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User Reviews for Topamax

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

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Condition Avg. Ratings Reviews Compare
Diabetic Peripheral Neuropathy
9.0
   
4 reviews 41 medications
Seizures
8.5
   
2 reviews 50 medications
Tourette's Syndrome
8.5
   
5 reviews 7 medications
Obesity
6.9
   
41 reviews 62 medications
Bulimia
6.7
   
9 reviews 7 medications
Trigeminal Neuralgia
6.6
   
8 reviews 9 medications
Fibromyalgia
6.3
   
22 reviews 20 medications
Seizure Prevention
6.3
   
39 reviews 33 medications
Migraine Prevention
6.2
   
313 reviews 31 medications
Vulvodynia
6.0
   
2 reviews 9 medications
Smoking Cessation
2.0
   
2 reviews 18 medications
Summary of Topamax reviews 6.5 447 reviews

Reviews for Topamax

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For Obesity "I gained a lot of weight from depression medications. They put me on Topamax to fix that. I’ve been on it for several weeks. Twice a day, 25 mg. Now the first day I immediately noticed an appetite change. I haven’t craved food all day, every day. Haven’t craved as much junk or sweets. And I have dropped a little weight. So it definitely works wonders. I am definitely struggling with the side effects so I think I am going to ween off it. As much as I’d love to continue to eat regular amounts and lose weight. The side effects are too much. Before I started this I had tingles in my hands and feet. But this intensified a LOT. I’m also having a lot of head pressure. Tiredness. And I feel functionally slow. I feel like I can’t think, can’t remember anything, can’t do simple tasks. Hopefully there is another medicine that can have the same effect for weight loss & appetite without these severe side effects."

   
3.0

ChronicallyChill (taken for 1 to 6 months) August 25, 2018

3 users found this comment helpful.
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For Migraine Prevention "My migraines seemed to get worse with topamax. More frequent too."

   
1.0

thrbbr (taken for 1 to 6 months) August 22, 2018

2 users found this comment helpful.
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For Migraine Prevention "Reduced my migraines by about 1/3, but also reduced my weight. I struggled greatly with the side effects. As someone who already struggles to keep weight on, the weight loss with the Topamax was too much for me. It was somewhat effective. If you are not concerned about keeping weight on then this will probably serve you better than it served me."

   
6.0

any mouse (taken for less than 1 month) August 17, 2018

3 users found this comment helpful.
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For Migraine Prevention "It is seems to be brain damaging, it was never approved for these off label conditions. It gave me bladder stone even though I drank plenty of water. My migraines never ceased or got better. Was on it over 10 years."

   
1.0

Army girl (taken for 10 years or more) August 14, 2018

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For Seizure Prevention "Not sure about this drug. Started at 25mg 2x a day for 2 weeks, worked up to 50mg 2x a day. Still having seizures 1-2 times a day. Had it upped to 100mg 2x a day and now I don't have seizures but there's so much pressure in my head I feel like it's going to pop. It also makes my 2mg xanax ineffective, I've gone from sleeping 12hrs straight to maybe 2-3. I've lost 10 pounds but it's horrible to say I'd rather have a seizure to release the pressure and be chunky. Calling the dr in the morning."

   
5.0

Banshee (taken for 1 to 6 months) August 12, 2018

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For Migraine Prevention "I have 6 days of migraine per month nicely relieved by Tramadol plus being in a dark room. My new Dr wanted me to try Topamax. First dose I had a bad headache, diarrhea and inability to concentrate. Day 2 I had the same side effects plus a dull mood and elevated body temp. These effects are all unacceptable to me so I am going back on Tramadol. It is a mild narcotic but I have not had any addiction in 10 years. The mental effects of Topamax were awful, plus I have GI problems so adding diarrhea was no good. And it caused headaches."

   
1.0

Mickey (taken for less than 1 month) July 29, 2018

6 users found this comment helpful.
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For Migraine Prevention "Day 3 on this and was prescribed for migraines but also watching weight due to weight gain from taking nerve meds. Current weight 216lb and looking to lose back under 200 pounds. I have experienced tingling in hands a bit with topamax in the first 2 days which is considerably fast but definitely from these pills. Will update after a few weeks."

   
2.0

Unique1111 (taken for less than 1 month) July 11, 2018

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For Fibromyalgia "Do not take this if you are even remotely sensitive to side affects. I was considered extremely smart and an excellent memory with a background in english and communication. I cannot remember what I said or did yesterday....Much less my life memories."

   
1.0

Dummy (taken for 1 to 6 months) July 5, 2018

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For Fibromyalgia "Been taking Topamax since 2004, off label, for peripheral neuralgia in my feet with very positive results. Did not realize the additional effects on fibromyalgia until I ran out for about 2 weeks...won't let that happen again!"

   
10

Teddy (taken for 10 years or more) May 13, 2018

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For Seizure Prevention "After day one of topamax I felt strange. Generally sick. Very nervous. Aggressive. And then very depressed. I kept taking them. My appetite decreased as did my energy levels. And I was over thirsty all the time. Some abdominal pains and areas of numbness. Particularly of the face. Mouth. Eyes etc. Then I broke out in massive bruises. Very dark large haematomas on. My arm. I also had bone pains in my lower back and legs. I felt like I was being POISONED to death. So I stopped taking topamax after a month. After two days I already am feeling much better. This should not be allowed on the market. Again. Topamax feels like a very cruel lethal drug/poison.... Don't take it."

   
1.0

Snagz April 24, 2018

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For Migraine Prevention "I have been taking Topamax for 15 years since 2003. I use it for Migraines and mood disorder. It has been a life saver for me. For the mood disorder it was at 50mg at night, but for migraines I am not at 125 (50 in morning and 75 at night). It works."

   
10

Female-50s (taken for 10 years or more) April 23, 2018

8 users found this comment helpful.
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For Migraine Prevention "I am 28 and have struggled with migraines for 10 years. I've found 80mg/day of propranolol very effective for the last 3 years. Unfortunately, 4 months ago, I began having migraines that were more frequent, 8 days/mo. My neurologist recommended 100mg/day topamax. The side effects were terrible: extreme fatigue, mental fog, dry mouth and loss of appetite. After 3 weeks, I complained and she reduced my dose to 50mg, which helped with the side effects. Meanwhile, my migraines were just as frequent as before, some requiring intervention at the hospital. My neurologist suggested I stay with it for at least 8 weeks since it can sometimes take that long to show improvement. Finally, after 2 months, I quit topamax and now I'm trying verapamil. Side effects: intolerable Migraine improvement: none My neurologist said that the cognitive side effects can be greater for those with depression or those who are on antidepressants, which I take."

   
1.0

MigraineMavis (taken for 1 to 6 months) March 26, 2018

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For Seizure Prevention "No problems the first four weeks @25mg. Later @75mg, I began to have cognitive difficulties. Felt like I was becoming a drug induced moron. Trouble developing thought formation, loss of words, lethargic. I was on Lithium for 15 years, developed chronic kidney disease. Looking for something for Bipolar 1 (mixed manic) without damage to body and shutting off the brain."

Shay (taken for 1 to 6 months) March 17, 2018

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For Bulimia "I'm an educated, certified, educator and RN who has dealt with Bulimia since age 12. When I was a teenager I was put on Topamax for two years and then in combination with Prozac for one year for depression and the eating disorder. 100% it worked. I got out of the cycle and didn't gain any unwanted weight, eventually getting off the two and still felt great. It wasn't until after giving birth twice that the depression and bulimia came back. Post baby number two and one lost baby in between, at age 27 I couldn't drop the unwanted weight and felt depressed about it. Now 30 I am considering going back on the meds because it worked so well the first time, but I am the type of person who doesn't like mind altering drugs or the feeling that I can't do it on my own. 3 years deep right now and my doctor really wants me to go back on meds at least to bridge my recovery. To those looking for a medication to assist, I know this one works."

   
9.0

Flawed RN (taken for 2 to 5 years) March 10, 2018

9 users found this comment helpful.
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For Tourette's Syndrome "My beautiful son had the worst issues with TS we went to a doctor, God bless Him I'll never forget you Dr. Marreo you changed our lives forever Topamax. We tried everything... my son is almost 90% tic free if not 99% most of the time. Yes, the thought process may be a little slower but the benefits outweigh. TRY TOPAMAX IF YOU HAVE TS it saved my son"

   
10

Carmel Kaplan (taken for 6 months to 1 year) March 8, 2018

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For Tourette's Syndrome "I've had Tourette's as long as I can remember. I was finally diagnosed in my 50s. Topamax was fantastic for my tics. First time ever to not be in pain. I have neck fusions from all the neck twisting, turning, stretching. Unfortunately side effects were terrible. Flu like symptoms, migraines (some take it for migraine prevention??), plugged ears, slower reflexes (not good since I do canyoneering). Good side effects: carbonated drinks taste terrible, lessened my appetite. I was on it for 8 months until I was setting up rigging for a 150' rappel and had to think way too hard on what normally was second nature."

Lyn (taken for 6 months to 1 year) March 2, 2018

2 users found this comment helpful.
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For Migraine Prevention "Overall bad experience. Currently tapering off (was on the med 3 months). Did work in decreasing migraines but the side effects were horrible. Tingly hands, feet, legs and arms; heavy chest (thought I was having a heart attack); very anxious; crying often; just not happy; very tired. I cannot wait to be off of this medication."

   
1.0

Anonymous (taken for 1 to 6 months) February 27, 2018

8 users found this comment helpful.
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For Seizure Prevention "My doctor put me on Topamax because I could no longer afford Lacmictal for my bipolar disorder. It was the worst experience of my life. It gave me a severe headache, loss of coordination -- if I was walking forward I would suddenly start waking on my tiptoes in a sideways direction. I couldn't spell or form sentences. I had slurred speech and my eyes were glazed over. I also had mild anxiety the whole time I was on it. The only good thing was that I literally had no appetite and lost a lot of weight. I only took it for about ten days week and went back to Lamictal. I'd rather be poor than have to be on Topamax"

   
1.0

Butterbean63 (taken for less than 1 month) February 5, 2018

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For Obesity "It’s a little early for a review. It’s currently December 27th, 2017 and started Topamax on Dec. 7th. It’s been 20 days and I am a total binge eater. I’ve never been overweight, it’s not even in my genes to be overweight. I’m going through an extreme depression and being on over 12 different medications the past 5 years has been rough. I was 115-120lbs all the way up until I was 18. Started getting medicated when I was 18 and started gaining ever since. It’s normal to gain weight with age obviously, i’ve seen just about everyone I graduated with has gained weight. I blame Seroquel for my weight gain. HOWEVER. I weigh 161lbs starting topamax, it’s been 20 days, haven’t shifted in weight. Will post update later on."

   
7.0

heyitsmeee (taken for less than 1 month) December 28, 2017

8 users found this comment helpful.
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For Migraine Prevention "WOW! AMAZING! helped with migraines so much!!!! I really hope it helps curb my appetite like others have said! i’m 5’3, 163lbs and have the most severe back pain from fibromyalgia."

   
10

Mereanne (taken for 1 to 6 months) December 28, 2017

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For Obesity "First- there is absolutely no difference between brand and generic. There can't be legally. It is the same active ingredient and the same strength. It's just the name and cost and inactive ingredinets. This being said... I don't understand where negative remarks come from. This medicine is amazing. I took it a while ago then asked to be changed to something else. I gained 20lbs and the other med didn't so anything. So I asked to be changed back. My leg muscles hurt and I have a few word issues but it's an amazing medicine."

   
9.0

Teetzytotz December 4, 2017

11 users found this comment helpful.
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For Obesity "My original intent with Topamax was never weight loss, (mood) nor would have I ever believed the results I've obtained 19 months later. Quick negatives-my mental agility decreased significantly, I misspell my own name; most food & beverages taste like rubbish; and, the generic version is subpar. I was always overweight, I'm mid-30s, male, & slimmed from 275 to low 180s, size 42 to 32, XXL to L. It stays off! Still drop a few lbs. every month. However it's impossible for me to get off, I tried once and I went into a severe depression, but I'm a healthy weight now with perfect blood pressure."

   
7.0

crazydude81 (taken for 1 to 2 years) December 2, 2017

17 users found this comment helpful.
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For Migraine Prevention "Have been on Topamax 100mg twice a day since July of this year. Once in the morning, once in the evening. Have been a chronic migraine sufferer for at least ten years. Having at least 8-10 migraines per month, lasting at least 24 hours at a time. Unable to leave dark room and often ending up in hospital. Dr started me off on 25 mg twice a day, gradually working me up to 100 mg twice a day. This is the best thing that has ever happened to me!! migraines are down to about 1 to two a month. I can actually live my life!!! Yes, I have lost about 30 pounds since July (almost 5 months) luckily, I had it to lose. But I feel like a new person! Memory was slightly foggy at first but body adjusted and I feel great!!"

   
9.0

neely52 (taken for 1 to 6 months) November 22, 2017

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For Migraine Prevention "I've been on Topamax since 2010. I started taking 50 mg but I was given the generic and had a really bad allergic reaction to it. My skin broke out and I had to see a dermatologist. I was eventually given Topamax (the brand name) and I no longer had the allergic reaction. The 50 mg wasn't strong enough and eventually I ramped up to 200 mg. I had weight loss in the beginning (close to 90 lbs, which I could afford). I've gained about 20 of it back but I've not lost any since. I do feel that I get somewhat spacey and suffer from some memory loss. I've asked my doctor if I can come off of the medication beginning next year. I've been on it too long and I am concerned with the memory side effects."

   
8.0

gdhouston (taken for 5 to 10 years) November 9, 2017

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For Seizure Prevention "Topamax, I’m not sure what a decade of using topamax has or has not caused, it is NOT reliably controlling siezures until I started ketogenic lifestyle, in fact the high fat diet has totally taken away my tremors in head that I felt on daily basis, my Clinic had me in for 5 days in hospital testing and determined to lower my topamax level upon leaving by 100 mg. I was on 400 and lowered to 300. Today I have depression fibromyalgia and most my ligaments or hurt. Joints feel like they are rock hard swollen and painful, I can barely use my thumbs anymore but I refuse to go to do tools for fear of more medication, they never find anything wrong but proof is in pudding, bulging achilles and wrists, right side pain every joint I have hurts "

   
1.0

Ketogenic lifestyle (taken for 10 years or more) November 2, 2017

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