User Reviews for Orencia
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
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Reviews for Orencia to treat Rheumatoid Arthritis
"I was diagnosed with severe ra in 2009 with Sjögren's, Raynauds and Fibro. I've tried Methotrexate, Sulfazine, Prednisone, Embrel, Humira and Remicade. I became allergic to all of the biological then the others stopped working. Orencia saved me. I react positively within 2 days of my self injection. I can take breaks, sometimes months off, and it does not effect how the drug works for me. I can now run a mile, ride horses for hours, swim and roller skate again. I'm 47 and I look 35 thanks to this miracle drug. I'm so happy to have my strength and mobility back!"
Christy B September 24, 2016
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"Diagnosed 3years ago with RA in all major joints except right hip which is severe Osteoarthritis,I take Plaquenil & have tried Methotrexate, Gabapentin, Meloxicam, Arava had major side effects with each one. My Dr. decided to try a biologic. My first self injection of Enbrel caused an anaphylactic reaction almost killing me. I now carry an epi pen. I was scared but hopeful that Orencia would work. The first injection I litterally kept the Epi Pen in my hand. 2 hours after the first dose all 10 fingers turned a very dark blue-black color, as did my feet. My legs were a solid grey-blue color. 2nd injection same thing. Orencia was stopped. 2 months later I am still blue. NEVER AGAIN!!!"
A Rose (taken for less than 1 month) April 18, 2016
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"Prednisone, plaquenil, mobic, sulfasalisine and arava weren't keeping my pain at bay and I was so tired, stiff and sore that I was struggling at work. My Dr Jenny decided to try orencia by self injection weekly and after a month I started to feel better and my inflammation levels started to go down. I am now off the plaquenil and prednisone and working an 8 hr day 3 days a week gardening and landscaping. I hope it continues, it saved my work life."
Jegerdy April 10, 2016
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"Been on weekly injections since Nov 2011. Have had no side effects, no flare ups, no joint swelling or pain. Totally keeping my RA at bay. My insurance and Orencia co-pay covered the total expense but now since my insurance changed January 2016, they will not cover it and insist I try Humira. I cannot take methotrexate (kidney issues). I am terrified they'd rather let me die due to cost than give me what has worked for over 4 yrs! My doctor believes totally in Orencia & so do i! I think it's the BEST out there!"
Mild to severe RA (taken for 2 to 5 years) February 25, 2016
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"My RA attacked my lungs, turning my lung tissue into scar tissue, which does not expand. My first pulmonologist gave me five years. Then I changed Dr. And my rheumatologist & pulmonologist put their heads together, after I had 3 bad reactions to drugs, and decided to put me on Orencia infusions. I have been on it for 2 & 1/2 years. My lung damage has stopped. My lungs are not healing, but they are no longer getting worse. The rest of my body isn't receiving much relief, but I am thrilled about my lungs! If they are not getting worse, that means my 5 years is no longer counting down. Thank you Orencia! And my insurance covers my infusion clinic bill in full. I am still on oxygen 24/7 at a rate of 4 liters, which I have been on since 2012."
Jowinner (taken for 2 to 5 years) February 12, 2016
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"I have had severe rheumatoid arthritis and linked auto immune liver disease for four years. Nothing worked. I couldn't take methotrexate because of my liver. I have had steroids by the bucket load, sulfasalazine, azathrioprine, cimzia, simponi, rituximab, - nothing worked. I began orencia seven months ago and it has transformed my life. I am almost back to normal again (although anyone who has been through this will know that life will never be the same again!) and have had no unpleasant side effects. Amazing."
northern girl (taken for 6 months to 1 year) January 1, 2016
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"I have taken 4 doses of the weekly self injections. At first I felt awful, nauseated and flu like systems, but now I feel wonderful. I don't hurt and it even has helped the shortness of breath I would get walking up stairs. I hope it continues to help and hope I don't gain additional weight as I have done with the prednisone. I have been on prednisone for over 6 months and have gained 10-15 pounds."
jvparish (taken for less than 1 month) July 15, 2015
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"Was on Orencia for about 7 years. Never had any side effects. I'm now 65 and feeling younger than everyone my age. But Dr. went back home to another country and I've been off Orencia for about 6 months. I feel 10 years older because of the pain. Not only in RA joints but also where I have osteoarthritis. Also losing my grip and hand and wrist strength. Orencia was like the fountain of youth for me!"
Anonymous (taken for 5 to 10 years) April 23, 2015
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"Got an infusion of Orencia on a Tues for worsening RA symptoms. Wednesday, I had a severe headache that basically incapacitated me. Thursday morning, I woke up with the same headache, sensitivity to light and sound, and a stiff neck. I was unable to stand up without vomiting. ED doctor did lumbar puncture and told me I had viral meningitis. That experience has made me reluctant to try another biologic."
RA RN (taken for less than 1 month) April 11, 2015
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"I have moderate to severe RA. Diagnosed 1.5 yrs ago. Initially on Prednisone and Methotrexate; later added Remicade. Side effects were severe with fevers of "unexplained origin", night sweats, lethargy and dizziness. Swelling of hand knuckles and ankle joint unchanged. Consulting doctor at Johns Hopkins suggested Orencia plus plaquinil. I had already stopped taking the other meds. Benefit of Orencia kicked in after 4 months of infusion application. After 8 months I am now on second month of weekly self-injection. Swelling of ankle greatly reduced. Right hand knuckle swelling somewhat reduced, but still evident with accompanying stiffness. I have never experienced significant pain with RA, but MRIs show joint erosion in hands and ankle."
Nickdor March 18, 2015
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"Severe back pain and also in neck, shoulders and arms started after being on Abatacept for about 3 months. More muscular pain than bone pain. Looking to come off it as its becoming problematic. I've been on 4 other biologic medicines and this was the most effective in getting flare ups under control."
emily0201 (taken for 1 to 2 years) December 12, 2014
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"In UK had this on NHS for last 7 months. Improved within the first month and after a couple of months was able to dance at my sons wedding, something I thought I would never do. Thanks to the makers, it has changed my life. I'm back at work 20 hrs a week and don't ache for most of the month. Like others I do feel washed out for 2 days post infusion but its worth it for nearly a month of good health."
Anonymous (taken for 6 months to 1 year) May 10, 2013
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"I am on my 5th month of treatment and have seen some improvement in overall pain/discomfort, but still continue to have issues. I also have extreme fatigue the day after treatment. My doctor just increased my dose to the maximum to see if that works. I must take medication to sleep comfortably and medication to stay awake during the day. These medications interact. I supposedly have a mild case of rheumatoid arthritis and am still waiting to feel normal."
armorchick1 July 13, 2010
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"After the first week of using Orencia, I felt more energized. Before I would wake up feeling tired, and could barely move. I was stiff and could not go out to dinner, or to other places. Now I can enjoy my life much better, I'm not tired or stiff any more. I can do a lot more things that I wasn't able to do before."
kunki October 7, 2009
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"This medication has been a life saver for me. My 22 month old granddaughter and her mother live with me and my husband. It is a job keeping up with her and without Orencia I can't even walk my pain is so severe. Thank You Orencia."
Anonymous September 3, 2009
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"I switched to Orencia couple months ago. I have had 5 treatments so far. Since I switched to Orencia, I noticed that there has been significant improvement with my Rheumatoid Arthritis. I am able to sleep well again at night. I wake up not feeling tired, achy and stiff. In comparison to the other rheumatoid arthritis medications I have taken, Orencia seems to be working more for me. I am no longer sleep deprived and am able to do some chores that I have not been able to do such as opening a jar, door, etc. I experience tiredness after my treatment for one day, then up until the last few days of my next treatment, minor aches and stiffness are back. I am hoping that Orencia will the wonder drug for me and everyone."
Anonymous March 15, 2009
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"I have had 11 Orencia injections now and have found the drug to be extremely beneficial for myself. Overall there has been a marked improvement with my rheumatoid arthritis. The infusion actually works up until the last few days and then I experience an increase in aching, swelling and pain. In comparison to all other drugs, and believe me I have tried just about all of them, this has been a 'wonder drug'. For approximately three days after having the injection, I experience extreme tiredness, but once that passes, I am able to return to work and carry out normal everyday activities; e.g housework and gardening. Prior to this medication I was unable to do general gardening. "
Anonymous February 16, 2009
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