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User Reviews for Carbamazepine

Also known as: Carbatrol, Epitol, Equetro, Tegretol, Tegretol XR

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Carbamazepine.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Schizoaffective Disorder 1 reviews 28 medications
   
9.0
Bipolar Disorder 72 reviews 33 medications
   
7.3
Trigeminal Neuralgia 57 reviews 9 medications
   
7.2
Epilepsy 55 reviews 39 medications
   
7.1
Peripheral Neuropathy 7 reviews 6 medications
   
7.1
Cluster-Tic Syndrome 1 reviews 0 medications
   
7.0
Dystonia 3 reviews 4 medications
   
6.0
Summary of Carbamazepine reviews 196 reviews 7.3

Reviews for Carbamazepine

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For Epilepsy: "Temporal lobe w/ Mesial temporal sclerosis. Using 8 weeks. Sometimes headaches or dizzy, frequent minor muscle tremors and twitching, shortened menstrual cycle, sensitive mood. Always tired and not very productive, sleep more. Went from monthly 2-5 day blackout seizure binge with 2-5 day recovery, so far only 1 minor convulsion while conscious with mostly full recovery by morning. Major improvement."

   
9.0

Angel in Dallas (taken for 1 to 6 months) July 26, 2016

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Tegretol (carbamazepine) for Epilepsy: "The XR seams better than the traditional form used in the 80s that resulted in sodium depletion. This form causes twitching, sporadic and rapidly occurring tremors that make sleeping difficult, increased urination frequency, some minor dizziness at first, and possibly elevated skin sensitivity to sunlight."

   
6.0

stex (taken for less than 1 month) July 17, 2016

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Tegretol (carbamazepine) for Trigeminal Neuralgia: "Diagnosed with atypical TN after lower orthognathic surgery 20 months ago. Now on 1000mg Gapapentin 3x a day plus prolonged release Carbamazapine 400mg at night. Did start 100mg Carbamazapine in the morning but had problems with vision and balance so decided against it. Drugs working ok. Wish there was a solution to my problem :-( Now just been told by my doc that my white blood count down possibly due to the Carbamazapine so may have to come off it."

   
8.0

BevMac (taken for 6 months to 1 year) June 20, 2016

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Tegretol (carbamazepine) for Trigeminal Neuralgia: "I started taking Tegretol for TN and it did greatly improve my ability to function. Pain was much duller during episodes and had stopped being totally debilitating. 6-7 weeks after use I began to be so lethargic I couldn't get out of bed and was relying so much more on my husband to see to our toddler son. It was very worrying. I then developed severely enlarged glands under my chin, lumps on my neck and started to feel generally unwell. I then had a full blood count done and it returned a very low white blood and abnormal looking cells also. Enlarged spleen also occurred. Now being referred to haematology and had to be taken off Tegretol as they believe I am taking quite a severe reaction to it."

   
5.0

AnnieMoooo June 20, 2016

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For Bipolar Disorder: "I have tried so many medications for my illnesses but nothing worked until I was put on carbamazepine, it worked wonders. It took a little while to get use to. I was really dizzy for awhile but once I adjusted to it i feel great. Best i ever tried"

   
10

frogirl1993 (taken for 6 months to 1 year) June 19, 2016

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For Trigeminal Neuralgia: "I've been taking Tegretol for over a month now, right after my TN diagnosis. It took a couple of days to fully work. Every since then the pain went completely away. Side effects for me are feeling sleepy and dizzy all the time."

   
10

Tpmss (taken for 1 to 6 months) May 26, 2016

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Tegretol (carbamazepine) for Bipolar Disorder: "This was the best medication I have ever had. I take 2 at night and 1 in the morning. I only trouble I have had was at one time the Doctor tried to up me to 2 night and 2 in the morning and it caused terrible vertigo like feeling. I couldn't even stand up. Overal I would say it's a great medication."

   
10

Emankcin May 24, 2016

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For Dystonia: "Doesn't totally cut my Paroxysmal Dystonia, but drops it from a 7/10 to a 3/10. If i increase the dose (800mg XR daily) the side effects are too hard to handle. Generally leaves me feeling a little sluggish/slow, and have found it difficult to lose weight on Tegretol."

   
8.0

rie__ May 16, 2016

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Tegretol XR (carbamazepine) for Epilepsy: "The neurologist that I go to see for my epilepsy seizures he wanted to prescribe me a new medication. He then asked me the patient would I mind taking a new medication "Tegretol", I asked him what he thought I and he claimed he did not know. The doctor prescribed me the Tegretol medication, I had been taken it for less than two months and was diagnosed with an Allergic reaction, Swollen Throat, Facial edema and itchy skin."

   
1.0

ATLGA2016 (taken for less than 1 month) May 6, 2016

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For Trigeminal Neuralgia: "I have only had two doses so far 100mg/2x a day. Pharmacist said it could take 5-7 days to feel the full effects as it has to build up and that I could still take Motrin or Vicodin (neither of which really put a dent in the pain) until it starts to work. So far I've had probably 9 or 10 "episodes" of pain and instead of what I can only compare to contractions (I've had 3 natural childbirths), the pain is now about a 6/10 vice 10/10. I am so happy about this, I developed TN 6 months ago and thought like others it was in my teeth or gums; I now know it was due to a sinus surgery...the pain has gone from mild, one episode a day to intense, excruciating, balled up on the couch crying every hour bad. I hope this medicine works."

   
5.0

Chigirl000 (taken for less than 1 month) April 26, 2016

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For Bipolar Disorder: "I do feel that this medication works, regular blood work to check levels in the blood are crucial. I have been diagnosed with bipolar disorder for 16 years and have been on this medication since the year 2000. It worked better back then, I do have an appointment with a psychiatrist to go over the mediaction as I do not feel that it is working as good as it used to. Perhaps my body has become immune to it."

   
6.0

Mo1968 April 25, 2016

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Tegretol (carbamazepine) for Trigeminal Neuralgia: "I've been on Tegretol for 4 days. It has taken me from excruciating pain to dull soreness. It's a wonder drug. I'm sleepy but almost pain free. I'm lucky that I was diagnosed after only six weeks. I'm praying it lasts!"

   
10

Monistar (taken for less than 1 month) April 24, 2016

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Tegretol (carbamazepine) for Trigeminal Neuralgia: "First time when I took Tegretol, it worked immediately and the pain went away. The pain comes and go every year and the most importantly the pain was not bad last 4 years that I did not even take Tegretol. This time the pain is unbearable so I'm on Tegretol. Even with the medication still feel the shock once in awhile. Definately feels better with Tegretol. The side effects, for me, sleepiness, weight gain, excitement with no reason."

   
9.0

TN community April 23, 2016

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Tegretol (carbamazepine) for Epilepsy: "I also suffer from bipolar 1 disorder and chronic pain. The drug so far has made me eerily calm and it's almost like I'm high all the time. So far so good... It has calmed my mania down since I am rapid cycling. Also my short term memory hard been affected. I am a Veteran as well."

   
9.0

Gunz (taken for less than 1 month) April 21, 2016

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Tegretol (carbamazepine) for Bipolar Disorder: "This drug killed my thyroid. You should also be screened heavily for certain blood illnesses before taking and monitor your liver and kidneys. A VERY poisonous drug."

   
1.0

Mrosa41 (taken for 2 to 5 years) April 18, 2016

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For Trigeminal Neuralgia: "I have been given tegretol to take for TN, then had decompression surgery. This relieved pain for 7yrs. A surgeon told me it need to saturate my system first and then begin script of 200mg x 3 per day. This means I needed to take 2 tablets together. This takes the pain away. I ensured I lay low for a few hours as this made me sleep. I am now on 400x3 times each day and all is good."

   
10

Shelby8 April 8, 2016

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Tegretol (carbamazepine) for Trigeminal Neuralgia: "Excruciating pain in ear since June .Been on tegretol since. From 600mg to 1200 Then surgery. Still having pain. Still on 900mg"

   
4.0

JJJOO April 7, 2016

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For Trigeminal Neuralgia: "Dear God never experienced such pain like it (not even childbirth) - started with twitching to lower face 5 days ago and then bouts of explosive pain to left cheek, jaw, upper and lower teeth. Pain coming every half hour and lasting between 7-10mins each - cant do anything other than wait for it to pass (and cry at times)! Started carbamazepine yesterday am twice daily and pain lessened already but feel very sleepy and bit nauseous / "loose" - still feel the underlying pain there but so much better. Emergency dental appointment today with xrays - no dental cause. Have had tinnitus in left ear for past 8-9 months after heavy cold plus some cervical disc bulging and nerve root impingement at C7. Anyone else been given a cause for this??"

   
8.0

debbiecart April 7, 2016

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Tegretol (carbamazepine) for Trigeminal Neuralgia: "Diagnosed with TN (glad to learn about it and find out I'm not dying of a brain tumor or something) - the pain is horrific. I've been on the generic form of Tegretol (Carbamazepine) 100 mg 3x per day for 3 weeks. I still have episodes of pain a couple times a day, but at least I can walk around, talk and eat without the excruciating pain I had been experiencing. Only downside is I feel like a zombie - tired, and "out of it" - but like others have said - I'd take that any day over the near constant pain I was having."

   
8.0

Rainy049 April 6, 2016

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Tegretol (carbamazepine) for Bipolar Disorder: "I was depressed and in bed for 4 years until I was diagnosed with bi polar. I am now 2 months with Tegretol, out of bed and am enjoying life like never before. It has been a miracle for me."

   
10

sunny_surfer (taken for 1 to 6 months) March 30, 2016

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Tegretol XR (carbamazepine) for Bipolar Disorder: "To be honest I am not a fan of anticonvulsants. They have the craziest side effects and everytime I've taken them I instantly feel like I consumed alcohol. I've taken Lyrica, Gabapentin, and now Tegretol XR. I stopped this medication at my own disclosure because I was terrified once I read that this medication is known for "drug-induced liver failure". Not to mention it interacts with almost every other drug I take. That is not something I want to risk and am very upset that my doc didn't disclose this to me. He didn't even run a blood test to check my liver enzyme level prior to starting treatment so thats a whole other conversation but the point is I do not like this drug and would advise everyone to avoid it if you can."

   
1.0

Lcowan7 (taken for less than 1 month) March 25, 2016

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Tegretol (carbamazepine) for Bipolar Disorder: "I have been using tegretol for 6 months , 200 mg a day two times. Before this I started with abylify and it did not help me. I feel much more normal than before and I don't feel like I am going up or down anymore. But I think one of the most important thing is also not using alcohol and sleeping 8 hours a day."

   
9.0

Ezgi (taken for 6 months to 1 year) March 22, 2016

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Tegretol (carbamazepine) for Bipolar Disorder: "it helped with the mania , but i was always drowsy and could not concentrate , also i gained weight...."

   
4.0

saba44 (taken for 1 to 6 months) March 14, 2016

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For Trigeminal Neuralgia: "Hi, I'm hoping someone may have taken Tegritol and had a similar experience. Okay, so approx. 2 1/2 weeks ago I rushed to the dentist because I thought my lower K-9 tooth (I guess that's what you'd call it) on the right side was rotting. I was hurting extremely bad. Woke me up all through the night. They did X-Ray and said "your teeth are perfect". I had X-Ray done of my neck due to prior experience w/ rupture. I knew it had to be a disc slip or rupture in my neck and a nerve was very irritated & for some reason hurting what by now was all my teeth on the right side & random stabbing in right ear. I was diagnosed w/ this Trigeminal Neuralgia. 200mg Tegrital 3x a day. Been on 5 days...no relief. Is this typical. I need this med to work!!"

   
1.0

Loveinfinity8 (taken for less than 1 month) March 12, 2016

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For Peripheral Neuropathy: "I had shingles 10 years ago in my mouth and it developed into Trigiminal Neuropathy on th eleft side of my head. ! year ago, I started with a terrible burning,electrical shok like feeling on my left foot. My toes burn terrible, My right foot feels as if it is wrapped in Plastic wrap all of the time up to my calf. My left foot feel s the same but with my toes burning. I have been taking Cymbalta,60 mgs per da(20 mgs 3 times a day) I have also been on Tegretol (800mgs per day) for 2 years. I finally had very little pain in my feet so I dropped from the 800 mgs a day of Tegretol to 600 mgs last Monday. I thought I was taking the Tegretol for my mouth burning constantly from the Trigiminal Neuralgia and Migraines and thought I'd give it a try to drop down to the 600 mgs to see if it made any difference. Since last MOnday, my right toes are burning constantly again, and I've had migraines caused from the Trigiminal Neuralgia. I am DEFINITELY CONVINCED Tegretol along with Cymbalta have been my saving grace from pain. The two, together are almost stopping my pain completely in my head AND MY FEET. It's amazing the difference and only since last MOnday. If you can take Tegretol AND Cymbalta together I suggest doing it. Both are great medicines."

   
9.0

Schmiliz February 29, 2016

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