Tegretol and Pain: What Users Say

• tab...
• July 17, 2009

For Trigeminal Neuralgia "I started Tegretol a week ago for Trigeminal Neuralgia. I was having more and more episodes of TN, and was miserable. Since starting the medicine, I have only had one brief episode of pain. I have had terrible itching since I started taking it. I saw a different doctor today about the itching, and he said the dose was too high. Hopefully the 100 mg twice a day will relieve the TN pain and not cause itching. I am happy to try the Tegretol, because TN pain is unbearable. Worse than any pain I've ever had (including labor, c-section pain, and oral surgery pain)."

• Gra...
• August 15, 2015

For Trigeminal Neuralgia "I have been on Tegretol for about 7 years, which has been good with manageable attacks in between. It took 2 years before I was diagnosed, in which time I had the fillings on the right side of my face replaced 3 times looking for the cause! I have now been in an attack for the last 3 and a half weeks and finally have some relief. I am now having double my dose of 800mg but still have a slight electric shock feeling and my top and bottom jaw ache slightly. I am getting a referral at a London hospital to check my teeth, just to make sure they are okay, but it is just like when I was first diagnosed. Wind or air con are worst for me. This is an awful illness, and I do hope you will get the help that you need."

• Jen...
• Taken for less than 1 month
• October 18, 2015

For Trigeminal Neuralgia "Diagnosed with TN two weeks ago. Within the first 24 hours of taking Tegretol, I felt amazing. No pain, clear head, etc. A week and a half after starting the medication, I had a horrific TN episode for twenty hours. The pain was so bad it woke me from sleeping. I'm not sure whether to go back to the doctor for an increase or just put it down to allowing the meds to do its thing. Can only wait and see."

• Tdo...
• June 20, 2011

For Bipolar Disorder "I just started taking Tegretol on June 3 for mood stability. Also prescribed Celexa on the same day. I also take Methadone 10 mg 4x a day for chronic pain management for the last 10 yrs. I love how it makes me feel, and it's very hard for me to get angry, BUT it interferes with the methadone. At first, nothing except feeling drunk for the first 4-5 days. Then it started. Withdrawal symptoms, increased pain, restlessness, insomnia, fatigue, and nausea. Not sure if I can continue treatment but will find out on June 24 after my doctor's appointment. Also taking meloxicam. Will let everyone know my results Friday afternoon."

• Jay...
• November 9, 2015

For Bipolar Disorder "On 400 mg, making me very nauseous, along with neck and shoulder pain."