Topamax for Seizures User Reviews

• Awe...
• July 31, 2017

"Was given this for seizures. Yet lost 83 pounds, was full diabetic when I started this medicine, now I am insulin resistant and my overall readings are 69, which they are saying is not good. I seem to sleep a lot, just can't keep these glucose up. Bone is not hungry. Have to put an alarm on phone to eat, or I won't eat. Started taking vitamins and juicing to ensure I get something in, being I am thirty-two. Though my eyes are bad in light, and memory is like a dream lately. Toes can't feel, fingers tingle, mouth water means I drool. No headache, smoke less, no seizures, lost weight, no diabetes. Can't have it all, I guess."

• nat...
• Taken for 2 to 5 years
• January 26, 2017

"I started taking this medication as soon as I was diagnosed with an inherited seizure disorder. Although I haven't had a seizure ever since I began to take the medication (which is good because the meds are working), the side effects were horrible. I would often feel very disoriented and saw a great amount of weight loss. This may not apply to everyone because everyone is different, but that was my experience with this medication."

• Chr...
• Taken for 5 to 10 years
• August 3, 2020

"I was given this medication, Topamax, because of seizures caused by migraines. My left and right eyes were sending signals to the occipital part of the brain milliseconds apart. After over 20 years of bad migraines and seizures, Topamax cured my problems, and now I have seizures about twice a month rather than virtually every day. The seizures are far milder when they occur."

• emb...
• Taken for 1 to 6 months
• May 22, 2022

"Started taking it to replace an expensive pill that wasn’t working. Had high hopes. Then, while watching TV, all of a sudden everything went dimmer, and I began having eye pain. Then, during three seizures of 18 seizures I had during the 2 months I took the pills, I urinated in the middle of seizures, yes, I peed my pants down the front where the pee reached almost to my ankles. Because of this embarrassment and my eyes beginning to go blind, side effects I contacted my neurologist, and he changed me to the next option ASAP. My eyesight is slowly returning to normal."

• Aus...
• Taken for 1 to 6 months
• February 3, 2022

"I’m 25 years old and have tried many meds for my seizures. I had 3 brain surgeries and was on Lamictal, Vimpat, and Clobazam. I needed to go off of Clobazam because my body was adjusting to the drug. I started Topamax, and it improved my nighttime seizures, and the side effect of weight loss was great because all others cause weight gain. I was weaning onto it and was sent for blood work on the Lamictal levels, but the day after, my neurologist called. He said I needed to stop the Topamax immediately because the average liver enzyme level is 50 and mine was at 1,000! I wasn’t feeling bad or anything, but he is an experienced neurologist and said he had never heard of this happening to anyone before. It’s sad that it happened because it was decreasing the seizure frequency, and the weight loss was working, but it poisoned my liver. It sounds rare, but it worked. In my case, that’s why I rate it low."

• Ron...
• Taken for 1 to 2 years
• April 19, 2020

"I took this med Topamax years ago, about 2003, for seizures (that's what it was made and intended for years ago, migraine was an off-label use). I didn't have hardly any noticeable side effects but was changed to another seizure med after around a year."

• Ajs...
• Taken for less than 1 month
• March 13, 2022

"Topamax has caused me to feel dizzy and hand tremors. I wish I could select a 0 instead of a 1."

• Anonymous
• Taken for 6 months to 1 year
• February 2, 2023

"It helped with the essential tremor, however, I experienced weight and appetite loss along with paresthesia."