Tegretol User Reviews & Ratings (Page 2)

• loc...
• March 5, 2017

For Trigeminal Neuralgia "Diagnosed a year ago. The Tegretol helps with the pain massively, reducing it to more of an ache. My GP has me on a step-up and step-down routine so I'm not in them long term. It's working for me at the moment."

• Anonymous
• June 14, 2011

For Bipolar Disorder "I had a very good experience on Tegretol. I had no side effects and was feeling better within three days. On top of stabilizing my moods, it also reduced my fibromyalgia pain by a good 90% (which also helped my mood a lot). The only reason I stopped taking it is because I'm working on becoming pregnant and it does have some nasty side effects there. The new medicines I'm on don't work quite as well, and I plan to go back on Tegretol as soon as I have a child."

• Anonymous
• March 21, 2010

For Bipolar Disorder "I've used Tegretol for the last three years and it's still working like it did in the beginning. My moods have been so much better over this time and I have a lot better outlook now versus the time before I started taking this medicine. I love these good moods I stay in throughout the day."

• The...
• Taken for 5 to 10 years
• August 12, 2014

For Trigeminal Neuralgia "I have spent 17 years with atypical trigeminal neuralgia. This medicine gave me 4 years pain-free. It took a long time to work, seems like almost a year, but worked great for a time. Guess now it's on to something else."

• Anonymous
• Taken for 1 to 6 months
• April 21, 2013

For Schizoaffective Disorder "Tegretol is very effective for my mood swings and hallucinations. It helps slow the racing thoughts and hyperactivity, and thinking people are out to get me. It also helps with hearing voices. When I do not take it, everyone can notice a huge difference in how I act."

• Gur...
• August 26, 2016

For Trigeminal Neuralgia "I started taking Tegretol 500 mg every night after dinner. The initial ten days were extremely tough.... very sleepy and was sleeping over 12 hours a day. Slowly, there was some improvement, but still very lethargic, struggling to concentrate, do day-to-day activities. Going back to the doctor for a reassessment. The pain is down almost 70% and has given me some relief and relaxed me a bit."

• lau...
• August 22, 2009

For Trigeminal Neuralgia "I have been on Tegretol for only 2 weeks and it gave me much relief. Neurontin and Topamax did not work for me. Only side effect of Tegretol is sleepiness. I sleep very well at night. I was prescribed 200mg twice a day, but only take it once a day. Sometimes I take it twice a day if pain in the morning is constant."

• Rai...
• April 6, 2016

For Trigeminal Neuralgia "Diagnosed with TN (glad to learn about it and find out I'm not dying of a brain tumor or something) - the pain is horrific. I've been on the generic form of Tegretol (Carbamazepine) 100 mg 3x per day for 3 weeks. I still have episodes of pain a couple of times a day, but at least I can walk around, talk, and eat without the excruciating pain I had been experiencing. Only downside is I feel like a zombie - tired and 'out of it' - but like others have said - I'd take that any day over the near constant pain I was having."

• Kim...
• June 20, 2013

For Epilepsy "There is nothing more scary than the first few seconds when your seizure starts and nobody is around. Tegretol has saved my life! I am so thankful my doctor put me on these tablets: 200 mg three times a day, and I'm happily seizure-free."

• Ann...
• June 20, 2016

For Trigeminal Neuralgia "I started taking Tegretol for TN, and it did greatly improve my ability to function. Pain was much duller during episodes and had stopped being totally debilitating. 6-7 weeks after use, I began to be so lethargic I couldn't get out of bed and was relying so much more on my husband to see to our toddler son. It was very worrying. I then developed severely enlarged glands under my chin, lumps on my neck, and started to feel generally unwell. I then had a full blood count done, and it returned a very low white blood cell count and abnormal-looking cells also. Enlarged spleen also occurred. Now being referred to hematology and had to be taken off Tegretol as they believe I am having quite a severe reaction to it."

• jms...
• July 11, 2010

For Bipolar Disorder "Tegretol has slowed the rapid cycling I was experiencing with bipolar. I have noticed improved mood. I currently take a large dose, so I experience side effects. It's my only complaint about the drug. I would recommend anyone who is considering Tegretol for Bipolar to have a backup for depressed mood, as I don't feel it's effective for extreme low mood, mainly for bipolar mania."

• Fig...
• August 2, 2015

For Bipolar Disorder "I currently take 300 mg of carbamazepine a day, 100 mg in the morning and 200 mg at night. Which is hard for me to remember the different doses because this medication causes me to forget everything. I also had really bad nausea and hot flashes when I first started taking it. I quit smoking cigarettes and drinking alcohol on this drug. Super amazing accomplishments, but on the other hand, I have lost three jobs in six months. Before Tegretol, I was taking 300 mg of Seroquel XR a day, and it made me a completely unemotional zombie. So it's hard for me to control myself sometimes because I'm feeling all these things I haven't felt before. I hope Tegretol can work for me, though, and be my miracle drug, because changing meds is my living nightmare."

• Cra...
• March 1, 2014

For Bipolar Disorder "I have been taking Tegretol for a couple of years, and it really helps with my bipolar. I can notice a big difference compared to if I'm not taking it. I just don't like how it makes my head and tongue feel numb, but it's a small price to pay."

• Gim...
• Taken for 2 to 5 years
• July 16, 2012

For Peripheral Neuropathy "Regarding my peripheral neuropathy: Had reached the max daily allowable level of Neurontin and was put on Tegretol, 200 mg, 4 x daily. Brought it down to one tab daily and have not looked back. Never any side effects. Condition greatly improved! Cannot remember my last 'attack.'"

• Tri...
• Taken for less than 1 month
• August 5, 2018

For Trigeminal Neuralgia "I've been living with unbearable pain for 3 years. My official diagnosis is trigeminal neuralgia, although I'm still not sure the diagnosis is correct. Like many others, I've had endless dental procedures to no avail. They tried to put me on Tegretol and other anticonvulsants, but I can't tolerate it. The pain went away like magic from the first pill, but the side effects were unbearable. It's as if someone hands you a life jacket, and then it blows up in your face. I get a horrific state of agitation that lasts for many hours. I have to move, hit, kick to relieve this madness (akathisia). My question: can I have relief from pain with Tegretol if the pain is caused by something else (such as a dental implant, in my case)? Or is the diagnosis of trigeminal neuralgia definitive if the pain goes away? Thank you."

• Ezg...
• Taken for 6 months to 1 year
• March 22, 2016

For Bipolar Disorder "I have been using Tegretol for 6 months, 200 mg a day two times. Before this, I started with Abilify, and it did not help me. I feel much more normal than before, and I don't feel like I am going up or down anymore. But I think one of the most important things is also not using alcohol and sleeping 8 hours a day."

• az2...
• Taken for 1 to 6 months
• February 3, 2015

For Trigeminal Neuralgia "Worked great on the pain. But my AST levels went through the roof. I am now unable to take them. Awaiting MVD surgery that can't come soon enough. Please ensure your doctor gives you regular blood tests. Mine did not, hence my liver problems."

• Sar...
• November 10, 2017

For Trigeminal Neuralgia "I have been on Tegretol for seven years now. I still have general pain with the occasional flare-up of unbearable pain that I had before taking this medication. I am also on a high dose of folic acid as I became very anemic, this caused tiredness. It was just by chance I was diagnosed with TN after being in extreme pain for over six months. Many doctors and tests, one specialist just said it could be this, let's try this drug, it may not work, but if it does, we are on the right track. To be honest with you, if she said I needed to cut off a limb to ease the pain at that point, I would have asked for the knife. I was miserable, the pain was unbearable, and so was I. I do feel it is not working as well after all these years, may be due for review."

• Sco...
• Taken for 10 years or more
• October 11, 2020

For Epilepsy "I was on Tegretol from the mid to late 80s till 2016. It helped in the beginning. But as I got older, add-on drugs were needed. Then in 2014, I could not stop eating. I was always hungry, yet losing weight. I was diagnosed with hyperthyroidism. And I was put on medication for that. In 2016, my doc took me off Tegretol and replaced it with Lamictal. Once off the Tegretol, my thyroid started to function normally. And medication for my thyroid was no longer needed. It’s not a bad drug. But your body changes over time. Another negative about the drug was how frequently I had to urinate. I would have to go at least 15, if not more, times a day. Towards its discontinuation, I was on 1200 mg of it daily."

• Wiy...
• Taken for less than 1 month
• March 29, 2017

For Trigeminal Neuralgia "Diagnosed with TN about a week ago. I tore a cartilage in my right knee, which I thought was painful. Well, nothing compares to TN, I’d rather have a daily torn cartilage than this terrible pain. Ended up in the hospital being given morphine, diazepam, and a diclofenac suppository, which is not the most enjoyable method of administration. The doctor has prescribed Tegretol. This has provided some relief, inasmuch as the frequency of the episodes has reduced, but not the severity, which has not been attenuated in any way. At least I can function better than last week. Though now I do feel a bit zombified, and as I am unemployed and looking for work, this does give me some apprehension about how I am going to cope with pain, sedation, and interviews. I am a Brit."

• Tay...
• Taken for less than 1 month
• October 24, 2012

For Bipolar Disorder "Caused me to be very drowsy all of the time, sleeping about 16 hours every night, and I developed an itchy rash of red pimple-like bumps on my scalp, neckline, and middle of my back after taking it for a few days."

• Jen...
• Taken for less than 1 month
• October 18, 2015

For Trigeminal Neuralgia "Diagnosed with TN two weeks ago. Within the first 24 hours of taking Tegretol, I felt amazing. No pain, clear head, etc. A week and a half after starting the medication, I had a horrific TN episode for twenty hours. The pain was so bad it woke me from sleeping. I'm not sure whether to go back to the doctor for an increase or just put it down to allowing the meds to do its thing. Can only wait and see."

• Bev...
• Taken for 6 months to 1 year
• June 20, 2016

For Trigeminal Neuralgia "Diagnosed with atypical TN after lower orthognathic surgery 20 months ago. Now on 1000 mg Gabapentin 3x a day plus prolonged-release Carbamazepine 400 mg at night. Did start 100 mg Carbamazepine in the morning, but had problems with vision and balance, so decided against it. Drugs working okay. Wish there was a solution to my problem :-( Now just been told by my doctor that my white blood count is down, possibly due to the Carbamazepine, so may have to come off it."

• WWM...
• October 29, 2010

For Bipolar Disorder "Well, I would say that the side effects, when you stop taking it, are like so. I feel like I'm shivering inside, one of the worst feelings in the world. So bad that if I miss a dose, I'm waiting at the pharmacy before it's open. I suggest that one doesn't miss a dose."

• Cro...
• Taken for 5 to 10 years
• May 3, 2018

For Trigeminal Neuralgia "Been taking 3x a day for several years. Suffered on and off for decades from head/facial pain with no diagnosis. Finally went to a good neurologist. Tried gabapentin. Didn't work at all. (Neither does Dilaudid.) This does make me groggy still, and I have nausea, brain drain, and more. I would take any side effect for relief from that horrific pain. I've had it so bad, I literally couldn't breathe in. The breakthrough pain I now get is mainly an ache in my ear and sometimes teeth. The side effects also may be from the 15 other meds I take for various problems."