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User Reviews for Topiramate

Also known as: Qudexy XR, Topamax, Topamax Sprinkle, Topiragen, Trokendi XR

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Topiramate.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Seizures 9 reviews 49 medications
   
9.0
Diabetic Peripheral Neuropathy 7 reviews 40 medications
   
8.1
Tourette's Syndrome 3 reviews 7 medications
   
8.0
Obesity 138 reviews 62 medications
   
7.7
Bipolar Disorder 90 reviews 29 medications
   
7.5
Trigeminal Neuralgia 10 reviews 9 medications
   
7.3
Bulimia 9 reviews 7 medications
   
7.0
Seizure Prevention 54 reviews 32 medications
   
6.6
Fibromyalgia 33 reviews 20 medications
   
6.4
Borderline Personality Disorder 5 reviews 0 medications
   
6.2
Migraine Prevention 460 reviews 29 medications
   
6.2
Vulvodynia 2 reviews 9 medications
   
6.0
Smoking Cessation 3 reviews 18 medications
   
2.0
Summary of Topiramate reviews 823 reviews 6.8

Reviews for Topiramate

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For Obesity: "Currently taking with phentermine. At night. I wake up without the need to binge. I feel like I get a good nights rest also. Went from 172lb to 137lb. 170 days. No adverse effects to report."

   
9.0

PacerC (taken for 1 to 6 months) September 19, 2017

1 users found this comment helpful.

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Topamax (topiramate) for Migraine Prevention: "At first I did not like it at all - I started off on 50mg (recommended) and found it wasn't working. I also was super spaced out, unfocused and constantly feeling like my brain was going but my body wasn't (It was WEIRD). This went on for about a week, then it worked perfectly and I was completely normal. However the migraines started coming back so I am now on 100mg a day and the same thing happened when I upped the dosage. It's working now though! I didn't notice any difference in tasting things but I did get tingles in my fingers and toes! Otherwise all round amazing medicine!!"

   
8.0

Ali Sch September 15, 2017

1 users found this comment helpful.

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Topamax (topiramate) for Migraine Prevention: "I had migraines that lasted up to nine days. My neurologist started me on 25mg Topamax and the frequency dropped off immediately. I actually loved the way I felt on Topamax. I had boundless energy, no appetite, and was always in a good mood. After two years, I decided to stop taking it because my skin was breaking out and I think I felt a little too confident in myself. I drove a little faster, said really odd things to people (no filter) and seemed to be turning into a show off about how skinny I was. Not my best personality! I stopped taking it and didn't gain any weight, but the headaches are back. Once my dermatologist gets my skin cleared up, I might go back on it, but will be very mindful of the side effects."

   
6.0

RockFan September 13, 2017

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Topamax (topiramate) for Migraine Prevention: "I've been taking this medication for almost 2 years now and still get headaches. My doctor just keeps upping the dose apparently it's suppose to be one of the best medications in headache/migraine prevention out there. I also take blood pressure medication as well, so taking this with a fairly high dose should take them away completely, correct? Not completely."

   
7.0

Gypsylady (taken for 1 to 2 years) September 9, 2017

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For Obesity: "I have had good success with weight loss with 50mg Topiramate & a therapist for stress eating. I went from 265lb to 195lb with watching diet in 12 months, walking 2-3 miles/day. Topiramate makes you less hungry, the rest is up to you. (I did get some brain fog.) I took magnesium and biotin, as the reduced appetite can cause nutritional deficiencies in some that can give you hair loss if you aren't careful and the magnesium helps you "go"! If you're taking that Topiramate at night, a small dose of melatonin every few days (if you take melatonin consistently every night your own pineal gland will stop producing it and you'll have more sleep probs!)"

   
8.0

nurseanddogmom September 3, 2017

8 users found this comment helpful.

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For Migraine Prevention: "I was taking 50 mg a day and it really reduced my migraines. I had no side effects except that I lost about 10 pounds, so that was a plus though my weight was normal. My neurologist bumped me up to 75 mg to try to get rid of the last of my migraines, and then a few months later I noticed my hair was falling out just like it did each time when I was postpartum. I'll have to go back down on my dosage to see if that will make my hair come back or if I need to go off it altogether, but it will take years to grow my long hair out again. ;("

   
7.0

AnnaKH August 31, 2017

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For Obesity: "Good"

   
9.0

Gooty August 31, 2017

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Qudexy XR (topiramate) for Seizures: "This med side effects outweigh the benefits of it those of us with a fast metabolism have a hard time just trying not to lose any weight have no energy or ability to even remember what you were about to do I only wonder how bad it's gonna get only been on it a year 200mg xr combined with 200mg dilantin twice daily got to be a better way"

Kynewain (taken for 1 to 2 years) August 28, 2017

1 users found this comment helpful.

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Topamax (topiramate) for Migraine Prevention: "I was prescribed Topamax as a Migraine preventative and experienced just about every side effect. I started 25mg/day at night for 7 days, moved up to 75mg after 3 weeks and remained there. Within 48 hours I was didn't have a headache at all, but was experiencing side effects of tingling fingers, no appetite and change in taste of foods/carbonated beverages. I did have a hard time concentrating, I'd get confused and would randomly slur words. I weighted 120-ish when I started and within a few months, was 110 or less. I did work out and noticed no matter how hard I pushed, I didn't sweat and randomly got dizzy. Side effects are no joke, but you adjust after a few weeks."

   
8.0

ChubbyMoMo (taken for 2 to 5 years) August 27, 2017

5 users found this comment helpful.

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Topamax (topiramate) for Obesity: "I'm definitely losing weight extremely fast with this medication. I took 25 mg at night the first 30 days and I'm now on the start of the third month at 50 mg at night, also, 37.5 mg Adipex every morning. With Topamax I CANNOT eat. Everything I eat makes me sick. It definitely changes you're sense of taste and smell which has pretty much stopped my smoking. So, there are huge benefits just the side effects can be a little unbearable at times. I've lost 28.7 pounds in 2 months"

   
5.0

Losing2fast (taken for 1 to 6 months) August 25, 2017

15 users found this comment helpful.

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For Seizures: "I was prescribed Topamax after experiencing 2 seizures from extreme stress, anxiety, and insomnia for an extended period of time. I have a history of anxiety/mood issues, and have tried several SSRI's and other medications with no success over many years. I had given up hope until I tried topamax. Within the first few days I knew something was different. My anxiety was erased for the first time in 15 years. I was happy again, and was looking forward to spending time with people. This medication completely turned my life around. If you are stuck in a anxiety/depression hole with very little hope, please be patient. There is something out there for you. Topamax has side effects, but you get used to them within a month, its well worth it."

   
10

Pearlman4 (taken for 1 to 2 years) August 22, 2017

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For Obesity: "Been obese all my life. Weighed 385 5'5. 30 years old. No kids. Divorced. Made an appointment with new psychiatrist for anti depressants. Uterine Cancer diagnosis a year ago. Dark times. Oncologist won't perform my major surgery because of my weight and complication during prior surgery (had trouble breathing on the table). Dr prescribed me cymbalta for pain and depression and topamax 25mg at night to help lose weight. I lost 10 lbs in 10 days. Keep in mind I had started working out 3-4 times a week for 9 weeks before our appt. I spend 20 mins straight on the elliptical and 20 mins free weights, cardio, low weight high reps. Soda and Coffee tastes like crap to me now and I was addicted to both. I stop eating when I'm full. I feel hungry a lot less"

   
10

Leslie Sierra 210 August 20, 2017

14 users found this comment helpful.

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For Bipolar Disorder: "I was prescribed Topamax for my Bipolar as a mood stabilizer and because all my Paych meds have a side effect of weight grain and I had put on 60lbs in the last two years. So when my Dr. told me Topamax had weight LOSS as it's side effect I was beyond excited to try it and it has been nothing but smooth sailing. I was started at 25mg at night and moved up 25mg every week until now, three weeks in, when Im currently on 75mg and have lost 10lbs already! At 3+lbs a week! What this drug has done for me is curb my sugar and fast food cravings while eliminating my emotional eating and cutting my normal appetite in half. I've stopped all my addictions and binge eating even Alchohol. No bad side effects, but I am closely monitoring just incase..."

   
10

PennyHays (taken for less than 1 month) August 19, 2017

1 users found this comment helpful.

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Topamax (topiramate) for Obesity: "I've been taking the Topamax for over a year now for migraines was on 50mg twice a day now was put on 100mg twice a day helps with the migraines I do have on side effect and that's the drowsiness but as far as a weight medication it has not help me one bit actually I have gained weight on this medication."

   
6.0

belladonna863 August 16, 2017

8 users found this comment helpful.

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For Migraine Prevention: "I was prescribed topiramate for migraine. Within 24 hours of the first dose I felt myself turning into a stressed, unreasonable, depressed, angry & nasty person. After 2 days of getting worse my husband phoned a GP pal who told him to STOP me taking any more. I was OK as I'd only been on it for 3 days, and returned to normal without any side affects, but then started reading online about this killer drug and found how many lives it had ruined. Scary stories. Girls prescribed for weight loss and ultimately the drug destroyed them. Read the side affects before you take this drug! Migraines never seem so bad now!"

Jilly C (taken for less than 1 month) August 13, 2017

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For Obesity: "Hello all I'm new!! Over the last few years I went from 125lb to 184lb. I've been taking topirimate and Effexor for about 2 months. My doctor said I would lose weight and I definitely have but I'm afraid to get on the scale. I feel great as far energy goes. Memory loss, wrong words, etc is real. Just look at that sentence formation... This is the best writing I can do on topirimate. Anyway, when I get enough courage to get on the scale, I'll let y'all know...how much or how little success I've had, thus far!!"

   
8.0

Sunshine_Paisley_Pink (taken for 1 to 6 months) August 12, 2017

10 users found this comment helpful.

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For Borderline Personality Disorder: "This drug is a game changer ! I'm coping daily much better... I was a mess, suicidal a roller coaster of instability and terrible migraines, so far so good. I'm in a place where Dialectical behavior therapy (dbt) can at least sink in .... I'm hoping not to much weight loss cause I'm tiny to begin with. But no side effects so far."

   
10

Yahs girl August 6, 2017

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Topamax (topiramate) for Diabetic Peripheral Neuropathy: "I've been taking 25mg/day for 3 weeks for Nerve damage/back pain . I love this medication! It has some interesting side effects...(I have tried Gabapentin, Lyrica, Tramadol, and Percocet - but had really bad experiences on all of them.) The tingling goes away after a week. hot flashes - too young for this! Mentally in a better place-I was in a depressive funk before taking it. Cleared my head a bit - I actually want to get better now and am walking/making an effort b/c I'm able to b/c my pain is manageable. I still get random shooting pains, but not as harsh. Major con is my hair is falling out!!! any suggestions on hair-loss? Otc supplements I take with it: AZO Cranberry Urinary Tract Health, b12, biotin, pnv, and fish oil. drink lots of water!!!"

   
8.0

MB29 (taken for less than 1 month) August 5, 2017

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Topamax (topiramate) for Migraine Prevention: "Reluctantly started due to reviews to prevent migraines and clear up severe blurry vision...50mg...caused facial tightness, made headaches worse, tiredness, slowness, about to think ok, bouts of tingling, vision somewhat cleared, will be reducing dose to 25mg...we will see how this works out"

   
5.0

Marich (taken for less than 1 month) August 4, 2017

9 users found this comment helpful.

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For Obesity: "I was started on 25mg phen 37.5 mg and naltraxone 50mg the itch was horrendous I wanted to rip my skin off I add to discontinue yesterday my doctor gave me 15mg sprinkle topiramate. This morning sick to my stomach and vomiting my face is red and still itching don't know if I have to stop this one as well... any advice anyone?"

   
1.0

Yogina (taken for less than 1 month) August 2, 2017

5 users found this comment helpful.

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For Seizure Prevention: "I am a 23 year old female with partial complex seizures. I was on 100mg of Topamax, while on 2400mg of trileptal. After two months I started noticing the endless side effects. Now trileptal makes me drowsy enough and I have never had an issue with caffeine and stress before; but out of now where I got a horrible under eye twitch that lasted for (3-4) DAYS. It happened every week through out the 6 months. So I new it was related to the medication. Next was the trouble in speech, not being able to find the right word, stuttering or repeating myself. My short term memory was gone. I would have random pins and needles through out my legs which was probably the only tolerable side effect of the symptoms I had."

   
5.0

side effects for days (taken for 1 to 6 months) August 2, 2017

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Topamax (topiramate) for Seizures: "Was given this for seizures.Yet lost 83 pounds was full diabetic when I started this medicine now I am insulin resistance and my over all readings are 69. Which they are saying not good. I seem to sleep a lot just can't keep these glucose up bone is not hungry. Have to put alarm on phone to eat or I won't eat. Started taking vitamins and juicing to assure I get something in being I am thirty too. Though my eyes are bad in light and memory is like a dream lately. Toes can't feel, fingers tingle, mouth water mean I drool. No headache, smoke less, no seizures, loss weight, no diabetic. Can't have it all I guess"

Awellkepwoman July 31, 2017

7 users found this comment helpful.

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For Migraine Prevention: "I only took this med at the 50mg dose for two days and quit. Felt doped up and nauseous soon after first dose. Next day was completely out of sorts, depth perception was off, felt outside myself, brain fog, headache, shaky, numbness in hands, burning in heals, no appetite, nothing tasted right, pop had no sweetness, next day same symptoms to a lessor extent with a constant tremor, overheating with movement, confusion, mood swings and horrible mental fog, then a headache hitting about 9 out of 10, worse than my average. I decided to discontinue that evening. The next day felt hungover, had light sensitivity, diarrhea and an upset stomach. Next day, the cloud slowly has lifted, my taste buds have not returned yet and pretty fatigued."

   
1.0

Side effects suck July 29, 2017

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For Migraine Prevention: "I started having menopause migraines in June 2014. My doctor started me on 25 mg daily. At first, this medicine helped me but my migraines started to get more frequent. Over the course of 2 years, I was bumped up to 400 mg daily, the max dosage. I always felt that my head was foggy, memory was shot, problems speaking, losing sleep, no appetite and more & more intense migraines. This medicine quit working too. I finally stopped this medicine in March 2017. I immediately noticed a difference in my head. To say this medicine is evil is putting it mildly. Your migraines can get worse while taking Topirimate and unless you pay attention to your body, you won't realize it is the medicine making them worse. Beware when taking this medicine"

   
1.0

catfish63 (taken for 2 to 5 years) July 29, 2017

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Topamax (topiramate) for Migraine Prevention: "I'm writing about my 18 year old daughter who is currently on Topamax. She has suffered from migraines since she was about 12 years old. They would take her out for 2-3 days each, occurring anywhere from 2-6 times a month. When she was first given Topamax we thought it was the greatest medication ever. Problem solved, she felt that the tingling fingers, and face as well as the flat soda taste was well worth not suffering from migraines. HOWEVER - and I can not stress this enough as she increased her dose, she exhibited personality changes. She became depressed and overall just wasn't herself. Thankfully we recognized this and are working with her Dr. to back off the Topamax. We will be looking into other options. Not worth it!"

   
2.0

Jen71 July 20, 2017

9 users found this comment helpful.

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