Hydroxychloroquine for Dermatomyositis User Reviews

• Jus...
• November 18, 2009

Hydroxychloroquine "The drug Plaquenil was used faithfully for three months for the treatment of sarcoidosis. My scalp was oozing, flaking, and overwhelmed with hyperpigmented lesions. The hair was approximately 1/4 inch in length due to the severity of the outbreak. My scalp has healed and the hair is now 6 inches long. The Plaquenil allowed my scalp to resume normal hair growth."

• caj...
• Taken for less than 1 month
• October 18, 2018

Hydroxychloroquine "I have dermatomyositis and have been taking Prednisone and Plaquenil. At first, the combo was helping with the muscle pain and rash. After 2 weeks on the Plaquenil, I got a sunburn itchy rash all over my body. I also have bruise-like spots where the old rash was."

• Lou...
• January 28, 2014

Hydroxychloroquine "I have dermatomyositis. Plaquenil, along with quinicrine, treated my hand lesions, which were very painful. This took about a year to accomplish. It's been about a year and a half now, and I'm starting to react to one or both of the medications. I have a rash all over my body, and ulcers and lichen planus in my mouth. I'm seeing my doctor shortly to see about this."

• Lis...
• Taken for 1 to 6 months
• February 22, 2019

"I started using Plaquenil for the first few months after being diagnosed with dermatomyositis. Then I went to Johns Hopkins Myositis Center. They told me they do not usually start on Plaquenil but skip straight to azathioprine. Did not see any improvement on Plaquenil, which is also their experience with most of their patients. Glad I switched meds because my CK levels went from 1300 to 300 in a few months."

• RJD...
• Taken for 1 to 6 months
• October 1, 2017

"The medication cleared the continued rash on my arms, however, the side effects were not worth it. My dermatologist prescribed this medication to be taken 2x daily, 200 mg. Initially, I had few side effects, however, after taking it for about 6 weeks, the problems began. I initially started having blurry vision and basically was night blind. Other side effects included hip and back pain and nervousness. I initially had no idea what was going on, but kind of a fluke, I decided to check the three prescriptions I was on to see adverse side effects. Wow, when I read the one for this medication, it was like I was describing my issues. I wish my doctor or the pharmacist would have warned me more about the side effects."

• Fly...
• October 31, 2015

"Overall good. No side effects. Have been taking drug for about 3 years. Have not had a recurrent attack. Weight settled down at 100 pounds. Also have insulin-dependent type 2 diabetes. Was 20-30 lbs overweight all my life. I have good muscle control, but can no longer lift a 50# bag of anything. 25-30# is my new limit. It's a new me, and I'm good with that."

• Ang...
• November 25, 2008

Hydroxychloroquine "I've been taking Plaquenil since May 2008 for dermatomyositis and rheumatoid arthritis. It's been great! It helped greatly with the fatigue. Highly recommended."

• Ano...
• Taken for less than 1 month
• November 14, 2020

Hydroxychloroquine "I took Plaquenil for dermatomyositis, and it caused me to have pain and rash all over my body. Other than that, it didn’t help me."