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User Reviews for Remicade

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Remicade.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Psoriatic Arthritis 10 reviews 60 medications
   
8.9
Rheumatoid Arthritis 21 reviews 344 medications
   
8.8
Ankylosing Spondylitis 6 reviews 131 medications
   
8.1
Crohn's Disease, Maintenance 29 reviews 27 medications
   
7.7
Psoriasis 2 reviews 295 medications
   
7.7
Ulcerative Colitis 28 reviews 96 medications
   
7.5
Crohn's Disease, Acute 10 reviews 16 medications
   
7.0
Crohn's Disease 7 reviews 69 medications
   
6.4
Summary of Remicade reviews 113 reviews 7.7

Reviews for Remicade

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For Rheumatoid Arthritis "Like some RA people, diagnosed easily back in 1990. Genetically "gifted" it from maternal side. Having tried all the old first line drugs w/o success I started on second line of meds including Enbrel. It was great for 6 months. Then it stopped. Remicade was started & after one infusion I had a horrible reaction: Serum Sickness" . Paralyzed for 3 days, severe allodynia (pain all over). Would never take this drug. It was the mouse protein in Remicade that I reacted to. Wish you all well!"

   
2.0

GramaJ April 9, 2017

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For Crohn's Disease, Acute "I was diagnosed with Ulcerative Colitis at 22 years. For decades I was bounced from one specialist to another and my diagnosis would be rejected and Crohns would be the alternate favourite. Currently Crohns is the diagnosis. First prednisone (I was overdosed and had a nasty reaction, it was decreased as fast as possible), 5asa (3 years with moderate benefits), Flagyl (caused extreme gastro pain and discontinued immediately) Pentasa (it worked for about 2 decades), Humira (1 year) Remicaid has not been effective. I will have the third infusion in a week but I have been declining steadily. Soon I will be in the hospital again. Is there anything left to try?"

   
1.0

123Shan (taken for 1 to 6 months) March 5, 2017

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For Rheumatoid Arthritis "I was diagnosed w/ severe RA in 2009 by my general practitioner who discovered it through a blood test, which is not always common. Well, after being on MTX 8pills/a wk. (for 8 yrs) and Arava daily I have also been on Enbrel, Humira, Actemra, Orencia & Zeljanz one worked most didn't. I finally just started Remicade infusion on 2/16/17. The first day I slept 20 hrs. a few days later no change then yesterday ~The Miracle Day~ not one single pain, no flare ups 100% pain free! OMG I was so happy I cried! Today not so good as yesterday but I'm very hopeful! Good Luck to the rest of you all!!!"

   
8.0

SusanM99 February 22, 2017

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For Rheumatoid Arthritis "Just had 3rd remicade infusion, can't believe all I'm able to do. Due to some joint damage in knees and hips, not totally free of pain. Best I've felt in years. Severely reduced prednisone after 3 years, plan to stop. Diagnosed in 2013, but have had symptoms off and on for 25 Years. Little to no improvement with humira, enbrel, orencia, Actemra,plaquenil,methotrexate made me sick, xeljanz,sulfasalazine. Vitamins, no sugar, wheat or milk helped me also. Joint pain and swelling nearly gone. Praying it lasts, thanking God."

   
9.0

Lanagirl February 18, 2017

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For Ulcerative Colitis "Diagnosed in 2003 with ulcerative colitis. Started Remicade in 2010. Helped my symptoms but developed Discoid Lupus in 2015. Doctor thinks it was brought on by the Remicade. Stopped Remicade and now taking Entyvio for colitis and plaquenil for the lupus."

   
10

Linda Jr. (taken for 5 to 10 years) February 13, 2017

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For Crohn's Disease "I was on remicade for nearly 5 years. it was working great for me up until last October when I started developing sinus infections. I am in remission but yet I still can't work - my life isn't normal anymore time to switch it up"

   
6.0

izzypoops February 7, 2017

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For Ulcerative Colitis "After losing a substantial amount of weight and blood, in the hospital for a week two transfusioins. diagnosed as Pan Colitis / Ulcerative Colitis. 60 mg Prednizone and the bleeding stopped at day 5. I returned home and was pressured by my GI to accept Remicade. I was skeptical but sold myself on the fact of the huge numbers of folks it helps. After two succesfull infusions I was set up for my third of which I expereinced an allergic reaction in this order, itchy palms , itchy feet , itchy everywhere, needed bowel movement , almost fainting , fever, chills and tightening of throat. Once home extreme right leg pain, hand joint pain, loss of hair. (Serum sickness) now on Balsalazide , cautious diet and cannabis nightly & 6 months no issues"

   
2.0

53CEO (taken for 1 to 6 months) January 19, 2017

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For Rheumatoid Arthritis "I was diagnosed with RA in 2004 and began steroids and methotrexate. Next started Enbrel for approximately 8 months but the citric acid in the Enbrel was unbarable. Then I began Remicade Infusions. I started out nine years ago every 6 weeks. I'm now on 700 mg every four weeks and weekly injections of Methotrexate but wouldn't change a thing. I still have stiffness here or there but the fatigue and pain I use to experience are gone and I live a full and happy life. It's been such a Blessing to me."

   
10

Nickie S January 7, 2017

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For Ulcerative Colitis "Severe UC flare hospitalized, prednisone intravenous didn't do anything. Remicade infusions every 4 weeks to start, now every 8. It worked within one week and after about one year I was in complete remission with no sign of UC on my colonoscopy! The IV is okay, very expensive, but you can go to the Remicade website for help paying deductibles no matter what your financial situation is. I wish my dr told me that before I spent $10,000 in deductible and copay this year! I guess it was worth it all around."

   
10

ColK November 8, 2016

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For Crohn's Disease "When I started Remicade I felt amazing very quickly and even decided that I was able to start living my life again. Unfortunately for me and my new boyfriend all the Remicade was really doing was masking my symptoms my Crohn's was very much still active as I found out on my 25th birthday when I was admitted to the hospital and then sent to a more qualified hospital as I live in a small town. I was in hospital for almost 2 months at this point trying various ways to try and get my Crohn's under control to no avail. I ended up having my second surgery at that point and less than a year later having my third surgery. Remicade just wasn't worth the $4000 per infusion in the end for me."

   
1.0

RachelV86 October 26, 2016

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For Crohn's Disease "Worst drug!!Save yourself by not trying this poison. Had serious lung injury."

   
1.0

Kavkeet Kaur randhawa September 25, 2016

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For Crohn's Disease, Maintenance "I was diagnosed in 2013 with ibs.. Then 2014 ibd....now Feb2016 with crohn's...tried a lot of meds nothing worked went to remicaid well it has been working but never lasts that long... By 5-6 wks I'm starting to flare... This time after load in doses they used me to 7.5 and that worked I got 6 wks out of it instead of 4 wks.... But this time it's bad started flare of belly 4 days ago... And now I can't barely move feels like I've been hit by a truck... All my joints hurt so bad ...this is awful.. Hoping to get an infusion. ... But I read all the same issues...."

   
9.0

Anonymous September 6, 2016

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For Crohn's Disease, Maintenance "I first had symptoms when I was 17 yrs old. Was not diagnosed until I was 25 during an exploratory surgery to find out what was wrong with me. I am now 67, have had three surgeries, 2 for blockages and a variety of meds.. This last surgery did not go well and my crohn's became worse. The doctor recommended I go on Remicade. Have had three treatments with no improvement, extremely exhausted. During my treatments I developed chest pains, had an angiogram, everything fine. Then became very short of breath, fever and got water on the heart from the procedure. Will be discussing this with the doctor and requesting I stop the treatments. I have not had a rewarding experience with Remicade. Not sure what my options are going forward."

   
4.0

J Yoder August 20, 2016

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For Crohn's Disease "I have perianal problem whit my crohn's...Remicade help me lot I have less diarhea...But...I'm very tired all the time...I have sinus infections every 6 weeks...Eye infections..and urine infection. I don't know if I want to continue...My crohn's is better but I'm sick all the time "

   
5.0

colty34 (taken for 2 to 5 years) August 13, 2016

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For Ulcerative Colitis "Remicade has been a miracle for me. Last year this time I was totally desperate and thinking of get rid of my colon due to severe UC. Now, I am totally healthy and no sign of UC!!! If u r suffering from UC, give it a try without any doubt. Thanks to science and researchers. Of course, it takes couple of months to feel the full effect of it, but as soon as I got the first infusion I felt its positive effect. Its combination with Azathioprine works much better."

   
10

FeriSweden July 12, 2016

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For Crohn's Disease, Maintenance "My 14 yo had her first Remicade infusion a 10 days ago. After 8 days she had severe serum sickness. Her fever shot up to 106 and her blood pressure was really low. She spent 24 hrs in the PICU. It was very scared. Needless to say, she won't be able to take it again. We are hoping there will be no lasting effects but only time will tell. Her symptoms of serum sickness were: fever, chills, severe joint pain, hives all over, swollen hands, red eyes, and dry mouth."

   
1.0

Serum Sickness occurred (taken for less than 1 month) July 9, 2016

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For Ulcerative Colitis "only few words please check your TB TEST FOR MORE THAN TWO OR THREE TIMES SPECIALLY WHEN YOU ARE ALREADY ON MEDS LIKE PREDNISONE AND IMURAN ....DONT PUT YOUR LIFE ON RISK ..........I AM SUFFERING A LOT BECAUSE OF THE USE OF THIS MEDICINE.....REMICADE....MY PERSONAL SOCIAL AND FINANCIAL LIFE IS DESTROYED ......SORRY IF I AM GETTING EMOTIONAL ......IT IS TRUE WHATEVER HAPPENED WITH ME .........I WISH THAT I WOULD HAVE NEVER USED THIS MEDICINE......."

   
1.0

BILLAY (taken for 6 months to 1 year) July 7, 2016

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For Spondyloarthritis "Saved my Life. I went from level 10 pain daily to almost no pain after the first infusion. I cry when I talk about how this medication as given me a whole new lease on life. It has literally saved my life. My pain was so bad in my wrists that I couldn't do anything anymore. I was seriously thinking about suicide or just cutting my hands off. I'm saved and I thank Remicade for it."

   
10

ZachEatonPHX July 7, 2016

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For Psoriatic Arthritis "Remicade just isn't working for me or not yet. When I did my 1 and 2 infusions I could tell a difference. I had my 3 on and have to wait 8 weeks. After 3 weeks I had a flare up and I am in week 6 and I still feel awful. Maybe I need them more frequently or a higher dose. I am feeling so darn frustrated. I was hoping for a miracle drug to make me feel better and so far it's not. I read how it helps everyone but I want that for me too! Can't wait to see my dr so we can get ask up and the pain"

   
3.0

Not my miracle yet May 16, 2016

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For Ulcerative Colitis "My younger brother was on remicade for 10 years , and yes it helped him with the uc but he just passed away from cancer and liver failure at 27 years old most likely from the years of remicade. So I am leaving the warning to be careful and think that this is just some miracle drug. Everything has consequences"

   
1.0

Anonymous (taken for 10 years or more) May 13, 2016

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For Ulcerative Colitis "When my daughter was 13, she had a sudden and severe onset of UC. She was hospitalized for 2 weeks (had constant pain, couldn't eat, and was going to the bathroom 15-20x/ day). She was given IV steroids/medications with no improvement of symptoms. The day after receiving remicade, her pain was gone and she wanted to eat. She went into complete remission and has had no symptoms for the last 4 years. She does remicade infusions every 10 weeks. It has been her wonder drug! But my other dtr was diagnosed with crohns a year later at 11. Her onset was slower and she was put on various medications first. Remicade worked for her for several months but then became less effective even with increasing dose and frequency so she was switched to humi"

   
8.0

Eaimom (taken for 2 to 5 years) May 10, 2016

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For Ulcerative Colitis "Initially helped me for around 1 1/2 years, then began to lose its potency, and last two treatments had bad reaction night of treatment. More important platelet count went from normal to around 45,000. No longer taking Remicade and my platelet count is normal now."

   
3.0

tuco (taken for 1 to 2 years) May 4, 2016

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For Crohn's Disease "After a year or more on totally ineffective Humira I was put on Remicade. It has been effective for the most part. I am on the max dosage at every 4 weeks. At about 4 to 5 days before my infusion I develop my typical crohns symtoms which mostly involves pain. I had one blood test which indicated I was metabolizing the medication more quickly than normal. I if this problem persists I will be tested again to see if I have developed antibodies to the drug. Besides Humira being a total bust I react with high fever and chills to 6 MP. Prior to the Humira I had a resection of a foot of my illeum. I don't have any side effects to the Remicade just the issue I mentioned."

   
8.0

Danamy?? April 2, 2016

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For Crohn's Disease, Maintenance "This nightmare all started 9 years ago with an abcess. This turned into a fistula. The fistula went away after years then I developed another one on the opposite side. Then multiple fistulas. 10 surgeries later and now I have a fistula through the vagina. I finally changed Drs. My dr put me on remicade and methotraxate, and I am finally seeing results. Extremely tired I could continuously sleep my life away. I haven't felt any inflamation for weeks. No pain pills for 4 weeks now. So cross my fingers this works."

   
7.0

Jklm March 30, 2016

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For Ulcerative Colitis "I've been getting Remicade infusions for about 15 years. It is the ONLY drug that helped me. I'd been in remission for the past 5 years. Last infusion, my insurance wouldn't pay the hospital. After back and forth communications from doctor, hospital and insurance companies..Medicare...Blue Cross/Blue shield,..Tricare....doctor decreased my max dosage to 1/2 dose. Now I'm having a flare. It's a wonderful drug but the cost is exorbitant...especially for old people like me. Sure was good while the Remicade ride was working. Good luck all"

   
10

bgiz February 25, 2016

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