User Reviews for Plaquenil
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Plaquenil.
|Lyme Disease, Arthritis||3 reviews||35 medications|
|Dermatomyositis||3 reviews||15 medications|
|Systemic Lupus Erythematosus||20 reviews||97 medications|
|Sjogren's Syndrome||18 reviews||5 medications|
|Rheumatoid Arthritis||37 reviews||345 medications|
|Undifferentiated Con...e Tissue Disease||9 reviews||2 medications|
|Summary of Plaquenil reviews||90 reviews||7.4|
Reviews for Plaquenil
For Undifferentiated Connective Tissue Disease "I took this medication for only 3 weeks for Mixed Connective Tissue Disease. (Diagnosed 15 years ago, medication free for the last 11years). My only active symptom at the time was Raynaud's. I really did not want to take any medication, and felt that improving my lifestyle/keeping warm was worth a try, but my (new) rheumatologist pushed it and said he would discharge me if I didn't take it. All my other tests (lung function, heart scan, bloods) were fine. What a mistake. It did not help my Raynaud's, but did cause huge hives from my neck to my ankle. My last dose was May 25th, it is now August 9th and these unsightly hives continue to come and go. With such a long half life (up to 50 days) it will take over 18 months to fully eliminate it"
LucyDJ (taken for less than 1 month) August 9, 2017
0 users found this comment helpful.
For Rheumatoid Arthritis "Haven't taken this. Just wanted to read some feedback. I was on methotrexate, but stopped, because it gave me chills, fatigue and shortness of breath, I even fainted at work. The doctor suggested Plaquenil as a possible alternative, but after reading some of the comments, I don't think so. This is really frustrating and sad. The FDA should NOT be approving these crappy drugs which can cause worse problems than the one you have. I honestly don't know what to do, let the RA turn me into a cripple or take my chances with one of these death drugs?"
Darkchief99 June 6, 2017
9 users found this comment helpful.
For Rheumatoid Arthritis "Love this drug, compared to the others. I am 55 now, and first took it 30 years ago. My RA then came on lightening fast, nodules and all. I went from totally normal to almost wheel chair in weeks. The weight of a bed sheet on my toes was too much. Two plaquenil a day and 2400 mg of ibuprofen a day ( that's 12 regular dose!) and I went into total remission. Of course my stomach is crap now. After 25 years of remission, the RA returned. Different now that I'm older (55), more subtle. Chose plaquenil again, and working wonders, but for my permanent damage. Get your eyes checked, a must. Some hair will fall out, but hey, I'm glad I still have some to fall out. WEIRD dreams. Irritability. Will lose weight! TAKE WITH FOOD to avoid cramps."
RichEsq April 13, 2017
30 users found this comment helpful.
For Rheumatoid Arthritis "I've been on Plaquenil for over 3 months now. It works wonderfully! I combine my treatment with Curcumin & Magnesium baths and I feel like a new woman :-) Side effects I experienced: Nausea & dizziness for the first week or two (I found I needed to take it after a full meal to prevent the nausea). I have also noticed since starting the Plaquenil I seem to sweat profusely. It's annoying, but the benefits far outweigh this little problem. I just wear my gym gear about now... which I did mostly beforehand anyhow :-) Also, it take take a couple months for the Plaquenil to kick in & for me to feel the effects! Don't give up, just give it some time."
KittensAussiePrincess March 26, 2017
37 users found this comment helpful.
For Rheumatoid Arthritis "I began taking Plaquenil for RA 1 month ago. Despite information from my doctor that it would be at least 3 months before I see an appreciable effect, I am feeling better than I have in the last year. Prior to Plaquenil, I tried Mobic & Medrol, both with limited improvement. But over the last few weeks I have been able to play basketball with my son again, move without thinking or a 'warm up period', return to the gym, begin Pilates & I've lost 12 pounds! I did have some GI upset over the last month, but nothing I would consider stopping this medication for. I am able to enjoy things again & live life without discomfort."
Kat019 (taken for 1 to 6 months) March 3, 2017
49 users found this comment helpful.
For Sjogren's Syndrome "This was not the answer for me, I developed a bad rash and itching over my entire body and now my ears ring and that will never go away. Just from taking it for under a month."
Stacey333 February 10, 2017
21 users found this comment helpful.
For Systemic Lupus Erythematosus "I was eventually diagnosed with SLE in 2012, 3 months after my first (& worst) flare. I took prednisone for a week, & started taking 200mg plaquenil & 2400mg ibuprofen daily, & 50-150mg tramadol as needed for pain. In my experience, the prednisone helped to reduce the excruciating, debilitating joint pain by calming the inflammation, & plaqenil & ibuprofen keep it at bay...for the most part. My rheumatologist took me off plaquenil 2 years ago; I still take 400 mg of ibuprofen 2X/week. I still get flares once or twice a year, but they are not as bad...6, as opposed to a 10 , on the pain scale. Tinnitus started a few weeks after I started plaquenil & I still have it. It's vastly annoying, but at least it doesn't hurt! best of luck to all!"
emily towson (taken for 2 to 5 years) January 7, 2017
13 users found this comment helpful.
For Undifferentiated Connective Tissue Disease "I took this for undiagnosed non specific mixed connective tissue myalgia type issues and it made the roof of my mouth and teeth ache. I stopped and the ache went away. I restarted and the ache came back after a couple of days. Went like this back and forth and it was definitely the medicine. Also I started to feel worse while taking it. It could be that the weather is getting colder and that always makes me feel worse. but we decided I couldn't tolerate an increase in dosage which was what would have been next on the treatment plan so we moved on to something else. Still searching."
Baco77 (taken for 1 to 6 months) December 11, 2016
3 users found this comment helpful.
For Sjogren's Syndrome "I have been on Plaquenil for several years , first the generic Plaqenil has no coating to protect your stomach lining. If you have side affects first try brand . I know Dr. s Say there is no difference ."But" composition of the drug may not affect the effectiveness of drug but it will affect the way it is absorbed in your system. Which will affect your side affects."
Babycakes1949 (taken for 5 to 10 years) September 9, 2016
21 users found this comment helpful.
For Rheumatoid Arthritis "I've been on this drug since 2003. Before meds, I was so sick with RA symptoms. Spent 19 hours a day in bed, couldn't dress or bath myself. Seldom ate. Doctor put me on 200 mg. plaquenil twice daily and 10 mg. prednisone and I got my life back. I've since drop prednisone and am down to 200 mg. once daily plaquenil. About to go on the generic form of plaquenil. A little concerned. Is the quality the same? My specialist said no. RA drugs are so scary. I've had friends die on biologics--and some go blind. My advice as geezergirl. When you find out what works for you, hold on tight to it."
geezergirl September 5, 2016
79 users found this comment helpful.
For Rheumatoid Arthritis "I started on Plaquenil for RA about two months ago so my experiences are fresh. I'm a large male at 6'2 250 pnd 30 years old. When I was diagnosed with RA I didn't know what to expect. I was quickly referred to a Rheumatologist who recommended this drug. The first three weeks I was having some side effects. Nose bleeds, ringing in my ears. But after the fourth week they just disappeared. As well as the excruciating pain in my feet, knee's and hands. It just poof like it never happened. I'm optimistic about now my third month as it has now been three months since my last flare up. It was too late for my feet, which now have permanent damage, but I can now walk and wear shoes almost perfectly normally."
Enz (taken for 1 to 6 months) July 25, 2016
69 users found this comment helpful.
For Undifferentiated Connective Tissue Disease "I did not have any adverse effects as such on starting this medication except mild skin rash, have been on it for about 4 years. Have been relatively okay but what produced a dramatic improvement was an antiinflammatory , antitoxic diet with no artificial,packaged or canned foods, no sodas etc. accompanied by yoga and especially breathing exercises pranayama dIly 30-45 minutes which produce miraculous results over time."
CharlotteA1979 (taken for 2 to 5 years) July 20, 2016
15 users found this comment helpful.
For Rheumatoid Arthritis "I have been taking plaquenil for about 4 years 200 mg twice a day . I have been having severe stomach cramps and nausea and vomiting just now realized it's the plaquenil. Because I didn't take it for 3 days because of the n/v just took it again today and got so sick had to throw up. Now realized it's the plaquenil have been to gastro dr and have done all kind of test .will not be taking this med again my Ra is nothing as bad as n/v maybe this will help some one . Don't no what I will take for this Ra pain I feel so sorry for anyone who has this Ra was not diagnosed with this untill I was 65 years old."
Anonymous June 25, 2016
55 users found this comment helpful.
For Undifferentiated Connective Tissue Disease "I was on this medication for one day when I began to gave sereve vomiting 30 minutes after taking it and stomach bloating and uncontrollable gas. By day six I called my doctor to tell him I had bilateral muscle weakness in my legs and could hardly walk a straight line without feeling like I was going to fall down. My doctor stopped the medication after six days after I began to take it when I presented with a known severe adverse side effect of this medication " muscle weakness and loss of coordination""
Anonymous March 15, 2016
24 users found this comment helpful.
For Rheumatoid Arthritis "Helped with RA It has affected my vision immensely. So much, that I stopped taking it."
pattyannhorse March 2, 2016
76 users found this comment helpful.
For Rheumatoid Arthritis "I'm a 57 year old female that has just been diagnosed with RA about 6 weeks ago. My GP gave me Arthrotech to get me through until I could see the rheumatologist The Arthrotech made me sick, for every 4 pills I took, I threw one up. Went to specialist yesterday and he gave me Plaquenil - I've only taken it for 2 days so far (400 mg) daily but I'm feeling worse ( although the weather has changed - snow storm) I can't believe how painful this disease is. Does it get any better? Will I have a pain free normal life one day soon? I don't go back to the specialist until May but I can't imagine being in this much pain until at least May. I'm feeling so sorry for myself and cry because I'm tired cry because I'm sore. When will it start working?"
Sadiemybeagle March 2, 2016
74 users found this comment helpful.
For Rheumatoid Arthritis "I'm 18 and was told I have arthritis about 10 months ago Plaquenil worked after the first couple of weeks but one major side effect is Mouth Ulcers and at times I've been in so much pain with them I couldn't eat. But then the alternative one said it could make my hair fall out (and that is not an option at my age)"
Miss Johnston (taken for 1 to 6 months) March 1, 2016
45 users found this comment helpful.
For Rheumatoid Arthritis "I'm a 30 year old mother of 2. I have been taking plaquenil for about 2 years now. Initially it helped a great deal. I'm noticing my pain levels rising and now I've developed tinnitus. I'm told that plaquenil can cause permanent deafness. So I'm going to have to seek other options. Methotrexate is not an option due to the damage to my lungs pre diagnosis. I'm honestly scared about the cancer risks of other medications but now I don't have a choice."
Sewbizmom (taken for 2 to 5 years) February 22, 2016
49 users found this comment helpful.
For Systemic Lupus Erythematosus "I had only had a mild SLE flare about 30 years ago. I had plenty of the discoid lupus symptoms, but they were easily controlled with avoiding the sun and using sunscreens,especially in the last 20 years. I developed another auto-immune problem about 15 years ago.(gluten intolerance or or possible CD.) I ate the "gluten-free" Cheerios when they hit the shelves about 6 months ago, and almost killed myself, as they were not gluten free. This touched off a SLE flare of unbelievable proportions! Practically every joint in my body was hurting SO badly,and I had fever and fatigue and did not respond to NSAIDs. Placquenil has been my lifesaver! Adhering to an anti-inflammatory diet for a month helped, also. The price-worth it."
Barb-Also (taken for 1 to 6 months) January 23, 2016
22 users found this comment helpful.
For Rheumatoid Arthritis "I have been on Plaquenil since 1996 when I was diagnosed with RA. When I was diagnosed I was in severe pain, unable to hold my infant child or drive. My rheumatologist injected me with steroids to get me immediate relief and started me on Plaquenil. I don't remember my initial dosage but I take 200mg once per day and have been in remission since 1996 and I have had no side effects that I am aware of. I have regular eye exams and periodic screenings by a retinologist and my eyes have had no issues at all."
TJT1 January 22, 2016
183 users found this comment helpful.
For Rheumatoid Arthritis "I have been on Plaquenil for two months to treat newly diagnosed RA. The duration and intensity of the flares have been reduced, but I am still suffering with aches and swelling in my small joints and elbows. I have had mild nausea and am having my eyes monitored by my optometrist."
Science Teacher (taken for 1 to 6 months) November 13, 2015
50 users found this comment helpful.
For Rheumatoid Arthritis "Started Plaquenil 8 months ago-200mg 2x/day- to treat Psoriatic arthritis and sjogrens. Learned to NOT take it in the morning with my Meloxicam 15mg because of strong nausea. If I take one after a big lunch and one after dinner, I have no problems at all. Joints and hands, wrists are doing so much better. One worry is that I am too tired to do anything at all. If I do laundry, I sweat. If I cook dinner or rake the yard, I sweat. I seem to even have trouble sleeping on my side at night because of trouble getting enough air into my lungs. Weird, I know. I rated it an 8 because I do not feel sick after taking it and it does seem to work. The last but not least worry is heavy hair loss. I have thin and fine hair anyway, but it comes out like crazy"
langteach (taken for 6 months to 1 year) October 28, 2015
91 users found this comment helpful.
For Rheumatoid Arthritis "This medication did wonders for my soreness and pain from Rheumatoid Arthritis but if someone would have told me I would have devastating and irreversible eye damage due to taking it, I would have chosen a different drug for sure (at least after the 5-7 year mark when it is known to cause major problems that will be with you for life!)"
cjgriff (taken for 10 years or more) October 27, 2015
105 users found this comment helpful.
For Systemic Lupus Erythematosus "I started this med as I have both RA and Systemic Lupus. It did nothing for me and we added Methotrexate, still no benefit. Added Enbrel, no better. My eyesight was beginning to fail so I stopped all of them. My weight ballooned up by 25lbs!! I have found no mainline meds to help and had to turn to Traditional Chinese Medicine for relief. Works great for me. I am still hoping to find something in the regular vein of meds to help and not hurt me. My insurance will not cover the help of the Traditional Chinese Medicine that is helping. What's up with that?"
CTT October 13, 2015
33 users found this comment helpful.
For Undifferentiated Connective Tissue Disease "I have been taking plaquenil for over 6 weeks to treat autoimmune hair loss. My hair and itchy scalp has not improved at all. In fact it was even worse for a few weeks. Now I'm getting sores all around my eyes with a cyst on my eyelid and an inflamed blood vessel. I called my rheumy today to ask for a switch. I'm very disappointed because it seemed like the best out of the bunch for side effects."
Amber4 (taken for 1 to 6 months) September 15, 2015
19 users found this comment helpful.
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- Drug class: antimalarial quinolines