Skip to Content

User Reviews for Topiramate

Also known as: Qudexy XR, Topamax, Topamax Sprinkle, Topiragen, Trokendi XR

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Topiramate.

Filter by:
Condition DownUp Reviews Compare Avg. Ratings DownUp
Seizures 3 reviews 48 medications
   
9.2
Diabetic Peripheral Neuropathy 6 reviews 40 medications
   
8.2
Tourette's Syndrome 3 reviews 12 medications
   
8.0
Obesity 94 reviews 61 medications
   
7.7
Bipolar Disorder 74 reviews 33 medications
   
7.4
Bulimia 8 reviews 7 medications
   
7.0
Trigeminal Neuralgia 9 reviews 9 medications
   
7.0
Seizure Prevention 45 reviews 32 medications
   
6.8
Fibromyalgia 25 reviews 20 medications
   
6.5
Migraine Prevention 353 reviews 30 medications
   
6.3
Borderline Personality Disorder 2 reviews 0 medications
   
6.0
Vulvodynia 2 reviews 9 medications
   
6.0
Smoking Cessation 2 reviews 19 medications
   
2.0
Summary of Topiramate reviews 626 reviews 6.8

Reviews for Topiramate

Sort by:

Topamax (topiramate) for Migraine Prevention: "have been researching and researching for so many years and I have to say that Topamax saved my life. I am currently 23 years old, and I started having these migraines when I was 15. I didn't know that this would be a lifelong thing that would eventually lead me to be on daily medication. The frequency that I would get them,would be more than six times a month. Anyway, I went on propannalol? (Beta blocker), NO SUCESS. & then doctors prescribed me topamax. I didn't have any side effects. At all. No tingling. Nothing. And GUESS WHAT, I didn't have a migraine for 3 years!!!! NOT ONE. but I got off of it, thinking they were "gone" & now I'm suffering with new hormonal migraines. Going back on topamax & hoping for same results!!!!"

   
10

Over migraines (taken for 1 to 2 years) August 29, 2016

0 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Obesity: "I started againTopomax about 1& 1/2 week ago for migraines and I am down about 8 lbs. I am overweight due to the fact that I just had my last child and I did eat what I wanted to. I did work out before, during, and now after my pregnancy. Topomax has reduced my cravings I absolutely love sweets & southern foods(I'm from the South:) I did occasionally soda but I did regularly drink Izzy a healthy carbonated drink but Topomax makes all carbonated drinks tastes horrible which is great if you have issues drinking soda all the time."

   
8.0

Destined For Greatness (taken for less than 1 month) August 24, 2016

2 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Obesity: "I've been on topomax for 6 weeks now along with walking at least 2 to 3 miles a day sometimes skipping a day or two depending on the weather I'm 40lbs down. Appetite gone, smoothies are enough for me and no snacks. No side effects by the way. 50mg twice daily"

   
7.0

Ms weight loss August 23, 2016

7 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Topamax (topiramate) for Migraine Prevention: "i have been on topamax for a little over 6 years. I started at 25 mg. and slowly went up to 250 mg. I experienced the weight loss, tingling and the other minimal side effects at the lower dose but was encouraged to stay on the meds. As i increased the dose, i started having hair loss, dizziness and "white outs" where i would not be able to see at all for up to 20-30 seconds at a time. I also started having the memory issues. I started seeing a new neuro and we dropped me down to 100 mg. The hair loss stopped but I still get the vertigo. I am now down to 50 mg. I suffer from eye pain in my left eye and still the random dizziness- which is horrible. Weaning off of this - I do Botox injections now for preventative with some relief"

   
4.0

just hurts (taken for 5 to 10 years) August 23, 2016

1 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Bipolar Disorder: "I recently went back to the dr. for antidepressants. She wanted to put me on a mood stabalizer. Most of those cause weight gain so i said not if its going to make me huge. She gave Topamax. Said I will lose weight. Within about 6 months none of my clothes fit so I weighed myself. I was shocked I had gotten back down to numbers I haven't seen since I was a teen. 119-123. I'm 5'2" so to me that's perfect. Food is never on my mind unless my stomach starts growling. I forget to eat. This drug is great for people who have problems with weight. I don't get any other side effects. It doesn't make me a zombie. I take 50mg near bed time. I know it's for seizures & migraine. Sometimes mood. NEEDS TO BE FOR WEIGHT LOSS TOO. highly recommended!!"

   
10

DD420 (taken for 6 months to 1 year) August 22, 2016

3 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Borderline Personality Disorder: "I love the memory loss who wants to remember all the bad crap anyway! As for the good stuff Facebook will remind you with your own damn photos!"

   
8.0

Deckofwylds (taken for 5 to 10 years) August 21, 2016

0 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I started with migraine aged 2 and suffered all my life. Going through the menopause it got worse and I was given Topomax. It changed my life in fact it gave me my life back. I titrated the drug super slow from 5 mg up to 50mg twice a day. The only side effect I had was pins and needles in my hands for several minutes after taking the tablets, that was bearable. Within 3 months I was migraine free. 12 years on I am still taking the tablets and still migraine free. Drugs affect individuals differently so don't be put off by the bad experiences of others even though I feel heart sorry for them. If you are suffering badly with migraine as I was then at least give them a try and I hope they work for you as they do for me."

   
9.0

HappyGran August 20, 2016

1 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Bipolar Disorder: "I couldn't tolerate apiprazole (Abilify) as a secondary mood stabilizer in addition to the lamotrigine, so they added 25mg, then 50mg of topirimate. It helped. A LOT. It stopped the ultradian mood cycling that occurred when they upped my lamotrigine up to 200mg, and it stopped the self-harming urge. ...Unfortunately, it seems to be causing kidney stones. I have a genetic predisposition as it is, and from what I've been told, it causes kidney stones anyway. Looks like they'll be taking me off shortly. I'm going to talk to my new doc about it, given he's the one that's skeptical, and see if there's something to be done about it. Because it really did help me personally. It kept me up at night, oddly enough, but I did lose some weight on it."

   
8.0

KittenCommander (taken for 1 to 6 months) August 13, 2016

1 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Topamax (topiramate) for Obesity: "I've tried in twice. First time about 7 years ago and lost a modest amount of weight easily. I can't remember how much. It made me thirst, so I drank a lot of water and it took away my craving for junk food. Send time was end of May, 2016. 100mg at night. I lost 10 pounds in about 5-6 weeks easily. No desire to snack or eat emotionally. Only downside was that I was anxious a lot. I've now plateaud but at least I'm not gaining weight. I should try to up the dose. At least the anxiety has largely decreased."

   
9.0

Kittensb (taken for 1 to 6 months) August 11, 2016

8 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Topamax (topiramate) for Migraine Prevention: "A very dangerous medication. I was prescribed it for headaches. Many side effects were problems I was already having. I told my doctor about I, and so did my wife on many occasions. The doctor said keep taking it, the good out ways the bad. And if I don't take it. They will not try a new.medication,or see me again. So I tried it for 21 days. Hallucination, didn't no if I was awake or dreaming. Many bad things. Then out of know where. I shot myself under the chin. Some how I survived. After coming out of coma and many surgeries. I did more study on the medicine. I'm 46. In the testing of this drug. 31% of all males between 41 & 49 committed suicide on it. That's one in three males. All within the first 30 days. So I was failed by my the docs"

   
1.0

Ckaz (taken for less than 1 month) August 9, 2016

11 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I was only on this medicine for a week and had a horrible experience. I switched from amitriptyline to topamax for my migraines due to the previous medicine not doing it's job as well. Within the week of taking the new medicine I became completely unable to sleep at night, upset stomach 24/7 and an a horrible level of unquenchable thirst. The no sleep was the worst part; I'm usually a pretty great sleeper, so going from 7-8 hours of sleep a night to maybe 3-4 hours a night was rough on my physical and emotional self. I was advised to stop the medicine tonight by my doctor and cannot wait to return to myself. I even still had migraines while on this medicine. Would not recommend."

   
4.0

Sydmstone August 8, 2016

2 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "Absolutely the worst drug I have ever taken. Caused me to feel like I had taken acid or was on an LSD trip. Strong lingering effects even 4 days after taking one dose. Significant issues with cognitive ability, change in taste, balance, drowsiness, disorientation, nausea, tingling in hands and legs, numb lips. Inability to think and caused hallucinations. Hospitalized 4 days post medication to administer DHE to counteract this drug. DO NOT TAKE this medication. No warnings on the prescription. Asked pharmacist if this would cause drowsiness, slow my mental function or have any adverse effects and he informed me that 200 mg was low dose and I would have no adverse side effects. Based on my research since taking the drug, this is NOT accurate"

   
1.0

MLL August 8, 2016

6 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I've suffered from my first bout of migraine as a teenager to now 49, the last10 moths has been actually hell , Im on blood pressure tablets , levothyroxine , then symptoms started back in April tingling arms legs , numbness , brain fog, memory loss , stumbling, falling over , intolerance to light and sound. Head pain from hell , ear pressure , nausea ect 24 /7 my life was stopping Had cat scan showed I had empty sella syndrome, Migraines lasted daily for 5 months so neurologist paced me on Topiramate and so far wow I slept for 3 days , head pain and symptoms started to go and now I am starting to feel like me again What works for one person , may not work for next but for me so far pain and symptoms have gone ,"

   
9.0

Ali white August 8, 2016

5 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Obesity: "I just started taking this medication I was at a starting weight of 198. My migraines made me very sick and I vomited a lot and lost weight with that down to 186. Started on topamax 25mg in am and pm on July 30. I am now 178. Coke tastes flat so I drink more water I do have tingling in hands and feet but I am glad not to have migraines. The sleep is a problem so I think I will ask for something to help with that. I just wanted help with migraines now I'm losing weight, I got help for both. I couldn't be happier"

   
8.0

Lisserkb August 8, 2016

20 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For : "This medicine completely changed my personality and destroyed my brain and memory. This drug will make you a zombie PLEASE DO NOT TAKE THIS MEDICATION. It made my life a living hell for me and others around me. Please do not even consider this medication. It messes with the electricity in your brain and practically makes you not able to function. I suffered from major memory loss because of this drug. please do not take it."

   
1.0

Topamax Zombie August 6, 2016

2 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Topamax (topiramate) for Migraine Prevention: "I've been on Topimax for going on 3 1/2 months now and met with my doctor twice telling her I absolutely could not be on this medication because I could not perform my job duties at work. I had a very difficult time comprehending very basic stuff. I was put on it for my headaches I've dealt with for near 2 decades. My dr took me off my medication I've been on for 18 years suddenly, which has worked for my heaches, and switched me to Topimax. I decided to push through because I was no longer getting my medication that worked for me and I kept being told that the brain fog would get better wich it has the past 2 weeks. New problem is my hair is falling out in clumps. Every day literal clumps of hair fall out in the shower."

   
4.0

PinkBearsMimi (taken for 1 to 6 months) August 3, 2016

6 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Topamax (topiramate) for Migraine Prevention: "I wish I would have read these reviews before I started taking topamax instead of wandering around like a clueless zombie wondering what the hell was wrong with me. As of now I have no solution to my chronic migraines but what else is new, this is the story of my life. Topamax surly isn't the solution. I have no clue if topamax would have worked if taken longer but the side effects are not worth it. Even their website says they are unclear as to how it works. Wtf. I basically felt like I was moving around with no destination.. I couldn't focus, I felt lost, I kept doing things on repeat. I can't live like that. My driving was off. My sight was blury. The pins and needles feeling's in my hands and feet was just awkward and inconvenient."

   
1.0

Allison123 August 2, 2016

8 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Obesity: "I've been on this medicine almost a month. In the beginning the side effects were absolutely horrible! I couldn't sleep at night and I could barely hold my head up during the day. My head was foggy and I had trouble finding the words I needed sometimes. I felt like I had the Flu without the runny/stuffy nose. It also causes constipation. I had read several reviews and saw a couple comments about how the side effects would die down after a few weeks. I was determined to push through Now my head isn't as foggy. I'm no where near as tired during the day. I take one melatonin gummy at night just to be sure I get a good nights rest. The constipation hasn't went away but I am only eating half of what I was."

   
4.0

Still new (taken for less than 1 month) July 29, 2016

14 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Obesity: "Excellent! My doctor has combined this with Phentermine and I average a healthy 1.75 lbs of weight loss per week without excercise (due to pulled hamstrings). I do not take the Phentermine full dose, nor do I take it every day. My doctor follows me closely and I pay close attention to how I feel and go by instinct. My overall health and well being is more important than losing weight. I am very cautious and choose the right foods e.g., protiens, green veggies, lots of water, fruits and fiber. I am sure to get proper rest to stay mentally sound. Losing weight is good for me, but is taxing on my body and I am going to do what I have to in order to develop healthy long term habits (which take at least 30 days to develop)."

   
10

Emyleigh1957 July 29, 2016

10 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Obesity: "Ive been on psychiatric meds for a greater than 10 years. Most of these medications had cause me to gain a lot of weight. At my last doctors appointment I weighed 265 and was given the option to start taking topiramate. I took 1/2 50 mg tablet every night for 3 days then 1/2 tablet twice a day starting on June 30, 2016. Well when I was weighed on July 15, 2016, I had lost 5 pounds with no exercise. I have a follow up appointment tomorrow on July 28,2016. Oh I haven't noticed any side effects. I'll keep you guys posted."

   
8.0

wannabslim (taken for less than 1 month) July 28, 2016

22 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Topamax (topiramate) for Migraine Prevention: "I've taking topamax for three years. It helped but I started getting eye pain behind my left eye. My eye would throb like a bird was pecking at it. I went to several doctors about it and U of L dr. figured it out...it was topamax causing the problem. I'm off of the meds.and having very little pain behind my eye."

   
5.0

Girlboyd (taken for 2 to 5 years) July 27, 2016

8 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Bipolar Disorder: "I took for a week 100mg and had massive amounts of bleeding in my stools any urine. Doctors first thought cancer but then saw I had just started this drug an took me off it straight-a-way. Within 4 days, everything went back to normal and all my tests came back clear. Frightened me something terrible. Doctors say only happens in less then 1% but can cause major hemorrhaging. Lost 10kg in one week. Took me two month to recover properly with weekly follow up blood tests."

   
1.0

JJ Miles July 27, 2016

1 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Migraine Prevention: "I had started taking this medication quite a few years ago. About 4 to be exact and it wasn't until about 1 year ago that I started to see a HUGE difference in my skin. I have extremely unbareble dry skin now that just flakes off and flakes off and flakes off. I moisturize everyday constantly but it just gets worse and there's nothing that helps it. Does anyone else experience this problem? I just want to know if it is the medication because I have not had dry skin my whole life and want to make sure that it will go away when I get off of it.."

   
6.0

K14 July 23, 2016

1 users found this comment helpful. Did you?   Yes   No Report as inappropriate

Qudexy XR (topiramate) for Seizures: "So I've been taking Topiramate for 3 yrs for seizures & migraines (both of which have disappeared.) Yes, the side effects are terrible, especially the word searching & insomnia. But my seizures were debilitating, & I was having migraines 3x a month, so I can deal with the side effects. My biggest problem is the lack of appetite. Because of my insomnia, my doc switched me to Qudexy, which is topiramate in a time release capsule. When I was taking regular Topiramate I did lose weight, approx 60lbs in 2 yrs & then the weight loss stopped. I went from 200 lbs-140 lbs. & I very happy with that. Since I switched to Qudexy 2 months ago, I've lost close to 20 lbs & have no desire to eat. I feel like I'm force feeding myself. I dont know what to do."

   
10

AShrinkingViolet (taken for 2 to 5 years) July 21, 2016

2 users found this comment helpful. Did you?   Yes   No Report as inappropriate

For Obesity: "Hi, thank you all for your comments. Ive just started topamax (second night) 25mg and cant sleep. I now see its a side effect that some expereince and it will go away. I will persist. Had a bit of a headache and a bit fuzzy in the morning but thats it. will let you know in a week if any weight loss. definately not feeling hungry."

   
8.0

Aussigal July 19, 2016

9 users found this comment helpful. Did you?   Yes   No Report as inappropriate
Page 1 2 3 4 5 6 7 8 9 ...Next
Hide