Oxcarbazepine for Trigeminal Neuralgia User Reviews (Page 3)

• Anonymous
• July 14, 2021

"I was given this medication for the possibility of nerve pain. At first, I was diagnosed 150 mg twice a day, which equals 300 mg. However, after 2 days, that didn't work for me at all. Then I was directed to 300 mg twice a day, which worked for about a week. Afterwards, and currently, my pain specialist upped my dose to 750 mg. He's telling me that after 5 days, with no improvement, he will increase it to 900 mg. I swear, being in pain sucks, but this is some good medication. I hope this helps."

• Han...
• Taken for 1 to 6 months
• January 18, 2025

"My neurologist gave me Tegretol for ten years. I also have MS. Then it stopped working, I was at 1200 mg. Then, after three months of pain, she switched me to oxcarbazepine, which worked after being on 1200 mg for 2 weeks. Then I only had problems for two weeks after the dentist had to refill a tooth. Nerve got excited and had to calm back down. But my neurologist told me this would be my last try at medications. The only side effects I get are after an hour or two, my eyes become hard to focus, and if I am fatigued, walking becomes off and unbalanced."

• Rav...
• Taken for 1 to 6 months
• September 1, 2023

"In 2006, my Trigeminal-Neuralgia came on. I was told by a neurologist to take Tegretol. I let it go until 2008 when the pain became very long and intense. I took Tegretol 1200 mg until 2022. In 2023, I was put on Oxcarbazepine because no other medication would work. It took a week to start working at 1200 mg, and now I'm on 1275 mg. This is my last chance for medication. My neurologist told me I would have to have surgical help next. So far, so good! Thank you, Lord. This is a real blessing, despite some side effects. My eyes get some disturbance, and my balance is definitely affected. Sometimes, it takes 1/2 hour later, or 1 hour later, or 2 hours later to find my chair. I rely on this medication in my daily life."

• App...
• Taken for 6 months to 1 year
• January 19, 2024

"I also have TN. This is the most miserable condition known to man. I started on this drug about 7 months ago at 600 mg twice a day. There was some relief but had to add another drug for 85% control. I get extremely tired. I feel as if I am losing muscle strength. Still, I will continue this combination until the next recheck."

• Anonymous
• Taken for 1 to 6 months
• August 25, 2023

"It decreases my constant pain due to atypical trigeminal neuralgia. I am on treatment for TN for about four months and find it so effective, and I am able to do my day-to-day activities without any disturbances."

• ork...
• March 12, 2013

Oxcarbazepine "I have had Trigeminal Neuralgia for 20 years. There has been only one doctor that hit it on the nose. Trileptal is a great medicine."

• Anonymous
• Taken for less than 1 month
• August 18, 2012

Oxcarbazepine "It worked very well; however, it lowered my blood sodium, which can be dangerous, so I had to stop taking it."

• Anonymous
• April 29, 2009

Oxcarbazepine "It's great for trigeminal neuralgia pain. Aside from forgetting words and not being able to spell and weakness, the side effects are not too terrible. It is MUCH better than the TN pain."

• The...
• Taken for less than 1 month
• April 26, 2020

"I’m on 1200 mg oxcarbazepine currently. My TN is under control. I am extremely dizzy and sleepy."

• Anonymous
• December 5, 2012

"Today is my first day taking Trileptal for trigeminal neuralgia, and I have taken every medicine under the sun for pain relief, and so far nothing. So fingers crossed this is the one."

• All...
• April 3, 2018

"Been on this medication for 2 weeks now. Was excited about pain relief until headaches started, and I broke out in a rash on my face and upper body."

• JCT...
• August 10, 2009

"I am taking the maximum dosage for trigeminal neuralgia, and I have seen no change at all."

• azi...
• November 6, 2020

"Reduce bouts of pain and improve mood. Also, before oxcarbazepine, I smoked a lot, and after starting it, my smoking rate decreased, not sure why."

• No...
• Taken for less than 1 month
• November 18, 2022

"Upon taking oxcarbazepine for trigeminal neuralgia (TN), I noticed that it never gave me any relief. Dosage was increased, and still no relief. I feel it was a waste of time to keep taking it."

• Sto...
• Taken for 6 months to 1 year
• September 27, 2020

"These don't take the pain down compared to Tegretol."

• Anonymous
• Taken for less than 1 month
• July 2, 2017

"Anyone have a lot of sneezing and itching while on Trileptal."

• Sun...
• Taken for 1 to 6 months
• January 30, 2021

"I had COVID 12 weeks ago and have been on oxcarbazepine meds for 8 weeks for the resulting trigeminal neuralgia. I have had hoarseness the whole time. Is this from the neuralgia meds or COVID-19?"

• Kar...
• Taken for less than 1 month
• August 27, 2023

"I started taking oxcarbazepine for TN and am now at 1200 mg daily, which prevents the shocks, but I'm having these weird 'zingers' to my left cheek and eye. Does this happen to anyone else?"