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User Reviews for Levetiracetam

Also known as: Elepsia XR, Keppra, Keppra XR, Roweepra, Spritam

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Levetiracetam.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Neuralgia 5 reviews 29 medications
   
8.2
New Daily Persistent Headache 4 reviews 0 medications
   
8.0
Seizures 142 reviews 48 medications
   
6.7
Epilepsy 66 reviews 40 medications
   
6.6
Bipolar Disorder 5 reviews 33 medications
   
6.2
Summary of Levetiracetam reviews 222 reviews 7.1

Reviews for Levetiracetam

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Keppra XR (levetiracetam) for Epilepsy: "I was diagnosed with juvenile myoclonic epilepsy in 2010 and was started on depakote, after gaining 40 lbs and still having seizures on that medication, my doc switched me to Keppra XR, initially I started out on 500mg once a day and was feeling a little drowsy but ok, I was still having muscle jerks so she upped the dose to 1500mg once a day and started having severe fatigue, as a college student this was affecting my studies severely. Now, on the same dosage for 3 years, I have memory loss, severe exhaustion and fatigue, headaches and dizziness every day and my school work is being negatively affected. My doc refuses to change my medication since I haven't had a seizure while on keppra XR."

   
3.0

Hana196476 (taken for 2 to 5 years) February 19, 2017

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Keppra (levetiracetam) for Epilepsy: "I was diagnosed with grandmal epilepsy in 2004, have tried alot of different medications over this period and Keppra has always been a constant during this time, with interaction with others Starting on 250mg bd & after a decade I'm now taking 1000mg bd with 100mg bd of lamotragine. The main concern is that I'm always tired" mentally and physically, having to rest quite alot & lack of appetite although I have a feeling that this is due to the combination. I recently had a Petit Mal seizure and the Neurologist advised that it was due to missing one dose of lamotragine, although Keppra by itself is a generally peaceful medication. I have been recently diagnosed with haematomachrosis, iron overload, although they've advised it's genetic."

   
8.0

Mr Strong (taken for 10 years or more) February 15, 2017

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Keppra (levetiracetam) for Seizures: "I have been on Keppra for about 15 yrs. I received my Epilepsy from a bad car accident when I was young. I received my first Epileptic Seizure when I was 27 yrs old. I have tried every single seizure med made for the severity of my Grand Mal seizures. I now take 5- 500mg pills plus 3- 100mg caps of Dilantin. That is 300 mg shy of brain surgery. I am at piece w/ myself. I know what I have tried, what worked and what didn't. My seizures are extreme. I keep my blood level Therapeutic and have fewer seizures so I know it is working. I still get Grand Mal seizures, just not as many. That proves to me it works. That is all I care about, ME!"

   
10

J.M.P February 13, 2017

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For Epilepsy: "This drug has changed my life . I take it along with Tegretol CR. I was having continued absence seizures regularly until I started taking this. Since then i have been completely free of those invasive seizures."

   
10

LouR (taken for 5 to 10 years) December 23, 2016

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For Epilepsy: "I had my first episode when I was 12 months. The side effects I get are decrease in appetite, forget minor things, & headaches. They couldn't tell what was wrong with me at that time. At the age of 12 years old I had my 2nd episode in my sleep. I found myself crawling to my parents room because I couldn't walk or talk correctly. When I went to the hospital they diagnosed me with epilepsy. What causes my seizures is an enlarge blood vessel on the right side of my brain. I started off with 750mg of Levetiracetam. I only had episodes when I missed 1-3 days of my medicine. Now I will be 19 years old in April & I am now taking 500mg of Levetiracetam. They're lowering the doses as I get older."

   
7.0

Anonymous December 20, 2016

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Keppra (levetiracetam) for Seizures: "I have had epilepsy from 18 months old started on epilim. By the time I turned 3 I was seizure free till I was 16. Just before my maths exam I had a seizure wasn't exactly sure what caused. I went to my GP I was put on 100mg of lamotrogine then went up to 250mg of lamotrogine finished on 300 the drug didn't work at all. I was then referred to see a neurologist and we started off taking keppra 500mg alongside with the lamotrogine. We then moved to 750mg or keppra with the lamotrogine BD.After all of that we then moved to 1000mg BD since then to know I'm now on 4grams a day along side 600mg of oxcarbazapine and currently on 6mg of Perampanel. I'm getting the drowsiness tiredness and from the keppra I'm turning aggressive."

   
1.0

Luke valentini (taken for 2 to 5 years) December 15, 2016

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For Epilepsy: "Have reduced my seizures from about 15 a year to only 3-4 a year, however the side effects greatly outweigh the benefits. Currently suffering and have been for about 6 years now... extreme fatigue, mood swings, high up and down rapid changing moods, anger with extreme anger outbursts where Never in my life was I an angry person, shaky hands, extreme memory loss like 2-4 month gaps, unable to concentrate, irritability, can't even remember simple names of things like cup or brush which is very frustrating because I use to be a grant writer and loved to write poetry can't anymore. Stuffy nose, exaggerated fears, swollen glands, depressed, Social anxiety, I rarely leave my Home anymore, I don't answere the phone, Dr. doesn't care"

   
2.0

labrat ofroguevalley (taken for 10 years or more) December 7, 2016

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Keppra (levetiracetam) for Seizures: "First I had partial seizures (after head injury in 2004) and after grand mal 2014 I almost died because of status epilepticus. After that I am on Keppra 1000mg a day (500mg morning, 500mg evening) for 2 years now. First month or two I had headache and double vision, sometimes I was a bit aggressive but after few months it was ok. For me it is good medicine, now i have 10 petit mals a year and I think that bad-heavy weather changes is causing them. I want to tell you, that after first or second month side effects went away. For me it is important, that I take Keppra with good meal in morning and evening. It is good medicine, just do not give up. Love you all."

   
9.0

balulu (taken for 2 to 5 years) December 7, 2016

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For Epilepsy: "I was diagnosed with epilepsy when I was 12 years old (I am now 27). I have been on lamotrigine and topirimate (separately) in the past, and they both worked to control my seizures. This year My neurologist has changed and she wanted me to try keppra but I was happy on the topirimate so I said no until I had a grand mal seizure. However, the seizures have got worse since taking the keppra plus the side effects are awful. At the start I was so tired I spent all day asleep. After the dosage has increased to 3000mg per day I have started to get mood swings, anger, depression, irritability, plus suicidal thoughts and have become a completely different person - I never used to cry but now I don't stop."

   
1.0

Laura1605 (taken for 6 months to 1 year) December 4, 2016

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For Epilepsy: "its is hard to type but after a bad traumatic brain injury I now have seizures and at 39 going on 40 and with this pill I still experience more than 5 seizures per day."

   
4.0

mgru (taken for less than 1 month) November 29, 2016

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Keppra (levetiracetam) for Seizures: "I had my first seizure on 6/12/16 and it was a grand mal seizure. The EEG found scarring on the brain from a fall a few years ago. I was prescribed keppra 250mg twice daily and it was awful. I had loss of memory which the pharmacist says was due to mini seizures. I. Had to lock myself into my room on several days because I was in horrible form. I was so angryAfter 7 days I moved up to 500mg twice daily and I must say I have never felt so good, not in years. I am in fantastic humour all the time. I am full of energy. Even my doctor is shocked. I know it's very early days for me to give a review but I think it's worth sharing a good experience after reading so manybad ones. I'm a 34 year old male if that makes a difference to anyone"

AntocorkIreland (taken for less than 1 month) November 19, 2016

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For Epilepsy: "At present I am taking Lamotrigine 25mg four times a day. Due to some speech problems during the past six months it was decided that I should change to another drug called Levetiracetam. I have looked up the side effects for this tablet and find that the tablet has more side effects than Lamotrigine. What makes Levetiracetam any better to use when the side effects are horrific. Thank you, Lucia Palma"

Lucia Palma October 22, 2016

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Keppra (levetiracetam) for Seizures: "Worst drug I have ever taken. Been on it for 4 weeks. Not even sure I had seizure to begin with. All tests, MRI and EEG were negative. Trying to wean myself off. Dizzy, headache, depressed, severe mood swings, angry then lethargic. Sorry I ever went to doctor."

Anonymous (taken for 1 to 6 months) September 28, 2016

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Keppra (levetiracetam) for Seizures: "I have had epilepsy all my life. I am 48 and been on Dilantin all my life except for the last 5 months. About 5 months ago I had a grand mal seizure and my family dr. wanted me to see a neurologist since I haven't seen one for awhile. Well after seeing my neurologist she changed my medication to Kappa. I really hate this drug. I would maybe have a few to maybe 4 to 5 seizures a yr. that I could feel coming on, now I have had to many to count in the last 5 months than I have had since I was on Dilantin. All the seizures I have had since I have been on Kappra I have not felt coming on, I am very moody, I feel like crap all the time and over all I hate my life. I just want to get back to myself and go back to work but right now I cant."

   
1.0

CJ Taylor (taken for 1 to 6 months) September 24, 2016

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For Neuralgia: " Originally I was taking gabapentin which helped a little but ended up making my pre existing tinnitus much much worse. I started doing my own research as my doctor wanted to give me Lyrica or Cymbalta both of which are a big no no for tinnitus patients. I stumbled across Keppra and found a few studies done for nerve pain. I also found that Keppra is the only anti epileptic on the market without tinnitus listed as a side effect. I approached my doctor about this and she agreed to let me give it a try. I started off at 500mg twice a day and now take 750mg twice a day. It has done wonders for my nerve pain! I have managed to have pain free days/weeks and minimal pain over all with no side effect"

   
9.0

GhoulGoneWild September 20, 2016

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Keppra (levetiracetam) for Seizures: "So on the 30th of July 2016 I turned 28 my birthday I didn't go crazy and party I spent the day with my kiddies an mum, that night was pored a glass of wine had a sip but wasn't feelin up to it so didn't. The next day on the 31st I woke up with a real sore head felt like I had the worse hangover ever even tho I hadn't actually drunk I felt awful but decided to go in to town anyway with mum, kids an my bestie for a little lunch an shoppin was then shoppin an had 4 grand mal seizures, woke up in hospital with a massive black eye and broken nose with not a clue what was going on, my mum an partner cryin tellin me I had just a scan an they found a tumour So they put me on keppra it's bad I have loads of side effects I feel like I'm going crazy"

   
1.0

Kayleigh's August 31, 2016

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Keppra (levetiracetam) for Epilepsy: "This medication created the worst two years of my life. I started having seizures my sophomore year of college and am now a senior and I have been on Keppra the past two years. The doctors never explained the severe side effects that would go along with this horrible drug. I used to be always a happy kid and since I started taking Keppra I constantly dealt with mood swings, uncontrollable anger, severe depression, constant thoughts of suicide, weight gain, and hair loss! I can't believe it took me such a long time to get off of this stupid drug. The seizures never stopped either and all the doctors would do is increase my dosage every time. I'm currently at 3000mg a day and am slowly weeding myself off of this drug and going all natural."

   
1.0

Anonymous August 23, 2016

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Keppra (levetiracetam) for Epilepsy: "Anger, moodiness, hopelessness, irritability, trouble making cohesive thoughts, very serious suicidal urge. Same day after first pill of 500 mg."

   
1.0

Concerned Citizen 40's August 14, 2016

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Keppra (levetiracetam) for Epilepsy: " I Ve had nothing but problems with the Keppera : constant shaking in my arms & legs & pins & needles feeling in my arms & legs severe light headedness no appetite & etc."

   
1.0

Anonymous (taken for 1 to 6 months) August 9, 2016

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Keppra (levetiracetam) for Epilepsy: "Good for Epilepsy but the feelings you get whilst taking them are so bad, I have a feeling in my back of burning and on the inside also as if my tummy is burning also. It is so good for fits if only on them a short while, but not so good to be taken too long. I wish my Docs would understand what they are putting me through with this drug and how I feel, but they do not understand or do not want to !! They just say "so you know better than the Doctors?". I know these drugs are doing me in and seeing Dr about them so wish me luck !! phew"

   
2.0

Winb143 (taken for 5 to 10 years) August 7, 2016

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For Neuralgia: "I haveCranial Hypotension and daily persistent headache so Dr decided to substitute Keppra for Trileptil, it is more effective controlling head pains"

   
8.0

papazaide (taken for less than 1 month) July 29, 2016

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For Epilepsy: "I now suffer from excessive tiredness and lack of energy and I am consulting my GP about an alternative treatment."

   
8.0

Ted Q July 21, 2016

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Keppra (levetiracetam) for Seizures: "I havery epilepsy since I was a baby. I take Lamictal and Keppra. Last year I had a grand mal seizure. Went to the hospital and everything. I saw my neurologist and she put me on Lamictal XR and Keppra XR. Ever since then I'm having a lot of side effects. I have atleast 10 of them from both Lamictal and Keppra. Having problems from both. My neurologist does not care about the side effects. I'm scared to go outside a lot. I'm moody every day, sleep during the day, insomnia, diarrhea, constipation, etc, it is annoying. I want to be off of thsee pills and want a better life. I rather take something else."

   
2.0

Sam415 (taken for 10 years or more) July 2, 2016

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Keppra (levetiracetam) for Seizures: "All depends on the individual I actually found that Keppra made my seizures WORSE. I started taking Keppra and was fine for 2 years with no side affects, no seizures, nothing, then 1 day I had a massive grand Mal seizure the doctors keep upping my dose. Now I am on the maximum dose but still having seizures. Before I took Keppra I had only a few fits in my life now I have them about once every couple of weeks."

   
5.0

Susannaeleven June 23, 2016

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Keppra (levetiracetam) for Epilepsy: "This medication has been an on and off solution. It used to cause a lot of keppra rage. but am on another medication that are for seizures that also help with my anger bouts."

   
8.0

Dhani (taken for 10 years or more) June 2, 2016

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