Carbamazepine User Reviews & Ratings (Page 5)

• Noname
• Taken for 6 months to 1 year
• October 9, 2019

For Epilepsy "This stuff was horrible for me, did not stop sleeping siezures and side effects gave me such a bad attitude, I was very grouchy but was numb to most feelings for other issues. I didn't want to do anything, ruined my appetite and my relationship. 200 mg twice a day"

• Lindy
• Taken for less than 1 month
• April 24, 2013

Tegretol (carbamazepine) for Trigeminal Neuralgia "I have been put on this medication for pain. After 6 mouth operations - I was left with terrible upper gum and palate pain. I have only been on it for 5 days - it is not working. The pain is severe and constant. I am praying - as I take it longer - it will take the pain away."

• Blob
• May 16, 2017

For Trigeminal Neuralgia "Was diagnosed in January with TN, although I thought that's what I had. My dad & his sister had TN as well. Started on a low dose of carbamazepine, 200mg a day & naively I thought this would make the pain disappear. No it did not. They gradually increased dose to 300mg three times a day & this worked for approx 8 weeks. I thought I had found the dosage that would work for me & I would be pain free forever, but no the pain returned last week & it was excruciating, could hardly eat anything. I increased my dose to 400mg in the morning, 300mg in the afternoon & 400mg at night & gradually the pain has disappeared. Spoke to doctor today & I can increase dosage to 1600mg if needed & she will prescribe slow acting carbamazepine as well."

• Glen...
• September 29, 2020

For Trigeminal Neuralgia "I am 71 years old and experienced severe face pain last week so my first port of call was the dentist. I asked him to X ray all my teeth and give me a check up. The X rays showed little difference to those taken 5 years ago and a thorough examination of all my teeth showed no problems. That evening I tried to eat scrambled egg and the pain was excruciating when I tried to bite down on the food. The next day I managed to see my GP, explained all my symptoms and was given a prescription for Tegretol 100 mg twice a day. I took 5 in all. The pain is gone, dizzy and confused I nearly fell down the stairs. I started to feel sick couldn't face food. I stopped taking them after 4 tablets and will wait to see if pain comes back. I am not sure if these pills can be taken sporadically or over a period of time to work. I am scared of this medicine as my mother-in-law who also has TN warned me that the medical profession has doubts about the safety of this drug."

• Anonymous
• July 14, 2009

Tegretol (carbamazepine) for Epilepsy "I HAVE HAD SEIZURES FOR TWENTY (20) YEARS NOW. i HAVE TAKEN EVERYTHING THERE IS TO TAKE, NOTHING WORKED EXCEPT FOR TEGRETOL. HOWEVER, I STILL HAD BREAKTHROUGH SEIZURES, SO NOW I TAKE KEPPRA WITH THE TEGRETOL. I HAVE NOT HAD ONE SEIZURE FOR THREE (3) YEARS NOW. WOW, OH WHAT A FEELING!"

• Emank...
• May 24, 2016

Tegretol (carbamazepine) for Bipolar Disorder "This was the best medication I have ever had. I take 2 at night and 1 in the morning. I only trouble I have had was at one time the Doctor tried to up me to 2 night and 2 in the morning and it caused terrible vertigo like feeling. I couldn't even stand up. Overal I would say it's a great medication."

• Al1955
• January 31, 2017

For Trigeminal Neuralgia "Trigeminal Neuralgia started about 6 months ago. Started the Carbamazepine about 3 months ago and have been having the dosage steadily increased to 200mg 3x/day with an additional 100mg at night. Pain is easily triggered by the slightest touch to right side of my face and I can avoid that for the most part during the day but night time is bad. The effectiveness of the additional 100 mg at night lasted 2 days and pain is just as bad again. At 61 years of age with multiple health issues and on disability because of COPD, not sure how much of this I'm going to be able to take."

• Mnyc
• Taken for 1 to 2 years
• October 25, 2019

Tegretol (carbamazepine) for Epilepsy "Tegretolol is the only medicine that stops my tonic clonic seizures. I've been on it over a year, taking 1,000 mgs a day. The first month I had memory problems and drowsiness but that went away fast. The biggest side effect I had that never went away is severe depression caused by it. My depression is gone thanks to Lexapro 20 mg a day. I highly recommend Tegretol for tonic clonics seizures due to Epilepsy."

• Tinytoo
• February 13, 2013

For Trigeminal Neuralgia "I started taking gabapentin for my trigeminal neuralgia nearly 3 years ago but it gave me alarming mood swings, I nearly hit my wife! This sent me back to the doctor and I was put on pregabalin which was slightly better on the moods swings but became less effective over time. Now on Tegretol slow release (400mg morning and 600mg evening) it allows me to work but in some pain. I tried 600mg twice a day but I slept all day every day for a month. Breakthrough pain can be helped by taking tramadol and Co-codamol although only slightly. Overall good but it will leave you sleepy and forgetful - don't forget it's job is to slow the neurons in you're brain (I believe it was originally developed for epilepsy). Don't expect to be completely pain free and good luck."

• ssd
• Taken for 2 to 5 years
• April 20, 2015

For Bipolar Disorder "I was diagnosed Bipolar I with OCD When i was 14. I am now 38 and a mother of 3. I have been taking Equatro/Tegratol XR (carbamazepine) for 3 years now. I also take it with a mild antidepressant. I think on its own, the carbamazepine worked ok, but I found myself still depressed. No more rage or bursts of anger, but zombie like. As soon as my doctor introduced the antidepressant into my regimen, I feel wonderful!!! I take 600 MG a day total of the carbamazepine XR. 1 tablet in the am and 2 before bed. My morbid thoughts have stopped, suicidal tendency went away almost completely. My moods are elevated and stable now. I am able to enjoy life now."

• Liz
• Taken for 6 months to 1 year
• June 4, 2012

Epitol (carbamazepine) for Bipolar Disorder "I've been on Epitol for a little over 6 months and it has CHANGED my life. I had a hard time finding a medication that didn't worsen my condition or give me weird side effects and so far, I've had NONE of that from Epitol. The first few weeks were a little difficult as it made me kind of tired but I quickly adapted and no longer get drowsy. (I still find it best to take it before bedtime). My depressed symptoms are all but gone and my manic spells are much more mild (though occasionally longer). This medicine was a God-send."

• Anony...
• December 31, 2010

Tegretol (carbamazepine) for Epilepsy "I am 39 years old now, and have been on Tegretol since I was 20. I have not had a seizure for 19 years. Then, this past weekend, I went on a trip and did not take my Tegretol for 3 out of the 4 days I was there. The next day, I had a grandmal seizure and the ambulance came. I attribute it to becoming complacent and it really bit me, but I will not make this mistake of being lazy and not taking it again. I was on 200 mg for the last 3 years without a problem, but will increase it to 400 mg just in case. Tegretol really does work wonders and I hope to be seizure free the rest of my life, if I can faithfully stay on this medicine."

• Queenie
• September 22, 2019

For Trigeminal Neuralgia "I was diagnosed 4 years ago with Trigeminal Neuralgia and was put on tegretol 200mg a day . For 2 years was fine and then put up to 400mg. 4 months ago I had a massive flair up , so have seen the neurologist 3 times , been off work 4 months , taken 3 x 600 tegretol under nuerologist, given pregablin to run along side 400 . I’ve now got under control . Back down to 900mg tegretol off pregablin as it did do nothing for me. I am still had pain on top of cheek bone and given nortriptyline for that . Tegretol does give me brain fog but I would say 90 per cent normal and as good as I’m going to get I’ve been told . I have requested mvd op but a long way off . Also I have put in for PIP claim and have assessor coming out .( tegretol ref to carbamazepine)"

• Anon
• Taken for 6 months to 1 year
• July 14, 2023

For Occipital Neuralgia "This is the only medicine that completely works for the occipital neuralgia. I have dealt with this for over a year and other nerve pain following COVID for two and a half years. Tried occipital nerve blocks, but that never took away the pain. At first, pregabalin was working for all of the nerve pain until it wasn't. It wasn't getting rid of headaches in my temple. Called my neurologist, and he prescribed this. It's the only thing that completely works. Must take with food or it will make you sleep a few hours. It was a huge relief the first time I took it! He said it's an old medicine but a good one."

• Anonymous
• July 7, 2010

Tegretol (carbamazepine) for Epilepsy "No seizures whilst on Tegretol. Extreme headaches first 4 weeks, extreme tiredness. 6 weeks after starting Tegretol hives started to appear and got worse. Blood tests showed liver enzymes were 3 times higher than usual and red blood cell counts slightly reduced. Thyroid gland swelled up also. All these were shown to be a severe allergic reaction to the drug. People should be aware of this as a possibility."

• Kate
• Taken for 10 years or more
• May 20, 2014

Tegretol (carbamazepine) for Epilepsy "I have been on this medicine for 27 years. Except for extreme tiredness, I seem okay. Have not had a fit when on this medicine. One week I came off the medicine, between suicidal thoughts, crying jags and depression, I had massive fits. I have not been off since. This medicine seems to affect the liver, so liver tests are a must."

• Anonymous
• September 20, 2009

Tegretol (carbamazepine) for Trigeminal Neuralgia "I have trigeminal neuralgia and have been suffering from it for quite some time. I was put on 300 mgs twice a day and it didn't help at all and the attacks were just getting more severe and frequent, so the neurologist upped it to 900mgs a day. Still no relief! I have been on two other kinds and pretty much have to rely on pain medication which doesn't even relieve all the pain."

• Anonymous
• January 26, 2011

Tegretol (carbamazepine) for Trigeminal Neuralgia "I have had TN for about 10 years, but was switched from Trileptal to carbamazepine, 100 mg 3x/day, about a month ago. The first week I felt almost pain-free, but since have been in constant pain. It does not seem to work for me at all now!"

• Tdogg
• June 20, 2011

Tegretol (carbamazepine) for Bipolar Disorder "I just started taking Tegretol on June 3 for mood stability. Also prescribed Celexa on same day. I also take Methadone 10mg 4x a day for chronic pain management for last 10 yrs. I love how it makes me feel and it's very hard for me to get angry BUT, it interferes with the methadone. At first nothing except feeling drunk for the first 4-5 days. Then it started. Withdrawal symptoms, increased pain, restlessness, insomnia, fatigue and nausea. Not sure if I can continue treatment but will find out on June 24 after my doctors appointment. Also taking meloxicam. Will let everyone know my results Friday afternoon."

• Mario...
• January 29, 2012

Tegretol XR (carbamazepine) for Trigeminal Neuralgia "After first two years of trigeminal neuralgia without drugs I finally gave in and began Tegretol XR at only 200MG a day. It halved my pain and made "life livable" again... dragging my feet on asking for an upped dosage since I fear it may lose its effectiveness."

• k4ffe...
• November 23, 2014

Epitol (carbamazepine) for Bipolar Disorder "Before this, I'd been ineffectively diagnosed and treated for ADHD and recurrent depression. I've taken this medication for only four days following a bipolar II re-diagnosis, but despite this, I feel much better than I had on Prozac. My combination of irritability, depression, lack of motivation, and suicidal/homicidal ideation (in the form of intrusive mental images) has vanished, and I find it much easier to talk to people and look them in the eye again. I'm taking 200mg tablets twice a day and initially noticed mild dizziness, headache, and sleepiness, but these quickly vanished. The only persistent symptoms have been hardly perceptible ringing in the ears and lowering in the pitch at which I hear sounds, esp. familiar songs."

• Anonymous
• November 3, 2009

Tegretol (carbamazepine) for Epilepsy "I have taken Carbamazepine for 36 years and have experienced no significant side effects. I take 400mg per day and have gained almost total control of my condition. No seizures since 1983. Do not cease taking Carbamazapine suddenly for any reason whatsoever. The withdrawal can be extreme. The ER medication is very useful."

• Snoozy
• Taken for less than 1 month
• December 31, 2016

For Trigeminal Neuralgia "I only started talked Carbamazpine 6 days ago after the Dr told me I "possibly" have TN. My symptoms of extreme pain in my teeth/jaw on one side started a month ago only when I have something to eat/drink that isn't warm or if I breath through my mouth. I am only on 100mg twice daily and have had only a minor side effect of a very slight feeling of "spaced out" rarely though. The meds seem to have reduced the severity and length of the pain already but I'm hoping a trip to my Chiropractor can help even more. I will let you know how that goes."

• Rydeg...
• August 7, 2020

For Bipolar Disorder "I've suffered from bipolar and psychosis since I was 14 years old, probably triggered by sexual abuse when I was a small child. I had a psychotic breakdown 12 years ago and my doctor prescribed carbamazepine (I had been wrongly diagnosed with schizophrenia, in fact it was schizoid affective disorder), after just one dose I felt my head calm down and I experienced semblance of peace at last. It genuinely saved my life despite side effects which I can live with."

• snake...
• Taken for 10 years or more
• January 7, 2017

For Trigeminal Neuralgia "I am a 6; 5'' 245 71 yr old retired teacher after 30 yrs since 2007. I played 2 yrs NFL n 2 1/2 yrs in ABA n am a night club bouncer wk as a bond recovery agent and security guard at troubled apt complexes. 3 tours in Vietnam I have been shot, stabbed been in neurmous fights n in last 45 yrs have had 11 surgeries ranging from 2 total hip replacements to eye knees nose ankle. Suffice it 2 say I have experienced ' pain .' Have TN for last 16 yrs. Unequivocally, this is the WORST pain I have ever experienced bar none. And as I get older ,as I am told by my Dr, it will only get worse.I was prescribed 300 mg 3x/day but since June of 2014 have been taking 150 mg 4x/daily.now taking 900 mg /day and I can't seem 2 balance the pain.Any insight ???"