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User Reviews for Topamax (Page 2)

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Topamax.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Diabetic Peripheral Neuropathy 4 reviews 40 medications
   
9.0
Seizures 2 reviews 49 medications
   
8.5
Tourette's Syndrome 3 reviews 7 medications
   
8.0
Bulimia 7 reviews 7 medications
   
7.1
Obesity 36 reviews 62 medications
   
6.9
Seizure Prevention 33 reviews 32 medications
   
6.9
Trigeminal Neuralgia 8 reviews 9 medications
   
6.6
Fibromyalgia 20 reviews 20 medications
   
6.4
Migraine Prevention 296 reviews 29 medications
   
6.2
Vulvodynia 2 reviews 9 medications
   
6.0
Smoking Cessation 2 reviews 18 medications
   
2.0
Summary of Topamax reviews 413 reviews 6.7

Reviews for Topamax

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For Fibromyalgia "I was put on this medication for fibromyalgia and basilar type migraines by my neurologist in high school. I originally went off of it because I could not handle the side effects. I was then bullied by my mother & doctor into going back on to it because "it was my only option". I became face blind, could not navigate my way around even with a map, memory difficulties. issues doing simple math, became asexual & had no motivation to interact with people. Towards the end of my time on topamax I was so depressed that I would just sit despondently. I switched doctors and she immediately stopped it. The side effects went away after stopping the first time but after the 4yrs on it I still have some side effects that haven't completely gone away."

   
1.0

Headachpanda (taken for 2 to 5 years) February 11, 2017

6 users found this comment helpful.

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For Migraine Prevention "This drug is horrible. Pros: yes, it destroys your appetite and you lose weight bc of that. You also don't enjoy food, which made me less inclined to want to cook for others (note: I am a foodie and love to cook). Cons: This drug did zero for my migraines. I take Amerge; works! I felt so foggy and "in and out" of ability the abilty to concentrate in the mornings (100mg nightly dosage). ok after 4 hrs. My mouth was literally so dry and my tongue so thick feeling, I could not get 3 syllable words out. Also, I had to grasp for words. I was losing confidence in my own performance and others commented on my lack of "snap." This was after a YEAR! Short term memory was shot, perhaps bc of "in and out" concentration. Hair! Had to get extensions!"

   
1.0

TMS2625 February 9, 2017

16 users found this comment helpful.

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For Migraine Prevention "When I first started topamax I couldn't notice the side effects except for the tingling in my hands, feet and face. I thought it would go away with time but here I am 2 years later and it is still happening. This medication also prevented my migraines at first, then I had to be put in the hospital for 5 days to get treatment about 6 months ago, and now they are back again. If you miss even one dose you get a whole new set of side effects as if you started the medicine that day! Before I took this medicine my hair was so thick, and I never really noticed the hair loss side effect until now because my hair is falling out in chunks. Topamax also caused me to get kidney stones and be hospitalized for a month. The only good thing is I lost 50lbs"

   
3.0

ge304 (taken for 2 to 5 years) February 8, 2017

10 users found this comment helpful.

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For Migraine Prevention "It worked, but the side effects were terrible, lasting and possibly permanent. The worst of the side effects I experienced were lack of taste and short-term memory loss. Over two years after taking this medication, I have still having issues with my short-term memory."

   
5.0

eparker726 (taken for less than 1 month) February 3, 2017

10 users found this comment helpful.

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For Migraine Prevention "I was in a car accident with a head injury. I had intractable migraine and other headaches that came and went daily on top of that and three months after the accident my neurologist offered Topamax. It's been 9 months. I lost a lot of hair; I have the soda is flat thing; the pins and needles; and I have lost weight. I think the brain fog was not noticable because of the brain injury. It took care of my headaches immediately. I didn't mind the side effects. I ran out of it once and on day two had a seizure. I tried to titrate off recently and the migraine returned with a vengeance so I am still going to be taking it. I don't mind the side effects in comparison to the headache. Also-I use hypnosis for some of the side effects."

   
9.0

Serenitynemememe February 2, 2017

14 users found this comment helpful.

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For Migraine Prevention "I had been taking Topamax for a year, but have just taken myself off due to excessive hair loss, loss of concentration and memory, and sleep problems. My hair was falling out by the handfuls every day, and the concentration and memory loss were preventing me from working as I am a translator. I have been on propranolol 160 mg daily for 2 years now, and have had good results from that with not too many side effects. I take rizatriptan when I do get a migraine and it stops it usually. If it doesn't I take Fioricet as well and that works."

   
5.0

Annabelleblue February 2, 2017

12 users found this comment helpful.

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For Migraine Prevention "The topamax worked great for my migraines, the bad part is that it causes kidney stones."

   
6.0

Jamcc (taken for 2 to 5 years) January 31, 2017

9 users found this comment helpful.

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For Fibromyalgia "Miracle drug! The side effects can be daunting at first, like tingling/numbness in extremities that won't stop for hours, but if you increase your water intake substantially and power through, it's totally worth it. My daily tension headaches are 90% gone, which is huge for me. It didn't do much in terms of overall muscle pain reduction or the daily body aches, but I did lose over 30 pounds in four months. I stopped drinking all carbonated drinks (because it makes them all taste super flat weirdly) and definitely am not as hungry as I used to be, so that's just a bonus."

   
9.0

Lynn Y. January 27, 2017

16 users found this comment helpful.

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For Seizures "I started taking this medication as soon as I was diagnosed with an inherited seizure disorder. Although I haven't had a seizure ever since I began to take the medication (which is good because the meds are working) the side effects were horrible. I would often feel very disoriented and saw a great amount of weight loss. This may not apply to everyone because everyone is different, but that was my experience with this medication."

   
7.0

nathalie2697 (taken for 2 to 5 years) January 26, 2017

8 users found this comment helpful.

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For Bulimia "Update: this is an update to the previous review, see below. I have been on topiramate and 20 mg prozac since 3 plus years now. I have been tapering on and off all meds and have to say the combo 20 mg prozac with 100 mg topiramate twice daily does work best. It is not perfect, but I am better. Since I am still quite symptomatic I will have an upcoming visit yet another psychiater who is screening ,me for adult add. There is a possibility that if this is the case a stimulant might actually help me out (after 35 years of treatment refractory anorexia and bulimia nervosa). I keep updated."

Ms treatment resistant (taken for 2 to 5 years) January 16, 2017

4 users found this comment helpful.

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For Migraine Prevention "I got put on Topamax about 3 years ago, I felt it wasn't helping with my migraines so I took myself off. Then I had a seizure because I didn't have it. So I started back on it and had no luck with migraines. I quit taking it again and more seizures. Ever since I've been on it I have had seizures and they are not in my family at all."

   
2.0

KaylaMichelle January 6, 2017

15 users found this comment helpful.

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For Migraine Prevention "Have taken 10mg Topamax for 4 months, I thought I had found a preventative but after 3 months my hair was shedding more then usual. Thought I was stressed out and overwhelmed with small kiddos and hubby deployed, my dermatologist didn't see anything very serious, like alopecia, so I continued. I began taking biotin and vitamins, but hair still kept coming out and scalp was starting to show more. I stopped completely and only lasted 4 days before a migraine wanted to come on. Luckily I took a rizatriptan in time to fight it off. Topamax worked beside the side effects of hair loss, forgetfulness, some leg cramps. Has anyone had any luck with another migraine preventative?"

   
3.0

Dmp1 January 2, 2017

15 users found this comment helpful.

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For Obesity "I did/am experiecing the tingling everyday in my fingers, I am not hungry. I did have the brain fog to where I wouldn't drive. I wouldn't make any decisions about anything without talking it over with someone I trusted first. I am now up to 75 in the morning and at bedtime and I still have the tingling but the fog has been lifted the headaches are SO much less BUT I have only lost 3 pounds. Can't seem to stop smoking even with this. Still hoping this will help with the smoking. Wish me luck"

   
7.0

Still here December 30, 2016

32 users found this comment helpful.

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For Migraine Prevention "I loved this medication until it gave me stroke like side effects. The side effects kept getting worst to the point where I couldn't stand up, grasp anything, I talked funny and even messed with my throat to the point of chocking. It is a very dangerous drug with crazy side effects, not worth it. I did loose weight about 15 pounds, because I was never hungry while taking it."

   
8.0

Anonymous (taken for 2 to 5 years) December 21, 2016

19 users found this comment helpful.

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For Migraine Prevention "I have only been on it for about 6 days and already seen a incredible difference. I had a headache everyday for a year and a half and got bad migraine about 2-3 times a week. I have not had a migraine yet and my everyday headache has calm down. When I first started it did make me very drowsy but that went away as I got use to it"

   
8.0

allison82802 December 15, 2016

29 users found this comment helpful.

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For Trigeminal Neuralgia "Works well with combine with medical Marijuana. I take them at night 2 in the morning. It let's me be able to sleeps at night. I wasn't able to lay down after a fail MVD operations. Since I started the Brand name topomax it help me a great deal."

   
10

Elisabelle December 7, 2016

3 users found this comment helpful.

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For Seizure Prevention "I've been on this for over a year. Works very well. I have one side affect, tingling in my feet. I eat alot of greens and bananas to help with that. I lost 45 lbs because of it as well. I take Vitamin B-12 to help with my memory because of the seizure meds...like every seizure meds can affect your memory."

   
8.0

Annloss1970 November 23, 2016

8 users found this comment helpful.

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For Migraine Prevention "Been on this for just a week now at 25 mg also on 50 mg of amitriptalyne of a night. The first few days I felt really spaced out, but sort of kept coming in waves through the day. I also suffer from m.e as well but have found the past few days I have had lots of energy. I don't feel tired at all. Supposed to up dose to 50 mgs on second week, but I'm thinking may stick to the 25 for a little while to see how things go. No migraines up to now. Reading all the reviews most of the side effects seem to come when the dose is increased. Really worried about the hair loss business, don't think I could deal with that one . Think I'm going to give this a go for a few months and see how things go, it's all trial and error, or kill or cure."

   
4.0

Krissies November 21, 2016

29 users found this comment helpful.

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For Migraine Prevention "I have been taking 75mg topamax one a day for about 10 years now. I have gone as far as taking 100mg until I started not being able to get the words out that I was thinking of. That side effect has not completely gone away but is better. When I first started I did have the tingling in my hands and feet but it was no more than like having carpal tunnel, I also have the weird taste where soda tasted flat and tomatos tastes weird. I did loose a little weight. The tingeling went away, I adjusted to just not drinking soda. And tomatos started to taste fine. I also take Sumatriptan for when I still do get a headache. However the headaches are much fewer and further beteeen. I will get a cluster of them about every six mths but still better."

   
9.0

Jenn K November 15, 2016

40 users found this comment helpful.

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For Obesity "I've found that Topimax has worked for me, I've lost 73 pounds still struggle with food consumption from time to time but I do find that it has a definite affect."

   
8.0

TJ Sweetheart November 13, 2016

75 users found this comment helpful.

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For Migraine Prevention "I started out at 75mg, had to decrease at first because it made me super emotional and had really bad tingling in hands/feet, so I ended up going back down to 50mg, then I slowly increased by 25mg until I got up to 100mg and I'm doing OK now. I do feel emotionally sensitive at times and do get occasional tingling in my fingers and toes if I don't eat for awhile, which the Topamax also decreases my appetite and I have lost weight on. I still have ocular migraines if I stay up too late or don't get enough sleep. If I have even a small glass of wine the evening before I will wake up with an awful migraine the next morning, so I see why they say not to drink while on the medication. Overall it has really significantly decreased migraines."

   
7.0

Calantha November 5, 2016

25 users found this comment helpful.

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For Migraine Prevention "Had migraines for 7 years. Take Fioricet for pain, which works well, but I wanted to try prevention. My doctor had already tried Gabapentin, Sumatriptan, and Propranolol, all of which had side effects but did nothing for migraines. Next came Topamax. Side effects were: Slight change of taste (sodas tasted flat, bread tasted sweeter), and gradual loss of memory and concentration, such that it was hard to read or study an issue at work and be able to understand it. It did not affect my eating habits or energy levels, did not affect my weight at all. It also did nothing for my migraines. It severely impeded my ability to think and thus my ability to work in the tech field, so I stopped taking it, and my work performance improved drastically."

   
1.0

Berander (taken for 1 to 6 months) October 28, 2016

34 users found this comment helpful.

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For Migraine Prevention "I began taking 25 mg of topamax once daily due to my migraines lingering 2-3 days at a time. Topamax did a NUMBER on my body. I completely stopped eating. Every time I tried to eat I took ONE BITE and would gag. I felt so extremely full constantly eventhough I knew I had not eaten. Topamax completely destroyed my appetite and although I've been off of the medication for 6 months I still never crave ANYthing. I eat when I'm hungry but I no longer have any cravings. While taking this medication I lost a lot of my memory. I was constantly hazy or confused and I felt like I was always searching for my task. I became malnourished and confused that I quit taking the medicine completely. I would never recommend this medication bc of side effects!"

   
1.0

Jaurdin (taken for less than 1 month) October 28, 2016

26 users found this comment helpful.

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For Migraine Prevention "I've only been on this medication for 2 weeks now but it has changed my life. I have lived with chronic migraines since my entire life..since I was 18 months old. I have lived with daily headaches and almost daily migraines for the past 10 years and it has taken over my life. Since starting Topamax, I have had 2-3 manageable headaches and I have my life back! It has even taken away chronic fibromyalgia and arthritis pain, given me back my ability to sleep soundly for hours at a time, and has gotten me out of a daily triptan habit that almost caused a stroke a few weeks ago. The side effects (brain fog, drowsiness, etc) are nothing new for me given I have fibromyalgia. A life without pain is worth it to me! What a miracle!!"

   
9.0

paper mate (taken for less than 1 month) October 19, 2016

54 users found this comment helpful.

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For Obesity "This is an early review as I just started it on 10/16/16 but the food cravings are gone, it takes less food to satisfy me, soda tastes terrible, cigarettes taste different and bad (which is a surprising good side effect!) and I just feel better with less food in me. I have tried phentermine with no luck and usually had good success with natural weight loss until being diagnosed with rheumatoid arthritis and needing a knee replacement that keeps me from working out too much. So so far, I am impressed. I'll be back in a few weeks for a weigh in review. No side effects like others have had with mental fogginess or tingling. 25mg 2x day. Here's hoping my 235 can become 155 again!"

   
9.0

jenna806 October 18, 2016

119 users found this comment helpful.

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