User Reviews for Orencia to treat Rheumatoid Arthritis
Orencia has an average rating of 5.7 out of 10 from a total of 55 reviews for the treatment of Rheumatoid Arthritis. 45% of reviewers reported a positive experience, while 40% reported a negative experience.
Reviews for Orencia
"I was diagnosed with severe ra in 2009 with Sjögren's, Raynauds and Fibro. I've tried Methotrexate, Sulfazine, Prednisone, Embrel, Humira and Remicade. I became allergic to all of the biological then the others stopped working. Orencia saved me. I react positively within 2 days of my self injection. I can take breaks, sometimes months off, and it does not effect how the drug works for me. I can now run a mile, ride horses for hours, swim and roller skate again. I'm 47 and I look 35 thanks to this miracle drug. I'm so happy to have my strength and mobility back!"
"This medication has worked spectacularly well for me. I used to be on a cocktail including Humira, MTX, steroids and NSAIDS. I changed my diet and tried to go au natural for a few years...it worked for a while, but in my stubbornness, I experienced some joint damage. So I was highly inflamed when I started the Orencia. My rheumy and I picked this med because while on Humira, I was sick more than I was well. Orencia has the reputation for causing less illness. After five months, my inflammation has significantly decreased and I haven't had even a sniffle. That said, any medication has a higher potential to work for you if you are eating an anti-inflammatory diet and making sure you are not vitamin/mineral deficient. Try an elimination diet so you can truly know what foods bother you. Most people aren't in tune enough with their bodies to know when a food is making their joints worse. An elimination diet is key to getting in touch with your body and its response to food."
Frequently asked questions
"I am a 49 year old male. I was diagnosed with RA in 1997. I was on Humira for 10 years, which helped greatly but the side effects began showing so I was forced to stop. I was off all RA meds for a couple of years and my condition began deteriorating again. I went on Orencia IV drip. I began showing almost all of the side effects listed about a month after my first dose. It was slowly poisoning me. I was sick all the time and showing severe symptoms; Exhaustion, night sweats, back pain, migraines for 8 days straight, diarrhea, nausea and a level of discomfort I've never felt. It's an awful medicine with crippling side effects. It is important to note that the side effects were worse than the RA itself and my condition is moderate to severe. My suggestion is to avoid this medication at all cost. I was put on a anti nausea pill that is used for chemo patients. If you do some research you will find that 25% of the people on Orencia have a bad experience."
"The first biologic I was put on was Enbrel and within 4 weeks, I was experiencing liver failure! So I went back on my oral meds for 2 more years. My new Rheumatologist prescribed Orencia and I have been on it for 3 years. It has given me back my freedom! I have had RA for 18 years and nothing worked this well!"
Are you taking this medicine?
"Been on weekly injections since Nov 2011. Have had no side effects, no flare ups, no joint swelling or pain. Totally keeping my RA at bay. My insurance and Orencia co-pay covered the total expense but now since my insurance changed January 2016, they will not cover it and insist I try Humira. I cannot take methotrexate (kidney issues). I am terrified they'd rather let me die due to cost than give me what has worked for over 4 yrs! My doctor believes totally in Orencia & so do i! I think it's the BEST out there!"
"I have had severe rheumatoid arthritis and linked auto immune liver disease for four years. Nothing worked. I couldn't take methotrexate because of my liver. I have had steroids by the bucket load, sulfasalazine, azathrioprine, cimzia, simponi, rituximab, - nothing worked. I began orencia seven months ago and it has transformed my life. I am almost back to normal again (although anyone who has been through this will know that life will never be the same again!) and have had no unpleasant side effects. Amazing."
"This drug has been a great. Humira made me break out in a huge hot rash, and Leuflonamide (Arabs) made over half of my hair fall out and a full body rash for over 6 months with NO relief. While Arabs made my RA symptoms completely disappear, the side effects as a 35 yr old female were unacceptable. Orencia has very literally changed my life. I live in northern MN and with certain climate changes I still have minor joint stiffness, I am completely out of pain and the stiffness is 100 x’s better than what it was. I’m so very grateful for this drug."
"Was on Orencia for about 7 years. Never had any side effects. I'm now 65 and feeling younger than everyone my age. But Dr. went back home to another country and I've been off Orencia for about 6 months. I feel 10 years older because of the pain. Not only in RA joints but also where I have osteoarthritis. Also losing my grip and hand and wrist strength. Orencia was like the fountain of youth for me!"
"Prednisone, plaquenil, mobic, sulfasalisine and arava weren't keeping my pain at bay and I was so tired, stiff and sore that I was struggling at work. My Dr Jenny decided to try orencia by self injection weekly and after a month I started to feel better and my inflammation levels started to go down. I am now off the plaquenil and prednisone and working an 8 hr day 3 days a week gardening and landscaping. I hope it continues, it saved my work life."
"I have been on Orencia for 3.5 years and diagnosed 4 years ago. I am so thankful that I responded so well to this medication. Orencia was the first medication and hopefully, the last. Since my first infusion, in 2013, and the symptoms were finally being held at bay, I have not had any issues to date. I, whole heartily, 100% recommend Orecina. It saved my life and gave me my life back. I hope it'll do the same for you."
"I have had 11 Orencia injections now and have found the drug to be extremely beneficial for myself. Overall there has been a marked improvement with my rheumatoid arthritis. The infusion actually works up until the last few days and then I experience an increase in aching, swelling and pain. In comparison to all other drugs, and believe me I have tried just about all of them, this has been a 'wonder drug'. For approximately three days after having the injection, I experience extreme tiredness, but once that passes, I am able to return to work and carry out normal everyday activities; e.g housework and gardening. Prior to this medication I was unable to do general gardening. "
"Been on Orencia 8 years. Started with infusions, switched to injections. Have not seen any improvement, but Dr. insists it's working because my inflammation markers are normal. My orthopedic doesn't agree though, because he continues to see more joint damage every time I see him. And if my inflammation markers are normal, why is there pain and swelling every day?"
"Garbage! Like every biologic out there. They all suck. They all carry horrible side effects including death. Cancer, infectious, etc. I've tried just about every biologic out there including Humira, Enbrel, Cimzia...They all quit working within 6 months. I'm convinced that Orencia caused me severe food sensitivities. There's no other explanation form my severe food sensitivities. I get inflammation from a bunch of foods. Kale, spinach , nuts, beans, rice, all animal protein which is crazy. My list of foods that cause me inflammation immediately upon eating them is crazy and I didn't have that problem before starting Orencia about 7 years ago. My rheumatologist doesn't believe me. It's very frustrating. It's been 7 years since I started Orencia and my food sensitivities have gotten worse. I'm going to report it to the FDA as a side effect. I just hope they come up with a cure ASAP. Enough bandaids that cause cancer and infections..We need a cure."
"I have taken 4 doses of the weekly self injections. At first I felt awful, nauseated and flu like systems, but now I feel wonderful. I don't hurt and it even has helped the shortness of breath I would get walking up stairs. I hope it continues to help and hope I don't gain additional weight as I have done with the prednisone. I have been on prednisone for over 6 months and have gained 10-15 pounds."
"Could only tolerate 4 infusions over a 2 month period. Managed the extreme fatigue, but the canker sores (mouth ulcers) were debilitating. Nothing I tried helped from 2 docs, (Rheumatologist and Dentist) 2 pharmacists. Difficulty talking, eating and sleeping. At the worst stage, I had terrible ear pain (ear aches), PCP said my ears were "congested" and always on the side of 6 - 8 canker sores on my tongue. Do not know next steps. Doc does not believe canker sores are caused by Orencia......never had anything like this in my life."
"After rashes, pain, nausea, and elevated liver enzymes on Remicade, then Humira, the doc switched me to Orencia. Felt very tired the evening of the loading dose, but not ill. Now I feel better than I have felt in 4 years! LOVE this stuff!"
"My RA attacked my lungs, turning my lung tissue into scar tissue, which does not expand. My first pulmonologist gave me five years. Then I changed Dr. And my rheumatologist & pulmonologist put their heads together, after I had 3 bad reactions to drugs, and decided to put me on Orencia infusions. I have been on it for 2 & 1/2 years. My lung damage has stopped. My lungs are not healing, but they are no longer getting worse. The rest of my body isn't receiving much relief, but I am thrilled about my lungs! If they are not getting worse, that means my 5 years is no longer counting down. Thank you Orencia! And my insurance covers my infusion clinic bill in full. I am still on oxygen 24/7 at a rate of 4 liters, which I have been on since 2012."
"I had had success with Actemra, but at the 11 month mark, I had a heart attack and an upper GI bleed, both believed to be caused by the Actemra. So, we changed to Orencia, primarily because it has a lower incidence of side effects. It did take 5-1/2 months for the Orencia to start working, but it is now working well, and I feel like it continues to improve. I do take it in combination with methotrexate. I have not had any side effects. I am very pleased by how much Orencia has helped me."
"After the first week of using Orencia, I felt more energized. Before I would wake up feeling tired, and could barely move. I was stiff and could not go out to dinner, or to other places. Now I can enjoy my life much better, I'm not tired or stiff any more. I can do a lot more things that I wasn't able to do before."
"Worked great for 9 months. (moderate-severe with positive RA factor) Went off this for around three weeks due to a mix-up with co-pay. Now, two straight weeks of stomach rumbling and diarrhea. Probiotics, pepto-bismo nothing is helping. This is the only RA med that has worked for me, so I really hope my doctor can get me over this. I am on a copay plan through an assistance fund and they pay what Medicare/Anthem doesn't cover $1500/mth. Before Orencia I was unable to function, so I'm very thankful because it gave me some of my life back."
"In UK had this on NHS for last 7 months. Improved within the first month and after a couple of months was able to dance at my sons wedding, something I thought I would never do. Thanks to the makers, it has changed my life. I'm back at work 20 hrs a week and don't ache for most of the month. Like others I do feel washed out for 2 days post infusion but its worth it for nearly a month of good health."
"I have really bad rheumatoid arthritis that I had to get a hip replacement at 26! After having my daughter I went into a full on flare that I became crippled. Nothing was helping and I thought my life was over. But, they had me try Orencia and (although it took 3 months to kick in) it changed my life. I was finally able to carry my daughter and walk with her. I’ve been taking it for about 5 years. There are always going to be bad and good reviews. It just depends on your body."
"I switched to Orencia couple months ago. I have had 5 treatments so far. Since I switched to Orencia, I noticed that there has been significant improvement with my Rheumatoid Arthritis. I am able to sleep well again at night. I wake up not feeling tired, achy and stiff. In comparison to the other rheumatoid arthritis medications I have taken, Orencia seems to be working more for me. I am no longer sleep deprived and am able to do some chores that I have not been able to do such as opening a jar, door, etc. I experience tiredness after my treatment for one day, then up until the last few days of my next treatment, minor aches and stiffness are back. I am hoping that Orencia will the wonder drug for me and everyone."
"Unfortunately Orencia did not work for me. I waited six months to see if it would work. It did nothing for me, but at least I didn’t have any side effects from it. I wish they could come up with a test to figure out what medication will work for who. It’s terrible wasting time waiting for something that may never happen."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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"This medication made sense to me. Why not try something that will block the entire inflammatory cascade over just one inflammatory protein like TNFa ? All other Meds ( 5 others) were fails for me due to either no response or a severe reaction... Orencia was the answer to my prayers ... For me , it did take about 6 months to see elimination of joint inflammation... and about 9 months for Full effect of this drug. My advice is to be patient with these medications and just hang in there ...eventually, you will hit the right drug for you . I have my life back now. So grateful."