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User Reviews for Topamax

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Topamax.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Diabetic Peripheral Neuropathy 4 reviews 40 medications
   
9.0
Seizures 2 reviews 49 medications
   
8.5
Tourette's Syndrome 3 reviews 7 medications
   
8.0
Bulimia 7 reviews 7 medications
   
7.1
Obesity 36 reviews 62 medications
   
6.9
Seizure Prevention 33 reviews 32 medications
   
6.9
Trigeminal Neuralgia 8 reviews 9 medications
   
6.6
Fibromyalgia 20 reviews 20 medications
   
6.4
Migraine Prevention 296 reviews 29 medications
   
6.2
Vulvodynia 2 reviews 9 medications
   
6.0
Smoking Cessation 2 reviews 18 medications
   
2.0
Summary of Topamax reviews 413 reviews 6.7

Reviews for Topamax

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For Obesity "I've been taking the Topamax for over a year now for migraines was on 50mg twice a day now was put on 100mg twice a day helps with the migraines I do have on side effect and that's the drowsiness but as far as a weight medication it has not help me one bit actually I have gained weight on this medication."

   
6.0

belladonna863 August 16, 2017

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For Diabetic Peripheral Neuropathy "I've been taking 25mg/day for 3 weeks for Nerve damage/back pain . I love this medication! It has some interesting side effects...(I have tried Gabapentin, Lyrica, Tramadol, and Percocet - but had really bad experiences on all of them.) The tingling goes away after a week. hot flashes - too young for this! Mentally in a better place-I was in a depressive funk before taking it. Cleared my head a bit - I actually want to get better now and am walking/making an effort b/c I'm able to b/c my pain is manageable. I still get random shooting pains, but not as harsh. Major con is my hair is falling out!!! any suggestions on hair-loss? Otc supplements I take with it: AZO Cranberry Urinary Tract Health, b12, biotin, pnv, and fish oil. drink lots of water!!!"

   
8.0

MB29 (taken for less than 1 month) August 5, 2017

1 users found this comment helpful.

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For Migraine Prevention "Reluctantly started due to reviews to prevent migraines and clear up severe blurry vision...50mg...caused facial tightness, made headaches worse, tiredness, slowness, about to think ok, bouts of tingling, vision somewhat cleared, will be reducing dose to 25mg...we will see how this works out"

   
5.0

Marich (taken for less than 1 month) August 4, 2017

2 users found this comment helpful.

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For Seizures "Was given this for seizures.Yet lost 83 pounds was full diabetic when I started this medicine now I am insulin resistance and my over all readings are 69. Which they are saying not good. I seem to sleep a lot just can't keep these glucose up bone is not hungry. Have to put alarm on phone to eat or I won't eat. Started taking vitamins and juicing to assure I get something in being I am thirty too. Though my eyes are bad in light and memory is like a dream lately. Toes can't feel, fingers tingle, mouth water mean I drool. No headache, smoke less, no seizures, loss weight, no diabetic. Can't have it all I guess"

Awellkepwoman July 31, 2017

2 users found this comment helpful.

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For Migraine Prevention "I'm writing about my 18 year old daughter who is currently on Topamax. She has suffered from migraines since she was about 12 years old. They would take her out for 2-3 days each, occurring anywhere from 2-6 times a month. When she was first given Topamax we thought it was the greatest medication ever. Problem solved, she felt that the tingling fingers, and face as well as the flat soda taste was well worth not suffering from migraines. HOWEVER - and I can not stress this enough as she increased her dose, she exhibited personality changes. She became depressed and overall just wasn't herself. Thankfully we recognized this and are working with her Dr. to back off the Topamax. We will be looking into other options. Not worth it!"

   
2.0

Jen71 July 20, 2017

5 users found this comment helpful.

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For Fibromyalgia "I took this for my chronic central pain state and it was a very effective pain killer as long as Tapentodol not taken simultaneously, then skin itch develops at low dose of EXTENDED RELEASE (capsule) 100mg nocte and 50mg morning. The itch was severe by time dose increased to 200mg am and nocte but no,other side effects except possible responsible for my delayed circadian Rythm disorder. Waking constantly before 4am sleeping 4-11am so very inconvenient, but others side effect free and a good pain killer. Remember to check if you have been prescribed the normal tablets or extended release capsules and that pharmacy has given you the correct kind."

   
8.0

MZApzap (taken for 2 to 5 years) July 18, 2017

1 users found this comment helpful.

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For Obesity "I started this 4 days ago.. taking 1/2 of 50 mg at night.. so 25 mg. I will do that for 7 nights, then up to 50mg for 7 nights, then 75 mg for 7 nights, then 100 mg for 7 nights, and so on until I reach a mg my Dr. and I are comfortable with. So far I have not had any side effects except- not being hungry. In the last 3 days I have hardly eaten anything. I've been very thirsty for water, soda taste like crap- and I was very addicted to diet coke. I haven't weighed yet... been meaning to. Last I weighed was a month or so ago, and I was at 180 ish. Today is July 10th 2017. I will weigh after work and see where I am so I have a better idea who this will effect me! I've gone from 120 to 180 ish in the past year - with different meds.."

   
6.0

chunkymonkey77 (taken for less than 1 month) July 10, 2017

12 users found this comment helpful.

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For Migraine Prevention "Medicine works, but my hair is falling out after being on 100 mg day for 6 months"

Nelly99 July 8, 2017

3 users found this comment helpful.

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For Migraine Prevention "Worst medication EVER. I couldn't form simple thoughts together. Couldn't complete tasks. Migraines got worse. That was at 100/mg. 200mg was twice as bad. Neuro told me I could quit taking it cold turkey. He's a flipping moron. I sunk into a deep depression with high anxiety after tapering dose down. This medication needs to be banned."

   
1.0

Dumbbumb (taken for less than 1 month) June 26, 2017

3 users found this comment helpful.

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For Migraine Prevention "I had a horrible experience on this medication back in 2005/2006. I started on a low dose of 25 mg/day and had severe nausea, diarrhea, dizziness, fatigue, confusion and memory impairment. Worked up to 50 mg 2xday, and the nausea/diarrhea eventually abated but the dizziness, fatigue, confusion and memory problems continued and I developed a bad tremor in my hands - I was dropping everything, couldn’t write legibly, and spilled food constantly. And I still had 10-15 debilitating migraines a month. Had to wean off it but 10+ years later I STILL HAVE MILD HAND TREMORS. Worst medication experience of my life."

WKB June 9, 2017

8 users found this comment helpful.

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For Migraine Prevention "I used to be on this when it was brand-name, and now I'm on it as a generic. I've found pros and cons with each. With the brand name, I felt like it worked better, but it gave me horrible problems with confusion. I would drive home from work and sometimes not even remember the drive home. I felt completely drugged. When the generic came out, I was switched to it. It didn't make me loopy like the brand name did, but I didn't think it worked as well either. I get more migraines on it by a lot than I got on brand name Topamax and I think I'm on the highest dose. I take one 200 mg pill in the morning and one 200 mg pill at night."

   
7.0

Gastroparesis Girl (taken for 5 to 10 years) May 20, 2017

10 users found this comment helpful.

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For Migraine Prevention "When I first went on Topamax, I thought it was a miracle. I had just been diagnosed withIdiopathic Intracranial Hypertension (IIH) after 9 months of what we had previously thought was a constant migraine. Topamax was the first drug that really made a dent in the pain. However the side effects were... a lot. -at first I could barely eat (for about a month) -the brain fog slowly took me over, turning me into a zombie -the tingling was never just my hands and feet, but my arms, legs, face, and back as well. -I had vision issues, including always seeing a circle in the middle of my vision, eyes opened or closed -I had hallucinations whenever I woke up in the dark Worst of all, the drugs would help for a week or two, then the pain would come back until I increased the dose."

LindsayMcD (taken for 6 months to 1 year) May 16, 2017

7 users found this comment helpful.

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For Migraine Prevention "The drug would get a 10 as it worked miraculously for me. In my case -- and this probably won't happen to you -- the medication caused me kidney stones, the first of which was agonizing and led me to stop using the medication. Then the headaches resumed. I was willing to take an occasional Kidney Stone attack as a tradeoff for frequent migraine so I went back on the drug knowing the risks. Unfortunately, I peed gravel constantly, oddly without pain, but it was a warning. I'm now off the drug. If it did not cause me that side effect, I would have remained on the medication as it was, again, close to 100 percent effective. Not everyone responds the same way; your experience will probably be different."

   
8.0

Mark B. (taken for 6 months to 1 year) May 6, 2017

9 users found this comment helpful.

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For Seizure Prevention "Switched to this after getting a nasty mouth rash from Lamictal--and would rather have that that than all the stuff I have to deal with from Topamax... 24/7 EXHAUSTION, breakthrough seizures daily, horrible horrible memory loss (will have taken my medication and no more than 10 minutes later have to count all the tiny things to see if I've taken that half days dose). Living a miserable life on this medication, cannot wait to get onto something else. Tried to give this a chance and it gave me nothing but a terrible time, almost like being unmedicated with a constant dead leg&arm, UGH. I'm a small person in general so the weight loss was not a welcome change either. Topamax does nothing!!! for my complex partials seizures or epilepsy."

   
1.0

mygcem May 6, 2017

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For Migraine Prevention "I've been taking this med for almost 10 yrs now. I started when I was 18 it was the first drug my Dr tried...I am almost 28 and I am so upset looking back that I didn't ask more q's or realize that this was the issue. I started at a min dose but I was eventually up to 300mg/day. I thought nothing of this because if the Dr wasn't worried, why should I be? I had been to 3 different Dr that never asked me if at that dose I was having memory problems, etc. I don't remember anyone telling me the major side effect was memory problems, brain fog, etc no kids... I went through college thinking there was something wrong with me My new Dr has put me on something else that is safe if my husband and I get pregnant. She also was in shock that for migraine prevention I was taking such a big dose."

   
2.0

Bella521 (taken for 5 to 10 years) May 2, 2017

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For Migraine Prevention "5/1/2017 - I was on Bystolic for BP treatment and it caused me to gain 30lbs. I suspect the high blood pressure was due to use of e-cigarette. I put the e-cig and the bystolic down!! Dr. put me on Topamax 100mg and Wellbuterin 300mg help with the headaches and weight loss. As I ramped up from 25mg to 50mg of Topamax I noticed significant changes in my behavior as did others. I cried continuously and at the most ridiculous things. I was short tempered and wanted to be left alone (to cry). Side notes..it made my face feel numb, carbonated drinks tasted funny, vision was funky and did zero for weightloss. As a mom of 4, I can't continue this medication. 30-40lb weight loss is not worth living this way. "

   
1.0

BusyMomof4 May 1, 2017

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For Migraine Prevention "Now in my late 50's, I have been a lifelong migraine sufferer. My new neurologist recommended Topamax (FDA approved for migraine therapy). I am going on week 3 with promising results...for the first time in years I am waking up to no headaches and am not getting headaches as the day wears on. I'm sleeping better. I am experiencing a slight problem with focus/concentration but am told that this side effect should subside over time. Providing the side effects are minimal and non-intrusive, I can see staying on this medication-I'm hopeful."

   
9.0

Anonymous (taken for less than 1 month) April 30, 2017

21 users found this comment helpful.

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For Migraine Prevention "ONLY 25mg/day 2nd try. Lasted 3 days. Whoa just whoa! Within 1 hour my pain lessened but side effects were already producing. First my vision got really distorted. I couldn't focus on command at all. Then my bottom lip wouldn't stop tingling with a numb feeling. I got extremely dizzy, felt out of it. So I thought let me lay down. Feel asleep 15 min.. Woke up thought an hour passed was completely out of it. Whole left side of face felt palsy completely numb. Tingling/numbness arms, hands, legs + feet. Next day visual less but symptoms still there. Then the suicidal thoughts and worthlessness came. I made it one more day. Missed a day. And took following day. I can't do anything on it. Comatosed n psychiatric mind games. DONE!! I'm better w/o it"

   
2.0

Dest1979 (taken for less than 1 month) April 19, 2017

12 users found this comment helpful.

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For Obesity "I weighed 230 pounds and felt like a cow.. I started off on 25 mg 1x a day and noticed no change. So asked doc to change me to 100 mg twice a day. I just take the 200mg at once. That's when I finally noticed a change. I've lost 45 pounds in 6 months! I'm continuing to lose and my goal weight is 160 since I'm tall so only 25 more pounds to go. I noticed at first pop tasted different but now it tastes fine. I used to love beer but now I don't want it..which is fine since it's so fattening lol. I only eat once or twice a day and the carb cravings are gone. I don't exercise much at all. I have no side effects at all. I'm so glad I found this medication it really has been a miracle. :)"

   
10

Miracle1Lady (taken for 1 to 6 months) April 18, 2017

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For Migraine Prevention "I was diagnosed with vestibular migraines in 2010 and I had severe 24/7 vertigo. I always had "regular" migraines since I was a teen, but after an infection of the inner ear in 2010, my migraines changed and I had both pain and vertigo. For one year I had constant vertigo and I honestly thought I would become housebound. I could not go to theatres, malls, stores, or any areas with lots of people because crowds would make me dizzy. My work was in jeopardy. I tried Topamax and it gave me my life back. The initial side effects were awful but my body slowly adjusted to them. Eventually, the dizziness went away. I now take 225 mg daily. I have some word finding and concentration problems but that sure beats 24/7 vertigo."

   
10

Scarlettsun (taken for 5 to 10 years) April 11, 2017

15 users found this comment helpful.

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For Migraine Prevention "To be honest, I can't tell you if it helped with the prevention of migraines or not. I have had chronic migraines for 15 years now. They are accompanied by loss of feeling in my hands, aura, and sometimes my words come out as gibberish. I have tried just about everything from medications to natural remedies for my migraines. When my new neurologist suggested I take Topamax I thought that I would finally be rid of my migraines. I didn't even last a week on this medication though. I couldn't stand for more than thirty seconds without being dizzy and having shortness of breath. My stomach ached and I had a tingling sensation in my hands. I also had a slight fever. My doctor wanted to attribute all of these things to the start of a cold."

   
1.0

Kellight March 16, 2017

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For Migraine Prevention "I have had migraines since my first son was born nearly 27 years ago. They had become more and more frequent....almost daily. I was using the maximum amount of Maxalt that my insurance would allow. I asked my doctor for a prophylactic medication for migraines. I am now up to 100 mg of Topiramate 2 X daily. Yes there are some side effects. I have some tingling in my hands, sometimes my mouth is dry, if I don't have to work or don't have a lot planned I feel tired and lazy. I crave less sweets/ food in general...sometimes feel a little nauseated. I was losing weight (20 lbs) before starting the medication and continued after. I have stabilized at a 40lb weightloss. No other side effects. Restless legs are gone. Better sleep."

   
9.0

Ljray (taken for 6 months to 1 year) March 15, 2017

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For Migraine Prevention "Was on topamax 200mg 2x day for eight years. It cut back on my daily migraines. Went down to about 2-3x week. I lost 125 pounds in the first year I was on it. No appetite. Food tasted metallic, flat or just weird. I did get one kidney stone. After years of being on high dose, I started getting chest pain. My doctor took me off topamax about 7 years ago. I had bad withdrawals after weaning off, no seizures thankfully. Migraines have been daily again for last 18 months. Tried to go back on topamax but I can't tolerate it any more. After one 25mg tablet at bed time, I woke up with severe headache, dizziness and nausea. The next night I took one tablet and side effects were increased. I stopped. Side effects bad for two weeks. No thanks."

   
5.0

TosaTat (taken for 5 to 10 years) February 25, 2017

19 users found this comment helpful.

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For Fibromyalgia "Diagnosed with fibro and CFS after car accident. Began to get vertigo, light and sound sensitivity on top of all the usual symptoms. They would stay for weeks. Found out eventually it was aurora of migraine. Topamax sorted me out. No more brain fog, vertigo, audio or photo sensitivity. The tiredness also lifted, I can stay awake all day but can't over do it. Pain still there though but I feel so normal after so many years of disfunction it's unbelievable. It's like someone unscrambled me!!! I'm on 175mg. 100mg in morning, 75mg in afternoon."

Áinej (taken for 1 to 6 months) February 20, 2017

14 users found this comment helpful.

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For Migraine Prevention "Developed Aurora symptoms of migraine as part of diagnosis of fibromyalgia & chronic fatigue diagnosis as result of a car accident. Debilitating vertigo, light and noise sensitivity. Extreme cognitive disfunction and fatigue which were constant but the migraine came and went but would last for weeks. Eventually it just stayed and I felt like I was walking about drunk!! I was told there was nothing that could be done for me and this was part of my condition. I found topamax myself when I had reached the point where I had decided to end it all if this was it. Sad but true. Fortunately and happily I am a new women. My brain has been unscrambled! I can function again!No more hiding from the light or trying to remember why I started a sentence"

   
10

Áinej February 20, 2017

36 users found this comment helpful.

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