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User Reviews for Hydroxychloroquine

Also known as: Plaquenil, Quineprox

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Hydroxychloroquine.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Lyme Disease, Arthritis 4 reviews 35 medications
   
9.7
Dermatomyositis 4 reviews 15 medications
   
9.0
Systemic Lupus Erythematosus 40 reviews 97 medications
   
8.0
Sjogren's Syndrome 29 reviews 5 medications
   
7.3
Rheumatoid Arthritis 72 reviews 346 medications
   
6.7
Undifferentiated Con...e Tissue Disease 20 reviews 2 medications
   
6.2
Summary of Hydroxychloroquine reviews 169 reviews 7.8

Reviews for Hydroxychloroquine

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For Undifferentiated Connective Tissue Disease: "Been on it for 10 years. Flares are minimal. I take prednisone also and since not supposed to take other NSAIDs or aspirin with that I stick to my pain med and muscle relaxer only. Took a few years to realize I needed the full dosage and to stay consistent. Plaquenil generic saved my life and got me out of the bed. I have multiple autoimmune diagnosis, Lupus, undifferentiated multiconnetive tissue disorder, crest, scleraderma, dermatomyositis, sjogrens, hashimoto dz (which is Leukocytic thyroiditis) fibromyalgia, chronic fatigue, migraines, and so many more. I have controlled pain much better with very low carb diet keeping weight down, staying away from gluten refined sugar or any type of aspartame. If I eat breads or sugar I hurt worse"

Shaluwhitla (taken for 10 years or more) September 4, 2017

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Plaquenil (hydroxychloroquine) for Systemic Lupus Erythematosus: "I've been taking this medicine for 4 days. I have not experienced any negative side effects yet. No nausea or jittery feelings like others I've read about. Since starting this medicine I've noticed I've slept like a rock. No waking up at all and no problems falling asleep. I just felt I should share this observation since I was terrified to start after reading all these horror stories. Not everyone is negatively affected."

   
10

ShellyBeans333 (taken for less than 1 month) September 3, 2017

5 users found this comment helpful.

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Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis: "I am still trying to figure out what this drug is suppose to do cause I still get the soreness in the joints and the swelling especially in the shoulders and hands some nites its hard to sleep unless I take something for the pain in both"

spunkies (taken for 1 to 6 months) August 27, 2017

1 users found this comment helpful.

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Plaquenil (hydroxychloroquine) for Systemic Lupus Erythematosus: "I'm in Australia , only just started this medication a week ago but I feel a less fatigued already. I was stuck in bed most days, but now I can go longer without needing to go to bed or feeling like I'm going to collapse. I haven't noticed any bad side effects yet either which is good! As I get nauseated and dizzy on meds easily and haven't found that to be the case! I just wanted to point out that some people hear a lot of bad things that aren't necessarily reported or true. Like I noticed a woman on here said she needs to stop taking it because of the tinnitus side effect means she might go deaf. But deafness hasn't been reported, just tinnitus as a side effect whilst taking it. Don't be so afraid if it's going to give u your life back"

   
8.0

Cass888 (taken for less than 1 month) August 27, 2017

4 users found this comment helpful.

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Plaquenil (hydroxychloroquine) for Undifferentiated Connective Tissue Disease: "I took this medication for only 3 weeks for Mixed Connective Tissue Disease. (Diagnosed 15 years ago, medication free for the last 11years). My only active symptom at the time was Raynaud's. I really did not want to take any medication, and felt that improving my lifestyle/keeping warm was worth a try, but my (new) rheumatologist pushed it and said he would discharge me if I didn't take it. All my other tests (lung function, heart scan, bloods) were fine. What a mistake. It did not help my Raynaud's, but did cause huge hives from my neck to my ankle. My last dose was May 25th, it is now August 9th and these unsightly hives continue to come and go. With such a long half life (up to 50 days) it will take over 18 months to fully eliminate it"

   
1.0

LucyDJ (taken for less than 1 month) August 9, 2017

4 users found this comment helpful.

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For Undifferentiated Connective Tissue Disease: "When taking this medicine, in the first week I had stomach pains and severe ringing in the ears. It also makes me feel exhausted."

   
5.0

Myami (taken for 6 months to 1 year) June 30, 2017

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For Undifferentiated Connective Tissue Disease: "This medication has given me a normal life for the past 11 years. How do I know? I was just recently taken off the drug and have become even sicker than before I was diagnosed. My quality of life went from an 8 to a 2 in just a couple of months. I highly recommend this medication. It has truly been a miracle pill for me. I'm back on it and waiting the 3-4 months it takes to work (at least that's how long it took the first time). I have a great opthamologist who has assured me he will catch retinal damage before I will ever notice a change in my vision, so as far as I'm concerned, I want to stay on Plaquenil until I'm forced off it."

   
10

SeattleStacie (taken for 10 years or more) June 20, 2017

6 users found this comment helpful.

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For Undifferentiated Connective Tissue Disease: "I've been on Plaquenil since March 2017 for recent diag of Mixed Connective Tissue Disease. Prior to that 13 yrs of seeing specialists for body aches, total body inflammation/swelling, joint pain, & stiffness - majority in neck/shoulders/entire back. Body aches increased often after eating. Very painful headaches during the day & at night headlights of other cars were unbearable. Days just stuck in bed. One day of Plaquenil changed my life - it gave me more energy, eliminated the headaches, subsided inflammation/swelling, nearly non-existent pain! Three months later still going strong. But being in the sun does bring the pain back. Otherwise, did not experience any adverse effects many mention."

Vitamin D June 16, 2017

3 users found this comment helpful.

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Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis: "Haven't taken this. Just wanted to read some feedback. I was on methotrexate, but stopped, because it gave me chills, fatigue and shortness of breath, I even fainted at work. The doctor suggested Plaquenil as a possible alternative, but after reading some of the comments, I don't think so. This is really frustrating and sad. The FDA should NOT be approving these crappy drugs which can cause worse problems than the one you have. I honestly don't know what to do, let the RA turn me into a cripple or take my chances with one of these death drugs?"

Darkchief99 June 6, 2017

15 users found this comment helpful.

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For Rheumatoid Arthritis: "I am a 54yr old female, just diagnosed with RA two months ago. I also suffer from fibromyalgia. Started taking Placquenil exactly one month ago, along with Lyrica. Had only been taking the Placquenil for two weeks when I had a severe reaction , dizziness, abdominal pain nausea and vomiting. Was hospitalized for 4 days and am still recovering from drug induced vertigo. This is week three of vertigo, I can't drive or work and have no benefits. I was hopeful this drug might help me, now my future is uncertain cause I can't work and have no income. Its Thursday and tomorrow my mortgage and other bills are due and here I am literally spinning out of control."

   
2.0

Kilworthygirl (taken for less than 1 month) April 14, 2017

9 users found this comment helpful.

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Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis: "Love this drug, compared to the others. I am 55 now, and first took it 30 years ago. My RA then came on lightening fast, nodules and all. I went from totally normal to almost wheel chair in weeks. The weight of a bed sheet on my toes was too much. Two plaquenil a day and 2400 mg of ibuprofen a day ( that's 12 regular dose!) and I went into total remission. Of course my stomach is crap now. After 25 years of remission, the RA returned. Different now that I'm older (55), more subtle. Chose plaquenil again, and working wonders, but for my permanent damage. Get your eyes checked, a must. Some hair will fall out, but hey, I'm glad I still have some to fall out. WEIRD dreams. Irritability. Will lose weight! TAKE WITH FOOD to avoid cramps."

RichEsq April 13, 2017

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For Systemic Lupus Erythematosus: "I am back, I wrote previously. I wanted to give an update. I stopped taking the twice a day hydroxychloroquine after taking them 6 yrs to see if my hair would start growing back. Well after 30 days there was no change to my hair situation. Come to find out I have alopecia. Although my scalp is healthy I am praying my hair will eventually grow back. I am back on the hydroxychloroquine due to me having bad chest pains/heart burn. I guess the pills were also helping in other areas in my body fight off lupus ailments. So once the drugs kicked back in after 2 weeks my chest pains are gone and I no longer have to take antacids. Be care if you stop taking them. Trying viviscal and biotin. I will update again."

C-HereC (taken for 1 to 6 months) April 13, 2017

6 users found this comment helpful.

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Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis: "I've been on Plaquenil for over 3 months now. It works wonderfully! I combine my treatment with Curcumin & Magnesium baths and I feel like a new woman :-) Side effects I experienced: Nausea & dizziness for the first week or two (I found I needed to take it after a full meal to prevent the nausea). I have also noticed since starting the Plaquenil I seem to sweat profusely. It's annoying, but the benefits far outweigh this little problem. I just wear my gym gear about now... which I did mostly beforehand anyhow :-) Also, it take take a couple months for the Plaquenil to kick in & for me to feel the effects! Don't give up, just give it some time."

   
7.0

KittensAussiePrincess March 26, 2017

40 users found this comment helpful.

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For Systemic Lupus Erythematosus: "I started taking this drug in 2015 when I was diagnosed with SLE. It did wonders! For my pain and stiffness and inflammation in my joints. It also slightly helped the rash I developed on my face. About three months after starting use I noticed that I was losing an amazing amount of hair. I don't with this for about a month thinking that it would just go away that it was a change of my hormones or something of the like but that was not the case. The hair loss continued until I had lost about 45% of my hair. I went off at this drug in December 2015 it is now May 2017 and I have finally gotten most of my hair back to the length I can be happy with."

   
5.0

Anonymous (taken for 1 to 6 months) March 24, 2017

8 users found this comment helpful.

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For Systemic Lupus Erythematosus: "I was diagnosed with SLE lupus in 2011, my lupus is mild and has remained mild. My only ailments are inflammation of my joints, mainly my right hand fingers and my left foot baby toe. I have been taking the Hydroxychloroquine 200mg Tab twice a day. I have not found any change to my pain from taking this drug. I was given pain meds for the inflammation that helps after two weeks of taking them. I noticed my hair breaking off the past 3 yrs after taking the drug, prior to taking it my hair was growing very well and doing good. I went to a dermatologist who said my scalp was healthy and gave me shampoo for the itchy scalp and desoximetasone ointment usp 0.05%. Could this low dose of Hydroxychloroquine cause my hair loss?"

   
3.0

C-here C March 7, 2017

4 users found this comment helpful.

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Plaquenil (hydroxychloroquine) for Rheumatoid Arthritis: "I began taking Plaquenil for RA 1 month ago. Despite information from my doctor that it would be at least 3 months before I see an appreciable effect, I am feeling better than I have in the last year. Prior to Plaquenil, I tried Mobic & Medrol, both with limited improvement. But over the last few weeks I have been able to play basketball with my son again, move without thinking or a 'warm up period', return to the gym, begin Pilates & I've lost 12 pounds! I did have some GI upset over the last month, but nothing I would consider stopping this medication for. I am able to enjoy things again & live life without discomfort."

   
9.0

Kat019 (taken for 1 to 6 months) March 3, 2017

53 users found this comment helpful.

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Plaquenil (hydroxychloroquine) for Sjogren's Syndrome: "This was not the answer for me, I developed a bad rash and itching over my entire body and now my ears ring and that will never go away. Just from taking it for under a month."

   
1.0

Stacey333 February 10, 2017

21 users found this comment helpful.

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For Rheumatoid Arthritis: "I have been on plaquenil for almost 3 years now. Along with RA, I also have Fibro Lupus and Scleraderma. I tried Methotrexate and it made me very sick so RA doctor said to just take the plaquenil. Since being on the med I have a very hard time staying well. What I mean is I catch every virus, cold, flu coming and going. I have now been sick since Thanksgiving and just recently was told that I have pneumonia. I thought that if I took myself off I the plaquenil that my immune system might somehow perk up and be better. Well I have been off of the plaquenil for almost 2 weeks now and good Lord was that a mistake. I had forgotten how bad I hurt before the plaquenil...I am back on it now and have no plans to stop taking it again."

   
8.0

Ta2edjesusfreak (taken for 2 to 5 years) January 29, 2017

16 users found this comment helpful.

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For Rheumatoid Arthritis: "I was taking it for about 10 days or so. All pains went away in three days completely. I was very happy. But then after a week I got bad rash on my chest, neck, back and then face. I called the doctor and he immediately cancelled it. I am very upset because I felt so well under this medication."

   
9.0

Irinadev (taken for less than 1 month) January 21, 2017

9 users found this comment helpful.

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Plaquenil (hydroxychloroquine) for Systemic Lupus Erythematosus: "I was eventually diagnosed with SLE in 2012, 3 months after my first (& worst) flare. I took prednisone for a week, & started taking 200mg plaquenil & 2400mg ibuprofen daily, & 50-150mg tramadol as needed for pain. In my experience, the prednisone helped to reduce the excruciating, debilitating joint pain by calming the inflammation, & plaqenil & ibuprofen keep it at bay...for the most part. My rheumatologist took me off plaquenil 2 years ago; I still take 400 mg of ibuprofen 2X/week. I still get flares once or twice a year, but they are not as bad...6, as opposed to a 10 , on the pain scale. Tinnitus started a few weeks after I started plaquenil & I still have it. It's vastly annoying, but at least it doesn't hurt! best of luck to all!"

   
7.0

emily towson (taken for 2 to 5 years) January 7, 2017

14 users found this comment helpful.

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For Rheumatoid Arthritis: "A wonder-drug to me when I first took it. Almost all the pain in hand joints stopped within a week - after 10-15 years of continuous pain which I had just ignored, but couldn't now face going back to. I'm still almost entirely pain-free in the joints - just a shadow of it in the evening when I'm tired. I do have side-effects though. Terrible constipation and trapped wind, getting worse at present and making me feel sore inside. Also headaches and irritability in the evening, though these are worth putting up with for the increased clarity of thought in the daytime. The 'horrible' feeling someone talked of - I had just a week of it. Like another body, full of pain, just behind the new one. alternating like an alternating current..."

   
7.0

alyth (taken for 1 to 6 months) January 5, 2017

9 users found this comment helpful.

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For Undifferentiated Connective Tissue Disease: "I am 54 years old and female. I have taken Plaquenil only 10 days. Immediately on taking it my joints have felt like they have a burning sensation. I am tired and I ache more than I ever have. I am depressed and don't want to go anywhere because I hurt. The reason I went to the doctor was because I have tendinitis in more than one place, ankles, hip, knee and wrist. I felt better without this medicine. I have been reading it takes a few months to let it kick in. I have been in really good shape but since I started this I just lay around and hurt and feel depressed. I am afraid of eye damage and hair loss. I have had the potential for glaucoma for 15 years now because of my high eye pressure."

   
2.0

One who aches December 18, 2016

4 users found this comment helpful.

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Plaquenil (hydroxychloroquine) for Undifferentiated Connective Tissue Disease: "I took this for undiagnosed non specific mixed connective tissue myalgia type issues and it made the roof of my mouth and teeth ache. I stopped and the ache went away. I restarted and the ache came back after a couple of days. Went like this back and forth and it was definitely the medicine. Also I started to feel worse while taking it. It could be that the weather is getting colder and that always makes me feel worse. but we decided I couldn't tolerate an increase in dosage which was what would have been next on the treatment plan so we moved on to something else. Still searching."

   
3.0

Baco77 (taken for 1 to 6 months) December 11, 2016

3 users found this comment helpful.

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For Undifferentiated Connective Tissue Disease: "Plaquenil changed my life. 90% improvement after about a month of 400mg daily. Without this med, I only function at 10% with several flares per year. With this med, I'm lucky enough to now have 0-1 flares per year. Thank you, rheumy, for saving my life. Side effects are all GI related for the first few weeks to a month, but are no longer a problem after your body adjusts to the med. I also grew my hair back quickly & fully within a year of starting Plaquenil. It is FANTASTIC for fatigue & pain. I am sick much less often than prior to starting Plaquenil (hydroxychloroquine is the generic name.)"

   
10

Cursed-80 (taken for 2 to 5 years) November 30, 2016

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For Systemic Lupus Erythematosus: "Plaquenil changed my life. 90% improvement after about a month of 400mg daily. Without this med, I only function at 10% with several flares per year. With this med, I'm lucky enough to now have 0-1 flares per year. Thank you, rheumy, for saving my life. Side effects are all GI related for the first few weeks to a month, but are no longer a problem after your body adjusts to the med. I also grew my hair back quickly & fully within a year of starting Plaquenil. It is FANTASTIC for fatigue & pain. I am sick much less often than prior to starting Plaquenil (hydroxychloroquine is the generic name.)"

   
10

Cursed-80 (taken for 2 to 5 years) November 30, 2016

14 users found this comment helpful.

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