User Reviews for Oxcarbazepine to treat Seizures
Brand names: Trileptal, Oxtellar XR
Oxcarbazepine has an average rating of 7.6 out of 10 from a total of 31 reviews for the treatment of Seizures. 74% of reviewers reported a positive experience, while 13% reported a negative experience.
Reviews for Oxcarbazepine
Trileptal (oxcarbazepine) "I had my first seizure at the age of 20, I am healthy otherwise. I was diagnosed with a typeof seizure caused by a small Heterotopia and put on 600 mg of Trileptal twice daily. I was seizure free for 15 years until 3 days ago. The only side effect was weight gain. I see my neurologist tomorrow and am anticipating an increase in dose. I would highly recommend this medicine to anyone doing research."
Trileptal (oxcarbazepine) "My son of 7 has been on Trileptal for 2 weeks. Immediately the most evident side effect was solemness. A week into therapy he was playing outside and complained of dizziness, weakness and pain all over. Thanks to literature at Novartis site is very comprehensive so I found out about Hyponatremia (sodium level becoming very low). A few drops of concentrated table salt solution in both ears immediately took care of the problem. As for seizures, he hadn't had any. But then, we only found out about his rare nocturnal seizures by coincidence. He did have night terrors twice a month before. We haven't had any of those yet."
Trileptal (oxcarbazepine) "I started taking Trileptal when Tegretol stopped working for me. I love this medication. I developed epilepsy following a head injury (diving accident) when I was 8 years old. I've had seizures (daytime absence, daytime partial, nocturnal grand mal) since then. Tegretol worked for me for years, then stopped working. Trileptal has been my only seizure medication for the past 11 years and I couldn't be happier. I have to add salt to my diet, and I get very flush whenever I exert myself, but being completely seizure free is worth these small inconveniences."
Trileptal (oxcarbazepine) "THIS WAS THE MEDICATION I had epilepsy for 8 years mainly during puberty years. I was on trileptal once before the last time but due to the low dosage the medication was ineffective. I went to a new doctor and he placed me back on trileptal but increased the dosage of the pill and that was the beginning of being 4 years seizure free and then I was given the news after 5 years that I had officially outgrew my epilepsy."
Are you taking this medicine?
Trileptal (oxcarbazepine) "I have temporal lobe seizures. I have taken Trileptal for many years and it has helped controlled the seizures. However; I have been having issues with low sodium. The doctors blame it on the Trileptal. So to fix the problem, they suggest eating high sodium foods, fluid restriction, and no water. Water dilutes the sodium. They also suggested that I add about a teaspoon of salt to my meals. So what I do for thirst is drink Gatorade but only a few sips. But you got to becareful and not to drink more than a liter of fluid in a day as this is what is recommended by the doctor. My neurologist recommended that I drink gatorade. So most of the time I drink Gatorade when I eat my meals."
Trileptal (oxcarbazepine) "Due to possible heart failure about 15 years ago I started having partial seizures waking up in airplanes or hotels not knowing were I was for some time and than gradually became alert until I started with many severe seizures. I started with Tegretol and then switched with Trileptal that was very effective. Forgot to take it a few times and had seizures until I became very conscious of the need and since then I am quite well. I need to stay far from confrontations and conflicts. I currently take 1,500 MG daily (600 morning, 300 dinner 600 @ sleep). My sodium level suffered a lot but I am good on it now. The way to balance it is with coconut water, sports drink and adding a bit more on home cooking. It is a super medicine. I miss my red wine!"
Trileptal (oxcarbazepine) "My son has been taking this medication for about 2 months now. Before he got on the medicine he was really mean and talked back. I found that he was not happy, crying all the time for now reason at all. He would have a seizure and about 10 times a day. It got where it was really hard. I finally got him to see a great doctor. She put him on this medicine and there hasn't been a seizure yet and he is playing laughing and having fun again. I really thank who ever came out with this medicine."
Trileptal (oxcarbazepine) "I have taken the drug for about 6 years with positive results for seizures. The seizures have subsided to about 1-2 partial complex seizures per month. I do go through periods of depression, especially when the prescibed amount is changed. I'm currently taking 1200 mg in the AM and 1500 mg PM. It's probably the best seizure medication I've taken to date, and I've been on almost all of them at some point in my life over the past 30 years or so."
Trileptal (oxcarbazepine) "I'm 33 year old female and was diagnosed with seizures at 31. They came out of no where. Had MRI and a eeg no signs of anything they were normal. With not be able to find what type of seizures they are its hard to find help from anywhere. I tried this medication trileptal and it is a nitemare for me. I started with 2 tablets a day along with keppra that I was already on. They may not work well together. But I've been in trileptal for 1 month now and since the seizures has picked up which I didn't like that at all. I called the doctor which is surpose to be a seizure specialist and she said to up the medication And that's when I noticed they were coming more than they normally do and I noticed up set stomach. No success with it at all!"
Trileptal (oxcarbazepine) "I was having seizures off and on for almost 4 yrs. Diagnosing this was difficult because I could never had a witness or could describe the symptoms. I was averaging 1 per month then I got worse. I had 4 in two weeks but all of them had witnesses. I called my doctor and he ran heart tests and an MRI on my head. That's when he said I had Partial Epilepsy and gave me the Trileptal. I've been taking it for 6 weeks and haven't had any problems since then. I like this pill very much and the best part is its only $4 a month."
Trileptal (oxcarbazepine) "I have been taking Trileptal for almost 1 month now and its such a life saver. I have been suffering from partial epilepsy for more then a year since I have been going to the hospital for almost 5/6 months and they could not discover what the problem was so I had to see a private doctor who diagnosed me with partial epilepsy and put me on Trileptal. As soon as I took these tablets it reduced the attacks to 1 every two days and after a month it completely got rid of it, so I am really happy with these. However, I do feel slightly drowsy after taking them but that does not matter since its taken all the seizures away which was my main concern since life just felt like hell prior to these. So I would definitely recommend it."
"I have been taking trileptal off and on for 13 years. I tried keppra for a short time but I developed anxiety at night. Switched back to trileptal I've gone from 3 or 4 seizures a month to seizure free. I don't really experience to many side effects just a bit more sleepy during the day."
"My 13 yr old son was recently diagnosed with Epilepsy. He has rare Gelastic Seizures. He was having 8-10 seizures every night. Doctors put him on 750mg 2x a day, along with 1750mg 2x a day Keppra. He began the meds in May. By August, he was seizure free. He complained of dizziness and tiredness at first. After about 3 weeks, he seemed to snap out of it. Please give the medication time to work. It can work wonders if given a chance. Everyone is different though, good luck!"
Trileptal (oxcarbazepine) "Been taking Trileptal for about a year. Mostly because every 5 to 6 years have to change my medicine because I tend to get immune to them. Have taken Sodium Valproate, Tegretol and Carbamazepine over the last 30 years. With Oxcarb seizures are controlled but not totally gone. Also, am putting on extraordinary amount of weight, looking for other options for what is becoming an obesity problem."
"I did not believe I had bipolar disorder and suffered greatly over the course of a few years. Finally the disease took its toll and I had to accept the facts. The Trileptal is has been such a relief! The doc wants me to keep increasing the dose to 1200 mgs a day but it is effective for me at a lower dose. Good Luck."
"I have to take 1800mg of Trileptal a day for Focal Epilepsy and it works well for that, considering I take 800mg of Vimpat a day for a secondary epilepsy therapy as well. Trileptal though, just like its sister drug Tegretol. I could swear it gives me some kind of Bipolar disorder as a side effect combined with some kind of ADHD. Thank goodness Trileptal is helping people though. Good luck out there."
Trileptal (oxcarbazepine) "I have spacial seizures. I take 1200 mg per day. It has been 100% effective for the last two years. I had about six months of problems after I began taking Lipitor, but none since I was taken off the Lipitor. I'm a 67 year old male who has had seizures for over 30 years. It has been as effective as Tegretol was until it stopped working after 14 years. I had a short bout with low sodium after open heart surgery."
Trileptal (oxcarbazepine) "Although this medication did decrease my daughters absence seizures, if she took this at any time 30 min before or after eating, she had a severe reaction. Her throat would burn inside and out, her face would flush, she would get dizzy and unable to focus. This would last about 5-10 min. and then she would get so tired, she would instantly fall asleep and sleep for hours. She was at a pretty high dose during this time 1050mg 2x daily. We finally stopped this medication, because of the stress of having to watch so closely when she ate and when she could take this medication."
Trileptal (oxcarbazepine) "My daughter has been on Trileptal for 2yrs. now and she did have a small seizure during the first 4 months but after increasing the dose to 5ml twice a day she has had nothing but a few migraines since. In another month or two we are planning on slowly taking her off. So I will find out soon exactly how well it has been working."
Trileptal (oxcarbazepine) "My daughter is 5 years old and has been healthy, and has been developing at a normal rate. I heard a loud thud. I found my daughter on the floor. There was vomit on the bed and my daughter was on the floor. It lasted 15 minutes. It was so scary. She was jerking very violently, and her eyes were rolling in the back of his head. It was horrible. No one should have to see their child like that, my doctor is saying she's had seizures. She had an MRI ,an EEG,they did a spinal tap. After returning from the hospital, my daughter experienced vomiting, I could not bear to see my daughter going through this problem at the early age of her life. I read a lot of fake testimonies at blogs, facebook and website of people that was cured from seizure"
"Been taking trileptal to control seizures for about 8 months. Have seizures as a result of a low grade, inoperable brain tumor in left temporal lobe. Seizures only last about 2 minutes. Tried Keppra ( did not completely control them, higher does left me in a constant fog and suffering suicidal ideation), Lamictal - developed horrible rash during titration and now Trileptal. Seizures have been controlled, so far, on 750mg AM and PM. I do feel somewhat tired until I get used to the dose and then the doc increase it again. He wants to get to 900 mg AM and PM. I am troubled by the weight gain - a lot! I do use more salt in my meals ( never did before, had to buy a salt shaker!) and drink a sports drink - low cal - each day. I miss my wine."
"I've been on several different types of seizure medications for the past 18 years when I developed the seizure disorder (due to car accident). This is by far the best medication I have taken. I'm not as tired, depressed or lethargic as I was on the previous medications."
"17mo old w/ presumed localization related focal partial complex & secondary generalized tonic clonic seizures replaced Keppra w/ Trileptal. Seizure characteristics changed/worsened, frequency & duration increased from every 4-10wks to weekly & from ~10min to ~15-45min w/ severe respiratory distress leading to numerous ambulance transports & hospitalizations. Though not ill, chronic respiratory distress developed such that O2 supplementation was required at 0.5lpm awake & 1.5-2lpm asleep. After >2mo of regular dosage increases following seizures, she was admitted to prolonged Video EEG following transport. Trileptal was weaned & in 3 days no O2 was needed, nothing was captured in 5 days & she remains Trileptal/seizure/O2 free weeks later."
Trileptal (oxcarbazepine) "My 13yo son developed unexplained symptoms which started as hypersalivation 2 years ago, that progressed to frequent daily choking and vomiting. We saw all the specialists and I work in oral surgery. His symptoms got worse and worse and he was being described as a "medical mystery". A few months ago we went on a ski trip and he was suffering from severe altitude sickness and dehydration. On our last day he had his first seizure. We chalked it up as a fluke. A month later, he woke us up to another seizure. He immediately started on Trileptal, working up to 300mg 2x a day. And within a few weeks his symptoms dramatically improved. He still has mild hypersalivation. So we upped his dose to 450mg 2x a day and his symptoms have completely subsided. A lifesaver for a middle schooler, not just quality of life, but we were fearing he could choke to death."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
Learn more about Seizures
- Epilepsy and Pregnancy
- Epilepsy in Children
- Febrile Seizure in Children
- Generalized Tonic Clonic Seizures
- Generalized Tonic Clonic Seizures in Children
- New Onset Absence Seizures in Adults
Medicine.com guides (external)
More about oxcarbazepine
- Check interactions
- Compare alternatives
- Pricing & coupons
- Reviews (346)
- Drug images
- Side effects
- Dosage information
- Patient tips
- During pregnancy
- Support group
- Drug class: dibenzazepine anticonvulsants
- En español
- Drug Information
- Oxcarbazepine Extended-Release Tablets
- Oxcarbazepine Tablets
- Oxcarbazepine Oral Suspension
Trileptal (oxcarbazepine) "I have been on Trileptal for about a month now. I'm taking 300 mg twice a day. I had an abnormal EEG and diagnosed with right-sided temporal lobe epilepsy. I started having pain 5 yrs ago -intense, daily pain in my right eye and eventually extended further up on the right side of my head (which is related to the epilepsy). I was also suffering from repeated inappropriate thoughts (of sexual nature) very disturbing and disrupted my life. I have since found out that OCD behavior very frequently accompanies temporal lobe epilepsy. Trileptal has stopped the partial sz and inappropriate thoughts. Indocin 25 mg is controlling the pain. Hope this helps others."