Remicade and Headaches: What Users Say

• lin...
• Taken for 2 to 5 years
• December 17, 2013

For Ulcerative Colitis "I have been getting Remicade infusions for 4 1/2 years. I went into remission within a week of my first infusion. My only side effects I have are headaches and some chest pain off and on. But considering how my life was before Remicade, I can handle it for now."

• Mom...
• Taken for 1 to 2 years
• December 29, 2014

For Crohn's Disease, Maintenance "My son started Remicade at 13 years. He has severe Crohn's flare-ups, and this was a last resort aside from surgery for him. The Remicade treatment gave him few side effects. He didn't get any headaches or tiredness. And he didn't get sick easier like they said he would. When almost our whole house (7 of us) got the flu, Micah didn't. Micah just took his last dose 8 weeks ago after being on Remicade for over a year and a half. (Micah was on Lialda too.) Even when they used the amount of Remicade, Micah was still getting flare-ups every other month or so. They tested his blood and found out he had antibodies to the Remicade, which means his body was attacking the Remicade, and that's why it was only working right after the infusions."

• Gut...
• June 15, 2013

For Crohn's Disease, Maintenance "After resisting having read American Black Box warnings, I was finally persuaded through my consultant's actual experience with the medicine - that and having 6 operations, colostomy, and the disease still beating me. I was exhausted and unable to walk or do anything other than essential basic necessities - if that. I have had three infusions of Remicade so far along with steroids for peri-anal fistula, Crohn's, at two-week intervals, and I have some shade of a life back. Immediately after the medicine, I am very tired. I have headaches that last for about four days at a time, paracetamol doesn't touch them. I get bad cramps in my legs, especially at night, and occasional mild flare-ups, BUT NOTHING like before. Stress plays a factor in starting my flare-ups."

• Tat...
• July 6, 2015

For Crohn's Disease, Maintenance "I have suffered from Crohn's disease for about 2 years and took Remicade for one now. At first, I had headaches, but now I just take Remicade every 56 days and it keeps me okay. I don't feel the symptoms of the disease, and basically, I eat everything that I wish, but I'm 29, so I'm always on a diet to keep my body shape."

• bjd...
• September 9, 2009

For Crohn's Disease, Active "It made me ill for 2-3 days after infusion, including headaches and nausea. I was also very sluggish and more tired. That was hard to accept with the acute chronic fatigue syndrome I already deal with."