Orencia and Mouth Sores: What Users Say

• ban...
• Taken for 1 to 6 months
• November 11, 2018

For Rheumatoid Arthritis "Could only tolerate 4 infusions over a 2-month period. Managed the extreme fatigue, but the canker sores (mouth ulcers) were debilitating. Nothing I tried helped from 2 docs (Rheumatologist and Dentist), 2 pharmacists. Difficulty talking, eating, and sleeping. At the worst stage, I had terrible ear pain (earaches). PCP said my ears were 'congested' and always on the side of 6 - 8 canker sores on my tongue. Do not know the next steps. Doc does not believe canker sores are caused by Orencia... never had anything like this in my life."

• ban...
• Taken for 1 to 6 months
• November 11, 2018

For Rheumatoid Arthritis "Could only tolerate 4 infusions over a 2-month period. Managed the extreme fatigue, but the canker sores (mouth ulcers) were debilitating. Nothing I tried helped from 2 docs (Rheumatologist and Dentist), 2 pharmacists. Difficulty talking, eating, and sleeping. At the worst stage, I had terrible ear pain (earaches). PCP said my ears were 'congested' and always on the side of 6 - 8 canker sores on my tongue. Do not know the next steps. Doc does not believe canker sores are caused by Orencia... never had anything like this in my life."

• Dhj...
• Taken for 1 to 6 months
• December 7, 2022

For Rheumatoid Arthritis "I, too, have developed skin rashes and canker sores after six months of IV Orencia. I have requested a break to see if these are side effects. During the first treatments, I was feeling better with no flares but then began getting rashes and the canker sores. I have been through the mill looking for answers, and Thursday I have an appointment with a skin and cancer doctor. I am not sure what is my answer, but living with RA or the side effects is a toss-up, as both are debilitating."