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User Reviews for Hydroxychloroquine

Also known as: Plaquenil, Quineprox

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Hydroxychloroquine.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Lyme Disease, Arthritis 4 reviews 35 medications
   
9.7
Dermatomyositis 4 reviews 15 medications
   
9.0
Systemic Lupus Erythematosus 38 reviews 97 medications
   
7.9
Sjogren's Syndrome 29 reviews 5 medications
   
7.3
Rheumatoid Arthritis 70 reviews 344 medications
   
6.7
Undifferentiated Con...e Tissue Disease 15 reviews 2 medications
   
6.4
Summary of Hydroxychloroquine reviews 160 reviews 7.8

Reviews for Hydroxychloroquine

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For Rheumatoid Arthritis: "I am a 54yr old female, just diagnosed with RA two months ago. I also suffer from fibromyalgia. Started taking Placquenil exactly one month ago, along with Lyrica. Had only been taking the Placquenil for two weeks when I had a severe reaction , dizziness, abdominal pain nausea and vomiting. Was hospitalized for 4 days and am still recovering from drug induced vertigo. This is week three of vertigo, I can't drive or work and have no benefits. I was hopeful this drug might help me, now my future is uncertain cause I can't work and have no income. Its Thursday and tomorrow my mortgage and other bills are due and here I am literally spinning out of control."

   
2.0

Kilworthygirl (taken for less than 1 month) April 14, 2017

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Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis: "Love this drug, compared to the others. I am 55 now, and first took it 30 years ago. My RA then came on lightening fast, nodules and all. I went from totally normal to almost wheel chair in weeks. The weight of a bed sheet on my toes was too much. Two plaquenil a day and 2400 mg of ibuprofen a day ( that's 12 regular dose!) and I went into total remission. Of course my stomach is crap now. After 25 years of remission, the RA returned. Different now that I'm older (55), more subtle. Chose plaquenil again, and working wonders, but for my permanent damage. Get your eyes checked, a must. Some hair will fall out, but hey, I'm glad I still have some to fall out. WEIRD dreams. Irritability. Will lose weight! TAKE WITH FOOD to avoid cramps."

RichEsq April 13, 2017

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For Systemic Lupus Erythematosus: "I am back, I wrote previously. I wanted to give an update. I stopped taking the twice a day hydroxychloroquine after taking them 6 yrs to see if my hair would start growing back. Well after 30 days there was no change to my hair situation. Come to find out I have alopecia. Although my scalp is healthy I am praying my hair will eventually grow back. I am back on the hydroxychloroquine due to me having bad chest pains/heart burn. I guess the pills were also helping in other areas in my body fight off lupus ailments. So once the drugs kicked back in after 2 weeks my chest pains are gone and I no longer have to take antacids. Be care if you stop taking them. Trying viviscal and biotin. I will update again."

C-HereC (taken for 1 to 6 months) April 13, 2017

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Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis: "I've been on Plaquenil for over 3 months now. It works wonderfully! I combine my treatment with Curcumin & Magnesium baths and I feel like a new woman :-) Side effects I experienced: Nausea & dizziness for the first week or two (I found I needed to take it after a full meal to prevent the nausea). I have also noticed since starting the Plaquenil I seem to sweat profusely. It's annoying, but the benefits far outweigh this little problem. I just wear my gym gear about now... which I did mostly beforehand anyhow :-) Also, it take take a couple months for the Plaquenil to kick in & for me to feel the effects! Don't give up, just give it some time."

   
7.0

KittensAussiePrincess March 26, 2017

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For Systemic Lupus Erythematosus: "I started taking this drug in 2015 when I was diagnosed with SLE. It did wonders! For my pain and stiffness and inflammation in my joints. It also slightly helped the rash I developed on my face. About three months after starting use I noticed that I was losing an amazing amount of hair. I don't with this for about a month thinking that it would just go away that it was a change of my hormones or something of the like but that was not the case. The hair loss continued until I had lost about 45% of my hair. I went off at this drug in December 2015 it is now May 2017 and I have finally gotten most of my hair back to the length I can be happy with."

   
5.0

Anonymous (taken for 1 to 6 months) March 24, 2017

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For Systemic Lupus Erythematosus: "I was diagnosed with SLE lupus in 2011, my lupus is mild and has remained mild. My only ailments are inflammation of my joints, mainly my right hand fingers and my left foot baby toe. I have been taking the Hydroxychloroquine 200mg Tab twice a day. I have not found any change to my pain from taking this drug. I was given pain meds for the inflammation that helps after two weeks of taking them. I noticed my hair breaking off the past 3 yrs after taking the drug, prior to taking it my hair was growing very well and doing good. I went to a dermatologist who said my scalp was healthy and gave me shampoo for the itchy scalp and desoximetasone ointment usp 0.05%. Could this low dose of Hydroxychloroquine cause my hair loss?"

   
3.0

C-here C March 7, 2017

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Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis: "I began taking Plaquenil for RA 1 month ago. Despite information from my doctor that it would be at least 3 months before I see an appreciable effect, I am feeling better than I have in the last year. Prior to Plaquenil, I tried Mobic & Medrol, both with limited improvement. But over the last few weeks I have been able to play basketball with my son again, move without thinking or a 'warm up period', return to the gym, begin Pilates & I've lost 12 pounds! I did have some GI upset over the last month, but nothing I would consider stopping this medication for. I am able to enjoy things again & live life without discomfort."

   
9.0

Kat019 (taken for 1 to 6 months) March 3, 2017

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Plaquenil (hydroxychloroquine) for Sjogren's Syndrome: "This was not the answer for me, I developed a bad rash and itching over my entire body and now my ears ring and that will never go away. Just from taking it for under a month."

   
1.0

Stacey333 February 10, 2017

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For Rheumatoid Arthritis: "I have been on plaquenil for almost 3 years now. Along with RA, I also have Fibro Lupus and Scleraderma. I tried Methotrexate and it made me very sick so RA doctor said to just take the plaquenil. Since being on the med I have a very hard time staying well. What I mean is I catch every virus, cold, flu coming and going. I have now been sick since Thanksgiving and just recently was told that I have pneumonia. I thought that if I took myself off I the plaquenil that my immune system might somehow perk up and be better. Well I have been off of the plaquenil for almost 2 weeks now and good Lord was that a mistake. I had forgotten how bad I hurt before the plaquenil...I am back on it now and have no plans to stop taking it again."

   
8.0

Ta2edjesusfreak (taken for 2 to 5 years) January 29, 2017

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For Rheumatoid Arthritis: "I was taking it for about 10 days or so. All pains went away in three days completely. I was very happy. But then after a week I got bad rash on my chest, neck, back and then face. I called the doctor and he immediately cancelled it. I am very upset because I felt so well under this medication."

   
9.0

Irinadev (taken for less than 1 month) January 21, 2017

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Plaquenil (hydroxychloroquine) for Systemic Lupus Erythematosus: "I was eventually diagnosed with SLE in 2012, 3 months after my first (& worst) flare. I took prednisone for a week, & started taking 200mg plaquenil & 2400mg ibuprofen daily, & 50-150mg tramadol as needed for pain. In my experience, the prednisone helped to reduce the excruciating, debilitating joint pain by calming the inflammation, & plaqenil & ibuprofen keep it at bay...for the most part. My rheumatologist took me off plaquenil 2 years ago; I still take 400 mg of ibuprofen 2X/week. I still get flares once or twice a year, but they are not as bad...6, as opposed to a 10 , on the pain scale. Tinnitus started a few weeks after I started plaquenil & I still have it. It's vastly annoying, but at least it doesn't hurt! best of luck to all!"

   
7.0

emily towson (taken for 2 to 5 years) January 7, 2017

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For Rheumatoid Arthritis: "A wonder-drug to me when I first took it. Almost all the pain in hand joints stopped within a week - after 10-15 years of continuous pain which I had just ignored, but couldn't now face going back to. I'm still almost entirely pain-free in the joints - just a shadow of it in the evening when I'm tired. I do have side-effects though. Terrible constipation and trapped wind, getting worse at present and making me feel sore inside. Also headaches and irritability in the evening, though these are worth putting up with for the increased clarity of thought in the daytime. The 'horrible' feeling someone talked of - I had just a week of it. Like another body, full of pain, just behind the new one. alternating like an alternating current..."

   
7.0

alyth (taken for 1 to 6 months) January 5, 2017

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For Undifferentiated Connective Tissue Disease: "I am 54 years old and female. I have taken Plaquenil only 10 days. Immediately on taking it my joints have felt like they have a burning sensation. I am tired and I ache more than I ever have. I am depressed and don't want to go anywhere because I hurt. The reason I went to the doctor was because I have tendinitis in more than one place, ankles, hip, knee and wrist. I felt better without this medicine. I have been reading it takes a few months to let it kick in. I have been in really good shape but since I started this I just lay around and hurt and feel depressed. I am afraid of eye damage and hair loss. I have had the potential for glaucoma for 15 years now because of my high eye pressure."

   
2.0

One who aches December 18, 2016

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Plaquenil (hydroxychloroquine) for Undifferentiated Connective Tissue Disease: "I took this for undiagnosed non specific mixed connective tissue myalgia type issues and it made the roof of my mouth and teeth ache. I stopped and the ache went away. I restarted and the ache came back after a couple of days. Went like this back and forth and it was definitely the medicine. Also I started to feel worse while taking it. It could be that the weather is getting colder and that always makes me feel worse. but we decided I couldn't tolerate an increase in dosage which was what would have been next on the treatment plan so we moved on to something else. Still searching."

   
3.0

Baco77 (taken for 1 to 6 months) December 11, 2016

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For Undifferentiated Connective Tissue Disease: "Plaquenil changed my life. 90% improvement after about a month of 400mg daily. Without this med, I only function at 10% with several flares per year. With this med, I'm lucky enough to now have 0-1 flares per year. Thank you, rheumy, for saving my life. Side effects are all GI related for the first few weeks to a month, but are no longer a problem after your body adjusts to the med. I also grew my hair back quickly & fully within a year of starting Plaquenil. It is FANTASTIC for fatigue & pain. I am sick much less often than prior to starting Plaquenil (hydroxychloroquine is the generic name.)"

   
10

Cursed-80 (taken for 2 to 5 years) November 30, 2016

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For Systemic Lupus Erythematosus: "Plaquenil changed my life. 90% improvement after about a month of 400mg daily. Without this med, I only function at 10% with several flares per year. With this med, I'm lucky enough to now have 0-1 flares per year. Thank you, rheumy, for saving my life. Side effects are all GI related for the first few weeks to a month, but are no longer a problem after your body adjusts to the med. I also grew my hair back quickly & fully within a year of starting Plaquenil. It is FANTASTIC for fatigue & pain. I am sick much less often than prior to starting Plaquenil (hydroxychloroquine is the generic name.)"

   
10

Cursed-80 (taken for 2 to 5 years) November 30, 2016

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For Rheumatoid Arthritis: "The first time I took Hydroxychloroquine is last year in March. I was swelling and after taking the drug 200 mg for a few days, my swelling subsided and I was feeling normal again. I found it best to take after lunch but had to take it everyday. I did try to skip a day or two a few months after that but I can see and feel the swelling come back. After that, I try not to skip taking the drug. I was only able to stop taking this medication last August of this year, when I was determined to be happy and accomplish in what I wanted to learn. I accomplished that and went on without the drug until end of October (2 months). I gave up hope learning that topic and feel RA coming back now. I will try not to give up that topic so can stop taking drug"

   
8.0

Khev (taken for 6 months to 1 year) November 3, 2016

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For Sjogren's Syndrome: "I have sjogrens and subcutaneous lupus, i took this drug 10 years ago no side effects but really no effect, i tried it again 10 years later huge difference and not in a good way, severe nausea and dry heaves, no energy could stay in bed all day, complete weakness , now that I've gone off of it 4 days ago still extreme nausea , I've lost 35 pounds, and was told by pharmacist 2 months to no longer be nauseated. The other immune drugs have scary side effects almost worth waiting for a flare and dealing with steroids then the side effects of the immune suppressants and plaquinel name brand and generic not worth the constant feeling of vomiting there has to be something that works without major life threatening side effects."

   
1.0

Lala lana (taken for 1 to 2 years) October 25, 2016

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For Rheumatoid Arthritis: "I have Sjogren's and RA, put on Hydroxy 400mg a day. I been on them for 3 months and don't notice any difference at all. I do have intense Tinnitus which is now getting almost unbearable. At first I had stomach pains but Omeprazole helps this and also I now have terrible constipation. I don't rate this drug very well at all and am coming off it and will try natural methods to help my symptoms."

   
2.0

Scyl October 1, 2016

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For Rheumatoid Arthritis: "Better than the biologics or methotrexate that caused my lungs to burn up. However, after 7 years of 200 mg b.i.d. I think the time has come to quit this too, I have been experiencing nausea and liver pain for the last few weeks and just recently vomiting and hives followed by four hours of dry heaves. My liver (under and just beneath my right rib cage feels painful and swollen). The biologics are nasty too and my internist said 10 years is max on them as they are know to cause kidney/liver failure in his experience (42 years as an internist). I am not sure where to go from here. This is an awful disease. Diagnosed at 48. Only thing I know to keep the pain at bay is get up and move and don't stop until it's time for bed."

   
6.0

LisaStuDais September 19, 2016

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For Rheumatoid Arthritis: "I was diagnosed with JRA at the age of 2, lead a completely normal life until about 2+ years ago, went to see an RA doctor and she put me on plaquenil about 18 months ago. At first it was a amazing, zero side effects and everything was great. For the past 3 months my symptoms have gone worse. In fact I am having pain that I have never had before including joint popping and feeling as though my hip is going to give out sometimes when I walk. I see my doctor next week so hoping for something new. I have never taken any RA meds at all until now and now I feel like I am 90 years old and I am old 48. Exhausted and tired of being in pain."

   
7.0

LaraP September 15, 2016

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Plaquenil (hydroxychloroquine) for Sjogren's Syndrome: "I have been on Plaquenil for several years , first the generic Plaqenil has no coating to protect your stomach lining. If you have side affects first try brand . I know Dr. s Say there is no difference ."But" composition of the drug may not affect the effectiveness of drug but it will affect the way it is absorbed in your system. Which will affect your side affects."

   
2.0

Babycakes1949 (taken for 5 to 10 years) September 9, 2016

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Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis: "I've been on this drug since 2003. Before meds, I was so sick with RA symptoms. Spent 19 hours a day in bed, couldn't dress or bath myself. Seldom ate. Doctor put me on 200 mg. plaquenil twice daily and 10 mg. prednisone and I got my life back. I've since drop prednisone and am down to 200 mg. once daily plaquenil. About to go on the generic form of plaquenil. A little concerned. Is the quality the same? My specialist said no. RA drugs are so scary. I've had friends die on biologics--and some go blind. My advice as geezergirl. When you find out what works for you, hold on tight to it."

   
10

geezergirl September 5, 2016

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For Systemic Lupus Erythematosus: "I had been on Plaquenil for nearly 30 years for lupus. So long that I didn't remember any side effects. I saw my rheumatologist recently and he said that he felt that I was in remission so I decided to come off of it for awhile. Within a week or so I noticed that I had a new dimple in my cheek, then within the next week the shape of my face changed and the "apple" cheeks that I had assumed for all these years was from lupus, disappeared. I have lost about 10 lbs since I went off a month ago and no longer have ringing in my ears or crippling vertigo. I do have a lot more pain and swelling but I will never go back on this drug. I am so thankful that I chose to try to go without it."

   
8.0

Beeline (taken for 10 years or more) August 27, 2016

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For Rheumatoid Arthritis: "Plaquenil was the first RA medication I was put on. It did not go well. I was on it for a total of 3.5 weeks, and during that time I have never been so sick in my life. The nausea got worse the longer I was on it. I developed severe vomiting at about two weeks on it. I was debilitatingly exhausted all the time. I lost over 10 pounds in the this short time because I couldn't eat and was getting so violently ill. It also gave me a horrible headache that lasted from day 1 until my rheumatologist discontinued it. After I stopped taking it, the side effects cleared up in about a week. Now that I am off it, I CAN tell it was helping the RA pain and swelling however the side effects were just too much for me."

   
4.0

GCav (taken for less than 1 month) August 23, 2016

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