Tegretol User Reviews & Ratings
Tegretol has an average rating of 6.8 out of 10 from a total of 78 reviews on Drugs.com. 59% of reviewers reported a positive experience, while 22% reported a negative experience.
|Trigeminal Neuralgia||42 reviews for Trigeminal Neuralgia||4 medications|
|Epilepsy||34 reviews for Epilepsy||57 medications|
|Schizoaffective Disorder||2 reviews for Schizoaffective Disorder||22 medications|
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Reviews for Tegretol
- Taken for 1 to 6 months
- May 18, 2014
For Bipolar Disorder "This medication is saving my life! It really stabilizes my mood. Before I started taking carbamazepine I would experience horribly crippling depression in the afternoons combined with very strong urges to self medicate with alcohol or narcotics. Now I feel about the same all day, never really up and never really down. I have no conflicts taking it with Suboxone. I have only noticed two side effects: nausea, taking it with food fixes that, and increased sleep. I sleep longer than I did before and wake up feeling tired. Actually it helps me to sleep through the night, which isn't all bad. After I get up, take my other medicines, and have some coffee I am ready to face the day. Note: I was previously misdiagnosed with major depression."
- October 15, 2014
For Trigeminal Neuralgia "When I was first diagnosed, I thought I was dying. I take this (200 mg) - 3 times a day with another medicine. I have been pain free for 7 months. I stay drowsy and stagger at times but I can deal with that as long as the medicines continue to help me."
- Taken for 1 to 6 months
- May 18, 2019
For Trigeminal Neuralgia "I think Tegretol (Carbamazepine) is a wonder drug for trigeminal neuralgia (TN or TGN) pain. That being said, the side effects are horrible. I was doing well on it-- but suddenly, the spaciness has returned with memory loss, intense lassitude, drowiness, weight gain, constipation; I am going to have to reduce dose. Not sure whether to notify doctor(s) first, or not (as I plan to do it, anyway! as I simply cannot function.) I guess I will leave them a message with office staff; it's impossible to get a doctor to call back. I plan to reduce it by 100 mg slowly the same way I started which was to slowly increase the dose. However, I will only reduce it by 100 mg., until I can see doctor. Wish me luck!"
Frequently asked questions
- December 19, 2013
For Bipolar Disorder "I have been on this medicine since late September of this year (2013). I was on Abilify since I was 7 years old. I am now 21. I have gone from being a stick figure to a 254 pound blowfish and I'm 5.9". Since being on Tegretol. I have lost over 20 pounds and am eating less and am more on average scale of what a human being should be consuming on a daily basis. I love this medicine. It helps me think clearly meaning I am much more calm and stabilized with my bi-polar. The ONLY complaint I have is I am constantly having heat-flashes. I am male by the way. I have asked many different psychiatrists, pharmacy, and my PCP about it. None have ever found that to be part of the side effects. I rather deal with this then major weight gain from Abilify."
- Taken for less than 1 month
- April 24, 2016
For Trigeminal Neuralgia "I've been on Tegretol for 4 days. It has taken me from excruciating pain to dull soreness. It's a wonder drug. I'm sleepy but almost pain free. I'm lucky that I was diagnosed after only six weeks. I'm praying it lasts!"
Are you taking this medicine?
- March 27, 2013
For Trigeminal Neuralgia "I was initially put on Tegretol only to have it stop working after about 3 weeks. Dr. added Neurontin and eventually had surgery to remove the blood vessel and wrap the nerve. Best of luck to anyone with this terrible condition."
- Taken for less than 1 month
- September 7, 2012
For Bipolar Disorder "I found Tegretol amazing. It made me so calm and stable even after a few days, the only issue with it is it makes me very drowsy and a little disorientated. That's the one side effect I've noticed. So if you drive a lot or operate heavy machinery or are a surgeon this is not the medication for you. Otherwise it is a great mood stabilizer."
- October 12, 2011
For Bipolar Disorder "I had a horrible experience after being prescribed Tegretol while in the hospital to treat my bipolar disorder. Within a few days of starting it, I began experiencing the shaking, nausea, etc. but the worst was the extreme anger/irritability I started experiencing. It got to the point that I would have horrible rages and felt like I was completely losing control. I kept asking my doctor to take me off the Tegretol, but he wouldn't. During one of these rages, I ended up fracturing my wrist because I hit a door so hard. After that, he agreed to take me off of it. After talking to other patients, I found out that a lot of them had similar experiences with this uncontrollable anger. "
- Taken for 2 to 5 years
- February 9, 2015
For Bipolar Disorder "Well im very impressed and happy others have Tegretol works, i am adhd and bipolar yup try that on for size its insane. I use to be an extremist of note but tegretol has controlled this and what i like most its not like the other medications it does not put you on just another high or a buzz, you don't realize what it does but the people around you do. It slows you down to a more controlled state and keeps the depression down. For me combine tegretol with healthy eating no dow etc rice starch, lots of water and gym and youll be sorted no doubt.But always remember like any normal being there are ups and downs and if you realize life is not always peaches and cream, and that you will experience down time, accept and just let it pass."
- April 2, 2009
For Bipolar Disorder "I have been using Tegretol for 6 months for BiPolar and I have felt happier consistently for the first time in my life. I have tried many others over 15 years and Tegretol has changed my life. I have had no side effects! Go Tegretol!"
- July 17, 2009
For Trigeminal Neuralgia "I started Tegretol a week ago for Trigeminal Neuralgia. I was having more and more episodes of TN, and was miserable. Since starting the medicine, I have only had one brief episode of pain. I have had terrible itching since I started taking it. I saw a different Doctor today about the itching, and he said the dose was too high. Hopefully the 100 mg twice a day will relieve the TN pain and not cause itching. I am happy to try the Tegretol, because TN pain is unbearable. Worse than any pain I've ever had (including labor, c-section pain, and oral surgery pain."
- May 14, 2011
For Trigeminal Neuralgia "I've been using CARBAMAZEPINE 200mg twice a day for about two years. It does a good job in limiting the amount of pain I have with Trigeminal Neuralgia. I found it best to take the medication regularly. If I skip days when I am not having problems the pain will be right back and it will take several days to get it back under control. I've tried GABAPENTIN 300mg and OXCARBAZEPINE 150mg but they did not help. The CARBAMAZEPINE makes me tired and sleepy but that is a lot better than the pain."
- August 27, 2009
For Trigeminal Neuralgia "I have been suffering from Trigeminal Neuralgia for almost 8 years thinking that I was having tooth problems. Since my symptoms would come and go, I never did any further research and accepted my dentist's explanation that it was just sensitive teeth. This time, I couldn't accept that and decided to research further. Thank goodness I did and thank goodness for Tegretol! After being on it for only 2 days I am experiencing almost total relief! TN was the most painful experience of my life. The only down side to the medicine so far has been some light-headedness, which I am hoping will diminish or go away completely."
- January 26, 2014
For Bipolar Disorder "Thought I would share my experiences on "Tegretol" too. I have been on Tegretol for 3 days now and can tell a HUUUGE difference! I have not been given the "full blown" Bipolar diagnose yet, I think this will need some more in depth conversations with my psychiatrist. Well yes I was given Tegretol as a mood stabilizer on Wednesday. I took the first 100mg before I went to sleep. The next morning I didn't really feel any different, it was maybe in the evening or the afternoon that I noticed an improvement. I was a lot calmer, my thoughts were gathered, this has been the case until this day. I will ask my psychiatrist to up the dosage of Tegretol but it's early days yet. All in all I love this medication."
- May 31, 2011
For Trigeminal Neuralgia "I was put on Tegretol 2 weeks ago, and boy or boy the build up felt like forever but now that it is at 800mgs, I am feeling so much better. I believe I will be going up yet again this week another 200mg and then again if need be, before Doctor tapers me down where it is maintainable. I am still having just a bit of breakthrough pain a few times a day, which is nothing compared to where I was 2 weeks ago. I would gladly take the tired, stumbles and slurs over where I had been. This medicine works, and works well! I pray it doesn't stop working for me, ever!"
- March 10, 2015
For Bipolar Disorder "I tried Lithium, Depakote, and Lamotrigine. I had horrible side effects with all three. But Carbamazepine is a miracle drug, as far as I'm concerned. It started working within just a few days and I only had to take 300 mg a day, in 100mg doses. My doctor and I found I had to have 400 mg a day if I took it twice a day, but spread out in 3 doses 300 mg worked. I always prefer to take the minimum useful dose of drugs if possible. Side effects: 1) teeth, especially at the gums, seem to be in worse shape on it, 2) I have to drink quite a lot of water, or I start to lose some cognitive function, 3) at a higher dose, I seemed to develop empathy deficits as if I had Asperger's or something."
- Taken for less than 1 month
- March 7, 2014
For Bipolar Disorder "I only took this 1 1/2 days because I had a severe bad reaction physically, but the second evening I was on it I felt so calm, peaceful, and happy, that I didn't even want to fall asleep knowing it would be gone in the morning. I would've given it a 10 if not the physical reaction. I really recommend trying this mood stabilizer for anyone with bipolar and it works in just a couple of days. I was just an unlucky one, again."
- August 15, 2015
For Trigeminal Neuralgia "I have been on Tegretol for about 7 years which has been good with manageable attacks I between, it took 2 years before I was diagnosed in which time I had the fillings on the right side of my face replaced 3 times looking for the cause! I have now been in an attack for the last 3 an half weeks and at last have some relief , am now having double my dose 800mgs but still have a slight electric shock feeling and my top and bottom jaw ache slightly, I am getting a referral at a London hospital to check my teeth , just to make sure they are ok, but it is just like when I was first diagnosed. Wind or air con are worst for me. This is an awful illness, and do hope you to will get the help that you need,"
- Taken for 1 to 2 years
- August 5, 2019
For Trigeminal Neuralgia "After 5 long years of incorrect diagnosis, unnecessary dental and ear surgeries, I was finally diagnosed with Trigeminal Neuralgia (TN) about 12 months ago and put on 3 x 200mg of Tegretol daily. I have had horrific side effects with serious changes to my menstrual cycle (8 week non stop bleeding) but it is still better than living with the TN episodes that I would have almost daily. I have recently been having milder episodes and may have to try something else."
- Taken for 1 to 6 months
- January 22, 2013
For Bipolar Disorder "Loved Tegretol, kept my moods stable, worked well, felt calm and happy and in control for the first time in years, Until a Dr decided it was ok to mix this with antibiotics along with the pill, and sinus medication, I suffered from TENS, after being told 3 times it couldn't be that I was so suck ended up in hospital for 2 months. Now I remain untreated due to fear, however, what works or some doesn't work for others. This worked for me until my body decided I was allergic to it and everything else. Please be mindful of what you take any medication with!"
- February 18, 2008
For Bipolar Disorder "my son age 5 has used tegretol for the past 6 months for bipolar disorder - it has shown a great improvement in his mood changes and has allowed others to accept him more. if the tegretol is not given we notice a huge mood swing and rage and depression becomes more apparent."
- TN co...
- April 23, 2016
For Trigeminal Neuralgia "First time when I took Tegretol, it worked immediately and the pain went away. The pain comes and go every year and the most importantly the pain was not bad last 4 years that I did not even take Tegretol. This time the pain is unbearable so I'm on Tegretol. Even with the medication still feel the shock once in awhile. Definately feels better with Tegretol. The side effects, for me, sleepiness, weight gain, excitement with no reason."
- AB 103
- December 8, 2009
For Trigeminal Neuralgia "I was having severe attacks several times a day and within two days on tegretol they stopped. I still get very minor twinges at times from trigger areas. It has been two weeks plus now and I can still recall beginning to brush my teeth and ending up on the floor, so I would be happy if I retain this level of control forever."
- Taken for 10 years or more
- October 23, 2015
For Bipolar Disorder "I have been on Tegretol for 15 years and it definitely controls the hypomania and rapid cycling, though not the depression so well. It sort of leaves you feeling flat, but I had tried lithium, Depakote, and a few of the atypical antipsychotics and they were too heavy duty or left me with extreme weight gain. When I went on Tegretol I have 50 pounds of extra weight from Depakote....it came off within 4 months. I am not thin now, as I have gotten older, but I suppose it is still the drug for me. At this stage of the game I don't feel like trying other meds as I have to work and function. I also take a small dose of Lamictal too."
- Taken for less than 1 month
- September 3, 2015
For Bipolar Disorder "I have been on Tegretol for 8 days now, I'm very happy with the results so far. My mood and energy seems to have improved. I'm taking Tegretol 200mg twice a day along with Prosac and Ambien for my insomnia. The only side effect so far is a little bit lightheaded, but no biggie. I have begun a journal/to do list and I'm very happy when I cross off the items I have completed, in addition in my daily journal I'm drafting my daily feelings and my accomplishments. I would highly recommend this as this is helping me out tremendously. My memory is not as sharp and this HELPS big time."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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