User Reviews for Cosentyx
Cosentyx has an average rating of 6.0 out of 10 from a total of 188 ratings on Drugs.com. 51% of reviewers reported a positive effect, while 36% reported a negative effect.
|Plaque Psoriasis||94 reviews||40 medications|
|Psoriatic Arthritis||54 reviews||75 medications|
|Ankylosing Spondylitis||29 reviews||145 medications|
|Psoriasis||9 reviews||318 medications|
|Non-Radiographic Axial Spondyloarthritis||2 reviews||3 medications|
|Summary of Cosentyx reviews||6.0||188 reviews|
Reviews may be edited to correct grammar/spelling, or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published.
For Ankylosing Spondylitis: “I think these reviews need to be taken in context...most people rarely post positive comments about drugs, they are just to busy getting on with there lives, the people who have negative reactions are far more likely to post (and I feel deeply sorry for those for who it has not worked for) For me it’s been a life changer...I was on anti inflammatory meds, and sulfazalazine before, no anti-tnf. I started to feel better within 4-5 weeks of first injections (taken weekly). Now...no more aches and pains...no stiffness..this literally has been a miracle cure for me. I think it’s much more effective if you haven’t been on anti-tnf or similar before.”
For Ankylosing Spondylitis: “I was in so much in pain. I was having a very hard to to get up from a chair. There are times someone had to help me up because I could not do it at all. I am in my 30s there are times I felt embarrassed to get help getting out of the chair. I got diagnose with AS in December. I started Cosentyx in February 2020. I been on Cosentyx going on three months. I feel like I have my life back. I do yoga and I am trying to do Pilates. I am finally free from the pain!”
For Psoriatic Arthritis: “I was diagnosed with psoriatic arthritis 11 years ago and have not been able to find anything with to cut my pain and the debilitating effects of the disease. I have gone through assorted pain management programs and they are either ineffective or my body rejects them to the point of hospitization. Combining my disease with type 2 diabetes and massive amounts of neuropathy, I find, myself in a tough situation physically and mentally. When I take my monthly Cosentyx shots I get violently ill for a few days and then my joint pain increases for a few days followed by intense itching and redness. It has cleared up 80% of my skin and maybe 10% of my joint pain, but it doesn't help enough. Thank you for allowing me to share and vent a little because it is a lonely battle A tip of the cap and a hoist of the cup to the warriors who live it and the angels who support them.”
For Ankylosing Spondylitis: “I just completed my 5th weekly dosing of 300 mg. Now will be going monthly. My pain has decreased at least 80%. At this point, the medication has changed my significantly. Hoping going forward the results will be the same!”
For Plaque Psoriasis: “So, I previously left a review for Stelara - which I had stopped and then had a full blown inflammatory response in my body-joints, tendons, spine, and scalp psoriasis. I since started Cosentyx. I have done the five loading doses (300mg - 2 injections) and I honestly feel 10 x better. I felt so debilitated in the previous state. (I'm in my 30's and very active so debility should not be in my vocab). I still have a little residual arthritis in my hips and tendons but I think it will clear after a while *Fingers Crossed*. It supposed to take anywhere between 12-16 weeks to fully take effect so I have got time to be patient. IF not a little Tylenol and Aleve daily have been working well. I do not feel fatigued as I did with Stelara. I do get a random nasal drip but its manageable compared to the alternative. So I feel like I'm getting back to normal. I probably have to take a biologic for the rest of my life to function normal but if it works, I'm happy. I will up date as time goes on.”
For Plaque Psoriasis: “I started using Cosentyx in September 2015 I was very apprehensive about trying it but I gave it a try 5 doses for 5wks straight then once every twenty eight day but by the third dose my psoriasis was 98% gone and by my fifth and last dose I'm psoriasis was 100% gone. I have not had any breakouts I am still 100% clear my skin is soft an beautiful I HAD psoriasis for over 30 years I recommend everyone to try COSENTYX I AM very happy I gave this a try an you will be to..”
For Plaque Psoriasis: “Cosentyx has been the miracle drug!! This was the 1st year in 29 years where I actually wore short sleeves & even shorts. I have psoriasis and psor istic arthritis & last fall both got a lot worse. I have been on so many topical solutions, creams, prescriptions, pills, biologics, with no luck. Some would ease the pain but never clear the symptoms. I decided to just focus on the sun's help until last fall where nothing worked. I went back to my derm & he wanted to try Cosentyx since it had little side effects & required less follow up testing & at that time it had been out for over a year. No joke, within 2 WEEKS I was completely clear & I still am. I cannot tell you how much this has changed my life. I know psoriaisi isn't a life threatening disease but emotionally it might as well be. The embarrassment, the pain & sometimes just looking at it got me so down. Cosentyx has changed my life. I also haven't had much joint pain. I hope one day I won't have to be on anything but until then Cosentyx is my life.”
Frequently asked questions
- What causes Plaque Psoriasis?
- How does Taltz compare to Cosentyx for psoriatic arthritis?
- What happens if Cosentyx is not refrigerated?
- Does Cosentyx cause weight gain or loss?
For Psoriatic Arthritis: “Was on methotrexate for ten years. Did well but thought it was causing some IBS type symptoms. Derm PA put me on Humira. Did nothing and flared really bad waiting the six months before insurance would let me switch. Next was Consentyx. Skin 100% clear in three weeks BUT---hives up and down my arms, back to back UTI's -five of them. I felt a little groggy and like I was wading through chest high water all the time. THEN--major bloody diarrhea. Major. By the time I had a colonoscopy I was a mess. Six weeks of non stop bloody diarrhea. Diagnosed with Cosentyx induced Ulcerative Colitis. Four months on prednisone trying to clear it up. Hoping it is not permanent. Gastroenterologist said he sees it from Cosentyx a lot. Now I have gained another fifteen pounds from the prednisone and back to being in terrible pain. Scalp starting to flare again. Cosentyx was NOT my miracle drug.”
For Plaque Psoriasis: “I started my loading dose in September. I was truly amazed how my psoriasis was clearing. My skin was smooth for the first time in 20 years. I started having diarrhea and blood . I didn’t think anything was wrong at first just thought I ate something that didn’t agree with me. After a week of diarrhea and more blood I called the doctor, after tests I was informed that I had severe ulcerative colitis. I am 49 years old and have never had any signs of having colitis or ulcerative colitis. My doctor was shocked, how bad it was I contacted my dermatologist with what was happening and could this be from the Cosentyx. She had me stop taking it immediately. I then developed eye puffiness and developed a cyst along with fever and sinus issues. I did some further research and found that many of these issues that I was having are all possible side effects . I hope that anyone that uses this product reads all the side effects . I thought side effects would happen early on.”
For Ankylosing Spondylitis: “I've tried Enbrel with no change in inflammatory markers. I was on it for 3 months. I started Cosentyx single injections and my markers went sky high. I was put onto a double injection and my markers went down significantly. I don't feel any relief from pain, never have with any of the millions of things I've been prescribed. But all in all I've had a positive experience with cosentyx. Just wish I could get some help with my pain levels. I have just turned 31, and I feel as though I'm trapped in the body of an 80 year old. Somedays I really struggle with my diagnosis.”
For Plaque Psoriasis: “I have had psoriasis for 20 years, on my scalp and body. I have tried every cream, ointment, pill and quite a few shots. So when my doctor suggested trying Cosentyx, I wasn't exactly thrilled to have to give myself shots again. But I tried it and after just the first month I could finally see my knees, I didn't have to apply and creams, ointments or scalp oils. Every last bit of my psoriasis was cleared, 100%, I couldn't believe my eyes , I was amazed!!!! 20 years of putting on scalp oil, with a shower cap on and going to bed embarrassed next to my husband, and now I can get out of the shower, style my hair and go, NO MORE SHOWER CAPS!! I know every medicine works differently for every person, but you have to give it a try!”
For Ankylosing Spondylitis: “I started with Humira, had that for 3 years then out of the blue it stopped working. Was then on Benepali and got a allergic reaction to it (eczema under my feet and on hands etc). Was on no drugs what so ever for 4 months after that (and had worst pain ever, even worse than how it was before started with Humira). Then I started with Cosentyx and it has so far -knock on wood- worked great. I am absolutely pain free and have more or less no side effects. 'More or less side effects'...I have had the same side effects of all of these drugs (except the allergy). I am fatigued, every now and then I have some bowel problems and headaches. But I can live with that because I am nevertheless feeling better than with no treatment and even the fatigue I get from the disease is worse than the fatigue from the treatment. This disease will never go away and I'm just happy that there are some treatments that actually work”
For Psoriatic Arthritis: “I have had Moderate to Severe plaque psoriasis for 44yrs I'm 48 and Cosyntex has kicked my psoriasis to the curb it took about 6 injections and my skin looks absolutely normal and no side effects at all. Moving on to the Psoriatic Arthritis part of this drug and I have had NO IMPROVEMENT I'm so mad I use to be a super fit person until this disease turned my 48yrs old body into a 90 year old woman. I had high hopes for Cosentyx alleviating my psoriatic arthritis the way it did for my skin sadly it hasn't touch my psoriatic arthritis.....this pain is a monster!”
For Plaque Psoriasis: “I have been taking this medication with the study for over 2 years for severe psoriatic arthritis. My psoriasis has disappeared. I rarely have outbreaks and if I do they are small and disappear within weeks. For psoriatic arthritis, I would rate it lower, around a 7, because I still have to take a d-mard each month along with 300 MG monthly of cosentyx . Still, this is an impressive medication for people with severe psoriasis arthritis. I was barely walking when I started this study and now people ask why I have a handicapped tag. That massive improvement is due, in part, to this medication. It took about 3 months to feel the total effects for the arthritis and there was a noticeable difference taking 300 MG instead of 150 mg.”
For Psoriatic Arthritis: “I’ve been on Cosentyx for about 8 months for PsA. About 4 months in my right eye started twitching. My rheumatologist said it was due to me being overly tired or under a great deal of stress. Neither of which I am. Has anyone else had a similar reaction? Overall it has helped my PsA but the twitching is very annoying!”
For Plaque Psoriasis: “This has been a miracle drug for me. I have suffered psoriasis for 30 years nows. I have tried everything under the sun. I had been on Stelara and it was working but not clearing all of the plaques. I started my loading dose of 300mg and seen immediate results after 3 days of first dose. I have just administered my third dose today and so thankful to say my plaque psoriasis is 95% cleared. I still two plaques in my scalp but I am willing to bet by my fourth dose they will be cleared. I am one happy patient after 30 years of suffering.”
For Psoriatic Arthritis: “I have had 2 drugs for psoriatic arthritis. One was a pill and made me very ill with stomach problems. The other was cosentyx. Unfortunately it also did not work for me. I had diarrhea for 4 months. My hair started to fall out and now I have half the hair that I had before. Soon to be bald. Do not take this drug. If anyone else has taken it and had hair loss please let me know. Thank you”
- How long does Cosentyx stay in your system?
- Does Cosentyx weaken the immune system?
- Should I take Cosentyx if I have a cold?
- What are the new drugs for the treatment of plaque psoriasis?
For Psoriatic Arthritis: “to all you short timers. I too had some side affects and thought it did not help with my pain. I gave it 5 months and now l feel much better and I was almost disabled. Now I can do a lot more of the things I could not do just on anti inflammatory meds. The side affects have gone away ..so it is working for me.”
For Plaque Psoriasis: “I thought that Cosentyx was finally the miracle drug as it cleared me about 100% for a good two years. But now all of a sudden it's starting to flare up on my lower legs out of nowhere...man this is BS. I guess I should be thankful for the couple clear years I had in my life. Back to Earth again I guess. Hopefully the next 2-year miracle drug comes soon. I bet the cure for psoriasis is out there, just like the cure for cancer probably is...but big pharma wouldn't allow that to happen...nope too much money to lose.”
For Plaque Psoriasis: “Freaking miracle drug. I tried everything but nothing would get rid of my psoriasis. I am a 6 year sufferer of it, had it everywhere including my scalp. I am now 6 weeks on Cosentyx and I am completely clear! I am beyond ecstatic, truly incredible stuff. So far I have had so side effects and hopefully that will continue.!”
For Plaque Psoriasis: “I've had psoriasis for 50 years and have had several treatments including Humira, methotrexate, and many others. I was on Humira for 3 years and it help a little. My doctor suggested I try cosentyx and after the first dose (300 mg) my psoriasis cleared up by 70%! Unbelieveable! It's been 4 weeks now and it's 95% clear! So far, no side effects!”
For Ankylosing Spondylitis: “Hi, I have had this aggressive illness since the age of 20. I am now 31 and have been put onto cosentyx. I just had my first injection today and have had less pain and stiffness already. Given that i had tried every other treatment option this was the last form of treatment for Ankylosing spondylitis. No side effects as yet. Hope this treatment is the one. Regards, Posso”
For Plaque Psoriasis: “I have been on Cosentyx for about 3 and a half weeks now and my psoriasis has improved I would say by 80%!!! All the plaque is now flat against my skin (meaning, if I close my eyes and rub my arm, I cannot feel any areas of plaque). All that remains is the discoloration from the plaques which are slowly fading as well because I go to the tanning booth to tan. I have experienced NO side effects at all, in fact the skin on my face is also glowing and radiant. After suffering from psoriasis for over 10 years my body had become immune to Clobetesol and Humaira really didn't work for me, but Cosentyx has been GOD SENT! I would recommend and hope that this work for anyone and the best thing for me has been the quick improvement >30 days!”
For Plaque Psoriasis: “After Humira stopped working for my psoriasis I was switched to cosentyx. Within a month my symptoms had almost completely disappeared. 2 years later my skin is completely clear. It has changed my life. Thank you.”
For Plaque Psoriasis: “I have been on Cosentyx now for 5 months. I went from severe to 95% clear, with no side effects so far. Zero sugar, low carb, high fat diet; exercise; and sun/UV on the rash are also very important to keep it clear. Also the plaques have largely to do with a biofilm, sticky fungus bacteria environment, created by normal/harmless skin Malassezia and Staphylococcus varieties. Your body can't break down the biofilm but these can: chitinase, essential oils (thyme oil, rosemary oil, eucalyptus oil, etc.), sugar alcohols (xylitol etc.). I make lotions with these and fractionated coconut oil (which are anti-Malassezia saturated fat chains) to break down the psoriasis plaques so they can heal. Active vitamin D prescription ointment (calcitriol).”
This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare professionals.
More about Cosentyx (secukinumab)
- Side Effects
- During Pregnancy or Breastfeeding
- Dosage Information
- Patient Tips
- Drug Interactions
- Pricing & Coupons
- En Español
- Drug class: interleukin inhibitors
- FDA Approval History