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User Reviews for Remicade

Remicade has an average rating of 7.1 out of 10 from a total of 161 ratings on Drugs.com. 62% of those users who reviewed Remicade reported a positive effect, while 19% reported a negative effect.

Condition Avg. Rating Reviews Compare
Crohn's Disease, Maintenance  
7.5
37 reviews 26 medications
Ulcerative Colitis  
6.8
36 reviews 75 medications
Rheumatoid Arthritis  
7.4
31 reviews 360 medications
Psoriatic Arthritis  
8.6
16 reviews 75 medications
Crohn's Disease  
5.4
15 reviews 19 medications
Ankylosing Spondylitis  
6.1
11 reviews 144 medications
Crohn's Disease, Acute  
6.6
10 reviews 32 medications
Psoriasis  
7.3
4 reviews 318 medications
Ulcerative Colitis, Maintenance  
4.0
1 reviews 20 medications
Summary of Remicade reviews 7.1 161 reviews

Reviews may be moderated or edited before publication to correct grammar and spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest in the medication will not be published. As reviews and ratings are subjective and self-reported, this information should not be used as the basis for any statistical analysis or scientific studies.

Reviews for Remicade

Therese45 · Taken for less than 1 month May 21, 2021

For Psoriatic Arthritis: “I had my first dose of Remicade after several failed attempts at oral and injectable medications over the past 10 years. This past year I have been experiencing the worse flare ups ever to the point where I had other steroid injection in my finger joints. However, after the first dose of Remicade I feel like the person I use to be. I wasn’t sure if it was the pre-medication of steroids or the Remicade at first but I strongly feel like it is the Remicade, thank goodness. Definitely worth it!! Now my husband no longer has to help me brush my hair or open my medications . ..”

10 / 10
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tonycuban · Taken for 1 to 6 months May 10, 2021

For Ulcerative Colitis: “I have been on the medication Remicade for 5 months now, with no side effects. I eat everything and lots, except coffee (gives me the runs) and beans. I introduce salads back in my diet after the second month of treatments. I am almost back to where I was before I had my first and only flare. The only "inconvenience" is that I have to use the washroom before going out just in case. I usually have a window of 3 to 4 hours between bowel movements. From the first infusion I noticed improvement. In the stool chart I am between type 5 and 6, which is understandable by the lack of fiber which I am introducing slowly.”

10 / 10
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Nole · Taken for 10 years or more March 6, 2021

For Ulcerative Colitis: “While Remicade did help with my UC, it also has serious side effects that were not in the black box info when I was taking it and can attest it caused me to develop a rare skin cancer that caused major constructive surgery and also attribute it to creating psychological issues like depression which I had never experienced until after taking Remicade. I ultimately had to discontinue Remicade. Please be careful with this medication there are serious side effects that will eventually show up.”

3 / 10
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Frequently asked questions

Anonymous · Taken for 1 to 2 years November 4, 2018

For Rheumatoid Arthritis: “My wife had RA from when she was a child. She had used the normal meds till remicade. She was in Japan and started on remicade in Apr 2007 and die in Feb 2008 from the reactions/side effect to it. I advise that if you get any of the side effect symptoms to see your doctor right away. I have found that if you get one symptom you will get more. There are 3 pages of side effects/reactions.”

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Tootrusting · Taken for 1 to 6 months April 30, 2020

For Ulcerative Colitis: “This medication Remicade made me in constant pain. I slept for two months 20 hours a day. I felt very depressed. My body was in pain everywhere and I was covered in a rash. Parts of my body have permanent nerve damage months after I got off it. My specialist told me it is hard to diagnose nerve damage, as if that matters. Is everyone a liar till a doctor proves it? This same specialists wanted me to go back on it. I said I really didn't want to go through that again. The specialist would not leave it alone. I Mentioned Covid-19 to him and he said it won't make a difference if I am off remicade or not. Oh okay, I guess all these tests were for nothing then? Now I am without a specialist. He then talked down about me to my family doctor saying I am refusing treatment. Now my family doctor is treating me like I am just wasting people's time. I suspect this is exactly how people become homeless. Do I have no rights? People should consider their specialist might value money more than your life.”

1 / 10
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Tomh219 · Taken for 2 to 5 years February 23, 2014

For Ulcerative Colitis: “Life-changing. I once thought I was doomed to a life of pain and suffering. Now that I've been on Remicade for 3 years, I feel like a normal human being again. My disease has become a small part of my life and I don't even think about it much anymore. I do seem to be slowly losing response. I had to increase the frequency of infusions and now I sometimes have minor symptoms around the time I am due for my next dose. I was nervous when I started this medicine because of the trips to the hospital for infusions and because my doctor at the time made it sound like a huge deal to be on this. I wish I had started it sooner!”

10 / 10
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Dee dee I Di · Taken for 1 to 6 months November 10, 2014

For Rheumatoid Arthritis: “Horrible joint swelling/pain, fatigue like none other. Diagnosed with rheumatoid arthritis, Dr. figures I probably have had this 15 years, a few replacements along the way. Took MAJOR flare to be diagnosed. Loads of joint damage all over. Started on Remicade, nervous. Cannot take methotrexate due to kidney disease. Third dose dr increased dose, 5 days feeling worn then MIRACLE! NO swelling, pain, best I have been in years, no fatigue. Hoping it continues with each infusion. In tears of joy everyday with my quality of life.”

10 / 10
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More FAQ

Anonymous · Taken for 5 to 10 years February 15, 2013

For Ulcerative Colitis: “Remicade literally gave me my life back 9 yrs ago. I was so ill ; in & out of hospitals, steroids, taking 20+ pills a day & I was still extremely sick. I finally went to Philly (where on my first visit, they were planning my surgery to remove my colon..during that conversation I stopped listening.) My dr. suggested I give Remicade a try - before surgery. At that point, I would have done anything. Honestly I did not believe anything would work since I had this disease for years and could barely function. The Remicade worked like magic - it is liquid gold - I have never had any side effects or adverse reactions - I have been in remission ever since!”

10 / 10
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Lenny J. Delarta July 3, 2015

For Crohn's Disease, Maintenance: “I have been on Remicade for nearly 4 years. Prior to that I had a variety of Crohn's issues including two surgeries for peri-anal fistulas, severe fatigue and lots of other fun stuff. I have been very lucky in that I have responded very well to the stuff and now most days I am fortunate enough to forget I have the disease. I was apprehensive about potential side effects but to date have experienced none. Prior to Remicade I took a few medications which did absolutely nothing but the Remicade had a pronounced effect within 24 hours of my first infusion. If you have Crohn's or Colitis would seriously consider an anti TNF blocker (haven't used any of the others) and stay the hell away from steroids.”

10 / 10
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UC sine 1986 · Taken for 5 to 10 years December 12, 2013

For Ulcerative Colitis: “I had a second relapse of Ulcerative Colitis in 2005. I spent 2 weeks in hospital, been given a fist full of medicines and sent home. Nothing worked. I contemplated having surgery to free me of the disease and wear an ostomy. To my eternal gratitude, my Gastro MD suggested Remicade. After my last colonoscopy in 2013, he said if I had not seen you as sick as you were... your colon looks perfectly healthy. I will accept the side effects (I have experienced none as of yet) to have my life back. Remicade has assistance programs to help those who need it. I am not a spokesman, I do not sell this. But I use and will as long as I can. I wish this medicine was around for my Dad as he suffered with Crohns and Colitis for years.”

10 / 10
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Mothers defeat October 17, 2015

For Crohn's Disease, Maintenance: “My son has crohns and lost 30 lbs in 2.5 months. He took the medicine the doctor said to take but then he developed a fistula. I could tell he was in a lot of pain but yet he would not tell me what was going on. Both of us being very uneducated of this disease had no idea of the trouble he was headed towards. I made an appointment with the surgeon, the surgeon confirmed a fistula, and said he needed to take Remicade. My son has had four Remicade treatments and I have to say he was doing a lot better after the first treatment. It has been almost 9 months now and he is back to his average weight of 190. We are both afraid of the Remicade and we don't talk about it very much at all but I do have to admit it has given my son his life back.”

10 / 10
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PHINS 1972 · Taken for 10 years or more April 1, 2019

For Psoriatic Arthritis: “I have been taking this med for over ten years now truly a life saver. I have had no side effects and have been able to do almost everything I used too. I only take Remicade, no methotrexate as I took myself off of that because of liver side effects. I also have for several years now extended my infusion out to every 10 weeks I am the only patient I know who does this. I have not seen any negative effects from doing this. Great drug”

10 / 10
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J R · Taken for 10 years or more May 14, 2019

For Crohn's Disease, Maintenance: “I was diagnosed with Crohn's Disease when I was 26 years old and I am now 66 and have been on Remicade since 2008. I get my infusion every 8 weeks and for me it works for my Crohn's. I am somewhat tired after my infusion, sometimes the next day for about half the day. For me I can't imagine not being on it.”

10 / 10
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mustangguy · Taken for 1 to 2 years December 31, 2014

For Crohn's Disease, Maintenance: “I have been dealing with Crohn's Disease for around ten years now and I was only properly diagnosed 2 yrs ago. I have received Remicade infusions every four weeks for the last year and it has made a very significant improvement in my everyday life. I no longer need to take pain meds to get through the day and my energy levels are closer to normal then they have been in years. Before Remicade it had got to the point where I could barely walk due to lower back and hip pain all related to Crohn's.”

9 / 10
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Redlady267 · Taken for 10 years or more August 22, 2015

For Rheumatoid Arthritis: “I was diagnosed with a reactive Rheumatoid Arthritis August 1998 after getting the first shot of Hepatitis B vaccine which triggered my RA. I was on Prednisone for a year, Plaquenil, sulafalazine(which almost killed me), arava (leflunomide) for a while, was on Humira which didint help, changed to Enbrel which gave me rashes. In 2000, my rheumatologist who was into RA research and had RA himself ordered Remicaide infusion wtih MTX. That's 15 years ago of quality of life and contnuing 5mg Remicaide every 10 weeks. All my RA labs and tests are negative except CCP (which is 5X higher than the normal. This coming month I'll be OFF my MTX. Even when I'm on Remission I did not stop my Remicaide coz flare ups are worst than the first symptoms.”

10 / 10
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Paddyo · Taken for 2 to 5 years December 1, 2018

For Ulcerative Colitis: “I have been diagnosed with UC for about 15 years. I have been on various forms of mesalamine for the entire time. On and off of prednisone, 5-60 mg a day. Remicade had me close to remission for 5 years. While on Remicade I was able to drop the prednisone. For that, I'm grateful for the Remicade. After about 5 years it suddenly lost it's effectiveness. I then went back to the Prednisone while waiting to get approved for Entyvio. Remicade was given via IV every two months. Entyvio did absolutely nothing for me. I'm now on Simponi which is starting to show promising results. It supposedly works on the same inhibitors as Remicade. A lot of trial and error. Be patient and keep the faith.”

8 / 10
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Anonymous · Taken for 10 years or more May 13, 2016

For Ulcerative Colitis: “My younger brother was on remicade for 10 years , and yes it helped him with the uc but he just passed away from cancer and liver failure at 27 years old most likely from the years of remicade. So I am leaving the warning to be careful and think that this is just some miracle drug. Everything has consequences”

1 / 10
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linkman12 · Taken for 2 to 5 years December 17, 2013

For Ulcerative Colitis: “I have been getting Remicade infusions for 4 1/2 years. I went into remission within a week of my first infusion. My only side effects I have are headaches and some chest pain off and on. But considering how my life was before Remicade I can handle it for now.”

10 / 10
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FeriSweden July 12, 2016

For Ulcerative Colitis: “Remicade has been a miracle for me. Last year this time I was totally desperate and thinking of get rid of my colon due to severe UC. Now, I am totally healthy and no sign of UC!!! If u r suffering from UC, give it a try without any doubt. Thanks to science and researchers. Of course, it takes couple of months to feel the full effect of it, but as soon as I got the first infusion I felt its positive effect. Its combination with Azathioprine works much better.”

10 / 10
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johnppm November 9, 2009

For Rheumatoid Arthritis: “I suffered with RA for over 15 years in most of my joints. 6 years ago I moved to a new state and started with a new RA doctor. She started me on Remicade and lowered the dosage of methotrexate. I have been pain free for the past 6 years. Love my doctor and Remicade.”

10 / 10
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WNYer · Taken for 5 to 10 years October 27, 2015

For Ulcerative Colitis: “I was diagnosed with uc in my twenties. For many years I maintained with various medications and only a couple of relatively minor flare ups. Suddenly at age 56 I had a severe flare up that did not respond to prednisone. Removing colon was brought up. After much suffering and weight loss for about 3 months I was put on Remicade by my wonderful GI. Within a couple of weeks my condition began to improve. I am now almost 7 years with infusions every 8 weeks. I am very grateful for this medication, although I do wonder if my immune system is weakened. It really doesn't compare to almost dying or having major surgery. I know it doesn't work for everyone but for me it was a miracle.”

10 / 10
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goldringj · Taken for 1 to 6 months August 31, 2012

For Crohn's Disease, Maintenance: “I am a 65 year old male and I acquired Crohn's Disease in 1965 at age 19. Remicade was approved by the FDA in August of 1998 and I was given my first dose the next month. Back then, they only administered 2 doses. I received the second dose 3 months after the first one. I have had no further doses since then. When I got the first dose I was in the midst of a flare, and I had an actively draining abdominal fistula. Three days after the first infusion the fistula closed of its own accord and I happily avoided yet another surgery for Crohn's (I have had over 20 surgeries). I have been SYMPTOM-FREE since the second infusion. I have more health issues now, but at least they are not Crohn's related.”

10 / 10
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Glorzmore43 February 17, 2015

For Rheumatoid Arthritis: “Had been on REMICADE since 2003 (11 years) 5vials every 4weeks. Doctor took it away due to issues with the infusion dept. I hate not being on REMICADE. REMICADE did wonders for me, it gave me life back and unfortunately I am back to where I started 11+ years ago. I am having difficulty with everything, I can barely type this comment.”

10 / 10
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Babakuul · Taken for less than 1 month July 13, 2019

For Ulcerative Colitis: “I have only been living with this UC for about 5 months and couldn’t find anything to help .After 1st infusion notice a big improvement till I hurt my back and took a lot of Ibuprofen and Aleve for the pain and had major flare up had my 2nd infusion and then that clear up by about 80%. Now have anxieties but not from remicade going for my 3rd infusion in 2-1/2 weeks then every 8 weeks. Prayers and positive attitude and good diet I will be fine”

8 / 10
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Jimmy C · Taken for 10 years or more February 28, 2020

For Rheumatoid Arthritis: “I was diagnosed with RA about 12 years ago. Started on Methotrexate but had to discontinue because of higher than normal enzyme levels in either my kidneys or liver (can't remember which organ). My RA doctor recommended we switch to a biologic Remicade. I was also on Plaquinel and Leuflunomide along with Remicade but have since discontinued Plaquinel with no issues. Still taking leuflunomide. I've been taking Remicade (800 mg infusion every 6 weeks) and Leuflunimide (pill once a day)now for over 10 years since my diagnosis of RA. I've had no side effects with Remicade or leuflunomide, no joint damage (caught RA diagnosis very early) and in complete remission for over 10 years. Now my insurance company wants to switch me to Inflectra over Remicade because it is cheaper. I may have no choice but I'll be calling my RA doctor and see what he thinks. May have to appeal to the insurance company if RA doctor has reservations and stay on Remicade which works remarkably for me!”

10 / 10
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Anonymous August 18, 2009

For Crohn's Disease, Maintenance: “I have had Crohn's Disease for 18 years. I was extremely ill for the first 8 years. My doctor put me on Methotrexate, and I got better, but not "well". Then, Remicade came out. I have been getting infusions every 8 weeks for over 7 years, and it has saved my life. I will say, though, that at one time they hoped to wean me off of the Methotrexate, but I started having flare-ups and the time between infusions was increased. Since I am back on the Methotrexate and Remicade, I have had no problems at all. Yes, I know my immune system is very weak, but I avoid anyone who is sick, and try to get enough rest when I can. This combination of drugs has worked for me and I hope I have helped someone out there! You may need something else with Remicade. ”

10 / 10
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Goober-Zoe July 21, 2015

For Crohn's Disease, Maintenance: “Right after my daughters 13 yr. birthday, she had severe bleeding and was diagnosed with severe crohns and colitis. She has been on Remicade since January and has infusions every six weeks. She was on put on Prednisone in March since the infusions did not stop the bleeding alone. She is now being weened off the steroids, Thank God, and is on Remicade for the rest if ths year for now. She gets a boost of energy and after her infusions, but is very smart about what she can and cant eat. Prayers to u all going through this.”

7 / 10
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Anonymous February 20, 2012

For Rheumatoid Arthritis: “I love it! I'm 16 and have been treated for five years. Methotrexate made me sick and Enbrel, via Epi pen, was more uncomfortable than my arthritis. Remicade is pain free and the time inconvenience is worth it.”

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This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.