Carbamazepine for Dystonia User Reviews
Brand names: Tegretol, Carbatrol, Tegretol XR, Equetro, Epitol
- Pan...
- Taken for 5 to 10 years
- March 25, 2018
"I have paroxysmal kinesigenic dystonia. I have been on this medicine for 9 years. When my dystonia was at its worst (middle and high school), I took 400 mg daily. Over time, it became not as bad, and now I take my pills when I feel like I need it. Usually 400 mg once a week. This medicine has helped me so much, and I would not have been able to live without it!"
- rie...
- May 16, 2016
"Doesn't totally cut my paroxysmal dystonia, but drops it from a 7/10 to a 3/10. If I increase the dose (800 mg XR daily), the side effects are too hard to handle. Generally leaves me feeling a little sluggish/slow, and I have found it difficult to lose weight on Tegretol."
- Anonymous
- November 15, 2019
"I was having spasms 24/7, they were horrendous. I commenced on carbamazepine, and within 10 days, they were gone. Couldn't believe it."
- DCG...
- October 16, 2010
Carbamazepine "I have been taking Carbatrol 200 mg for 13 years, and I can only pinpoint being tired from the medicine. When I take it as prescribed, I do not have any episodes."
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Tegretol, Carbatrol, Equetro, Epitol, Carnexiv
Carbamazepine "Found it ineffective for facial spasms. Patients must get liver function tests while they are on this medicine. I believe other dystonia sufferers have had some relief with this, but I was not one of them."