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User Reviews for Oxcarbazepine to treat Trigeminal Neuralgia

Also known as: Trileptal, Oxtellar XR

Oxcarbazepine has an average rating of 8.1 out of 10 from a total of 48 ratings for the treatment of Trigeminal Neuralgia. 77% of reviewers reported a positive effect, while 13% reported a negative effect.

Oxcarbazepine Rating Summary

8.1/10 average rating

48 ratings from 60 user reviews.

Compare all 11 medications used in the treatment of Trigeminal Neuralgia.

10
44%
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10%
8
23%
7
6%
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4%
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0%
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6%
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Reviews for Oxcarbazepine

JessMess August 6, 2013

Trileptal (oxcarbazepine): “I have MS and experienced a severe relapse and spent a week in the hospital with chronic face pain. After determining it was Trigeminal neuralgia, my neurologist and I spent several weeks trying numerous treatments. Trileptal was the only one that gave me not only immediate relief, but I haven't had any face pain for months now!”

10 / 10
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Josiesue67 · Taken for 1 to 6 months October 26, 2016

“This medicine was heaven sent! At first I wasn't sure I was going to be able to tolerate it but after a few weeks it got in my system and leveled out it was fine my pain from TN is completely gone I'm taking 600 mg at night. With no side effects:) With this medication and my father God! I'm doing good:) don't give up on this med give it time to work! Hope this helps :)”

10 / 10
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Esta · Taken for 1 to 6 months March 18, 2021

“I was diagnosed with TN in January. Started out on very low dose and frequency . Doctor gradually increased because it wasn't working . I was about to give up but finally am taking a total of 900 mg/day and it's working! I was about to schedule Gamma Knife Procedure before it kicked in. I do get very sleepy in the daytime and am tired, but probably tired from the pain that wore me out !!!! Hang in there if you are just starting on this med”

8 / 10
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76 Triumph July 26, 2014

“My girlfriend has been on oxcarbazepine for about 8 months and she has been hospitalized for low sodium three times before they figured out that oxcarbazepine was causing it. This is a very serious condition. I'm glad it works for some people but be careful. It worked for her except for the side effects, unfortunately.”

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thats me · Taken for less than 1 month January 22, 2021

“Was diagnosed 2 months ago with TN, started on Carbamazepine which did help but also gave me terrible side effects, switched to Oxcarbazepine few weeks ago, started with 75 mg twice daily which had no effect, upped to 150mg twice daily which keeps the excruciating pain off but at the same time still very painful, now doctor sending for other testing to rule out other possibilities, hope pain will end soon, wish you all a healthy and easy future!”

3 / 10
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Jami · Taken for 2 to 5 years May 4, 2021

“I have phobia when it comes to meds but suffering with trigeminal neuralgia made me get over it! I prayed and asked the Lord for some relief & the Dr. gave me this prescription. Tried this med at 300mg hardly no side effects just a little drowsy but as I continued taking it I could handle it. Helps the pain a lot! One key to take away or decrease side effects is drink a lot of water after your dose!”

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Thankful everyday · Taken for 5 to 10 years July 31, 2013

“I have been on this drug for 7 years. It is the only medication that works for the intense pain. I am on a very strong dose. 1200 mg 3 x daily and even taking this dose I still have some break through pain (spring and fall). The only side effect I dont like is getting tired. However, I would rather that than the pain.”

10 / 10
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mtnclimber10 · Taken for 1 to 6 months August 7, 2012

Trileptal (oxcarbazepine): “Stopped the incapacitating seizures. Side effects are bothersome but not as awful as the seizures: Sugar-sweet taste of all food, fatigue, occasional nausea, memory issues, sight issues, balance problems.”

8 / 10
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Anonymous · Taken for less than 1 month April 20, 2019

“Been diagnosed with Trigeminal Neuralgia (TN) since October 2108 and have tried 4 types of meds. I had really bad reactions with all of them and also didn't reduce the pain. Now I am taking 150mg Trileptal with 100 mg Gabapentin both of them in morning and bedtime. The pain has reduced to a manageable level like 3 out of 10. Am thankful for that and I hope it will continue like that!!! I started going back to work and also enjoy life with friends!!!”

10 / 10
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Herbie24 · Taken for 2 to 5 years August 19, 2019

“I have had Trigeminal neuralgia now for 4 years and have had great success with Oxtellar XR. If your insurance will pay for this drug you will be very wise to try it. At first it made It made me a little sleepy and dizzy after a while I was ok. It has kept me pain free. Great drug, I take 1200 MG.”

10 / 10
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Glad and painfree · Taken for less than 1 month August 3, 2013

“I was taking Tegretol for about 2 years and it suddenly stopped working. The pain was insane and uncontrollable. My neurologist prescribed Oxstellar XR, but it was too expensive so he gave me samples of Trileptal and it worked extremely well. He then prescribed oxcarbazepine which was less expensive, it is a life saver. I'm probably taking too great of a dose but it's out of paranoia of the pain. Looking to have the surgery in case the medicines stop working.”

10 / 10
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Gardenqueen · Taken for 1 to 2 years December 16, 2020

“I am 65 and was diagnosed with TN (Trigeminal Neuralgia) in July 2019. Symptoms included intense needle pain/stabbing in my upper right lip and it was painful to brush teeth, talk, eat, etc. I would even cry when eating sometimes, it was unbearable. I started on Oxcarbazepine- 150 mg, 4 pills daily. I could feel relief after a few days. After 16 months on the medication, the pain has gradually returned and the doctor has increased the dosage to 6 pills today. Hopefully, this will help. I am to take for 5 days and if it doesn't help, I will call doctor back and possibly start on something else.”

9 / 10
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Pancakes75 October 1, 2010

Trileptal (oxcarbazepine): “This medicine has been a LIFESAVER for me, because quite frankly, facial nerve pain can drive a person over the edge. It can be very good for those suffering from Trigeminal Neuralgia. I give this medicine a A . Thank You ”

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Annoymous1976 February 14, 2018

“Diagnosed with Trigeminal Neuralgia in 2011 after 2 root canals and 2 crowns. A new dentist sent me to an oral surgeon who knew what it was right away. Saw a neurologist and he confirmed the diagnosis and prescribed oxcarbazepine. It took a number of weeks to ramp up the meds to the correct level due to nausea. Currently taking 900mg at night. Really makes me feel loopy and drowsy. I have been pain free for most of the past 6 years. I also play trumpet daily, which amazes my neurologist. However, I feel I am not as sharp as I used to be (just turned 60) and have memory problems to the point of literally not recalling details of recent things. (Long term memory is fine.) There are also times during the day that I feel very sleepy.”

8 / 10
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jaal56 February 9, 2016

“Diagnosed May 2015 - left side typical TGN. Didnt want to take Tegretol because of the side effects so tried Gabapentin with minimal effect even on 2700mg pd. After 7 months of daily agony I finally changed to Trileptal. Took two weeks to kick in properly but have been pain free for the last 6 weeks. Have come off the Gabapentin (hideous) and am now working up the courage to come off the trileptal to see if its gone into remission. The MRI I had has identified the offending blood vessels but I really want to avoid surgery if I can. Medication is expensive but I have had very few side effects - I'll take that over pain any day of the week!”

9 / 10
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Xboater · Taken for 10 years or more May 29, 2012

Trileptal (oxcarbazepine): “I have been taking 1200mg daily for a number of years and there are times when I'm pain free and times when I'm not pain free. Interestingly enough the pain is usually worse in the morning, and if I ignore it as best I can, it subsides. But it often comes back later in the day and around bedtime.”

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Caroline · Taken for less than 1 month October 12, 2020

“58 yr old with MS I've had symptoms of TN for a year, was diagnosed 3 months ago. First tried carbamazepine which took away the pain by caused brain fog and increased weakness. Oxcarbazepine at 75 mg (slow release) a day took away pain with no side effects. Just two weeks in it's effectiveness is diminishing. Now get pain while eating, touching face etc. Will up dosage as I'm at a super low level. This would have been at 10 review, but now unsure if it will continue to work.”

8 / 10
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in pain. · Taken for 10 years or more January 7, 2016

“I have had trigeminal neuralgia for 14 years. The condition is debilitating. If you have the condition you know exactly what I mean. I take 1200mg 3 times a day. Which is a lot! I have side effects such as tiredness, blurred vision, forgetfulness, weight gain, trouble walking because of double vision etc... AND there is still break through pain. However, I would rather be tired and forgetful than have the lighting shock pain 24/7. I think it saved my life in a way.”

8 / 10
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Happy in NY September 29, 2011

“This has helped me tremendously. No face pain at all having Trigeminal Disorder. The pain can make you crazy. No pain pills helped at all. Take 450 mg every night and go right to sleep. Slept in a chair for 6 weeks keeping my head up and not being able to lay down in my bed to sleep. Cried every night with pain. Feel a little drowsy, fatigued and weakness some days but I'd rather deal with that instead of the pain. It's been two months now and I feel so much better. Good luck to all.”

10 / 10
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Melissa C. February 4, 2016

“Life changing and I would not quit taking this unless I was forced to. I tried the tegretol and it was too severe for me. I have been on oxcarbazepine for 6 weeks now and it has almost stifled my trigeminal neuralgia episodes to where I can function now. It does have its side effects and I am often confused for the first few hours of taking my medication which is 150 milligrams 2 times per day. I'm glad we are starting out on a low dose As I am down to 102 pounds. I am also taking 3200 milligrams of gabapentin. This combination has worked for me. My last episode of trigeminal neuralgia was in September 2015 and it lasted for 34 days. That was it for me. I'm so glad for this medication to be available to me. There is a trade off though.”

10 / 10
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Betty88 · Taken for less than 1 month March 9, 2013

“Been in pain for three years with headaches and trigeminal neuraligia, and taking Tegretol with not much relief. Just switched to Oxcarbazepine, and it is like I am a new person. No pain. I'm thrilled. Hoping the relief lasts, unlike my experience with Tegretol where it worked in the beginning and then it had no effect at all. Thankful to my new doc for prescribing this for me!!!!!”

10 / 10
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Jenny Knoxville · Taken for less than 1 month September 8, 2015

“I have been on this medicine for 5 days and it has absolutely turned my life around...literally. I was trying Tegretol and it worked for my Trigeminal/Occipital neuralgia but made me off balance, slur my words even on a low dose. The doctor gave me this based on those debilitating side effects and I have almost no side effects so far and almost no pain! So hoping it will continue to work like this!”

10 / 10
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Jod123 September 25, 2011

Trileptal (oxcarbazepine): “I use it for Trigeminal neuralgia and it is working great! I was first prescribed Tegretol and it worked for about a year but then the pain started to return. Doc said the Tegretol was being metabolized at a faster rate and she switched me to Trileptal. It worked in about 8 hours! And, as others have noted, you do struggle for words and have a bit of short-term memory impairment, but the pain is gone! Also, so is your libido! Tegretol was like taking Viagra, increased libido! But, it's still a better life without the pain.”

10 / 10
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Em May 3, 2020

“87 yr old. I've had TN for about 5 years now, gone through multiple drugs (gabapentin, baclofin, lyrica, and oxcarbazepine) and surgeries. As far as drugs go I feel oxcarbazepine has helped the most. It took some time for my body to get over the nausea but eventually became used to it. Just take nausea medication to help while your body gets used to it. The fatigue, dizziness, and lack of thought process is improving as I've slowly reduce the meds.”

9 / 10
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Tago April 7, 2015

“41 yr old female have TN associated with MS. Had the gamma procedure 3 years ago and it worked wonders. However it's back. As I sit here today tears pouring down my face because it hurt to cry. I'm on lyrica oxtellar and Percocet. Problem is it hurt me to swallow anything including these pills. Has anyone had that problem. I haven't eaten or had anything to drink for two days...assuming if it doesn't go subside soon I'll need to be hospitalize just to get hydrated. The pain is out of control. Like an electric drill on the side of my face. Please help”

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This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare professionals.

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