Tegretol User Reviews & Ratings (Page 4)

• app...
• Taken for 6 months to 1 year
• February 6, 2015

For Epilepsy "Oh my. I was put on carbamazepine for possible epilepsy, and it didn't seem to do anything - but the doctors said to just keep trying. However, it continued to worsen, making my focus dip considerably and causing my hearing to change! (I'm a musician, I could tell - it dropped a semitone down.) Was very annoying."

• Tan...
• Taken for 1 to 6 months
• November 10, 2020

For Trigeminal Neuralgia "Just out of the hospital, blew up like a balloon, had a very bad reaction. In the hospital for 3 days, was on tabs for 4 weeks, so am off them now. No good for me as I was swelled up like a beach ball on them. A neurologist told me to go on them for 8 weeks, gees. After 4 weeks, ended up in the hospital taking 3 to 5 a day."

• Hai...
• January 12, 2017

For Bipolar Disorder "I just started Tegretol 2 days ago in conjunction with Cipralex and Clonazepam. I've taken the last two mentioned for years up until a few months ago and never had side effects, so I know the side effects are from the Tegretol. No appetite. Nausea and severe migraines. Definitely making me more hopeful and less suicidal and less impulsive, but I just hope the physical symptoms go away soon. I've never been on Tegretol before."

• Daw...
• Taken for less than 1 month
• March 5, 2017

For Epilepsy "MAKE SURE YOUR DOCTOR TITRATES THE DRUG AND DOES NOT START YOU ON A HIGH DOSE. The 1 grade should be for my Dr. Not the medication. I am a female, about 105 lbs. My Dr. started me on 800 mg without titration for possible seizures. After 2 days, I was so sick and dizzy, and my head/ears were buzzing like crazy. I had nonstop vomiting, ringing in my ears, and severe indescribable dizziness. I ended up going to the ER. I am sticking to Lamictal and found a new doctor."

• Anonymous
• Taken for 10 years or more
• July 25, 2022

For Trigeminal Neuralgia "I have been on Tegretol for 28 years! Started taking it for trigeminal neuralgia, and it worked well. Increasing and decreasing doses as flare-ups from the pain came and went; added Lamictal and eventually Lyrica for nerve pain. Tegretol has been my magic drug; eventually had the MVD brain surgery for the trigeminal neuralgia, and I have lowered Tegretol to 300 a day: it calms me and keeps moods even. I don't want to go off. I am also on the 300 Lamictal, also used for trigeminal neuralgia and mood stabilizing; Tegretol has affected my white blood count and electrolytes (sodium) low counts, so had to have blood drawn every three months."

• Twi...
• August 13, 2014

For Epilepsy "Began taking Tegretol in 1986 along with Epilim, had the op in 1991 and have remained on Tegretol since. Some things I have noticed over the years, although I don't have any medical evidence to back this up, only self-observation, are a massive increase in body hair. Not on the head, but over the rest of the body. Most of my nails split down the center of the nail. As for controlling my epilepsy, I cannot say they really did. Prior to my operation, at first, all was hunky-dory, then the body seemed to get used to the medication, and as a result, the dose increased. Today, 24 years after the operation, I remain on 1200 mg a day. Seizure-free, thanks to the op, although I do remain on the tablets."

• Bra...
• Taken for less than 1 month
• September 7, 2021

For Trigeminal Neuralgia "I've been living with TN for a month. I have MS as well (19+ years). ER visit put me on Tegretol 600 mg a day. Just want to go back to the same strength I had before Tegretol. Will have to wait and see. No pain of TN in the meantime. Will take the muscle weakness for now."

• Gun...
• Taken for less than 1 month
• April 21, 2016

For Epilepsy "I also suffer from bipolar 1 disorder and chronic pain. The drug so far has made me eerily calm, and it's almost like I'm high all the time. So far, so good... It has calmed my mania down since I am rapid cycling. Also, my short-term memory has been affected. I am a veteran as well."

• ste...
• July 17, 2016

For Epilepsy "The XR seems better than the traditional form used in the 80s that resulted in sodium depletion. This form causes twitching, sporadic and rapidly occurring tremors that make sleeping difficult, increased urination frequency, some minor dizziness at first, and possibly elevated skin sensitivity to sunlight."

• sab...
• Taken for less than 1 month
• December 5, 2016

For Bipolar Disorder "As I've only been on the medication for a week, don't take this review exactly to heart. My first day on this medication was extremely brain foggy, trouble concentrating, and very sleepy. I was already sleeping excessively to begin with, which is something I was needing help with. The first night I took this, I slept for 14 hours, which is actually way more than I usually do. I also didn't really feel like myself taking this medication, it kinda sucks the life right out of you. I would reply slower to things, take longer to think of responses, and, all in all, lack the normal enthusiasm I usually had. Now, as far as my mood swings went, I believe I have a mild case of bipolar. My doctor prescribed me 200 mg twice a day, which I've just been halving."

• twa...
• December 4, 2011

For Dystonia "Found it ineffective for facial spasms. Patients must get liver function tests while they are on this medicine. I believe other dystonia sufferers have had some relief with this, but I was not one of them."

• Anonymous
• April 9, 2009

For Epilepsy "I have been diagnosed with absence seizures for 6 years now and have been taking Depakote ER. I have been seizure-free for 4 years, but have had severe migraines on and off, usually more during times of intense stress. My doctor prescribed me Tegretol to take as needed for them about a year ago, and it has always been 100% effective. The only side effect is that it makes me very drowsy."

• jan...
• Taken for 5 to 10 years
• September 7, 2022

For Trigeminal Neuralgia "I have been on Tegretol for 6 years. And it has been great, no pain. Also, amitriptyline at night to help me sleep. But after this time, it's just stopped working and I can't eat, drink, or sleep without pain. Has anyone else had this problem with Tegretol where it's just stopped working."

• Anonymous
• December 8, 2008

For Epilepsy "My neurologist just discovered I had seizures about a month ago, and it has been a constant trial and error finding a medication that will work. I was taking 600 mg of Tegretol for the last week, and I developed an awful red rash and itching all over. My doctor has changed me to Dilantin today, and I hope I do better on that. Keppra was the first drug, and that didn't help."

• dsk...
• June 13, 2008

For Epilepsy "After being on this medication for seven years, I am still having breakthrough seizures. I have now developed leukopenia, as I did with Depakote. Now I have to go through the trial and error of finding a new medication."

• Gra...
• Taken for 6 months to 1 year
• November 17, 2021

For Epilepsy "In the early '80s, my five-year-old daughter was being treated by a top children's neurologist for focal seizures, which she started having after a severe, undiagnosed, life-threatening illness at 4 months. She was changed from Dilantin to Tegretol by this doctor, who I had great respect for, when I told him the side effects from this drug were harming my child. She couldn't remember anything, she acted dazed and confused, she scared me concerning her development while taking Tegretol. We fought over changing the drug, which he said was new and better than Dilantin. I said I don't care, she doesn't act like this on Dilantin, and I'm not leaving your office until you change it. So now I read these side effects, and I was right. I still love that doctor, but I knew my child too... And also, my other kid reacted better to Rondec syrup for bronchitis than that Albuterol new drug they changed her to, it was absolutely clear to me that while new drugs are wonderful and I am grateful for them, new needs monitoring."

• Lov...
• Taken for 2 to 5 years
• December 26, 2019

"I have been drinking Tegretol since I was very young. It assists me with my manic episodes, keeping me satisfied and excited. Before, I had a hard time at school, my academic performance was very poor. Still, I was in a treatment with Epilim, but it wasn't working, instead, it made me even worse. It caused me to have depression and manic episodes at the same time. I was very tearful and lonely, also sad in high school during those previous years, 2014-2016. Now that I am on Tegretol, it is the best medication that is suitable for me. Now I am stable in my condition, balancing my manic episodes and depression."

• Raj...
• Taken for 10 years or more
• July 13, 2023

"I was suffering from intense morning anxiety (upon waking up) and during the whole day while doing day-to-day tasks. Online meetings and presentations were freaky. I take only Carbamazepine CR 200 (100 in the morning and 100 at night). I am relaxed and think like an intellectual person :).. I had tried Xanax and Klonopin, but they didn't help :(.. Carbamazepine CR 200 is very good if benzos don't work for you. God bless all.."

• Adv...
• Taken for 1 to 6 months
• December 4, 2024

"I've been on this med for a few months. I haven't experienced any highs or lows yet. Some of the side effects I've had are that I am still getting nausea after a few months. Sometimes when I stand up, I get light-headed and dizzy. I feel like I have some light tremors. At times, I feel like I get hot flashes that come and go. I'm still too young to be in menopause as well. I saw another man had mentioned this in his review too about having the hot flashes. At times, I feel tired and less motivated. I'm losing some weight, but that may be because I came off the drug risperidone, which I was on for 25 years."

• sun...
• Taken for 1 to 6 months
• March 30, 2016

For Bipolar Disorder "I was depressed and in bed for 4 years until I was diagnosed with bipolar. I am now 2 months with Tegretol, out of bed, and am enjoying life like never before. It has been a miracle for me."

• ANG...
• June 12, 2013

For Trigeminal Neuralgia "Stopped the pain of trigeminal neuralgia. Side effects like unsteadiness, fingers twitching, sore joints, seeing auras, reading difficulties, speaking difficulties."

• Kat...
• March 15, 2013

For Trigeminal Neuralgia "This is the only medication that has helped me! It's great!"

• yay...
• Taken for 1 to 6 months
• June 4, 2014

For Bipolar Disorder "Most effective medicine for bipolar disorder, at least for me."

• Anonymous
• February 4, 2010

For Bipolar Disorder "I have been using Tegretol for over five years, and I think it is the best medicine for the manic side of bipolar. I don't notice any side effects and have not gained weight while using Tegretol."

• Wil...
• February 13, 2013

For Epilepsy "Have been taking for 13 years. Have been seizure-free. It has changed my life. Only side effect I've noticed is a little more tired than normal. Only sometimes. Other than that, good to go!"