.0

gdhouston (taken for 5 to 10 years) November 9, 2017

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For Trigeminal Neuralgia: "I was given this medication because I have a very complicated case of trigeminal neuralgia and after trying all of the others this was one of the last before surgical options. This drug gave me severe memory problems to the point of needing a memory drug used on Alzheimer’s patients and peripheral neuropathy as I did not have it before and only did while on the medication and it went away as soon as I stopped it. I don’t recommend taking it as I wasn't warned that the side effects can become permanent."

28Elysia (taken for 6 months to 1 year) November 6, 2017

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For Migraine Prevention: "I started taking topiramate for my severe headaches and migraines, and it was very effective in that way. My only complaint is the DRASTIC weight loss. I went from 125 pounds to 98 pounds and I looked awful! I became pregnant with my second child and went off the medication, and I experienced extreme panic and a feeling I can only describe as a “pre-seizure” feeling which made me spiral into panic attacks. I gained 50 pounds during my pregnancy and after having my child, went back on topiramate. Not long after, I was down to 98 pounds again. No thank you!! I am now off the medication and a healthy 120 pounds again. I can’t say that it wasn’t extremely effective, however."

   
10

Kelliii November 5, 2017

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For Migraine Prevention: "After 2 years of terrible 3 days disabling migraines I did have a break from the migraines with this medicine. It took 2 months to decrease pain from 8 to 2. I do have to follow a very strict diet , I use the pre-diabetic diet even though I'm not have diabetes."

   
10

Mmary November 5, 2017

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For Obesity: "1st week - I took 25mg bedtime. now week 2, I'm on 50mg numbness and tingling on my toes and fingers are interesting. I hope its not permanent nerve damage. weight loss? just 2 lbs so far. (10 days) I'm also walking outside regularly, everyday. Appetite...well.... yes and no... better than before, I still want to eat tho. I'm taking it cuz my back pain is too bad to do vigorous work out. once I drop some weight I will definitely do some work out together to build up strength."

   
5.0

vivian2 November 4, 2017

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Topamax (topiramate) for Migraine Prevention: "First of all I have suffered with headaches all my life and at 52 they seem to be getting worse. I found out I have hypothyroidism and the weight gain is horrible. I’ve gained 15 lbs. My doctor prescribed me Topamax at 25mg still having headaches she changed the dosage to 50mg at twice a day. The first day I took one in the morning and one at evening the next morning I woke up with a severe headache... Could it be from the dr changing my dosage on Topamax?"

Kittycatz (taken for less than 1 month) October 26, 2017

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For Migraine Prevention: "I was on a 7 day sample pack and I had my first week free of migraines in over 5 years. Magic!"

   
10

Jayaycee (taken for less than 1 month) October 23, 2017

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For Migraine Prevention: "Terrible side effects."

   
1.0

Anonymous (taken for 2 to 5 years) October 18, 2017

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Topamax (topiramate) for Bulimia: "I lost 10 pounds. I also almost went blind so after a month I quit and my vision returned. I quick cold turkey and had sleep paralysis with hallucinations. It was scary as heck. I was awake paralyzed, couldn't talk could not move. My hallucinations were I was in my room and something picked me up and threw me. Then something touched my back. A evil rabbit whispered in my ear. Then I woke up back on the other side of the room. This drug made me stupid as heck. I couldn't spell, talk or remember anything. My sleep paralysis scared me for life and I still think of the realistic dreams I had for 6 days. Don't take this medicine. It is terrible."

   
1.0

Okaywhocareswhatmyname October 16, 2017

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For Obesity: "Works very well at keeping my appetite under control also while taking topiramate psoriasis almost completely went away about a month after I started taking this medication."

   
8.0

Stepdncer (taken for 2 to 5 years) October 15, 2017

8 users found this comment helpful.
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For Bipolar Disorder: "I have been on Topamax twice now. I don’t typically write reviews for medications, in fact, I never have. I took Topamax at 100mg along with Lamicital 100mg for Bipolar, I slowly titrated off my meds because my doctor and I thought I possibly could function without them. Bad idea. I spiralled into a terrible manic episode where I was sleeping less than 2 hours a night, even on high doses of Ambien and Lunesta. I finally was put back on Topamax 200mg this time and it has saved my life. I feel better than ever. Initially I was put back on 100 mg and I felt better, began sleeping 3-4 hours a night within a week. Went up to 200 mg and within 2 days was sleeping 9 hours a night and my racing thoughts and anxiety had completely gone away"

   
10

Jeaniefrancis October 13, 2017

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Topamax (topiramate) for Migraine Prevention: "I started having daily headaches that turned into a severe migraine as the day progressed. Eventually I would end up lying in bed, in the dark, with no noise, unable to sleep, vomiting from the pain. I was terrified it was my new normal. This was the 1st medication my D.O. prescribed. 25mg for a month. 1st week no headaches. Then they slowly returned but would start a little later in the day. I take 50mg twice a day with 40mg twice a day of propanolol for prevention and it works unless I do a lot of crying. Then I take Fioricet."

   
10

aeralynlayla (taken for 1 to 2 years) October 5, 2017

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Topamax (topiramate) for Seizure Prevention: "Topamax is not for me. I only take 50mg and have side effects, word retrieval issues, sleepiness, balance issues, etc. But it is the only one I can take that my stomach can tolerate! Seeking other avenues to control seizures, like reducing the radiation around me particularly at night...appears to be working!"

   
1.0

Nank (taken for 5 to 10 years) October 3, 2017

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For Obesity: "Prescribed medication for weight loss due to depression medication to made gain so much weight. Originally took 50 mg once a day and now I take 100 mg twice a day. It knocks me out most of the day. I had to decrease it back to 100 mg once to function. I did loose weight. So far went from 195 to 179. I still have 40 pounds to go."

Once Depressed (taken for 1 to 6 months) October 2, 2017

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For Bipolar Disorder: "With side effects of many other meds being a problem I went on this as it worked well for my mom. Dr. explained that genetics play a part in medicine effectiveness as well as diseases. It had an immediate effect on my severe depression. It also helps with mild psychotic episodes during mania for me. (Voices, hearing noises that aren't there) There is a slight tapering of appetite for me that stabilizes after prolonged use. I also have to search for common words sometimes. Pins and needles in my hands and feet, especially when I'm driving or it's really cold outside. Extreme thirst and I rarely sweat, even when working out. ALL tolerable and SO much better compared to laying in bed all day long."

   
9.0

JferD September 22, 2017

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For Migraine Prevention: "I just started Topiramate (Topamax) for my migraines and hand tremors September 20/17 as advised by my doctor with the weight loss being a bonus side effect. So far no side effects a small head ache this morning I currently weighed in at 190 lbs hoping to be back down to 120lb my before kids weight. Will keep everyone posted on how it works for me."

   
9.0

Rayne dancer (taken for less than 1 month) September 21, 2017

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For Obesity: "Currently taking with phentermine. At night. I wake up without the need to binge. I feel like I get a good nights rest also. Went from 172lb to 137lb. 170 days. No adverse effects to report."

   
9.0

PacerC (taken for 1 to 6 months) September 19, 2017

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Topamax (topiramate) for Migraine Prevention: "At first I did not like it at all - I started off on 50mg (recommended) and found it wasn't working. I also was super spaced out, unfocused and constantly feeling like my brain was going but my body wasn't (It was WEIRD). This went on for about a week, then it worked perfectly and I was completely normal. However the migraines started coming back so I am now on 100mg a day and the same thing happened when I upped the dosage. It's working now though! I didn't notice any difference in tasting things but I did get tingles in my fingers and toes! Otherwise all round amazing medicine!!"

   
8.0

Ali Sch September 15, 2017

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Topamax (topiramate) for Migraine Prevention: "I had migraines that lasted up to nine days. My neurologist started me on 25mg Topamax and the frequency dropped off immediately. I actually loved the way I felt on Topamax. I had boundless energy, no appetite, and was always in a good mood. After two years, I decided to stop taking it because my skin was breaking out and I think I felt a little too confident in myself. I drove a little faster, said really odd things to people (no filter) and seemed to be turning into a show off about how skinny I was. Not my best personality! I stopped taking it and didn't gain any weight, but the headaches are back. Once my dermatologist gets my skin cleared up, I might go back on it, but will be very mindful of the side effects."

   
6.0

RockFan September 13, 2017

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Topamax (topiramate) for Migraine Prevention: "I've been taking this medication for almost 2 years now and still get headaches. My doctor just keeps upping the dose apparently it's suppose to be one of the best medications in headache/migraine prevention out there. I also take blood pressure medication as well, so taking this with a fairly high dose should take them away completely, correct? Not completely."

   
7.0

Gypsylady (taken for 1 to 2 years) September 9, 2017

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For Obesity: "I have had good success with weight loss with 50mg Topiramate & a therapist for stress eating. I went from 265lb to 195lb with watching diet in 12 months, walking 2-3 miles/day. Topiramate makes you less hungry, the rest is up to you. (I did get some brain fog.) I took magnesium and biotin, as the reduced appetite can cause nutritional deficiencies in some that can give you hair loss if you aren't careful and the magnesium helps you "go"! If you're taking that Topiramate at night, a small dose of melatonin every few days (if you take melatonin consistently every night your own pineal gland will stop producing it and you'll have more sleep probs!)"

   
8.0

nurseanddogmom September 3, 2017

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For Migraine Prevention: "I was taking 50 mg a day and it really reduced my migraines. I had no side effects except that I lost about 10 pounds, so that was a plus though my weight was normal. My neurologist bumped me up to 75 mg to try to get rid of the last of my migraines, and then a few months later I noticed my hair was falling out just like it did each time when I was postpartum. I'll have to go back down on my dosage to see if that will make my hair come back or if I need to go off it altogether, but it will take years to grow my long hair out again. ;("

   
7.0

AnnaKH August 31, 2017

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