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User Reviews for Topamax

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Topamax.

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Diabetic Peripheral Neuropathy
9.0
   
4 reviews 41 medications
Seizures
8.5
   
2 reviews 49 medications
Tourette's Syndrome
8.0
   
3 reviews 7 medications
Obesity
7.0
   
39 reviews 62 medications
Trigeminal Neuralgia
6.6
   
8 reviews 9 medications
Seizure Prevention
6.6
   
35 reviews 32 medications
Bulimia
6.4
   
8 reviews 7 medications
Fibromyalgia
6.4
   
20 reviews 20 medications
Migraine Prevention
6.2
   
304 reviews 29 medications
Vulvodynia
6.0
   
2 reviews 9 medications
Smoking Cessation
2.0
   
2 reviews 18 medications
Summary of Topamax reviews 6.6 427 reviews

Reviews for Topamax

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For Obesity "First- there is absolutely no difference between brand and generic. There can't be legally. It is the same active ingredient and the same strength. It's just the name and cost and inactive ingredinets. This being said... I don't understand where negative remarks come from. This medicine is amazing. I took it a while ago then asked to be changed to something else. I gained 20lbs and the other med didn't so anything. So I asked to be changed back. My leg muscles hurt and I have a few word issues but it's an amazing medicine."

   
9.0

Teetzytotz December 4, 2017

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For Obesity "My original intent with Topamax was never weight loss, (mood) nor would have I ever believed the results I've obtained 19 months later. Quick negatives-my mental agility decreased significantly, I misspell my own name; most food & beverages taste like rubbish; and, the generic version is subpar. I was always overweight, I'm mid-30s, male, & slimmed from 275 to low 180s, size 42 to 32, XXL to L. It stays off! Still drop a few lbs. every month. However it's impossible for me to get off, I tried once and I went into a severe depression, but I'm a healthy weight now with perfect blood pressure."

   
7.0

crazydude81 (taken for 1 to 2 years) December 2, 2017

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For Migraine Prevention "Have been on Topamax 100mg twice a day since July of this year. Once in the morning, once in the evening. Have been a chronic migraine sufferer for at least ten years. Having at least 8-10 migraines per month, lasting at least 24 hours at a time. Unable to leave dark room and often ending up in hospital. Dr started me off on 25 mg twice a day, gradually working me up to 100 mg twice a day. This is the best thing that has ever happened to me!! migraines are down to about 1 to two a month. I can actually live my life!!! Yes, I have lost about 30 pounds since July (almost 5 months) luckily, I had it to lose. But I feel like a new person! Memory was slightly foggy at first but body adjusted and I feel great!!"

   
9.0

neely52 (taken for 1 to 6 months) November 22, 2017

3 users found this comment helpful.
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For Migraine Prevention "I've been on Topamax since 2010. I started taking 50 mg but I was given the generic and had a really bad allergic reaction to it. My skin broke out and I had to see a dermatologist. I was eventually given Topamax (the brand name) and I no longer had the allergic reaction. The 50 mg wasn't strong enough and eventually I ramped up to 200 mg. I had weight loss in the beginning (close to 90 lbs, which I could afford). I've gained about 20 of it back but I've not lost any since. I do feel that I get somewhat spacey and suffer from some memory loss. I've asked my doctor if I can come off of the medication beginning next year. I've been on it too long and I am concerned with the memory side effects."

   
8.0

gdhouston (taken for 5 to 10 years) November 9, 2017

3 users found this comment helpful.
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For Seizure Prevention "Topamax, I’m not sure what a decade of using topamax has or has not caused, it is NOT reliably controlling siezures until I started ketogenic lifestyle, in fact the high fat diet has totally taken away my tremors in head that I felt on daily basis, my Clinic had me in for 5 days in hospital testing and determined to lower my topamax level upon leaving by 100 mg. I was on 400 and lowered to 300. Today I have depression fibromyalgia and most my ligaments or hurt. Joints feel like they are rock hard swollen and painful, I can barely use my thumbs anymore but I refuse to go to do tools for fear of more medication, they never find anything wrong but proof is in pudding, bulging achilles and wrists, right side pain every joint I have hurts "

   
1.0

Ketogenic lifestyle (taken for 10 years or more) November 2, 2017

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For Migraine Prevention "First of all I have suffered with headaches all my life and at 52 they seem to be getting worse. I found out I have hypothyroidism and the weight gain is horrible. I’ve gained 15 lbs. My doctor prescribed me Topamax at 25mg still having headaches she changed the dosage to 50mg at twice a day. The first day I took one in the morning and one at evening the next morning I woke up with a severe headache... Could it be from the dr changing my dosage on Topamax?"

Kittycatz (taken for less than 1 month) October 26, 2017

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For Bulimia "I lost 10 pounds. I also almost went blind so after a month I quit and my vision returned. I quick cold turkey and had sleep paralysis with hallucinations. It was scary as heck. I was awake paralyzed, couldn't talk could not move. My hallucinations were I was in my room and something picked me up and threw me. Then something touched my back. A evil rabbit whispered in my ear. Then I woke up back on the other side of the room. This drug made me stupid as heck. I couldn't spell, talk or remember anything. My sleep paralysis scared me for life and I still think of the realistic dreams I had for 6 days. Don't take this medicine. It is terrible."

   
1.0

Okaywhocareswhatmyname October 16, 2017

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For Migraine Prevention "I started having daily headaches that turned into a severe migraine as the day progressed. Eventually I would end up lying in bed, in the dark, with no noise, unable to sleep, vomiting from the pain. I was terrified it was my new normal. This was the 1st medication my D.O. prescribed. 25mg for a month. 1st week no headaches. Then they slowly returned but would start a little later in the day. I take 50mg twice a day with 40mg twice a day of propanolol for prevention and it works unless I do a lot of crying. Then I take Fioricet."

   
10

aeralynlayla (taken for 1 to 2 years) October 5, 2017

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For Seizure Prevention "Topamax is not for me. I only take 50mg and have side effects, word retrieval issues, sleepiness, balance issues, etc. But it is the only one I can take that my stomach can tolerate! Seeking other avenues to control seizures, like reducing the radiation around me particularly at night...appears to be working!"

   
1.0

Nank (taken for 5 to 10 years) October 3, 2017

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For Migraine Prevention "At first I did not like it at all - I started off on 50mg (recommended) and found it wasn't working. I also was super spaced out, unfocused and constantly feeling like my brain was going but my body wasn't (It was WEIRD). This went on for about a week, then it worked perfectly and I was completely normal. However the migraines started coming back so I am now on 100mg a day and the same thing happened when I upped the dosage. It's working now though! I didn't notice any difference in tasting things but I did get tingles in my fingers and toes! Otherwise all round amazing medicine!!"

   
8.0

Ali Sch September 15, 2017

12 users found this comment helpful.
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For Migraine Prevention "I had migraines that lasted up to nine days. My neurologist started me on 25mg Topamax and the frequency dropped off immediately. I actually loved the way I felt on Topamax. I had boundless energy, no appetite, and was always in a good mood. After two years, I decided to stop taking it because my skin was breaking out and I think I felt a little too confident in myself. I drove a little faster, said really odd things to people (no filter) and seemed to be turning into a show off about how skinny I was. Not my best personality! I stopped taking it and didn't gain any weight, but the headaches are back. Once my dermatologist gets my skin cleared up, I might go back on it, but will be very mindful of the side effects."

   
6.0

RockFan September 13, 2017

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For Migraine Prevention "I've been taking this medication for almost 2 years now and still get headaches. My doctor just keeps upping the dose apparently it's suppose to be one of the best medications in headache/migraine prevention out there. I also take blood pressure medication as well, so taking this with a fairly high dose should take them away completely, correct? Not completely."

   
7.0

Gypsylady (taken for 1 to 2 years) September 9, 2017

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For Migraine Prevention "I was prescribed Topamax as a Migraine preventative and experienced just about every side effect. I started 25mg/day at night for 7 days, moved up to 75mg after 3 weeks and remained there. Within 48 hours I was didn't have a headache at all, but was experiencing side effects of tingling fingers, no appetite and change in taste of foods/carbonated beverages. I did have a hard time concentrating, I'd get confused and would randomly slur words. I weighted 120-ish when I started and within a few months, was 110 or less. I did work out and noticed no matter how hard I pushed, I didn't sweat and randomly got dizzy. Side effects are no joke, but you adjust after a few weeks."

   
8.0

ChubbyMoMo (taken for 2 to 5 years) August 27, 2017

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For Obesity "I'm definitely losing weight extremely fast with this medication. I took 25 mg at night the first 30 days and I'm now on the start of the third month at 50 mg at night, also, 37.5 mg Adipex every morning. With Topamax I CANNOT eat. Everything I eat makes me sick. It definitely changes you're sense of taste and smell which has pretty much stopped my smoking. So, there are huge benefits just the side effects can be a little unbearable at times. I've lost 28.7 pounds in 2 months"

   
5.0

Losing2fast (taken for 1 to 6 months) August 25, 2017

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For Obesity "I've been taking the Topamax for over a year now for migraines was on 50mg twice a day now was put on 100mg twice a day helps with the migraines I do have on side effect and that's the drowsiness but as far as a weight medication it has not help me one bit actually I have gained weight on this medication."

   
6.0

belladonna863 August 16, 2017

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For Diabetic Peripheral Neuropathy "I've been taking 25mg/day for 3 weeks for Nerve damage/back pain . I love this medication! It has some interesting side effects...(I have tried Gabapentin, Lyrica, Tramadol, and Percocet - but had really bad experiences on all of them.) The tingling goes away after a week. hot flashes - too young for this! Mentally in a better place-I was in a depressive funk before taking it. Cleared my head a bit - I actually want to get better now and am walking/making an effort b/c I'm able to b/c my pain is manageable. I still get random shooting pains, but not as harsh. Major con is my hair is falling out!!! any suggestions on hair-loss? Otc supplements I take with it: AZO Cranberry Urinary Tract Health, b12, biotin, pnv, and fish oil. drink lots of water!!!"

   
8.0

MB29 (taken for less than 1 month) August 5, 2017

8 users found this comment helpful.
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For Migraine Prevention "Reluctantly started due to reviews to prevent migraines and clear up severe blurry vision...50mg...caused facial tightness, made headaches worse, tiredness, slowness, about to think ok, bouts of tingling, vision somewhat cleared, will be reducing dose to 25mg...we will see how this works out"

   
5.0

Marich (taken for less than 1 month) August 4, 2017

14 users found this comment helpful.
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For Seizures "Was given this for seizures.Yet lost 83 pounds was full diabetic when I started this medicine now I am insulin resistance and my over all readings are 69. Which they are saying not good. I seem to sleep a lot just can't keep these glucose up bone is not hungry. Have to put alarm on phone to eat or I won't eat. Started taking vitamins and juicing to assure I get something in being I am thirty too. Though my eyes are bad in light and memory is like a dream lately. Toes can't feel, fingers tingle, mouth water mean I drool. No headache, smoke less, no seizures, loss weight, no diabetic. Can't have it all I guess"

Awellkepwoman July 31, 2017

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For Migraine Prevention "I'm writing about my 18 year old daughter who is currently on Topamax. She has suffered from migraines since she was about 12 years old. They would take her out for 2-3 days each, occurring anywhere from 2-6 times a month. When she was first given Topamax we thought it was the greatest medication ever. Problem solved, she felt that the tingling fingers, and face as well as the flat soda taste was well worth not suffering from migraines. HOWEVER - and I can not stress this enough as she increased her dose, she exhibited personality changes. She became depressed and overall just wasn't herself. Thankfully we recognized this and are working with her Dr. to back off the Topamax. We will be looking into other options. Not worth it!"

   
2.0

Jen71 July 20, 2017

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For Fibromyalgia "I took this for my chronic central pain state and it was a very effective pain killer as long as Tapentodol not taken simultaneously, then skin itch develops at low dose of EXTENDED RELEASE (capsule) 100mg nocte and 50mg morning. The itch was severe by time dose increased to 200mg am and nocte but no,other side effects except possible responsible for my delayed circadian Rythm disorder. Waking constantly before 4am sleeping 4-11am so very inconvenient, but others side effect free and a good pain killer. Remember to check if you have been prescribed the normal tablets or extended release capsules and that pharmacy has given you the correct kind."

   
8.0

MZApzap (taken for 2 to 5 years) July 18, 2017

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For Obesity "I started this 4 days ago.. taking 1/2 of 50 mg at night.. so 25 mg. I will do that for 7 nights, then up to 50mg for 7 nights, then 75 mg for 7 nights, then 100 mg for 7 nights, and so on until I reach a mg my Dr. and I are comfortable with. So far I have not had any side effects except- not being hungry. In the last 3 days I have hardly eaten anything. I've been very thirsty for water, soda taste like crap- and I was very addicted to diet coke. I haven't weighed yet... been meaning to. Last I weighed was a month or so ago, and I was at 180 ish. Today is July 10th 2017. I will weigh after work and see where I am so I have a better idea who this will effect me! I've gone from 120 to 180 ish in the past year - with different meds.."

   
6.0

chunkymonkey77 (taken for less than 1 month) July 10, 2017

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For Migraine Prevention "Medicine works, but my hair is falling out after being on 100 mg day for 6 months"

Nelly99 July 8, 2017

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For Migraine Prevention "Worst medication EVER. I couldn't form simple thoughts together. Couldn't complete tasks. Migraines got worse. That was at 100/mg. 200mg was twice as bad. Neuro told me I could quit taking it cold turkey. He's a flipping moron. I sunk into a deep depression with high anxiety after tapering dose down. This medication needs to be banned."

   
1.0

Dumbbumb (taken for less than 1 month) June 26, 2017

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For Migraine Prevention "I had a horrible experience on this medication back in 2005/2006. I started on a low dose of 25 mg/day and had severe nausea, diarrhea, dizziness, fatigue, confusion and memory impairment. Worked up to 50 mg 2xday, and the nausea/diarrhea eventually abated but the dizziness, fatigue, confusion and memory problems continued and I developed a bad tremor in my hands - I was dropping everything, couldn’t write legibly, and spilled food constantly. And I still had 10-15 debilitating migraines a month. Had to wean off it but 10+ years later I STILL HAVE MILD HAND TREMORS. Worst medication experience of my life."

WKB June 9, 2017

15 users found this comment helpful.
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For Migraine Prevention "I used to be on this when it was brand-name, and now I'm on it as a generic. I've found pros and cons with each. With the brand name, I felt like it worked better, but it gave me horrible problems with confusion. I would drive home from work and sometimes not even remember the drive home. I felt completely drugged. When the generic came out, I was switched to it. It didn't make me loopy like the brand name did, but I didn't think it worked as well either. I get more migraines on it by a lot than I got on brand name Topamax and I think I'm on the highest dose. I take one 200 mg pill in the morning and one 200 mg pill at night."

   
7.0

Gastroparesis Girl (taken for 5 to 10 years) May 20, 2017

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