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User Reviews for Topamax

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Condition Avg. Ratings Reviews Compare
Diabetic Peripheral Neuropathy
8.8
   
5 reviews 41 medications
Seizures
8.5
   
2 reviews 50 medications
Tourette's Syndrome
8.5
   
5 reviews 7 medications
Obesity
6.9
   
44 reviews 62 medications
Bulimia
6.9
   
10 reviews 7 medications
Trigeminal Neuralgia
6.6
   
8 reviews 9 medications
Fibromyalgia
6.3
   
22 reviews 20 medications
Seizure Prevention
6.3
   
39 reviews 33 medications
Migraine Prevention
6.2
   
321 reviews 32 medications
Vulvodynia
6.0
   
2 reviews 9 medications
Smoking Cessation
2.0
   
2 reviews 18 medications
Summary of Topamax reviews 6.5 460 reviews

Reviews for Topamax

For Migraine Prevention "I was prescribed 100mg topamax for mood and migraines. I was surprised it has prevented most of my migraines and helped my mood somewhat. I was having severe cluster headaches every morning for nearly 2 years waking up at 6 or 5am with excruciating pain, it was awful. Never knew what caused them , the topamax stopped them immediately, I could not believe it. I am so happy and relieved. So this has been a good drug for me."

   
10

Guillermo61 (taken for 1 to 6 months) March 13, 2019

3 users found this comment helpful.
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"Id been on xanax for years,1 mg at bedtimeNew shrink comes into where my G.P. is.She says I have to get off of xanax "You are an addict!!!"..So,I cold turkeyed off xanax and he prescribed Topomax. To help me sleep.Yeah..thats what I said!. After a month of taking it ,my body just dried up! My eyes and mouth were always parched,and my skin got reeeeealy ,babypowder smooth..Plus! Id lost 6 lbs!! I was so dehydrated,that I have permanent scarring in both of my eyes! I am looking for a lawsuit,as when I told this doc what was happening? She said "Oh really? Well lets double the dose and take it for another month and see what it does!""" I think she was crazy,and I walked out..My eyes are NOT getting better...Its been a year,and no change.Pay attention to your body,closely when starting this drug.I wish I had!"

   
1.0

amanita (taken for 1 to 6 months) March 13, 2019

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For Migraine Prevention "I have been having headaches about 20-27 days out of a month and lived on Tylenol and Motrin. Reaching 5000 mg a day on Tylenol which I knew was terrible for my liver but that was the only bit of relief that I got and that still didn’t help. Not to mention I was taking 3-4 Benadryl OR 4 melatonin a night to sleep and would only get 3 hours of sleep. After seeing a neurologist he put me in topomax twice daily and I have only had a small dull pain twice where each time I only took one Tylenol each time and they helped within 30 minutes. I recommend someone trying this prescription for migraines after talking to their doctors."

   
10

Ash March 11, 2019

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For Migraine Prevention "I started on Topamax after getting aura migraines every 3 weeks. Seemed to immediately see results but online comments worried me so I stopped Topamax after 2 weeks. Immediate migraine followed which has lasted a week so far. Will try going back on and stick to it for a month and re-evalutate. I seemed to have fogginess but will stick with it this time and see what happens."

Anonymous (taken for less than 1 month) March 4, 2019

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For Bulimia "I am a 47 yr old LICSW crises clinician and have bulimic since 15, with periods of restricting and over exercise and overeating. I went to therapy and 12 step program anorexics and bulimics anonymous (longest sober time out of 12 years in program was 5 months). After topomax things changed and I realized my obsession with food, purging and running 10-15 miles everyday was in my brain-not in a a higher power. Topomax is truly amazing and I can't believe no one told me about this until I was almost 46 yrs old. I lived with eating disorder for 45 years of my life. My memory is different. I have to live with it. People with medical issues have to deal with lots of medications side effects. I will take it."

   
9.0

lovesdogs (taken for 1 to 2 years) March 3, 2019

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For Migraine Prevention "Stopped migraines & lost 15 lbs. in 2 months on Topiramate 25mg. Other than some minor stomach issues I would highly recommend!"

   
8.0

Ruthless (taken for 1 to 6 months) February 15, 2019

4 users found this comment helpful.
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For Migraine Prevention "It made me feel woozy and then gave me the gnarliest Migraine. Horrible! Don’t take it!"

Sufferer February 5, 2019

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For Diabetic Peripheral Neuropathy "I was just put on Topamax 25mg BID. Took my first dose 6 hours ago and my neuropathy feels better already!!! Should I just stay on 25 mg? What time of day should I take it?"

   
8.0

Deejay (taken for less than 1 month) January 31, 2019

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For Obesity "Please do not take this medication! it's not worth it! I had put on some weight and doc wanted me to take this to curb appetite. It has caused me to become angry, severely depressed, having crying spells, overly sensitive for no reason, tingling in legs and hands, eye issues, and foggy head. It's been only 3 weeks and I am now tapering off cause I have been snapping on everyone. I was only on 50mg and even tapering to 35mg didn't lesson the side effects."

reviewer (taken for less than 1 month) January 2, 2019

8 users found this comment helpful.
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"I was put on 50mg a day of topamax for chronic vomiting. I only took it for 3 weeks before I quit because I could not deal with the side effects. The numbness and pain in my hands and feet were unbearable. I could not even wash my own hair. The numbness in my lips and tongue. I was not sleeping more than an hour or two a night. I was unable to pronounce 3 syllable words while reading even though I knew what they were. My speech definitely slowed down. Just by stopping my speech has improved already. I could not imagine taking this drug for a longer period of time. I don’t see how this is approved by the FDA with all the side effects people have. 4 days after I stopped taking it I still do not have feeling back in hands and feet and still is painful. This drug needs to be off the market!"

   
1.0

Mel (taken for less than 1 month) January 1, 2019

5 users found this comment helpful.
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"I was on this for obsessive thoughts. It was so Awful awful awful!!! Never again on this drug. Devastating! Horrible behavior."

   
1.0

watchfulmom (taken for less than 1 month) December 7, 2018

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For Obesity "My Dr. has just prescribed me Topamax for weight loss. I'm the biggest I've ever been at 223lb. I have always had the tendency to be heavy as I have fought my weight my entire life but now it's becoming threatening to my health. My doctor said the "foggy" head side effects and kidney stones etc are so rare that it's worth trying. He said that the tingling of hands and feet are the most common side effect and they tend to subside. Is this true? Reading some of these reviews has me scared now but my dr seems like it should be fine. I'm confused. HELP"

misinformed (taken for less than 1 month) November 29, 2018

5 users found this comment helpful.
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For Migraine Prevention "After trying everything and failing to get my migraines under control, I was at rock bottom. My doctor suggested Topiramate and it has changed my life. I can go out and live a normal life, and not worry what will happen if I get a migraine or how quickly I can get home. My migraines have completely stopped since I have upped the dose from 25mg to 50mg I get some tingling in my legs but I can cope with that if it means no migraines for ever. It’s a miracle drug"

   
10

Emi93 (taken for less than 1 month) October 12, 2018

15 users found this comment helpful.
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For Migraine Prevention "I have had migraines for 31 years that were easily controlled by Sumatriptan a few times a month and 25mg of Amitriptyline daily. While now going through perimenopause my migraines became more severe and harder to control. I was taking many milligrams of OTC pain relievers, tried all natural remedies, my life started being controlled by when I was going to get a migraine. My Neurologist prescribed Topiramate Sprinkle Capsules, started 15mg every three days until target dose reached. The first few weeks I was very tired and I did feel foggy, at 45mg I stopped having migraines and I have stayed at that dose for the last four months. Yes, I still do feel a little foggy at times, and I have to take it at night because it makes me very tired, but it really has been a miracle drug for me, and I'm glad I didn't have to take the full 100mg for the drug to work. I did have two headaches while on topamax, but both were relieved by Ibuprofen."

   
10

Happy October 3, 2018

18 users found this comment helpful.
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For Migraine Prevention "This medicine made me so slow and drowsy...it also made my grades drop tremendously especially in math subjects"

   
1.0

ac (taken for 2 to 5 years) October 1, 2018

5 users found this comment helpful.
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For Obesity "3 months ago I was 259lbs and now I am 219lbs now. I take topamax daily, and phentermine 1-2 days a week sometimes, and it’s helped not only my mood but my obsessive thoughts about eating and food. I don’t sit and think about it all day long. I also had an energy drink addiction and broke it because all carbonated drinks taste flat! All soda tastes awful!! I do get bad headaches if I miss a dose. Don’t miss your pills. I used to get bad headaches weekly but not since taking this medication- they don’t come around anymore. I’m topped off at 50/twice a day but I’d happily take 100/twice a day. I do get brain farts but after 3 months it’s not as bad."

   
10

Elle (taken for 1 to 6 months) September 18, 2018

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For Obesity "I gained a lot of weight from depression medications. They put me on Topamax to fix that. I’ve been on it for several weeks. Twice a day, 25 mg. Now the first day I immediately noticed an appetite change. I haven’t craved food all day, every day. Haven’t craved as much junk or sweets. And I have dropped a little weight. So it definitely works wonders. I am definitely struggling with the side effects so I think I am going to ween off it. As much as I’d love to continue to eat regular amounts and lose weight. The side effects are too much. Before I started this I had tingles in my hands and feet. But this intensified a LOT. I’m also having a lot of head pressure. Tiredness. And I feel functionally slow. I feel like I can’t think, can’t remember anything, can’t do simple tasks. Hopefully there is another medicine that can have the same effect for weight loss & appetite without these severe side effects."

   
3.0

ChronicallyChill (taken for 1 to 6 months) August 25, 2018

15 users found this comment helpful.
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For Migraine Prevention "My migraines seemed to get worse with topamax. More frequent too."

   
1.0

thrbbr (taken for 1 to 6 months) August 22, 2018

9 users found this comment helpful.
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For Migraine Prevention "Reduced my migraines by about 1/3, but also reduced my weight. I struggled greatly with the side effects. As someone who already struggles to keep weight on, the weight loss with the Topamax was too much for me. It was somewhat effective. If you are not concerned about keeping weight on then this will probably serve you better than it served me."

   
6.0

any mouse (taken for less than 1 month) August 17, 2018

9 users found this comment helpful.
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For Migraine Prevention "It is seems to be brain damaging, it was never approved for these off label conditions. It gave me bladder stone even though I drank plenty of water. My migraines never ceased or got better. Was on it over 10 years."

   
1.0

Army girl (taken for 10 years or more) August 14, 2018

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For Seizure Prevention "Not sure about this drug. Started at 25mg 2x a day for 2 weeks, worked up to 50mg 2x a day. Still having seizures 1-2 times a day. Had it upped to 100mg 2x a day and now I don't have seizures but there's so much pressure in my head I feel like it's going to pop. It also makes my 2mg xanax ineffective, I've gone from sleeping 12hrs straight to maybe 2-3. I've lost 10 pounds but it's horrible to say I'd rather have a seizure to release the pressure and be chunky. Calling the dr in the morning."

   
5.0

Banshee (taken for 1 to 6 months) August 12, 2018

2 users found this comment helpful.
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For Migraine Prevention "I have 6 days of migraine per month nicely relieved by Tramadol plus being in a dark room. My new Dr wanted me to try Topamax. First dose I had a bad headache, diarrhea and inability to concentrate. Day 2 I had the same side effects plus a dull mood and elevated body temp. These effects are all unacceptable to me so I am going back on Tramadol. It is a mild narcotic but I have not had any addiction in 10 years. The mental effects of Topamax were awful, plus I have GI problems so adding diarrhea was no good. And it caused headaches."

   
1.0

Mickey (taken for less than 1 month) July 29, 2018

13 users found this comment helpful.
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For Migraine Prevention "Day 3 on this and was prescribed for migraines but also watching weight due to weight gain from taking nerve meds. Current weight 216lb and looking to lose back under 200 pounds. I have experienced tingling in hands a bit with topamax in the first 2 days which is considerably fast but definitely from these pills. Will update after a few weeks."

   
2.0

Unique1111 (taken for less than 1 month) July 11, 2018

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For Fibromyalgia "Do not take this if you are even remotely sensitive to side affects. I was considered extremely smart and an excellent memory with a background in english and communication. I cannot remember what I said or did yesterday....Much less my life memories."

   
1.0

Dummy (taken for 1 to 6 months) July 5, 2018

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For Fibromyalgia "Been taking Topamax since 2004, off label, for peripheral neuralgia in my feet with very positive results. Did not realize the additional effects on fibromyalgia until I ran out for about 2 weeks...won't let that happen again!"

   
10

Teddy (taken for 10 years or more) May 13, 2018

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