Carbamazepine for Dystonia User Reviews

Brand names: Tegretol, Tegretol XR, Carbatrol, Equetro, Epitol

Rating: 7.4

Carbamazepine has an average rating of 7.4 out of 10 from a total of 5 reviews for the off-label treatment of dystonia. 80% of reviewers reported a positive experience, while 20% reported a negative experience.

10		20%
9		40%
8		20%
7		0%
6		0%
5		0%
4		0%
3		0%
2		0%
1		20%

twa...
December 4, 2011

Carbamazepine "Found it ineffective for facial spasms. Patients must get liver function tests while they are on this medicine. I believe other dystonia sufferers have had some relief with this, but I was not one of them."

1 / 10

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11 Report

Pan...
Taken for 5 to 10 years
March 25, 2018

"I have paroxysmal kinesigenic dystonia. I have been on this medicine for 9 years. When my dystonia was at its worst (middle and high school), I took 400 mg daily. Over time, it became not as bad, and now I take my pills when I feel like I need it. Usually 400 mg once a week. This medicine has helped me so much, and I would not have been able to live without it!"

10 / 10

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6 Report

rie...
May 16, 2016

"Doesn't totally cut my paroxysmal dystonia, but drops it from a 7/10 to a 3/10. If I increase the dose (800 mg XR daily), the side effects are too hard to handle. Generally leaves me feeling a little sluggish/slow, and I have found it difficult to lose weight on Tegretol."

8 / 10

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7 Report

Anonymous
November 15, 2019

"I was having spasms 24/7, they were horrendous. I commenced on carbamazepine, and within 10 days, they were gone. Couldn't believe it."

9 / 10

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10 Report

DCG...
October 16, 2010

Carbamazepine "I have been taking Carbatrol 200 mg for 13 years, and I can only pinpoint being tired from the medicine. When I take it as prescribed, I do not have any episodes."

9 / 10

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9 Report

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