User Reviews for Topiramate to treat Diabetic Peripheral Neuropathy
Also known as: Topamax, Trokendi XR, Qudexy XR
Topiramate has an average rating of 7.1 out of 10 from a total of 14 ratings for the treatment of Diabetic Peripheral Neuropathy. 57% of reviewers reported a positive effect, while 21% reported a negative effect.
Topamax (topiramate): “After having developed neuropathy post surgery I was suffering daily. I had tried Neurontin with little relief and was prescribed Topamax initially at 25mg. Over the last 6 years I've been titrated up to 300 mg and can tell you that this drug has helped tremendously. Initially I had common side effects, difficulty finding words, I lost weight about 20 pounds, and found that I had some tingling in my hands and feet. These issues generally resolved in time or I have just grown accustomed to them. For anyone who initially has issues with the side effects try and stick with the medicine for a little bit unless totally intolerable, it gets better.”
Topamax (topiramate): “Day one Topamax helped my neuropathy. I’ve have tried everything. When I say everything, I mean everything. Opioids, lyrica, gabapentin, cymbalta, injections in my spine, and I’ve even considered surgery. One 25 mg dose and I felt better than I have in 20 years. I hadn’t been able to lay on my left side comfortably for over 5 years. The first night, I slept 4 hours straight on my left side. Not only does it help the pain, it keeps the muscle tension down from the nerve aggravation. I will say I got some pretty crazy side effects the first couple days like drooling, sleep paralysis, very realistic dreams, muscle pains in my arm pit area, and upper respiratory symptoms but those all went away within 4-5 days. I am extremely happy with this medication.”
Topamax (topiramate): “I was diagnosed with trauma induced neuropathy in my left heel following an injury that became infected, developed cellulitis and an ulcer. It took 2 months of intensive treatment for my foot to heal but about 3 weeks after I returned to work, I started experiencing sharp, electrical type pain in my heel. It was excruciating. My doctor prescribed Neurontin at first but I was not able to tolerate it. I was switched to Topamax and within a day, I had full relief and since then, I have been pain free. Yes, I am a juvenile diabetic but I had never had problems with my feet until this happened. The neuropathy is confined to my left heel only. Topamax is the best. The side effects are minimal but even if they weren't, it's worth it to be pain free.”
Topamax (topiramate): “Topamax has helped my diabetic nerve damage more than any other drug that my doctor has prescribed for me, and it does not have all the other nasty side effects, including the weight gain. I get enough of that from the insulin. I love taking the Topamax. I'm on a low dose (25 mg) but it sure has helped me.”
Topamax (topiramate): “I've been taking 25mg/day for 3 weeks for Nerve damage/back pain . I love this medication! It has some interesting side effects...(I have tried Gabapentin, Lyrica, Tramadol, and Percocet - but had really bad experiences on all of them.) The tingling goes away after a week. hot flashes - too young for this! Mentally in a better place-I was in a depressive funk before taking it. Cleared my head a bit - I actually want to get better now and am walking/making an effort b/c I'm able to b/c my pain is manageable. I still get random shooting pains, but not as harsh. Major con is my hair is falling out!!! any suggestions on hair-loss? Otc supplements I take with it: AZO Cranberry Urinary Tract Health, b12, biotin, pnv, and fish oil. drink lots of water!!!”
“I have taken topiramate 200 mg for nearly 20 years for diabetic neuropathy. It has been a miracle drug for me. Prior to taking this I was literally incapacitated and unable to work due to debilitating pain. Like others I had some issues in the beginning but it was well worth it. I am an RN who has many colleagues with diabetes and for whatever reason their MD's refuse to prescribe this for them; preferring Lyrica which in most cases piles on pounds and for most has little to no effect. My A1C has always stayed around 6 or below, for me this has also helped in conjunction with drug therapy.”
“I've heard so much about topamax and was given it for nerve pain I have heard that its infamous nickname is "dope-amax" which I find hilarious but have fortunately not experienced yet thank God! I have however, coined another nickname for it: "skinnymax" as I have been taking it one week and am wasting away on it! I have to make myself eat. My pain management doc put me on it because Lyrica and Depakote caused weight gain. I wasn't fat to begin with. Just didn't want to go down that road. I'm currently on 25mgs bid. The only other side effect besides loss of appetite is mild drowsiness. I am 5'2 and last I weighed in at 115. I haven't weighed but if I go below 105 I will have to stop. Still it is a great drug!”
Frequently asked questions
- Does topiramate cause weight loss?
- Does topiramate cause hair loss?
- How long does it take for Topamax to start working?
- How long do you stay on Topamax for migraines?
“I started taking Topiramate several years ago for pain/neuropathy, as I read these posts I found out it could also be helping my obesity, fibromyalgia, Crohns and my smoking. I stopped taking it about two months ago because I was having kidney stone problems and thinking this medicine could be the reason why. In the two months I have gained 25lbs, I'm in so much pain I can't wrap my head around it, and my smoking is got in out of control. I had no idea this medicine could or was helping all my other issues so I'm going back on it to see if I loose the weigh, control my pain, stop smoking, Although kidney stones can be the most excruciating pain ever! I'd rather have that pain once a year than suffer every day in my other pain.”
“I was recently prescribed topiramate 25 MG tablet for neuropathy caused by type 2 diabetes. I can not find any other place on here where this drug was prescribed for neuropathy, but so far it appears to be helping.”
“I actually take it for my Psoriatic arthritis for neuropathy. Took only 30 for days worked great but my blood pressure went from 128/78 before starting to 178/116 the day I stopped it . My Doctor told me it probably wasn't the Trokendi XR because there is no listing of raising blood pressure in the list of side effects, but 1 week after stopping it my BP is back to normal . USERS BEWARE !!!”
“I was prescribed topiramate for neuropathic itch. Continuous itching all over my body caused by damaged nerves. I got every bad side effect. I can't remember simple things. I'll go to do something and forget what it was. I misspelled my own name. I had a 4.0 in high school and suddenly I can't spell.... I feel like I have dementia. My thoughts escape my mind so frequently I can't have a conversation with anyone. I feel dumb. My eyes hurt. My hair is coming out in large amounts. I want my clarity and my health back. This medicine really should not be on the market. I will never take another medicine again! It helps block the nerves but the site effects aren't worth it.”
Topamax (topiramate): “My real issue is chronic post-breast surgery and cancer treatment chronic nerve pain (which is not on the list): Second day. OMG, I thought gabapentin and nortriptyline side effects were bad! I have a job and I have to talk to people. I could never take this drug and work. And I wouldn't want to quit working to take it. Doctors think this is helpful. Welcome to being a lab rat, I was still in pain, my eye and the surrounding area hurt, continuously drinking water, couldn't concentrate, felt like what it must be like on amphetamines, that lasted ~9 hours and then I CRASHED and shortly after had a total meltdown. I do not need to ever feel that way again as I try to help myself.”
Topamax (topiramate): “I was just put on Topamax 25mg BID. Took my first dose 6 hours ago and my neuropathy feels better already!!! Should I just stay on 25 mg? What time of day should I take it?”
Topamax (topiramate): “I had the worst effects from this medication made me very loopy and could not remember anything. It made feel like balanced my balance was off. I would not recommend this medicine for anyone.”
“Got this to help with nerve pain and I lost over 50 lbs in 6 months. Ididn't even try. Just didn't want to eat crappy food anymore. Strangest thing really...”
This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare professionals.
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