Remicade User Reviews & Ratings (Page 3)

• SHE...
• June 28, 2009

For Crohn's Disease, Maintenance "I'm 32 and I've had Crohn's now for 14 years. Remicade was a godsend but only for a limited time. I started off like everyone else with IV every 8 weeks. Then after a couple of years, it was wearing off faster, so then every 6 weeks. Then every 4 weeks, then I was back on the steroids along with the 4-week treatment. Well, after 6-7 years on Remicade, it wasn't working anymore. I do recommend it because I would give anything right now to get those 6 years back, because even though I became immune to it, I felt 20 times better than compared to now. Since the Remicade, nothing has worked for me since."

• Col...
• November 8, 2016

For Ulcerative Colitis "Severe UC flare hospitalized, prednisone intravenous didn't do anything. Remicade infusions every 4 weeks to start, now every 8. It worked within one week, and after about one year, I was in complete remission with no sign of UC on my colonoscopy! The IV is okay, very expensive, but you can go to the Remicade website for help paying deductibles no matter what your financial situation is. I wish my dr told me that before I spent $10,000 in deductible and copay this year! I guess it was worth it all around."

• Anonymous
• May 25, 2010

For Rheumatoid Arthritis "I have had rheumatoid arthritis for 1 year now and continue to take Sulfasalazine and Nabumetone daily. I stopped taking the Enbrel after 7 months as it was no longer relieving joint pains. I have had two infusions so far and do notice improvement in my most painful joint (shoulder). My rheumatologist prescribed a dose pack of steroids, which I took after my 1st infusion. Receiving these drugs together, I was hoping for more improvement, but I will take what I can get. My arm has markedly improved range of motion, although it is not back to normal. My legs are still stiff, and I still need to shuffle my feet when I walk. I go back for my third infusion next month, and thereafter, infusions will be every 6-8 weeks. I sure am hopeful this treatment will improve my quality of life."

• Jos...
• Taken for 6 months to 1 year
• July 28, 2019

For Crohn's Disease "There should be a class action lawsuit against Remicade. After 9 months of being on it for Crohn's, I developed drug-induced lupus. I was in my 30s and felt like I was 90. I couldn't get out of a chair. My hands curled up, and I had to get shots in my back and hands. This drug nearly killed me. My doctor kept pushing me to his physician's assistant and wouldn't see me."

• Ann...
• April 25, 2018

For Rheumatoid Arthritis "I had RA for a few years and decided to try Remicade. During the infusion, my chest started to get tight. I asked the nurse to check me and she checked my blood pressure, it went from 121/78 to over 250/120 in 15 minutes. She switched off the machine and I was taken to the ER for an EKG."

• LAU...
• Taken for 5 to 10 years
• July 4, 2015

For Ankylosing Spondylitis "Getting up in the morning and walking around is a lot less challenging since I started Remicade in June 2008. Before Remicade, I'd have to sit down in my tripod stool after just crossing the street due to extreme fatigue. Now I can walk to the grocery and back."

• Gur...
• Taken for 1 to 6 months
• September 16, 2019

For Ulcerative Colitis "I had severe pancolitis and was hospitalized for 2 weeks. They started me on Remicade because none of the mesalamine ever worked for me. It worked at first really well and worked well for about 2 months. After that, the flare-ups became so bad they were giving it to me every week. Even that didn't work this time around, so the only option I had was surgery. The doctors didn't want to try other medications since I already had so much Remicade in my system. After the surgery, I immediately felt great. Some people might not like the idea of having an ostomy, but I have gotten used to it. I did have the opportunity to get a J pouch, but one of my dad's friends had a very bad experience, so I decided not to."

• Anonymous
• November 4, 2009

For Rheumatoid Arthritis "On Remicade for 10 months. At each infusion, the dose has gone up with no lasting relief. Now at 800 mg every six weeks, relief lasted only 2 weeks, 2 days. Back on Prednisone and Darvocet until I see the doctor tomorrow. Nothing has worked except a combination of Arava and Methotrexate. Had to leave Methotrexate several years ago because of high liver enzymes. At this point, nothing seems to give relief except Prednisone, and I will not take that even more than a few days. Possibly adding Arava to Remicade after tomorrow. I am getting very tired of constant pain."

• Ash...
• Taken for 6 months to 1 year
• December 12, 2017

For Rheumatoid Arthritis "I was diagnosed with Inflammatory Arthritis (RA) in September of 2015 (29 years old). First, I was on Plaquenil, which never seemed to help, and on top of it, I developed a terrible hive rash, which went away once I stopped taking it. Next, I tried Humira. That worked great for about 6 months before my symptoms came back. Now I'm on Remicade and have been for almost a year now. It works great. I get my infusion every 8 weeks and have NO SYMPTOMS!! I love Remicade. It gave me my life back. I am slightly concerned though because I've developed another rash that won't seem to go away after 2 months of dealing with it, trying steroids, etc., etc. Cross your fingers it's not Remicade causing my rash. I'll cry!"

• Nic...
• January 7, 2017

For Rheumatoid Arthritis "I was diagnosed with RA in 2004 and began steroids and methotrexate. Next, I started Enbrel for approximately 8 months, but the citric acid in the Enbrel was unbearable. Then I began Remicade infusions. I started out nine years ago every 6 weeks. I'm now on 700 mg every four weeks and weekly injections of methotrexate, but wouldn't change a thing. I still have stiffness here or there, but the fatigue and pain I used to experience are gone, and I live a full and happy life. It's been such a blessing to me."

• Anonymous
• February 25, 2011

For Crohn's Disease, Maintenance "I was diagnosed with Crohn's disease when I was 16 years old. I am now 47. Remicade has been a blessing. I am one of the very fortunate ones to have no real side effects. I have been on Remicade for at least 6 years. I am able to hold down an excellent job and enjoy being a wife and mother. I am grateful that I have a job with great benefits. I wish that the cost was not so outrageous so that others could benefit from this medicine. My son is on Humira, and they have a program that decreases the cost significantly. Even with my insurance, they cover a large portion of my co-pay. All we can do is hope that the makers of Remicade will offer the same someday."

• Sus...
• February 22, 2017

For Rheumatoid Arthritis "I was diagnosed with severe RA in 2009 by my general practitioner, who discovered it through a blood test, which is not always common. Well, after being on MTX 8 pills a week (for 8 years) and Arava daily, I have also been on Enbrel, Humira, Actemra, Orencia, and Zeljanz, one worked, most didn't. I finally just started Remicade infusion on 2/16/17. The first day I slept 20 hours. A few days later, no change, then yesterday ~The Miracle Day~ not one single pain, no flare-ups, 100% pain free! OMG, I was so happy I cried! Today, not so good as yesterday, but I'm very hopeful! Good luck to the rest of you all!!!"

• Tsa...
• October 27, 2013

For Crohn's Disease, Maintenance "Ok, I have had Crohn's disease for 15 years this December. I have maintained myself just fine with minor problems. Recently, I have learned my pain tolerance is so extreme I have been putting up with stuff I shouldn't be for an uncertain amount of time. Two questions from people with experience would help: 1. How is it going forward with these fistulas? Unheard of before last Wednesday, and I have two forming or in the process of. 2. I have limited options going forward, and Remicade is seeming the best course of action. How have people done with it long term, it being an immune suppressant? I am knowledgeable about these things, and I am hoping to hear from people who have experience dealing with fistulas and taking Remicade. Thanks, Troy S."

• Anonymous
• April 26, 2011

For Crohn's Disease, Maintenance "I am a 16-year-old male and was diagnosed with Crohn's disease when I was 8. I have only been on Remicade for about 8 months, but have not seen much of a difference. My energy has stayed the same, and I haven't grown any. Improvements have been that I don't have the morning cramps that I usually get, and my appetite has grown. I went from 135 pounds before the infusions to 145 pounds. I have a bloody nose at least three times a week, I now catch stomach viruses a lot easier now, and I feel dizzy/lightheaded often. Overall, I guess it's working, I will do an update when I have been on the medicine longer."

• Anonymous
• December 6, 2019

For Psoriatic Arthritis "Used for psoriatic arthritis, the 1st of 3 IV infusions that work great to begin with! From joints becoming near normal to a bounce in my step - then the canker sores are the 1st sign I'm flaring! I went through 2 severe reactions before realizing it was the drug, which required immediate emergency attention as it affected my breathing, had hives, and 2 weeks of misery. If only my body didn't find ways to subvert all the docs do to try & help it! It's frustrating!"

• Eai...
• Taken for 2 to 5 years
• May 10, 2016

For Ulcerative Colitis "When my daughter was 13, she had a sudden and severe onset of UC. She was hospitalized for 2 weeks (had constant pain, couldn't eat, and was going to the bathroom 15-20 times a day). She was given IV steroids/medications with no improvement of symptoms. The day after receiving Remicade, her pain was gone, and she wanted to eat. She went into complete remission and has had no symptoms for the last 4 years. She does Remicade infusions every 10 weeks. It has been her wonder drug! But my other daughter was diagnosed with Crohn's a year later at 11. Her onset was slower, and she was put on various medications first. Remicade worked for her for several months but then became less effective, even with increasing dose and frequency, so she was switched to Humira."

• tso...
• September 25, 2009

For Crohn's Disease, Maintenance "I've had Crohn's for 12 years, and I'm 44 now. I believe my Crohn's was triggered or worsened by a doctor misdiagnosing my lower back/hip joint pain from Crohn's and prescribing heavy ibuprofen. I tried Asacol, Imuran, and Pentasa, but always ended up taking prednisone to calm the symptoms. Every February, I ended up with flare-ups. The doctor put me on Remicade 4 years ago, and other than some swelling up in the hands initially and getting perma-colds occasionally, it has worked very well. Now my insurance is trying to force me to go to Humira. The doctor is fighting it, but we'll see how it goes. Hope this helps."

• Anonymous
• January 9, 2010

For Crohn's Disease, Maintenance "I am a 29-year-old male and have had Crohn's disease for 8 years. When I was going through college, I became very ill and, over a two-year period of ups and downs, lost 100 lbs. Only due to the grace of God, I made it through college with a civil engineering degree. I was first put on all the typical drugs: Imuran, Pentasa, Asacol, Prednisone, B-12 injections. I received the Remicade initially only when I had flare-ups. I watched my diet to a T (specific carbohydrate diet), but would still end up flaring up. For the past 6 years, I have been on a maintenance dose of Remicade every 10 weeks and have done very well. I do have a goal to eventually get off the Remicade."

• Ser...
• Taken for less than 1 month
• July 9, 2016

For Crohn's Disease, Maintenance "My 14-year-old had her first Remicade infusion 10 days ago. After 8 days, she had severe serum sickness. Her fever shot up to 106, and her blood pressure was really low. She spent 24 hours in the PICU. It was very scary. Needless to say, she won't be able to take it again. We are hoping there will be no lasting effects, but only time will tell. Her symptoms of serum sickness were: fever, chills, severe joint pain, hives all over, swollen hands, red eyes, and dry mouth."

• d37...
• September 30, 2011

For Ulcerative Colitis "The medicine works great. I've been on it for almost 2 years. The only thing is I'm getting a lot of the side effects. The one thing that is very bad is the itching on my arms that has lasted a long time. No medicine has helped, so if anyone has any ideas on how to stop the itching, please give me ideas. The only good thing about this medicine is that it's helping my ulcerative colitis."

• Wel...
• Taken for 2 to 5 years
• August 17, 2017

For Rheumatoid Arthritis "I was on Enbrel for nearly 9 years before it stopped working, and Humira didn't work at all for me. I started Remicade nearly 4 years ago, my doctor started me out getting an infusion every 8 weeks, and over the first year, he brought it down to every 4 weeks. It's been working great, but after the first 2 years, my knees started bothering me. But after some injections at my orthopedist, they have been under control. Now both my elbows are really bothering me, at first it was when I woke up, but now it's 24/7. I go in for my next infusion next week and will talk to my rheumatologist about the pain. I was curious to see if anyone else has had knee or elbow pain after being on Remicade."

• sha...
• May 9, 2009

For Crohn's Disease, Maintenance "I am 24, and I was diagnosed with Crohn's disease a year and a half ago now. I've been receiving this infusion for the past 12 months. The relief was brilliant, bar constantly catching coughs, colds, and flus, but it was worth it as I could lead a normal life again. My infusions were every 8 weeks and could take anything up to 4 hours, but my remission time between infusions began to steadily decrease. I have now had my 9th infusion and receive them every 5 weeks. My body has grown an immunity to the drug, and my doctor is changing me onto Humira as a last resort to avoid surgery. Hope this helps somebody."

• Eli...
• May 7, 2017

For Rheumatoid Arthritis "I was diagnosed with systemic sarcoidosis. After a year and a half of trying different medications with no relief, I started Remicade. The first two infusions got rid of the flu-like symptoms and the horrible aching pain throughout my body. The third infusion got rid of the same symptoms, except I do feel knee and back pain still due to damage done to those areas from arthritis. I felt the back and knee pain after the first two infusions too. I didn't realize how sick I was until I felt better. The last time I didn't feel like I had the flu all the time was 32 years ago! I thank God for Remicade! It's a miracle drug. I have absolutely zero side effects too! I give it a 20 on a scale of 1 to 10!"

• Ken...
• Taken for 10 years or more
• July 18, 2018

For Crohn's Disease "I went on this medicine in 2003 because of disease in my ileum. I was diagnosed with Crohn's the year before, and nothing had worked - Asacol, prednisone, Imuran. Then Remicade was a LIFESAVER! I actually could live my life like a normal person again! I had a hard time scheduling my infusions because I was in college, so my advice would be to get it as close to your due date (7 weeks, 8 weeks, etc.) as you can so you can get ahead of the flare. I've noticed that if I get my Remicade late, I feel pretty terrible until my next dose. I've never gotten sick or had an allergic reaction from it, and I've been on it for 15 years. It's not working as well as it once did, so I'm hoping I can change to a shot so I don't have to sit through an infusion. If you're considering going on Remicade, I highly recommend it. It helped me live a semi-normal life. However, I did develop psoriasis about 10 years ago. I'd happily take psoriasis if it means I can be on Remicade. Best of luck!"

• Lin...
• July 3, 2020

For Crohn's Disease, Maintenance "I have been on this medication for 14 years now and maintained remission without any meds. I also had 2 healthy babies while on Remicade. I was diagnosed with CD of my ilium at 20 years old. I had been on Pentasa and then Imuran. Imuran worked okay, but it hurt my stomach, and I never felt truly 'good.' I was put on Remicade after my last blockage in 2006, and I have been in true remission ever since with Remicade alone. I am a little tired after my infusion for a day, but then I feel totally normal. My two kids had no side effects from using during pregnancy. They are now 6 and 3. I had 2 c-sections with no complications. The only thing it affected was that my kids couldn't get the Rotavirus vaccine because it was a live vaccine. (No live vaccines until 6 months for Remicade babies.) That vaccine is new and not critical. Remicade has a payment assistance program, and they help with co-pays, regardless of income."