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User Reviews for Orencia

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Condition Avg. Ratings Reviews Compare
Juvenile Idiopathic Arthritis
2 reviews 13 medications
Rheumatoid Arthritis
37 reviews 354 medications
Summary of Orencia reviews 5.9 39 reviews

Reviews for Orencia

Orencia is poison · Taken for 1 to 6 months May 15, 2019

For Rheumatoid Arthritis "I am a 49 year old male. I was diagnosed with RA in 1997. I was on Humira for 10 years, which helped greatly but the side effects began showing so I was forced to stop. I was off all RA meds for a couple of years and my condition began deteriorating again. I went on Orencia IV drip. I began showing almost all of the side effects listed about a month after my first dose. It was slowly poisoning me. I was sick all the time and showing severe symptoms; Exhaustion, night sweats, back pain, migraines for 8 days straight, diarrhea, nausea and a level of discomfort I've never felt. It's an awful medicine with crippling side effects. It is important to note that the side effects were worse than the RA itself and my condition is moderate to severe. My suggestion is to avoid this medication at all cost. I was put on a anti nausea pill that is used for chemo patients. If you do some research you will find that 25% of the people on Orencia have a bad experience."

Julie · Taken for 1 to 6 months March 20, 2019

For Rheumatoid Arthritis "I have ever been on abatacept and after 13 weeks it hasn't had any effect. I was on rituximab with no result either, am I a lost cause? So doctors are taking me off it and tackling pain control with patches, has anyone else had failures"

Robky · Taken for 1 to 2 years February 5, 2019

For Rheumatoid Arthritis "This medication made sense to me. Why not try something that will block the entire inflammatory cascade over just one inflammatory protein like TNFa ? All other Meds ( 5 others) were fails for me due to either no response or a severe reaction... Orencia was the answer to my prayers ... For me , it did take about 6 months to see elimination of joint inflammation... and about 9 months for Full effect of this drug. My advice is to be patient with these medications and just hang in there ...eventually, you will hit the right drug for you . I have my life back now. So grateful."

banker · Taken for 1 to 6 months November 11, 2018

For Rheumatoid Arthritis "Could only tolerate 4 infusions over a 2 month period. Managed the extreme fatigue, but the canker sores (mouth ulcers) were debilitating. Nothing I tried helped from 2 docs, (Rheumatologist and Dentist) 2 pharmacists. Difficulty talking, eating and sleeping. At the worst stage, I had terrible ear pain (ear aches), PCP said my ears were "congested" and always on the side of 6 - 8 canker sores on my tongue. Do not know next steps. Doc does not believe canker sores are caused by Orencia......never had anything like this in my life."

Dorothy · Taken for 2 to 5 years October 18, 2018

For Rheumatoid Arthritis "The first biologic I was put on was Enbrel and within 4 weeks, I was experiencing liver failure! So I went back on my oral meds for 2 more years. My new Rheumatologist prescribed Orencia and I have been on it for 3 years. It has given me back my freedom! I have had RA for 18 years and nothing worked this well!"

Helen · Taken for 2 to 5 years October 10, 2018

For Rheumatoid Arthritis "I took this medication for 2 years! 2 years my Rheumatologist forced me to stay on this nothing medication with obvious continuous flare, and damage. I think 1 good year of giving a medication a go is sufficient, but this useless Rheumatologist refused to try something else. In the hands have obvious irreversible damage, swollen, hurt, and I require pain pills to survive. This medication is useless."

S October 10, 2018

For Rheumatoid Arthritis "This medication has worked spectacularly well for me. I used to be on a cocktail including Humira, MTX, steroids and NSAIDS. I changed my diet and tried to go au natural for a few worked for a while, but in my stubbornness, I experienced some joint damage. So I was highly inflamed when I started the Orencia. My rheumy and I picked this med because while on Humira, I was sick more than I was well. Orencia has the reputation for causing less illness. After five months, my inflammation has significantly decreased and I haven't had even a sniffle. That said, any medication has a higher potential to work for you if you are eating an anti-inflammatory diet and making sure you are not vitamin/mineral deficient. Try an elimination diet so you can truly know what foods bother you. Most people aren't in tune enough with their bodies to know when a food is making their joints worse. An elimination diet is key to getting in touch with your body and its response to food."

Chichi · Taken for 2 to 5 years June 28, 2018

For Rheumatoid Arthritis "I am scared to quit Orencia and am getting no benefit from it....what a waste"

Trish · Taken for 5 to 10 years May 22, 2018

For Rheumatoid Arthritis "Been on Orencia 8 years. Started with infusions, switched to injections. Have not seen any improvement, but Dr. insists it's working because my inflammation markers are normal. My orthopedic doesn't agree though, because he continues to see more joint damage every time I see him. And if my inflammation markers are normal, why is there pain and swelling every day?"

Anne · Taken for 6 months to 1 year April 25, 2018

For Rheumatoid Arthritis "Orencia worked a little maybe taking the pain down from 8 to 6 but it did not get rid of the sacroiliac joint (SI) joint pain I had ever, so I went on to try another medicine from my rheumatologist."

17cherry · Taken for 1 to 6 months February 27, 2018

For Rheumatoid Arthritis "It made me extremely nauseous."

Barb B · Taken for 6 months to 1 year February 9, 2018

For Rheumatoid Arthritis "I had had success with Actemra, but at the 11 month mark, I had a heart attack and an upper GI bleed, both believed to be caused by the Actemra. So, we changed to Orencia, primarily because it has a lower incidence of side effects. It did take 5-1/2 months for the Orencia to start working, but it is now working well, and I feel like it continues to improve. I do take it in combination with methotrexate. I have not had any side effects. I am very pleased by how much Orencia has helped me."

Jd7 · Taken for 1 to 6 months November 19, 2017

For Rheumatoid Arthritis "Unfortunately Orencia did not work for me. I waited six months to see if it would work. It did nothing for me, but at least I didn’t have any side effects from it. I wish they could come up with a test to figure out what medication will work for who. It’s terrible wasting time waiting for something that may never happen."

Aassoorr October 16, 2017

For Rheumatoid Arthritis "I had the worse experience with this Orencia medicine. I kept waiting for the six months that they said it takes to work. In the process, I got worse than ever . It not only didn't work but made me worse. I was so mad that I waited so long in vain. I will never try another medication that supposedly take that long to work."

ShellyMoe · Taken for 2 to 5 years September 29, 2017

For Rheumatoid Arthritis "I have been on Orencia for 3.5 years and diagnosed 4 years ago. I am so thankful that I responded so well to this medication. Orencia was the first medication and hopefully, the last. Since my first infusion, in 2013, and the symptoms were finally being held at bay, I have not had any issues to date. I, whole heartily, 100% recommend Orecina. It saved my life and gave me my life back. I hope it'll do the same for you."

Keatonsmm · Taken for 1 to 6 months June 20, 2017

For Rheumatoid Arthritis "I've been doing the infusion for three months now. It hasn't improved any of my symptoms at all. Day of infusion I get severe low back/hip pain & I'm exhausted. The two days following I sleep a lot & feel awful."

KatAb May 29, 2017

For Rheumatoid Arthritis "After rashes, pain, nausea, and elevated liver enzymes on Remicade, then Humira, the doc switched me to Orencia. Felt very tired the evening of the loading dose, but not ill. Now I feel better than I have felt in 4 years! LOVE this stuff!"

5teph · Taken for 6 months to 1 year March 9, 2017

For Rheumatoid Arthritis "LIFE CHANGING - I have tried many of your typical RA drugs since being diagnosed at 22 (Plaquenil, Methylprednisolone for 5 years ) "

cadetmom · Taken for 6 months to 1 year February 17, 2017

For Juvenile Idiopathic Arthritis "I loved it til I had my first reaction after 8 months using it . my life has improved."

Christy B September 24, 2016

For Rheumatoid Arthritis "I was diagnosed with severe ra in 2009 with Sjögren's, Raynauds and Fibro. I've tried Methotrexate, Sulfazine, Prednisone, Embrel, Humira and Remicade. I became allergic to all of the biological then the others stopped working. Orencia saved me. I react positively within 2 days of my self injection. I can take breaks, sometimes months off, and it does not effect how the drug works for me. I can now run a mile, ride horses for hours, swim and roller skate again. I'm 47 and I look 35 thanks to this miracle drug. I'm so happy to have my strength and mobility back!"

Northern girl · Taken for 1 to 2 years May 5, 2016

For Rheumatoid Arthritis "Gave this drug a ten a few months ago but after just over a year it has stopped working. Now trying roactemra"

A Rose · Taken for less than 1 month April 18, 2016

For Rheumatoid Arthritis "Diagnosed 3years ago with RA in all major joints except right hip which is severe Osteoarthritis,I take Plaquenil & have tried Methotrexate, Gabapentin, Meloxicam, Arava had major side effects with each one. My Dr. decided to try a biologic. My first self injection of Enbrel caused an anaphylactic reaction almost killing me. I now carry an epi pen. I was scared but hopeful that Orencia would work. The first injection I litterally kept the Epi Pen in my hand. 2 hours after the first dose all 10 fingers turned a very dark blue-black color, as did my feet. My legs were a solid grey-blue color. 2nd injection same thing. Orencia was stopped. 2 months later I am still blue. NEVER AGAIN!!!"

Jegerdy April 10, 2016

For Rheumatoid Arthritis "Prednisone, plaquenil, mobic, sulfasalisine and arava weren't keeping my pain at bay and I was so tired, stiff and sore that I was struggling at work. My Dr Jenny decided to try orencia by self injection weekly and after a month I started to feel better and my inflammation levels started to go down. I am now off the plaquenil and prednisone and working an 8 hr day 3 days a week gardening and landscaping. I hope it continues, it saved my work life."

Mild to severe RA · Taken for 2 to 5 years February 25, 2016

For Rheumatoid Arthritis "Been on weekly injections since Nov 2011. Have had no side effects, no flare ups, no joint swelling or pain. Totally keeping my RA at bay. My insurance and Orencia co-pay covered the total expense but now since my insurance changed January 2016, they will not cover it and insist I try Humira. I cannot take methotrexate (kidney issues). I am terrified they'd rather let me die due to cost than give me what has worked for over 4 yrs! My doctor believes totally in Orencia & so do i! I think it's the BEST out there!"

Jowinner · Taken for 2 to 5 years February 12, 2016

For Rheumatoid Arthritis "My RA attacked my lungs, turning my lung tissue into scar tissue, which does not expand. My first pulmonologist gave me five years. Then I changed Dr. And my rheumatologist & pulmonologist put their heads together, after I had 3 bad reactions to drugs, and decided to put me on Orencia infusions. I have been on it for 2 & 1/2 years. My lung damage has stopped. My lungs are not healing, but they are no longer getting worse. The rest of my body isn't receiving much relief, but I am thrilled about my lungs! If they are not getting worse, that means my 5 years is no longer counting down. Thank you Orencia! And my insurance covers my infusion clinic bill in full. I am still on oxygen 24/7 at a rate of 4 liters, which I have been on since 2012."


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