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Hydroxychloroquine for Lyme Disease, Arthritis User Reviews

Brand names: Plaquenil, Sovuna

Rating: 6.6

Hydroxychloroquine has an average rating of 6.6 out of 10 from a total of 12 reviews for the treatment of lyme disease, arthritis. 58% of reviewers reported a positive experience, while 33% reported a negative experience.

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Reviews for Hydroxychloroquine

  • Mic...
  • Taken for less than 1 month
  • December 26, 2020

"Unbelievable! I’ve suffered with Lyme Disease for several years. 2 days ago I began taking Hydroxychloroquine for treatment of Covid-19 exposure. The first morning after I had taken 400 mg, I felt fantastic! Even my neck pain was completely gone, and I felt awake and alive! How can I get HCQ to treat Lyme? What’s the proper dose and length of treatment? Feels so good! Glad I got exposed to Covid-19 (sniffles) and decided to do the HCQ treatment! Now I know it’s treating Lyme! Wow!"

10 / 10
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102 Report
  • jj1...
  • January 26, 2012

Hydroxychloroquine "I felt better than I have in 20 years! After 20 years on NSAIDs needed for Lyme arthritis, my kidneys were affected, and when I stopped NSAIDs cold turkey, it was amazing how much pain my body was in. Now a year into Plaquenil, I feel like a new person. Get eyes checked every 6 months. Had a little visual aura two days ago, don't know if from Plaquenil, but getting it checked next week. Eye doctor said it wasn't serious."

10 / 10
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156 Report
  • Jas...
  • Taken for 5 to 10 years
  • January 17, 2014

Hydroxychloroquine "Plaquenil has been great for me. It has reduced the stiffness & swelling in hands & feet to almost nothing. Started at 200mg twice a day, and have since reduced to one time per day. I have a complete eye exam once a year to watch for possible retina side effects."

9 / 10
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122 Report

Frequently asked questions

  • GoJ...
  • October 6, 2017

"I have been taking hydroxychloroquine, 100 mg for several years off and on for chronic Lyme, which cranked up arthritis soon after being bitten approximately 50 times on the first exposure. This seems to help once my body has adjusted. Often I can feel that it must be working because it will seem to bring on a Herxheimer reaction now and then, but overall, this drug has worked well for me."

6 / 10
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65 Report
  • yan...
  • Taken for 1 to 6 months
  • March 21, 2020

Hydroxychloroquine "I took this drug, Plaquenil, for a longer period and nearly lost an eye. I had to have eye surgery the day it was discovered I had multiple retinal tears. I had to be awake for 1+ hours and had a bubble in my eye for 8 weeks. I have had continuing issues with my other eye, having laser surgery for tears (also awake) numerous times. It will be a threat for the rest of my life."

1 / 10
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77 Report

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  • Jul...
  • Taken for less than 1 month
  • September 13, 2020

"I started on Plaquenil 400 a day, about 10 days ago. Mild nausea after the first dose, but no side effects since. Slept well for the first time in weeks yesterday and actually felt rested afterward for the first time in months, with pain all but completely gone. I am weaning off steroids slowly while it gets in my system. Optimistic!"

8 / 10
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30 Report
  • Sno...
  • Taken for less than 1 month
  • September 25, 2014

"I have taken hydroxychloroquine for less than a month, prescribed by my rheumatologist. As yet, I see no improvement in arthritis symptoms, but the doctor said it would take at least two months to see results. But like some of the others on this website, I am experiencing thigh pain that is unbearable by afternoon and evening. It is almost impossible to navigate stairs. I did not have this pain before taking this."

3 / 10
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54 Report
  • SMO...
  • December 21, 2023

"This med has been phenomenal for me. I have post-Lyme syndrome and I actually took this med for another reason. I took it at night and woke up the next day with much reduced joint pain and increased energy. After researching and discovered it was being used for Lyme arthritis, I began taking it daily. It has greatly increased my quality of life!"

10 / 10
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8 Report
  • dan...
  • Taken for 1 to 2 years
  • April 9, 2020

"I took hydroxychloroquine for Lyme arthritis for over a year. It completely cured me, all symptoms went away, and I have my life back to normal."

10 / 10
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124 Report
  • Anonymous
  • July 25, 2011

Hydroxychloroquine "I have Lyme disease. No side effects. Helped with the pain and tiredness associated. It helped increase the antibiotics effects. Great medicine."

10 / 10
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136 Report
  • Jan...
  • March 3, 2022

"I've been suffering for 5 years with Lyme arthritis and have been taking hydroxychloroquine for a little over 2 months with no effect. How long does it take to see results? 400 units daily."

1 / 10
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7 Report
  • Oli...
  • Taken for less than 1 month
  • December 10, 2022

"Hydroxychloroquine. Tried for 3 weeks. Minimal pain relief. Terrible insomnia. Nausea. Anxiety."

1 / 10
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3 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.