User Reviews for Topamax
Topamax has an average rating of 6.1 out of 10 from a total of 519 ratings on Drugs.com. 52% of those users who reviewed Topamax reported a positive effect, while 28% reported a negative effect.
|Migraine Prevention||356 reviews||31 medications|
|Obesity Off-label||53 reviews||65 medications|
|Seizure Prevention||42 reviews||28 medications|
|Fibromyalgia Off-label||24 reviews||20 medications|
|Bulimia Off-label||11 reviews||7 medications|
|Trigeminal Neuralgia Off-label||9 reviews||7 medications|
|Diabetic Peripheral Neuropathy Off-label||7 reviews||42 medications|
|Tourette's Syndrome Off-label||6 reviews||7 medications|
|Seizures||4 reviews||53 medications|
|Smoking Cessation Off-label||3 reviews||18 medications|
|Epilepsy||2 reviews||54 medications|
|Vulvodynia Off-label||2 reviews||9 medications|
|Summary of Topamax reviews||6.1||519 reviews|
Reviews may be moderated or edited before publication to correct grammar and spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest in the medication will not be published. As reviews and ratings are subjective and self-reported, this information should not be used as the basis for any statistical analysis or scientific studies.
For Migraine Prevention: “I started on 50mg with bizarre side effects and dropped to 25mg with almost perfect results . I say "almost" as I suspect some mild cognitive issues and mild fatigue on occasion. My migraine symptoms are caused by cervogenic issues: I need a c4/c5 cervical fusion which I am hoping to get soon, and will allow me to discontinue generic topiramate. I suffered 3 migraines a week. I have had none in the 3 months @ 25mg dose. No more migraines, but I still have cervogenic headache that hopefully will be remedied by surgery. I give this drug a 7/10 due to all the folks that have had bad juju with it, and my mild apprehension of eventual withdrawal.”
For Migraine Prevention: “I suffer from Migraines and peri menopause and started to suffer those extra pounds that just want come off and with migraines so hard to work out and go for walks and work out to get off the extra pound that pre menopause woman suffer from. I am 5'3 and always weight 120-125 and now weigh 140. Since I started on Topamax on February Dr put me on 25mg per day for 2 week, then increased it to 2x a day 3rd week. Now its April 16 and weigh in - 125 back to my original weight. I feel back to normal. I have so much energy. I would say the only side effect I have is that I feel colder - my hands are cold and I'm more thirsty, again which is ok because I drink more water which is good because before I never drank water now I do. My Migraines are hindered and I feel alive-”
For Obesity: “I just started topamax so far I get the tingling feeling and the brain fog nothing major though and I zone out a lot. I barely eat and when I do it’s healthy I hope this works I’ve tried everything I’ll update in a month.”
Frequently asked questions
- When's the best time of day to take Topamax?
- Can you stop taking Topamax suddenly?
- Is Topamax a controlled substance?
- Does topiramate cause weight loss?
- Does topiramate cause hair loss?
For Obesity: “I was prescribed Topamax for migraine headaches and weight loss. Being on Depakote, my weight had shot up 25 pounds with no end in sight. I was even craving sweets, which I had never done. After two days of Topamax, my appetite decreased noticeably. After a week, I had lost 7 pounds. By the time I had been on it for a month, I was down to 125 and still not hungry. Eating became something I thought I should do instead of something I HAD to do. When my weight dropped to 118, I stopped the Topamax, thinking, if I start to gain weight I’ll take it again. It’s been six years since I’ve taken Topamax and I weigh 130; 20.4 BMI. The results seem to last. I’m not sure it worked for my migraines, but it’s awesome for weight loss!”
For Obesity: “I have been on Topamax for a little less than a month and already lost 16 pounds! My doctor gave it to me for the weight loss effects and I have had no adverse side effects that I know of so far. It rates a 10 in my book!”
For Obesity: “At 5’7”, I weighed 208 after giving birth at age 31. Developed what they thought was fibromyalgia. After 6 years was put on Topiramate - 200mg per day. Dropped 50 pounds in about 6 months. Went off it, eventually gained the weight back plus another 30. 14 years since the first time: Back on it, have lost 40 pounds in 3 months. Still need to lose around 60-75 pounds... The fibromyalgia turned out to be MS. Haven’t been able to exercise in 20 years. I miss that, badly... But since I have no metabolism, it’s either starve or take the Topiramate. I’ve never noticed any negative side effects... But then, my resting state is pretty messed up; it would be hard to distinguish any new negative stuff from the plethora of negative stuff I already suffer regularly. ;)”
For Obesity: “I have been over weight and suffer from depression for over 20 years, I admit food was my best friend!!! After hysterectomy doctor put me on hormone replacement medicine, I was so hungry constantly , All I could think about was eating. Then my doctor put me on Topamax and I LOVE IT! I went from 252 lbs to now 167 lbs. From size 22 now size 10. I have to make myself eat, never hungry, and when I am eating I just try to eat slowly, and I do drink water now because even my favorite diet soda does taste terrible. I would tell everyone to try it!”
- What is topiramate used to treat?
- Are Topamax and Trokendi XR the same thing?
- How does Trokendi XR help with weight loss?
- When is the best time of day to take Trokendi XR?
- How fast does Trokendi XR work for migraines?
For Migraine Prevention: “On Topamax for 15 years for migraine prevention. Has changed my life. After trying so many things for years and having the quality of my life being severely impacted by migraine, this wonder drug has lessened the pain and nausea from a 9 to a 1.”
For Obesity: “Topamax is amazing. I originally took it 6 years ago to prevent migraines and lost 80 lbs as a bonus. At that time my doctor and I speculated that it would some day be approved for weight loss because I was not his only patient to report changes in the taste of carbonated beverages and chocolate while taking the medication. I also noticed that I did not dream about food while taking the medication, but within 3 months of changing medications food reentered my dream content. I am now back on the medication to address chronic pain issues and have already found the same results in weight loss, taste changes, and dream content.”
For Obesity: “I weighed 230 pounds and felt like a cow.. I started off on 25 mg 1x a day and noticed no change. So asked doc to change me to 100 mg twice a day. I just take the 200mg at once. That's when I finally noticed a change. I've lost 45 pounds in 6 months! I'm continuing to lose and my goal weight is 160 since I'm tall so only 25 more pounds to go. I noticed at first pop tasted different but now it tastes fine. I used to love beer but now I don't want it..which is fine since it's so fattening lol. I only eat once or twice a day and the carb cravings are gone. I don't exercise much at all. I have no side effects at all. I'm so glad I found this medication it really has been a miracle. :)”
For Obesity: “I’ve taken this medicine Topamax two separate times. The first time it helped me lose weight and I didn’t have many side effects but went off of it once I got in a serious relationship and heard it can make birth control less effective. However, two years after I got off of it I went back on it because of my binge eating disorder and it was horrible. This time I had side effects I was losing feeling in my hands and feet. My face would go numb. It didn’t really help with appetite. And it started to impact my memory. I almost immediately went off of it. And I’m still experiencing memory issues. I’ll be talking and can’t remember words in the middle of a sentence. Or I’ll tell someone something and then a couple of minutes repeat it because I forgot if I said it or not. Keep in mind I’m 21 and shouldn’t be having memory issues like this. I don’t recommend it...”
For Obesity: “I have struggled for years with what I thought was just a problem with controlling my hunger, I would never eat around anyone and then once everyone was asleep I was starved. I finally seen a psychiatrist for my ADD symptoms and while he was modifying my medication he diagnosed me with binge eating disorder. To my surprise he was right. I had no control. I had always bounced on diets. He started me on Topamax 25mg and I knew instantly it will work. It has a calming affect. I feel so full and I am going to bed without eating for the first time in years. I am very thankful. Not every medication is for everyone. I am pleased with this one so far.”
For Obesity: “3 months ago I was 259lbs and now I am 219lbs now. I take topamax daily, and phentermine 1-2 days a week sometimes, and it’s helped not only my mood but my obsessive thoughts about eating and food. I don’t sit and think about it all day long. I also had an energy drink addiction and broke it because all carbonated drinks taste flat! All soda tastes awful!! I do get bad headaches if I miss a dose. Don’t miss your pills. I used to get bad headaches weekly but not since taking this medication- they don’t come around anymore. I’m topped off at 50/twice a day but I’d happily take 100/twice a day. I do get brain farts but after 3 months it’s not as bad.”
For Obesity: “Two weeks ago my Dr. Prescribed topamax to help aid my weight loss and help me reach my goals. All was well until last Friday every food and drink except for water and Gatorade made me nauseous and sometimes vomit. Constant constipation or raging diarrhea. None of the foods or drinks had much taste. No appetite but growling stomach . My feet were constantly tingling. I started getting dizzy and blacking out. Horrible breast pain and just felt horrible. It was the lowest dose prescribed so I stopped it last night and have an appointment tomorrow morning. The more I researched the drug it's horrible for your body eyes, digestive system, urinary system and reproductive system to name a few. Just not worth it!”
For Obesity: “This is an early review as I just started it on 10/16/16 but the food cravings are gone, it takes less food to satisfy me, soda tastes terrible, cigarettes taste different and bad (which is a surprising good side effect!) and I just feel better with less food in me. I have tried phentermine with no luck and usually had good success with natural weight loss until being diagnosed with rheumatoid arthritis and needing a knee replacement that keeps me from working out too much. So so far, I am impressed. I'll be back in a few weeks for a weigh in review. No side effects like others have had with mental fogginess or tingling. 25mg 2x day. Here's hoping my 235 can become 155 again!”
For Obesity: “I have never had the feeling of being full and have fought obesity since childhood. I had a successful gastric bypass in 1980 (but with serious lifelong medical complications) and lost 170lbs at after the operation. Over the years I've gained and lost up to 70lbs but never held a steady weight. I saw a psychiatrist 6 years ago (for other reasons) and shared this with him. He told me about Topamax and explained that it did not work in everyone, but had with some of his patients with true food disorders. He started me at 5mg/day and increased the dosage by 5mg/ week. When I reached 150mg/day I noticed that I consistently pushed my plate away or stopped eating when I was full. It has been a miracle, and my weight hasn't varied more than 5lbs in 7 years.”
For Obesity: “I'm definitely losing weight extremely fast with this medication. I took 25 mg at night the first 30 days and I'm now on the start of the third month at 50 mg at night, also, 37.5 mg Adipex every morning. With Topamax I CANNOT eat. Everything I eat makes me sick. It definitely changes you're sense of taste and smell which has pretty much stopped my smoking. So, there are huge benefits just the side effects can be a little unbearable at times. I've lost 28.7 pounds in 2 months”
For Obesity: “I was put on 25mg of this drug by my psychiatrist to control my appetite, but felt, well, just "off"." I told my psychiatrist that I wll stop taking it because I didn't like the way it made me feel and never took it again.”
For Obesity: “I am extremely obese. My starting weight when I started taking Topamax was 289.0 lbs. I weighed myself every few days. I started for one week taking 25 mg in the morning and 25 mg in the evening. Now I take 50mg in the morning and 50 in the evening. Im also eating right veggies and fruits and snacks. This medication is making me lose at least 13 lbs since Jan. 5, 15 and today I'm 276.0 and its Jan. 19, 2015. in that short amount of time that's a good amount of weight to drop. So thank you Topamax!”
For Migraine Prevention: “On Topamax and 6 years ago I had what I thought was a seizure and spots in my right eye. The spots NEVER went away. Other symptoms of this horrible drug-ITCHING, SEIZURES, HAIR LOSS, EXTREME HOT FLASHES, EXTREME WEIGHT LOSS, my doctor never, ever cared about any of it. I quit this awful drug in October, 2016. Had a minor stroke shortly after. Do not take this drug if you want to stay healthy and keep your eye sight. I filed a complaint with the FDA and of course they didn’t care either. This drug is a result of greedy drug companies and FDA being lobbied to allow such a destructive drug. Doctors don’t care either. They all just keep making their money while patients end up with permanent damage that CANNOT be fixed.”
For Obesity: “First started topamax in 2013 lost 30 lbs on 75mg in 3 mos topamax 25 mg 3 x a day w/30 mg prozac once a da. Weight went from 278 to 248. I am 65 year old female obese all my life. Had experimental Lap band surgery in 1979. Gained all weight back. Tried everything and gained back all weight every time. Can't take diet pills make me too jittery. After three years stopped topamax because of minor memory loss which I thought was embarrassing. Stayed on Prozac 30mg and gained all weight back and more up to 291. Now I am really depressed. Came off Prozac and am back on topamax 25 mg in morning and 25 mg at night only. Have lost 3 lbs in one week. So happy. Would rather walk and feel better physically than remember someones name,”
For Bipolar Disorder: “I switched to Topamax from Lamictal to see if it would control my bipolar disorder and help me lose weight. My mood and sleep have been incredible and I have lost 15 lbs in 6 weeks on Topamax. I was a little worried about having memory problems but have not suffered this side effect at all. Have a little tingling in my feet at night but not bad enough to stop taking it. Overall I highly recommend this medication for bipolar disorder.”
For Obesity: “My Dr. has just prescribed me Topamax for weight loss. I'm the biggest I've ever been at 223lb. I have always had the tendency to be heavy as I have fought my weight my entire life but now it's becoming threatening to my health. My doctor said the "foggy" head side effects and kidney stones etc are so rare that it's worth trying. He said that the tingling of hands and feet are the most common side effect and they tend to subside. Is this true? Reading some of these reviews has me scared now but my dr seems like it should be fine. I'm confused. HELP”
For Migraine Prevention: “Topamax ruined my life! Kaiser put me on it until my Psychologist said “get off of it if it’s not working” after I told her I had been on it for over a year! This medication caused tingling in my hands, feet ,face and caused me to see people’s faces in distorted ways like a horror film! My headaches are caused from a 2cm round tumor in my left temporal lobe near my cortex at the Hippicampos Hypathalamus, it causes light seizures and horrible right side brain headaches! Even though neurologists say it’s not connected, I know from reasearch it is connected and no one is helping me deal with the horrific debilitating headaches!So when Kaiser said “try Topamax”I said sure why not!I lost 2 years of my life with my son who was a jr in highschool, it’s a miracle my husband of 25 years stayed married to me ! Topamax ruined 2 years of my life ”
For Obesity: “As far as appetite, Topamax helps. The longer you take it. however I feel like it really limits my mental ability when I take it and I can't even put words together sometimes. Brain foggish you could call it maybe. The extremity tingling is definitely real, and in the face sometimes.”
For Obesity: “I was on Topamax for almost 3 years, was prescribed it for severe migraines. The weight loss was a side effect, a nice one though! I didn't need to lose much to begin with, maybe 20lbs or so, and I started to notice that I went from the 140's to the 120's. I am now off this medicine as I have been migraine free for almost two years and the only bad thing I can say is that the weight comes right back on if you're not watching very carefully. Also - HUGE side effect was the medicine caused my body to not sweat, which caused severe overheating. It's a less common side effect, but a very super important one to be aware of.”
For Migraine Prevention: “I am 24 years old and I've had terrible migraine headaches since I was in high school. I've been on Topamax for 3 months and only taking 50mg a day since it can lessen the effect of my birth control and I don't want to highten the side affects. This has also been good enough to where I'm not getting migraine/tension headaches everyday like I used to (it was making my life miserable). I get them sometimes once a week now. My side effects from Topamax are I used to have some hand/feet tingling but it went away after I got used to the medication, it does make soda does taste flat, and I sometimes I forget words - but it's kind of how I am anyway. So far this has worked well for me and hasn't caused me any problems.”
For Migraine Prevention: “So far so good! No migraines! No more vomiting! I am losing weight! The best part is I am sleeping where as before the insomnia was truly the worst. I pray all this continues. I have had no side effects at all”
This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.
More about Topamax (topiramate)
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- Drug class: carbonic anhydrase inhibitor anticonvulsants
- FDA Alerts (6)
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- Topamax (Advanced Reading)
- Topamax (Topiramate Sprinkle Capsules)
- Topamax (Topiramate Tablets)