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User Reviews for Oxcarbazepine

Also known as: Oxtellar XR, Trileptal

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Oxcarbazepine.

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Condition Avg. Ratings Reviews Compare
Cyclothymic Disorder
10
   
1 review 0 medications
Trigeminal Neuralgia
8.6
   
39 reviews 9 medications
Borderline Personality Disorder
8.3
   
3 reviews 0 medications
Bipolar Disorder
8.2
   
108 reviews 30 medications
Seizures
7.7
   
26 reviews 49 medications
Neuropathic Pain
6.8
   
4 reviews 4 medications
Anxiety
6.1
   
15 reviews 56 medications
Summary of Oxcarbazepine reviews 7.9 196 reviews

Reviews for Oxcarbazepine

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For Anxiety: "I was having bad anxiety at night that would prevent any sleep. Some nights if lucky I'd only sleep 3 hours at most. So then my Dr told me to take this and instantly noticed a difference I'm actually able to sleep now!!!"

   
8.0

Anonymous (taken for less than 1 month) February 20, 2018

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For Trigeminal Neuralgia: "Diagnosed with Trigeminal Neuralgia in 2011 after 2 root canals and 2 crowns. A new dentist sent me to an oral surgeon who knew what it was right away. Saw a neurologist and he confirmed the diagnosis and prescribed oxcarbazepine. It took a number of weeks to ramp up the meds to the correct level due to nausea. Currently taking 900mg at night. Really makes me feel loopy and drowsy. I have been pain free for most of the past 6 years. I also play trumpet daily, which amazes my neurologist. However, I feel I am not as sharp as I used to be (just turned 60) and have memory problems to the point of literally not recalling details of recent things. (Long term memory is fine.) There are also times during the day that I feel very sleepy."

   
8.0

Annoymous1976 February 14, 2018

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For Bipolar Disorder: "I started taking Trileptal (oxcarbazepine) a week ago. I started noticing relief of my manic symptoms almost immediately. This medication helped calm my mind down from racing thoughts and manic outbursts. I've tried so many medications in the past that didn't work for me. This medication is a Godsend. Right now I'm on 600mg per day."

   
10

Tabitham227 (taken for less than 1 month) February 12, 2018

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For Bipolar Disorder: "I was recently started on trileptal for bipolar disorder. I have never had such a quick and positive response to any medication with years of medication trials, including other anticonvulsants. I have virtually no side effects. The only thing that feels uncomfortable for me is how quiet my mind has become. I'm accustomed to numerous streams of thoughts and ideas, which was great for my creative work. I also have PTSD, and this medication also works wonders for most of those symptoms as well. I don't have the same emotional reactivity and associated physical reaction. I don't have intrusive thoughts. I like that there are not as many risks with this medication as there are with others. The main one to watch out for is low sodium, but it's not hard on the liver and doesn't cause weight gain. I feel like I've been given my life back. I can't believe, with every medication I've tried over the years, that I'd never been tried on trileptal. It's been amazing."

   
10

tma18 January 31, 2018

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For Bipolar Disorder: "My daughter was diagnosed 2 years ago with several different mental health problems, she's been dealing with these issues for years, but seems like we couldn't get the right help for her, she had a manic episode 2 weeks ago, I had to have her hospitalized, they put her on the triliptal and by the time she came home she was a totally different person, she's so calm and mellow, I can tell for the first time in a long time, she seems at peace in her mind and actions, best medication I've seen in a long time, thank God and the doctor who finally found her some relief, including myself"

   
9.0

Mother's love January 6, 2018

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Trileptal (oxcarbazepine) for : "After expensive, unnecessary dental work and a little research, I diagnosed myself with Trigeminal neuralgia (TN). Took a little convincing to make a believer out of my doc, but finally got a consult with a neurologist. He was doubtful until I described my symptoms, which were typical TN symptoms. Trileptal is my 4th major TN drug to try (new neurologist) and at first it was a godsend. I've been on it a little over a year now, and am on neurontin an baclofen as well for other pain issues. It has in the last week just quit working. I still work as an RN in ICU and am scared to take too much more because I need my mind to function at top capacity. I already feel a little slow thinking from all the meds I'm on, but can't function without them."

   
5.0

DogMomRN (taken for 1 to 2 years) December 22, 2017

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Trileptal (oxcarbazepine) for Seizures: "I started taking Trileptal when Tegretol stopped working for me. I love this medication. I developed epilepsy following a head injury (diving accident) when I was 8 years old. I've had seizures (daytime absence, daytime partial, nocturnal grand mal) since then. Tegretol worked for me for years, then stopped working. Trileptal has been my only seizure medication for the past 11 years and I couldn't be happier. I have to add salt to my diet, and I get very flush whenever I exert myself, but being completely seizure free is worth these small inconveniences."

   
10

girlwiththebadbrain November 21, 2017

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For Bipolar Disorder: "I've been taking this med 600mg once a day at bedtime for 5weeks. It seemed to help stabilize my mood but I noticed more hair coming out than usual. I found out that it makes birth control pills less effective. Unfortunately, I can't continue this med for those reasons"

   
6.0

Moni89 (taken for 1 to 6 months) November 8, 2017

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For Bipolar Disorder: "Very effective and low side effect profile in my experience. I didn't take my second dose by accident and I notice a huge difference. Trileptal really helps specifically for severe mania in combination with a neuroleptic."

   
8.0

djrastab (taken for less than 1 month) October 31, 2017

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For Bipolar Disorder: "This medicine saved my life. I would of never been able to finish college. it took two trips to the psych ward and complete honesty with the doctor to get me the right medicine but ever since I've been put on it- no more pounding heart, no more manic episodes, no more depersonalize. It is truly a blessing to experience life a little better."

   
10

al dude (taken for 5 to 10 years) October 17, 2017

10 users found this comment helpful.
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For Trigeminal Neuralgia: "I've had Trigeminal Neuralgia for 5 years. First Rx prescribed was Lyrica. I had a foggy brain and had major balance issues. Next was Oxcarbazepine. I seemed to build up a tolerance and then it just didn't seem to control the lightning bolts feelings in my face. In pain, couldn't talk, brush my teeth, kiss my spouse, wash my face, etc. , without intense pain. Next was Oxtellar XR. FINALLY found something that works. Had to play around with the dosing. I now take 900mg at 10pm and 600mg at 10am. It doesn't take the pain away completely, but now it's tolerable, just a low level zing, instead of the lightning bolts."

Taser (taken for 2 to 5 years) September 26, 2017

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For Trigeminal Neuralgia: "Purchased the Trigeminal Neuralgia kit from Biogetica. Big waste of money. Did nothing for me. Side note; I've had this condition (extreme facial pain, left side) going on about three years now. At first mostly lighting bolt types of pain but now it's getting to last for five / ten seconds which will be unbearable pain. Triggering it can be something very minor. Touching any part of my head, light wind, eating etc. Making an appointment now to see a specialist."

   
1.0

Don T (taken for 1 to 6 months) September 25, 2017

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For Trigeminal Neuralgia: "Had taken 150 mg twice a day, had a very difficult time swallowing while eating, literally had to cut my food into tiny pieces. This mellowed after 8 days, still always had to have a glass of liquid when eating. Went to 150 mg. twice a day. Taking it with Neurontin, it did relieve my pain for 30 min. in the morning, not every day, but it was better than continuous pain."

   
8.0

marmie2003 September 23, 2017

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For Bipolar Disorder: "I have bipolar 1, extremely dangerous highs and extreme lows. I also struggled with anxiety. I was always so anxious that it felt like bricks were crushing my chest all the time. I was in and out of Dr's offices trying to get help. It wasn't until age 32, when I was hospitalized in a psych ward, suicide attempt because I was done suffering and done with life. I had a psychiatrist try trileptal. I've tried numerous anti depressants and mood stabilizers and I didn't think this would work. Literally days later, I woke up without the chest crush feeling. I didn't even know normal people felt that way. Then I noticed my moods stabilizing. Been calm and mellow ever since. This saved my life. No noticeable side effects for me."

   
10

KikiBub September 7, 2017

28 users found this comment helpful.
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For Anxiety: "18 year old Female- I have been taking oxcarbazepine (trileptal) for almost 3 years now ( for my PTSD), and while it does help manage my PTSD I experience some unsettling side effects daily such as nausea, fatigue , and recently I was diagnosed with chronic hyponatremia which my doctor has link to my oxcarbazepine because it lowers your serum sodium levels in your blood. Within the last 4 months I have started having acute migraines if I take my trileptal even so little as ten minutes late. In my opinion the long term effects are not worth the decent level off PTSD management. My doctor is thinking of changing my mediation due to the negative effects on my health."

Vivica (taken for 2 to 5 years) August 30, 2017

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For Bipolar Disorder: "Trileptal 600mg TID Numerous others Trileptal seems to be the topic at hand. I was on Trileptal years ago and then went off my meds altogether for a few years. Upon restarting my psych meds my prescribers tried me on several meds all the while I kept mentioning that trileptal had helped me immensely in the past. Finally, out of frustration if I had to guess, I was put back on Trileptal. The climb back up the ladder to find my dose has been long and unpleasant, but I have found a place finally where my thoughts have slowed enough to think straight, and my manic highs have been brought down to a more manageable base level."

   
10

Jake Maly (taken for 10 years or more) August 9, 2017

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For Bipolar Disorder: "I have been on it for almost a year been on a roller coaster of meds trying to find everything I need for my multi problems lol. So for the first time I'm on this for my bipolar mood swing stabilizer and other meds that fit me quite well. I have found someone that will really listen to how I feel without being afraid I'll be locked up with my mouth and impulse to want to punch anyone that just looked at me. I'm on generic for xanax how ever its spelt, trazadone for sleep 150mg it finaly works after I cut off dark soda's, zolaf 50mg helps depression, OCD tramatic all helps tons with that lil pill, and aderall for my ADHD. I love my doc she is the best at listening and tries her best to truely understand me. ~Still Working on myself<3"

   
10

DollieDork (taken for 1 to 2 years) July 3, 2017

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For Trigeminal Neuralgia: "Anyone have a lot of sneezing and itchy while on trileptal"

Anonymous (taken for less than 1 month) July 2, 2017

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For Neuropathic Pain: "I have a problem with neuropathic pain due to nerve scarring at L5S1. I take Tramadol as the primary pain reliever but I have also been using Oxcarbazepine. It seems to have more of a long term impact on reducing pain for me. In other words I have to take it for about a week to see an improvement and if I stop taking it the pain takes about a week to return. I take 2-150mg tablets. I have observed no side effects. I have been taking these drugs for some 15 years. I always have some level of pain but these 2 drugs have made it possible to have a mostly normal life not otherwise possible."

   
8.0

mrsciatic July 1, 2017

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For Seizures: "The biggest problem for me with this medicine is bad taste and lack of appetite . Everything smells horrible and I am loosing weight like crazy. Anybody else has similar experience?"

   
4.0

Shawn Hassan June 25, 2017

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Trileptal (oxcarbazepine) for Seizures: "My daughter is 5 years old and has been healthy, and has been developing at a normal rate. I heard a loud thud. I found my daughter on the floor. There was vomit on the bed and my daughter was on the floor. It lasted 15 minutes. It was so scary. She was jerking very violently, and her eyes were rolling in the back of his head. It was horrible. No one should have to see their child like that, my doctor is saying she's had seizures. She had an MRI ,an EEG,they did a spinal tap. After returning from the hospital, my daughter experienced vomiting, I could not bear to see my daughter going through this problem at the early age of her life. I read a lot of fake testimonies at blogs, facebook and website of people that was cured from seizure"

alfred marta June 14, 2017

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For Bipolar Disorder: "This was the first and only medication that I have used, and within 2 weeks, I noticed a difference in my manic side, and my depressive side is nil. My manic side is triggered by slow and inconsiderate drivers, which makes it easy for me to judge how well it works, and if I am missing a few doses. The only downside to it is a low libido. I I was taking 300 mg in the am and 600 mg in the pm, and I just tried to up it to 600 in am and pm. That made my libido almost nil, but it did stop the frustration with any drivers on the road. I think I will lower the meds back down to what they were, or try something else."

   
9.0

bi_polar2bear (taken for 2 to 5 years) June 1, 2017

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For Bipolar Disorder: "I take 300 mg a Day 150mg am + 150mg pm together with Halodol Vial once a month and Cogentol tab daily for the side effects of the Vial. I haven't suffered from a breakdown since I started taking the right dose 4 years ago. I only feel dizzy occasionally, and most of the time blurry vision. Other than that it seems working good with my case! Lately my Dr advised me to try Stimulant 400 cap twice a day to help me stay active while I'm at work."

   
8.0

Ho$$m June 1, 2017

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For Bipolar Disorder: "I have tried almost every medication on the market. I am on a cocktail. I take 1800 mg of oxycarzapine, 600 mg three times a day, 1200 mg of lithium, 1200 mg of topomax, and 180 mg of geodon and this last increase from 1200 to 1800, seems to have finally stabilized me."

   
10

Hlarkin May 23, 2017

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For Anxiety: "I told my doctor I have been allergic 2 like every single med I have ever been prescribed except benzos meds some sleeping meds. Lack of sleep can really imbalance the brain. Doctors have just thrown random diagnoses at me forever and I have almost died in the past from lots of them. My new doctor has tried me now on 2 antiseizure meds she says to fix anxiety - I had severe reactions to both. The first one, Lorazapam, I felt I was going to die of diarrhea (it's a bipolar med) and I swear I felt bipolar for the first time in my life from it. This new one Oxcarbazepine made me feel just NUTS immediately. I was doing great with the benzos and sleeping meds then popped an Oxcarbazepine and feel disoriented super depressed like my mind is scramble restless"

   
1.0

Casslove May 12, 2017

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