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User Reviews for Oxcarbazepine

Also known as: Oxtellar XR, Trileptal

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Oxcarbazepine.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Cyclothymic Disorder 1 reviews 0 medications
   
10
Trigeminal Neuralgia 38 reviews 9 medications
   
8.6
Borderline Personality Disorder 3 reviews 0 medications
   
8.3
Bipolar Disorder 103 reviews 29 medications
   
8.1
Seizures 25 reviews 49 medications
   
7.6
Neuropathic Pain 4 reviews 4 medications
   
6.8
Anxiety 14 reviews 56 medications
   
5.9
Summary of Oxcarbazepine reviews 188 reviews 7.9

Reviews for Oxcarbazepine

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For Bipolar Disorder: "This medicine saved my life. I would of never been able to finish college. it took two trips to the psych ward and complete honesty with the doctor to get me the right medicine but ever since I've been put on it- no more pounding heart, no more manic episodes, no more depersonalize. It is truly a blessing to experience life a little better."

   
10

al dude (taken for 5 to 10 years) October 17, 2017

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For Trigeminal Neuralgia: "I've had Trigeminal Neuralgia for 5 years. First Rx prescribed was Lyrica. I had a foggy brain and had major balance issues. Next was Oxcarbazepine. I seemed to build up a tolerance and then it just didn't seem to control the lightning bolts feelings in my face. In pain, couldn't talk, brush my teeth, kiss my spouse, wash my face, etc. , without intense pain. Next was Oxtellar XR. FINALLY found something that works. Had to play around with the dosing. I now take 900mg at 10pm and 600mg at 10am. It doesn't take the pain away completely, but now it's tolerable, just a low level zing, instead of the lightning bolts."

Taser (taken for 2 to 5 years) September 26, 2017

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For Trigeminal Neuralgia: "Purchased the Trigeminal Neuralgia kit from Biogetica. Big waste of money. Did nothing for me. Side note; I've had this condition (extreme facial pain, left side) going on about three years now. At first mostly lighting bolt types of pain but now it's getting to last for five / ten seconds which will be unbearable pain. Triggering it can be something very minor. Touching any part of my head, light wind, eating etc. Making an appointment now to see a specialist."

   
1.0

Don T (taken for 1 to 6 months) September 25, 2017

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For Trigeminal Neuralgia: "Had taken 150 mg twice a day, had a very difficult time swallowing while eating, literally had to cut my food into tiny pieces. This mellowed after 8 days, still always had to have a glass of liquid when eating. Went to 150 mg. twice a day. Taking it with Neurontin, it did relieve my pain for 30 min. in the morning, not every day, but it was better than continuous pain."

   
8.0

marmie2003 September 23, 2017

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For Bipolar Disorder: "I have bipolar 1, extremely dangerous highs and extreme lows. I also struggled with anxiety. I was always so anxious that it felt like bricks were crushing my chest all the time. I was in and out of Dr's offices trying to get help. It wasn't until age 32, when I was hospitalized in a psych ward, suicide attempt because I was done suffering and done with life. I had a psychiatrist try trileptal. I've tried numerous anti depressants and mood stabilizers and I didn't think this would work. Literally days later, I woke up without the chest crush feeling. I didn't even know normal people felt that way. Then I noticed my moods stabilizing. Been calm and mellow ever since. This saved my life. No noticeable side effects for me."

   
10

KikiBub September 7, 2017

14 users found this comment helpful.

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For Anxiety: "18 year old Female- I have been taking oxcarbazepine (trileptal) for almost 3 years now ( for my PTSD), and while it does help manage my PTSD I experience some unsettling side effects daily such as nausea, fatigue , and recently I was diagnosed with chronic hyponatremia which my doctor has link to my oxcarbazepine because it lowers your serum sodium levels in your blood. Within the last 4 months I have started having acute migraines if I take my trileptal even so little as ten minutes late. In my opinion the long term effects are not worth the decent level off PTSD management. My doctor is thinking of changing my mediation due to the negative effects on my health."

Vivica (taken for 2 to 5 years) August 30, 2017

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For Bipolar Disorder: "Trileptal 600mg TID Numerous others Trileptal seems to be the topic at hand. I was on Trileptal years ago and then went off my meds altogether for a few years. Upon restarting my psych meds my prescribers tried me on several meds all the while I kept mentioning that trileptal had helped me immensely in the past. Finally, out of frustration if I had to guess, I was put back on Trileptal. The climb back up the ladder to find my dose has been long and unpleasant, but I have found a place finally where my thoughts have slowed enough to think straight, and my manic highs have been brought down to a more manageable base level."

   
10

Jake Maly (taken for 10 years or more) August 9, 2017

7 users found this comment helpful.

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For Bipolar Disorder: "I have been on it for almost a year been on a roller coaster of meds trying to find everything I need for my multi problems lol. So for the first time I'm on this for my bipolar mood swing stabilizer and other meds that fit me quite well. I have found someone that will really listen to how I feel without being afraid I'll be locked up with my mouth and impulse to want to punch anyone that just looked at me. I'm on generic for xanax how ever its spelt, trazadone for sleep 150mg it finaly works after I cut off dark soda's, zolaf 50mg helps depression, OCD tramatic all helps tons with that lil pill, and aderall for my ADHD. I love my doc she is the best at listening and tries her best to truely understand me. ~Still Working on myself<3"

   
10

DollieDork (taken for 1 to 2 years) July 3, 2017

7 users found this comment helpful.

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For Trigeminal Neuralgia: "Anyone have a lot of sneezing and itchy while on trileptal"

Anonymous (taken for less than 1 month) July 2, 2017

3 users found this comment helpful.

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For Neuropathic Pain: "I have a problem with neuropathic pain due to nerve scarring at L5S1. I take Tramadol as the primary pain reliever but I have also been using Oxcarbazepine. It seems to have more of a long term impact on reducing pain for me. In other words I have to take it for about a week to see an improvement and if I stop taking it the pain takes about a week to return. I take 2-150mg tablets. I have observed no side effects. I have been taking these drugs for some 15 years. I always have some level of pain but these 2 drugs have made it possible to have a mostly normal life not otherwise possible."

   
8.0

mrsciatic July 1, 2017

2 users found this comment helpful.

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For Seizures: "The biggest problem for me with this medicine is bad taste and lack of appetite . Everything smells horrible and I am loosing weight like crazy. Anybody else has similar experience?"

   
4.0

Shawn Hassan June 25, 2017

2 users found this comment helpful.

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Trileptal (oxcarbazepine) for Seizures: "My daughter is 5 years old and has been healthy, and has been developing at a normal rate. I heard a loud thud. I found my daughter on the floor. There was vomit on the bed and my daughter was on the floor. It lasted 15 minutes. It was so scary. She was jerking very violently, and her eyes were rolling in the back of his head. It was horrible. No one should have to see their child like that, my doctor is saying she's had seizures. She had an MRI ,an EEG,they did a spinal tap. After returning from the hospital, my daughter experienced vomiting, I could not bear to see my daughter going through this problem at the early age of her life. I read a lot of fake testimonies at blogs, facebook and website of people that was cured from seizure"

alfred marta June 14, 2017

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For Bipolar Disorder: "This was the first and only medication that I have used, and within 2 weeks, I noticed a difference in my manic side, and my depressive side is nil. My manic side is triggered by slow and inconsiderate drivers, which makes it easy for me to judge how well it works, and if I am missing a few doses. The only downside to it is a low libido. I I was taking 300 mg in the am and 600 mg in the pm, and I just tried to up it to 600 in am and pm. That made my libido almost nil, but it did stop the frustration with any drivers on the road. I think I will lower the meds back down to what they were, or try something else."

   
9.0

bi_polar2bear (taken for 2 to 5 years) June 1, 2017

9 users found this comment helpful.

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For Bipolar Disorder: "I take 300 mg a Day 150mg am + 150mg pm together with Halodol Vial once a month and Cogentol tab daily for the side effects of the Vial. I haven't suffered from a breakdown since I started taking the right dose 4 years ago. I only feel dizzy occasionally, and most of the time blurry vision. Other than that it seems working good with my case! Lately my Dr advised me to try Stimulant 400 cap twice a day to help me stay active while I'm at work."

   
8.0

Ho$$m June 1, 2017

3 users found this comment helpful.

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For Bipolar Disorder: "I have tried almost every medication on the market. I am on a cocktail. I take 1800 mg of oxycarzapine, 600 mg three times a day, 1200 mg of lithium, 1200 mg of topomax, and 180 mg of geodon and this last increase from 1200 to 1800, seems to have finally stabilized me."

   
10

Hlarkin May 23, 2017

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For Anxiety: "I told my doctor I have been allergic 2 like every single med I have ever been prescribed except benzos meds some sleeping meds. Lack of sleep can really imbalance the brain. Doctors have just thrown random diagnoses at me forever and I have almost died in the past from lots of them. My new doctor has tried me now on 2 antiseizure meds she says to fix anxiety - I had severe reactions to both. The first one, Lorazapam, I felt I was going to die of diarrhea (it's a bipolar med) and I swear I felt bipolar for the first time in my life from it. This new one Oxcarbazepine made me feel just NUTS immediately. I was doing great with the benzos and sleeping meds then popped an Oxcarbazepine and feel disoriented super depressed like my mind is scramble restless"

   
1.0

Casslove May 12, 2017

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For Bipolar Disorder: "Trileptal has been a life-saver so far in treating my Bipolar. I've been on the drug for a little over 10 weeks and I currently take 600mg/day split between morning and evening. For the first month I experienced extreme fatigue, dizziness and headaches. Currently, I only sometimes have blurry vision and I feel like my memory has gotten worse (but it was poor to begin with). I didn't feel like it was actually working until I got to my current dose about three weeks ago and now every week is better than the last in that I have fewer "bad" days. I've even started to have good days without being manic! I do have a problem with sodium levels that I only notice after exercise, but eating a pickle or two resolves that."

   
10

chrissssyyyy April 27, 2017

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For Bipolar Disorder: "I have been on Trileptal and just started taking it about a week ago and I have been in better moods from the time I wake up to the time I go to bed. I was on 75mg of lamictal for over 3yrs and it was working fine and then it stopped working. I have also been diagnosed with bipolar when I was young when they said that I had the beginning stage of it. I was just recently diagnosed with the highest stage of bipolar that you can go and my psychologist put me on this med. I am taking 600mg a day 300mg in the am and 300mg at night I am not drowsy or nothing just a little dizzy every now and then."

   
10

Deej1985 April 15, 2017

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For Anxiety: "My son's in his late teens and has anxiety and A.D.D. He had also gone through episodes of depression. Other prescription drugs left him zombie like. Oxcarbazepine has been a miracle drug for him. It took about 2 months to get to the right dosage. Please keep in mind everyone is different. He was only allowed to move dosage up once a week then every 3 days after a few weeks. Yes he felt tired for 1-2 months but after a few months he says it's life changing and we haven't seen him this happy in years. He's been taking it for almost a year now with no problems. He takes 200mg caffeine for his ADD and it calms him down so he's doing great in college."

   
10

happyme (taken for 6 months to 1 year) March 19, 2017

9 users found this comment helpful.

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For Bipolar Disorder: "Wasn't effective"

   
1.0

gtw2 March 8, 2017

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For Bipolar Disorder: "I'm on a cocktail of mood stabilizers and an antidepressant to treat the depressive phase of bipolar. Lately, I started getting dysphoric manic phases. If I take 150 mg once a day, I feel so much calmer, thoughts don't race, dysphoria disappears. I don't feel groggy or slow. I think I tried a higher dose & it didn't agree with me. I took it, then stopped it, and now on it again. I saved it for acute mania and it helped me come down when I was worried I could not. It worked right away. Calmed my agitation and did not cause a crash. Improved my sleep too. I'm also taking 150 mg of Lamictal, 80 mg of Latuda, and occasionally 1 mg of Xanax as needed."

   
9.0

Mia76 March 5, 2017

24 users found this comment helpful.

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For Anxiety: "My main issue was facing depression for years and took several antidepressants in the past. I don't have bipolar, but my psychiatrist decided to try a mood stabilizer for the first time since antidepressants weren't working and since I tried to commit suicide for the 2nd time a few months back. Trileptal has completely took away my depression. Even when I hit a bump in the road, I'm not even close to the person I was a few months ago. I'm able to work 6 days a week, have more energy, and my thoughts of suicide are no longer present. Having a BA in psychology I want to add that meds are not a "cure", but sometimes it is better than wanting to take your life and at least be an aid to help you get back on track."

   
10

Psych Undergrad (taken for 1 to 6 months) March 4, 2017

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For Bipolar Disorder: "Made me feel jumpy and made me feel worse"

   
1.0

Range Randy March 2, 2017

8 users found this comment helpful.

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For Bipolar Disorder: "Works pretty well for stabilizing moods, mostly manic. I take 300mg morning and 600mg at night. Have been taking for about three years. Dr will not let me take more than the 900mgs. Headaches for a week when starting and during increasing dose. It does mess with my memory. I can forget asking someone a question three times and sometimes have some trouble remembering words I'm trying to express."

   
7.0

BBP007 (taken for 2 to 5 years) February 20, 2017

18 users found this comment helpful.

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For Bipolar Disorder: "I am having problems urinating! I am experiencing confusion which is embarrassing as a teacher. Sometimes I feel my bottom lip tremble."

   
6.0

Anonymous (taken for less than 1 month) January 31, 2017

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