Remicade User Reviews & Ratings (Page 4)

• Cui...
• February 3, 2011

For Ankylosing Spondylitis "My first go-around in 2008 was like a miracle. No side effects! After three infusions, I lost my medical coverage. Remicade took away the morning stiffness and the pain so much I was able to do push-ups and squats. If you looked at my stooped forward posture, you would know why that's such a big deal. I eventually started driving the city bus after being denied for Social Security. In September of 2010, after two years of no infusions, my condition worsened and I resigned from my bus driver job due to neck movement restriction. Now back on state medical ACHHS, I'm back on Remicade, just had my second infusion, but this time with a cough that I'm not sure was caused by Remicade, time will tell. Overall, Remicade is as close to a miracle as it can get."

• Rox...
• Taken for 10 years or more
• February 21, 2024

For Crohn's Disease "Have been on Remicade for 24 years, was relieved of all Crohn's symptoms after the first infusion after having Crohn's for 40 years. Never needed surgery, also never had side effects except for a mild headache and chills after the first few infusions. I find Remicade to be a great medicine for those that tolerate it, some people it doesn’t work on, which I find unusual, but everyone is different and I am one of those people that can’t tolerate many meds due to reactions. Remicade has had a good effect on my disease. I take 400 mg every 8 weeks."

• bgi...
• February 25, 2016

For Ulcerative Colitis "I've been getting Remicade infusions for about 15 years. It is the ONLY drug that helped me. I'd been in remission for the past 5 years. Last infusion, my insurance wouldn't pay the hospital. After back-and-forth communications from doctor, hospital, and insurance companies... Medicare... Blue Cross/Blue Shield... Tricare... doctor decreased my max dosage to 1/2 dose. Now I'm having a flare. It's a wonderful drug, but the cost is exorbitant... especially for old people like me. Sure was good while the Remicade ride was working. Good luck, all."

• 53C...
• Taken for 1 to 6 months
• January 19, 2017

For Ulcerative Colitis "After losing a substantial amount of weight and blood, in the hospital for a week, two transfusions. Diagnosed as pan colitis / ulcerative colitis. 60 mg prednisone and the bleeding stopped at day 5. I returned home and was pressured by my GI to accept Remicade. I was skeptical but sold myself on the fact of the huge numbers of folks it helps. After two successful infusions, I was set up for my third, of which I experienced an allergic reaction in this order: itchy palms, itchy feet, itchy everywhere, needed bowel movement, almost fainting, fever, chills, and tightening of throat. Once home, extreme right leg pain, hand joint pain, loss of hair. (Serum sickness) now on balsalazide, cautious diet and cannabis nightly & 6 months no issues."

• A-T...
• July 3, 2008

For Crohn's Disease, Maintenance "I am 22 years old and have had Crohn's disease since age 17. I can't take steroids of any type - makes me go crazy. Remicade is the best drug I've been on for my disease. It works great but has some bothering side effects for me, but they are not bad enough to quit getting this medication every 8 weeks at the hospital through I.V. It takes about 2 or 3 hours for the treatment to be over."

• tuc...
• Taken for 1 to 2 years
• May 4, 2016

For Ulcerative Colitis "Initially helped me for around 1 1/2 years, then began to lose its potency, and the last two treatments had a bad reaction the night of treatment. More important, platelet count went from normal to around 45,000. No longer taking Remicade, and my platelet count is normal now."

• Kwi...
• Taken for 5 to 10 years
• April 13, 2018

For Crohn's Disease, Maintenance "Six years of Remicade infusions to replace prior intake of prednisone. Must say quite effective, however, about 3 1/2 years into it, got shingles of the eye and subsequent post-herpetic neuralgia (and there's still some itching almost five years later). Then, in August of 2017, got cellulitis in the right arm, a very painful infection requiring a seven-day stay in the hospital on antibiotics, followed by a week-long IV administration at home. Once I was better, I stopped the Remicade, and so long as I am enjoying the remission, I'll never return to it. My GI doc has suggested Entyvio, but I most likely wouldn't even do that. Heck, if it ain't broke, don't fix it! (I don't wish to tamper with my immune system and bring about more disasters!)."

• JLa...
• August 31, 2010

For Ulcerative Colitis "Have had Ulcerative Colitis for 4 years. 3 years ago, started Remicade at 5 ml per kilo, with only mild help. The only other choice was surgery. Switched doctors who immediately doubled the dose to 10 ml (which I think is the normal dose), so I probably was under-medicated for 2 years. However, the higher dose has not helped much more. Have had almost no side effects. One allergic reaction early on to the infusion. The only minor problem is the skin on my hands and arms seems very thin and very easily bleeds from the slightest scratch. So for me, it has not worked as hoped."

• Pau...
• Taken for 2 to 5 years
• May 18, 2018

For Ankylosing Spondylitis "Remicade works well for me. I'm a 30-year-old female. I have been on Remicade for 3 years. I sometimes have nausea after the infusions for 1-3 days and hot flashes. My iritis and uveitis have both been put in remission since being placed on Remicade!"

• WCW...
• April 12, 2020

For Crohn's Disease, Maintenance "I am now 80 years old and was diagnosed with Crohn's about 3 years ago. Late in life, I know, but was misdiagnosed with IBS and put on mesalamine, which only made me lose my appetite, lost so much energy that I could not walk 10 feet. Went to a teaching hospital and was quickly suspected and diagnosed with Crohn's. Shortly afterwards, I was put on Remicade. Total remission, regained strength and bowel control within a week and appetite. At first on 8 weeks but noted a tendency to some flare tendency toward the end, so I was put on 6 weeks. Have had no problems and lead a 'normal' life with my wife, children, and grandchildren now! Make sure I follow my doctor's advice, including all vaccinations he recommends. He does full blood work before every infusion. He is very quick to respond to any contacts or questions I make with him."

• Gut...
• June 15, 2013

For Crohn's Disease, Maintenance "After resisting having read American Black Box warnings, I was finally persuaded through my consultant's actual experience with the medicine - that and having 6 operations, colostomy, and the disease still beating me. I was exhausted and unable to walk or do anything other than essential basic necessities - if that. I have had three infusions of Remicade so far along with steroids for peri-anal fistula, Crohn's, at two-week intervals, and I have some shade of a life back. Immediately after the medicine, I am very tired. I have headaches that last for about four days at a time, paracetamol doesn't touch them. I get bad cramps in my legs, especially at night, and occasional mild flare-ups, BUT NOTHING like before. Stress plays a factor in starting my flare-ups."

• LSJ...
• Taken for less than 1 month
• January 30, 2020

For Rheumatoid Arthritis "My mother had RA, was prescribed Remicade as an option for her RA. To say the least, we ended up burying her. Shortly after taking Remicade, my mother's health diminished quickly. I do believe the doctor was at fault for suggesting this medicine due to her prior medical conditions. The drug was too strong. Be careful, or you could end up part of a eulogy!"

• PEN...
• April 25, 2009

For Crohn's Disease, Maintenance "I was diagnosed with Crohn's disease ten years ago. I had a flare-up six months ago. I had a small bowel resection two months ago. So far, I have had five transfusions. At first, I felt a little faint and scared. Now, it feels fine. I feel great and am in remission. I supplement my Remicade transfusions with 50 mg Imuran and a B-12 shot monthly. I am very happy. I hope the good times last."

• Edn...
• Taken for 1 to 6 months
• May 2, 2015

For Crohn's Disease, Maintenance "I have received Remicade infusions to treat Crohn's. Felt bad right after the first infusion but was convinced by my physician to continue. I have also received Prolia by injection to treat osteoporosis. I decided to stop the Remicade after 3 infusions as I could feel no benefit and had felt very ill throughout. 6 months later, I was diagnosed with metastatic breast cancer - this is in spite of having annual mammograms. I can't help but think the Remicade is linked to the eruption and rapid spread of my cancer. Beware!"

• J Y...
• August 20, 2016

For Crohn's Disease, Maintenance "I first had symptoms when I was 17 years old. Was not diagnosed until I was 25 during an exploratory surgery to find out what was wrong with me. I am now 67, have had three surgeries, two for blockages, and a variety of meds. This last surgery did not go well, and my Crohn's became worse. The doctor recommended I go on Remicade. Have had three treatments with no improvement, extremely exhausted. During my treatments, I developed chest pains, had an angiogram, everything fine. Then became very short of breath, fever, and got water on the heart from the procedure. Will be discussing this with the doctor and requesting I stop the treatments. I have not had a rewarding experience with Remicade. Not sure what my options are going forward."

• Chr...
• October 4, 2009

For Rheumatoid Arthritis "It has worked miracles in the past 8 years. I have had no side effects from it when used with Arava. The doctor has me now taking methotrexate, and my body rejected the IV the first time with the new medicines."

• In ...
• Taken for 1 to 2 years
• September 24, 2021

For Ulcerative Colitis "UC at 65 years old. Four years of bleeding, pain, and sleeping on the bathroom floor. Tried the usual, including another biologic. Six months of Remicade had no effect. A specialist suggested I try a high dose of Remicade before opting for surgery. I was well after a few weeks and have been symptom-free for two years."

• Anonymous
• September 6, 2016

For Crohn's Disease, Maintenance "I was diagnosed in 2013 with IBS. Then in 2014 IBD. Now, in Feb 2016 with Crohn's. Tried a lot of meds, nothing worked. Went to Remicade, well, it has been working but never lasts that long. By 5-6 weeks, I'm starting to flare. This time, after loading doses, they used me to 7.5, and that worked. I got 6 weeks out of it instead of 4 weeks. But this time it's bad, started to flare in my belly 4 days ago. And now I can barely move, feels like I've been hit by a truck. All my joints hurt so bad. This is awful. Hoping to get an infusion. But I read all the same issues."

• Anonymous
• August 9, 2009

For Behcet's Disease "I have been taking Remicade for approximately one year now and find it works quite well for my Behçet's symptoms. Things were great during the initial phase of loading doses, but I found once my treatments were scheduled for every eight weeks, I seemed to experience a flare before my next session (around the 5 or 6 week period). My doctor has just increased the treatments to every four weeks, and we are hoping this will get rid of my flares altogether. The only side effect of the Remicade that I have experienced is fatigue following the infusion."

• Lin...
• Taken for 5 to 10 years
• February 13, 2017

For Ulcerative Colitis "Diagnosed in 2003 with ulcerative colitis. Started Remicade in 2010. Helped my symptoms, but developed discoid lupus in 2015. Doctor thinks it was brought on by the Remicade. Stopped Remicade and now taking Entyvio for colitis and plaquenil for the lupus."

• BIL...
• Taken for 6 months to 1 year
• July 7, 2016

For Ulcerative Colitis "Only a few words. Please check your TB test for more than two or three times, especially when you are already on meds like prednisone and Imuran. Don't put your life at risk. I am suffering a lot because of the use of this medicine, Remicade. My personal, social, and financial life is destroyed. Sorry if I am getting emotional. It is true whatever happened to me. I wish that I would have never used this medicine."

• Tat...
• July 6, 2015

For Crohn's Disease, Maintenance "I have suffered from Crohn's disease for about 2 years and took Remicade for one now. At first, I had headaches, but now I just take Remicade every 56 days and it keeps me okay. I don't feel the symptoms of the disease, and basically, I eat everything that I wish, but I'm 29, so I'm always on a diet to keep my body shape."

• Sum...
• October 30, 2008

For Crohn's Disease, Maintenance "I am 23 years old and have had Crohn's since I was 19. I started Remicade about 6 months ago, and it's the only treatment that's worked so far. It is a bit time-consuming, but it's better than taking 10 pills a day (or more) and more effective. I would recommend trying this after everything else fails. It feels good to be normal again."

• Gra...
• April 9, 2017

For Rheumatoid Arthritis "Like some RA people, diagnosed easily back in 1990. Genetically 'gifted' it from the maternal side. Having tried all the old first-line drugs w/o success, I started on the second line of meds, including Enbrel. It was great for 6 months. Then it stopped. Remicade was started, and after one infusion, I had a horrible reaction: 'Serum Sickness.' Paralyzed for 3 days, severe allodynia (pain all over). Would never take this drug. It was the mouse protein in Remicade that I reacted to. Wish you all well!"

• Anonymous
• August 6, 2009

For Ankylosing Spondylitis "I have been on Remicade since April after not getting any relief from Enbrel or Humira. The initial relief was wonderful, but the results since then have been very unreliable. I find that the week before my infusion is due, I am in terrible pain all over again. I also have a hard time with the methotrexate, it makes my stomach very upset and wipes me out the day I have to take it."