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User Reviews for Oxcarbazepine

Also known as: Oxtellar XR, Trileptal

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Oxcarbazepine.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Cyclothymic Disorder 1 reviews 0 medications
   
10
Trigeminal Neuralgia 34 reviews 9 medications
   
8.9
Borderline Personality Disorder 3 reviews 0 medications
   
8.3
Bipolar Disorder 91 reviews 33 medications
   
8.1
Seizures 23 reviews 48 medications
   
7.7
Neuropathic Pain 3 reviews 3 medications
   
6.3
Anxiety 10 reviews 63 medications
   
5.6
Summary of Oxcarbazepine reviews 165 reviews 7.9

Reviews for Oxcarbazepine

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For Bipolar Disorder: "Works pretty well for stabilizing moods, mostly manic. I take 300mg morning and 600mg at night. Have been taking for about three years. Dr will not let me take more than the 900mgs. Headaches for a week when starting and during increasing dose. It does mess with my memory. I can forget asking someone a question three times and sometimes have some trouble remembering words I'm trying to express."

   
7.0

BBP007 (taken for 2 to 5 years) February 20, 2017

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For Bipolar Disorder: "I am having problems urinating! I am experiencing confusion which is embarrassing as a teacher. Sometimes I feel my bottom lip tremble."

   
6.0

Anonymous (taken for less than 1 month) January 31, 2017

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For Anxiety: "I've only been taking it for four days now. I am concerned with how tired I feel after taking the medication. My doc prescribed me a 600mg dosage but had me break it in half for the first three days. I sometimes feel weak walking around for some reason. I will give it time to see if it improves my disorder. I can report that I have no appetite on this medication but then again I also take Adderall."

   
6.0

Anonymous (taken for less than 1 month) January 22, 2017

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For Trigeminal Neuralgia: "Female, over 70. Have had TN since 2007. Had MVD in 2013. Pain free for a little over 3 yrs. Episodes have returned big time. Back on Oxcarbazapene, but not totally effective. Prior to MVD, I tried upping the dosage from 300 twice a day to 300 three times per day which caused false gall bladder symptoms and depletion of sodium. I am having some blurred vision at times and nausea. If I don't take the medication on time, the shooting, screaming, electric pains hit me with full force. I still have pains throughout the day, but can deal with those. I live in fear that the bigger pains are going to hit me any minute. I think the Oxcarbazapene is effective with fewer side effects, from the information I've read."

   
7.0

Anonymous (taken for 5 to 10 years) January 18, 2017

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For Borderline Personality Disorder: "I took Trileptal for nearly six months. The first thing I noticed with it is that I was always "up". I was really happy and I lost a bit of weight and the psychiatrist upped my dose a bit and then I was really really manic. My mania works to wherer I don't sleep because I'm constantly planning things down to teeny tiny details, and writing. It was fun for a little bit. It felt great. But then I was hit with the overwhelming sense that I wasn't actually happy, the drug was forcing me to be like that. Also, the lack of sleep caught up with me and I started hallucinating. I told my psychiatrist, who prescribed me sedatives. It became a cycle of wake up with this one, and use this one to fall asleep. Overall I liked it, but then I got pregnant."

   
8.0

Kat77127 January 13, 2017

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For Bipolar Disorder: "Tried a few mood stabilizers this year. Lamictal made me severely agitated and couldn't sleep a wink. Zyprexa turned me into the Cookie Monster and made me put on weight very fast. Put on this and have had great results. I don't get upset like I used to, and the racing thoughts have diminished greatly along with the anxiety."

   
8.0

Anonymous December 20, 2016

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For Bipolar Disorder: "This drug has helped me so much, I used to be on a low dose benzo and an antidepressant and I felt terrible all the time, I had many racing thoughts about hurting myself and dying, I couldn't control myself at all when I felt anxious or too happy, which came followed by depression, but when my doctor replaced my benzo with this, the intrusive thoughts stopped. I got ocasional headache and dizziness (these are the only side effects i got) at first, but the side effects have gone away now after a couple months. I can finally function normally without terrible mood swings that ruin everything. I take 600 mg a day, 300 at morning and 300 at night."

   
10

Anonymous December 11, 2016

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For Bipolar Disorder: "I was diagnosed w/ bipolar 1 at age 25. My main problems are rapid cycling and manic episodes. Though I feel I have received good medical treatment these past ten years (though not the first 15), when I had to stop taking lithium due to kidney problems, I began to lose hope that I would ever feel well (even for brief periods of time) again. I am now taking trileptal as a monotherapy, and I feel the best I ever remember feeling. My mind is finally quiet. I am happy when I wake up in the morning. I sleep soundly. You are in this for the long haul whether you like it or not, guys. Find a GOOD doctor and try this. It may take a little time to get the dosage and timing correct, but it is worth the effort. (No weight gain, either.)"

   
10

25 years (taken for 1 to 2 years) December 9, 2016

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For Bipolar Disorder: "I was put on this drug when I was diagnosed with bipolar and it has made such a difference. No more racing mind, just calm and normal feeling. We worked to get the correct dosage and now I feel terrific."

   
8.0

Your nickname December 1, 2016

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For Neuropathic Pain: "64M-Taken for several years for severe foot and leg pains, not diabetic. Not 100% relief but allowed daily functions most days. Took Tramadol to get sleep occasionally. Tried Lyrica with side effects so bad have gone back to oxcarbazipine. Sleeping more, daytime drowsy but Lyrica effects are disappearing after seven days"

   
7.0

neuro tom (taken for 5 to 10 years) November 30, 2016

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For Anxiety: "Omg, where do I start! I have been dealing with acute alcohol withdrawal disorder and have had anxiety and depression for many years. The drs have tried to label me as bi polar, but I don't think it's an accurate dx. Since taking this pill I have had vivid nightmares upon the first night taking it. I felt some relief initially and felt good for a week or so. I had my ups and downs. I took the pill without reading side affects, so that it would not affect my treatment. I have had a constant sore throat, crusty sores on my nose that won't go away. I feel drunk when I take them. I don't get a full nights rest. I was recently dx with PTSD They doubled my dosage and now I have agitation, restlessness, crying spells, depression and anxiety still."

   
1.0

Rhonda11 (taken for 1 to 6 months) November 21, 2016

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For Trigeminal Neuralgia: "This medicine was heaven sent! At first I wasn't sure I was going to be able to tolerate it but after a few weeks it got in my system and leveled out it was fine my pain from TN is completely gone I'm taking 600 mg at night. With no side effects:) With this medication and my father God! I'm doing good:) don't give up on this med give it time to work! Hope this helps :)"

   
10

Josiesue67 (taken for 1 to 6 months) October 26, 2016

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For Trigeminal Neuralgia: "I had an Acoustic Neuroma removed in August 2015. I have had terrible headaches and face pain for over a year. I switched neurologist and he stated that I just didn't present symptoms of Occipital Neuralgia also of Trigeminal Neuralgia. I have been on Gabapentin and doxepin with very little relief of the zaps and shocks that lead to like a muscle cramp across the back of my head that lead to a migraine like headaches. I have taken this for a week and this has helped immensely. I have cut in half the headaches and other pains. So far I'm happy with this."

   
10

ttfaraway (taken for less than 1 month) October 6, 2016

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Trileptal (oxcarbazepine) for Seizures: "Although this medication did decrease my daughters absence seizures, if she took this at any time 30 min before or after eating, she had a severe reaction. Her throat would burn inside and out, her face would flush, she would get dizzy and unable to focus. This would last about 5-10 min. and then she would get so tired, she would instantly fall asleep and sleep for hours. She was at a pretty high dose during this time 1050mg 2x daily. We finally stopped this medication, because of the stress of having to watch so closely when she ate and when she could take this medication."

   
2.0

Anonymous (taken for 6 months to 1 year) October 4, 2016

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For Bipolar Disorder: "I was diagnosed with bipolar 14 years ago. The first medicine they gave me was depakote which made my hair fall out. Then they put me on lithium which I have been on for 14 years and whenever I would try to go off it I would get manic really bad so I have had to stay on it. Well I recently weaned myself off lithium due to weight gain and hair thinning out. My doctor then prescribed trilyptal. I have been on it for two days and I already feel 100 percent better. I feel stabilized and in a very very good mood. It's like a happy pill so far. I am very happy."

   
10

Bipolar Nikki (taken for less than 1 month) September 21, 2016

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For Seizures: "17mo old w/ presumed localization related focal partial complex & secondary generalized tonic clonic seizures replaced Keppra w/ Trileptal. Seizure characteristics changed/worsened, frequency & duration increased from every 4-10wks to weekly & from ~10min to ~15-45min w/ severe respiratory distress leading to numerous ambulance transports & hospitalizations. Though not ill, chronic respiratory distress developed such that O2 supplementation was required at 0.5lpm awake & 1.5-2lpm asleep. After >2mo of regular dosage increases following seizures, she was admitted to prolonged Video EEG following transport. Trileptal was weaned & in 3 days no O2 was needed, nothing was captured in 5 days & she remains Trileptal/seizure/O2 free weeks later."

   
1.0

Anonymous (taken for 1 to 6 months) September 16, 2016

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For Trigeminal Neuralgia: "20 years ago I was diagnosed with trigeminal neralgia. I first went to acupuncture dr. For about 7 years, too expensive to continue, found another dr who was also an acupuncture dr and suggested I try vitamin "b". I did and was suggested I take multiple different vitamin b. I did and this seemed to work until all hell broke loose and I went to the emergency ward 2 times. The last time the e. M. Dr suggested I take carbamazepine. I moved from arizona to michigan, saw a neuralagist who continued carbamazepine: 3 times a day, 8 hours apart- 1 1/2 at 8:30 a,m, 1 1/2 at 4:3o p,m, and 2 at 12:30 a. M. It appears this medicine has been working. Today biogetica. Co. Was given to me and I'm wondering if and how you can help me. Thank you."

TERESA VAN August 13, 2016

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For Bipolar Disorder: "I had been on generic trileptal for years it worked great for mood stabilization . No weight gain or major side effects until I received a different generic version then my iodine levels were terribly low and I lost a ton of weight and felt awful . My dermatologist discovered this because my primary care Dr ran tests and couldn't figure this out. Years later I'm back on trileptal 900mg , my mood is great yet now I'm having hair loss . My hair is thin all ready . I'm done with this medicine. It's unfortunate because it works well for moods . Hair loss will defiantly have me depressed . Not worth it."

   
6.0

Auntybop (taken for 1 to 6 months) August 9, 2016

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For Trigeminal Neuralgia: "Hi Guys: I am just in the weeding out what I don't have phase. Spent $3,000 inn a root canal and new crown that I did not need. Expensive way to diagnosis what it is not/ I suspect it's trigeminal neuralgia. Had my shrink/ sub specialist neuralgia guess it was TN 10 days ago. Took 50 mg Amytripoline one pill at night for 3 days. Sick as a dog with stomach pain and dehydration. Quit. I see my ENT tomorrow. When the electrical pain presented above my upper teeth this morning, my chin started to twitch, both are still happeningIn 1998 I was DXed with a mengioma indenting my brain stem. Had 6 weeks of FSRT radiation, 58 gr. Been stable since. Worried sick the tumor is growing again. Anyone out there with a similar back story? Single, 63 Saras"

Dain Bramaged (taken for less than 1 month) July 31, 2016

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For Trigeminal Neuralgia: "66 YO caucasian, male. Developed MS @22-23, diagnosed @30. Developed trigeminal neuralgia in 3/2014 lasting 7 days. Started on Carbamazepin 7/2014. TN returned 8/2015; constant ever since. Had microvascular decompression surgery on 6/3/2016. Pain ceased for 19 days after surgery then returned as severe as before. Surgery recovery was painful, left me weak, disoriented & less mobile. Neurologist changed Rx: from Carbamazepine to Oxcarbazepine (300 mg, twice daily) 6 days ago. Deep facial lancinating pain has remissed but still have burning, electric jolting pain in upper lip and cheek. Also taking Tramadol HCL (50mg, once daily) which seems to help. Carbamazepine never worked. Oxcarbazepine/Tramadol combo seems effective."

   
7.0

75gator July 18, 2016

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Trileptal (oxcarbazepine) for Seizures: "I have temporal lobe seizures. I have taken Trileptal for many years and it has helped controlled the seizures. However; I have been having issues with low sodium. The doctors blame it on the Trileptal. So to fix the problem, they suggest eating high sodium foods, fluid restriction, and no water. Water dilutes the sodium. They also suggested that I add about a teaspoon of salt to my meals. So what I do for thirst is drink Gatorade but only a few sips. But you got to becareful and not to drink more than a liter of fluid in a day as this is what is recommended by the doctor. My neurologist recommended that I drink gatorade. So most of the time I drink Gatorade when I eat my meals."

   
6.0

Marge S July 17, 2016

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For Bipolar Disorder: "Helped a lot with depression and mood swings"

   
8.0

AshleyBee (taken for 1 to 6 months) July 12, 2016

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For Anxiety: "I suffer from Chronic Depression and High Anxiety all my life. Other medications work but I am so out of touch with reality I choose not to take them.. I started a 300mg twice a day dose of Oxcarbazepine with 50mg of Pristiq. I have only been taking this for two weeks but so far everything is great... I am experiencing what its like to be “Normal”... A feeling I have rarely experienced so it feels a little abnormal. Life is much better now.... the best I have ever felt.. I hope it works for years to come"

   
8.0

BeachFan43 (taken for less than 1 month) July 4, 2016

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For Trigeminal Neuralgia: "TN came back big time after five years. Doc prescribed 600 three times a day. Still intense zaps. I tried 600 every 4 hours. It stopped most of the zaps but made me very sick, so went to 600 every six hours. Not as sick but tics sparkle and zaps continued. No lightning bolts this episode, 12 on a scale of 10, Thank God and trileptal. I would be dead without it. Was at Mayo and have appointment with neuro surgeon again. TN has subsided some and have reduced my dose, trileptal works, but sometimes I can not handle the dose needed. May have balloon compression but it scares me. My TN is MS related. Started trileptal 15 plus years ago but not during remissions."

   
10

Jo S June 15, 2016

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For Bipolar Disorder: "Lithium put me in the hospital for a month. I was on a respiratory tube 10 days and in a coma for 2. It really worked before this stay. I was also in renal for 10 days. Once I was released my doc tried Trileptal with an anti-anxiety med and I have been episode-free for almost 3 years. Lithium is great but have your blood levels checked VERY frequently. If you're having trouble with other medz, please consider giving this a try. I feel like a different person!"

   
10

BipoGirl (taken for 2 to 5 years) June 11, 2016

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