Tegretol and Headaches: What Users Say

• Fel...
• January 25, 2018

For Trigeminal Neuralgia "While I've taken Tegretol in the past with no issues, this time is different. First time around, no side effects. This time - possibly due to other medication - I've had horrible side effects. Headaches every day, dizziness, nausea to the point of not even enjoying a glass of water. Lightheadedness, unsteady on my feet - going for a walk with my friend the other day, I MUST have looked like a drunk. TBH - this time around, I'd rather have the nerve pain."

• Anonymous
• July 7, 2010

For Epilepsy "No seizures while on Tegretol. Extreme headaches first 4 weeks, extreme tiredness. Six weeks after starting Tegretol, hives started to appear and got worse. Blood tests showed liver enzymes were three times higher than usual and red blood cell counts slightly reduced. Thyroid gland swelled up also. All these were shown to be a severe allergic reaction to the drug. People should be aware of this as a possibility."

• Ayl...
• Taken for 2 to 5 years
• August 13, 2025

For Epilepsy "Epilepsy is genetic in my family, and I first started having tonic-clonic seizures when I was around 12. I'm 15 now, and am on a 400 mg dose twice a day to control them. It's been working very well and controls the seizures completely. If I forget to take my pills, sometimes I will have breakthrough seizures. They are similar to tonic-clonic ones, except I remain conscious. The main side effects I get from Tegretol are vertigo, nausea, a feeling of unreality/not feeling real, and headaches. These symptoms don't massively impact my day-to-day life though, and overall Tegretol is very effective and works well for me."

• Anonymous
• Taken for 1 to 6 months
• October 19, 2013

For Epilepsy "This medicine has given nothing but trouble. Headache, feeling sick, and worse of all, I now have a very itchy rash all over my body, which is driving me round the bend."