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User Reviews for Carbamazepine to treat Dystonia

Also known as: Tegretol, Carbatrol, Tegretol XR, Epitol, Equetro

Anonymous November 15, 2019

“I was having spasms 24/7 they were horrendous, I commenced on Carbamazepine & within 10 days they were gone, couldn't believe it.”

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P ยท Taken for 5 to 10 years March 25, 2018

“I have paroxysmal kinesigenic dystonia. I have been on this medicine for 9 years. When my dystonia was at its worst (middle & high school), I took 400 mg daily. Over time, it became not as bad, and now I take my pills when I feel like I need it. Usually 400 mg once a week. This medicine has helped me SO much, and I would not have been able to live without it!”

10 / 10
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rie__ May 16, 2016

“Doesn't totally cut my Paroxysmal Dystonia, but drops it from a 7/10 to a 3/10. If i increase the dose (800mg XR daily) the side effects are too hard to handle. Generally leaves me feeling a little sluggish/slow, and have found it difficult to lose weight on Tegretol.”

8 / 10
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twatface December 4, 2011

Tegretol (carbamazepine): “Found it ineffective for facial spasms. Patients must get liver function tests while they are on this medicine. I believe other dystonia sufferers have had some relief with this but I was not one of them.”

1 / 10
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DCG030 October 16, 2010

Carbatrol (carbamazepine): “I have been taking Carbatrol 200mg for 13 years and I can only pin point me being tired from the medicine. When I take it like prescribed I do not have any episodes.”

9 / 10
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This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.

Learn more about Dystonia

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