User Reviews for Hydroxychloroquine
Also known as: Plaquenil, Quineprox
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Hydroxychloroquine.
Reviews for Hydroxychloroquine to treat Systemic Lupus Erythematosus
Plaquenil (hydroxychloroquine): "I've been taking this medicine for 4 days. I have not experienced any negative side effects yet. No nausea or jittery feelings like others I've read about. Since starting this medicine I've noticed I've slept like a rock. No waking up at all and no problems falling asleep. I just felt I should share this observation since I was terrified to start after reading all these horror stories. Not everyone is negatively affected."
ShellyBeans333 (taken for less than 1 month) September 3, 2017
12 users found this comment helpful.
Plaquenil (hydroxychloroquine): "I'm in Australia , only just started this medication a week ago but I feel a less fatigued already. I was stuck in bed most days, but now I can go longer without needing to go to bed or feeling like I'm going to collapse. I haven't noticed any bad side effects yet either which is good! As I get nauseated and dizzy on meds easily and haven't found that to be the case! I just wanted to point out that some people hear a lot of bad things that aren't necessarily reported or true. Like I noticed a woman on here said she needs to stop taking it because of the tinnitus side effect means she might go deaf. But deafness hasn't been reported, just tinnitus as a side effect whilst taking it. Don't be so afraid if it's going to give u your life back"
Cass888 (taken for less than 1 month) August 27, 2017
9 users found this comment helpful.
"I am back, I wrote previously. I wanted to give an update. I stopped taking the twice a day hydroxychloroquine after taking them 6 yrs to see if my hair would start growing back. Well after 30 days there was no change to my hair situation. Come to find out I have alopecia. Although my scalp is healthy I am praying my hair will eventually grow back. I am back on the hydroxychloroquine due to me having bad chest pains/heart burn. I guess the pills were also helping in other areas in my body fight off lupus ailments. So once the drugs kicked back in after 2 weeks my chest pains are gone and I no longer have to take antacids. Be care if you stop taking them. Trying viviscal and biotin. I will update again."
C-HereC (taken for 1 to 6 months) April 13, 2017
7 users found this comment helpful.
"I started taking this drug in 2015 when I was diagnosed with SLE. It did wonders! For my pain and stiffness and inflammation in my joints. It also slightly helped the rash I developed on my face. About three months after starting use I noticed that I was losing an amazing amount of hair. I don't with this for about a month thinking that it would just go away that it was a change of my hormones or something of the like but that was not the case. The hair loss continued until I had lost about 45% of my hair. I went off at this drug in December 2015 it is now May 2017 and I have finally gotten most of my hair back to the length I can be happy with."
Anonymous (taken for 1 to 6 months) March 24, 2017
10 users found this comment helpful.
"I was diagnosed with SLE lupus in 2011, my lupus is mild and has remained mild. My only ailments are inflammation of my joints, mainly my right hand fingers and my left foot baby toe. I have been taking the Hydroxychloroquine 200mg Tab twice a day. I have not found any change to my pain from taking this drug. I was given pain meds for the inflammation that helps after two weeks of taking them. I noticed my hair breaking off the past 3 yrs after taking the drug, prior to taking it my hair was growing very well and doing good. I went to a dermatologist who said my scalp was healthy and gave me shampoo for the itchy scalp and desoximetasone ointment usp 0.05%. Could this low dose of Hydroxychloroquine cause my hair loss?"
C-here C March 7, 2017
6 users found this comment helpful.
Plaquenil (hydroxychloroquine): "I was eventually diagnosed with SLE in 2012, 3 months after my first (& worst) flare. I took prednisone for a week, & started taking 200mg plaquenil & 2400mg ibuprofen daily, & 50-150mg tramadol as needed for pain. In my experience, the prednisone helped to reduce the excruciating, debilitating joint pain by calming the inflammation, & plaqenil & ibuprofen keep it at bay...for the most part. My rheumatologist took me off plaquenil 2 years ago; I still take 400 mg of ibuprofen 2X/week. I still get flares once or twice a year, but they are not as bad...6, as opposed to a 10 , on the pain scale. Tinnitus started a few weeks after I started plaquenil & I still have it. It's vastly annoying, but at least it doesn't hurt! best of luck to all!"
emily towson (taken for 2 to 5 years) January 7, 2017
16 users found this comment helpful.
"Plaquenil changed my life. 90% improvement after about a month of 400mg daily. Without this med, I only function at 10% with several flares per year. With this med, I'm lucky enough to now have 0-1 flares per year. Thank you, rheumy, for saving my life. Side effects are all GI related for the first few weeks to a month, but are no longer a problem after your body adjusts to the med. I also grew my hair back quickly & fully within a year of starting Plaquenil. It is FANTASTIC for fatigue & pain. I am sick much less often than prior to starting Plaquenil (hydroxychloroquine is the generic name.)"
Cursed-80 (taken for 2 to 5 years) November 30, 2016
15 users found this comment helpful.
"I had been on Plaquenil for nearly 30 years for lupus. So long that I didn't remember any side effects. I saw my rheumatologist recently and he said that he felt that I was in remission so I decided to come off of it for awhile. Within a week or so I noticed that I had a new dimple in my cheek, then within the next week the shape of my face changed and the "apple" cheeks that I had assumed for all these years was from lupus, disappeared. I have lost about 10 lbs since I went off a month ago and no longer have ringing in my ears or crippling vertigo. I do have a lot more pain and swelling but I will never go back on this drug. I am so thankful that I chose to try to go without it."
Beeline (taken for 10 years or more) August 27, 2016
22 users found this comment helpful.
"I was diagnosed with Sjogrens and systemic lupus some 5 years ago after 3 years of tests etc. Initially was on 40mg plaquenil and 30 mg predisinole(steroids). After 2 year was weaned of the steroids, I gained so much weight and the moon face was terrible. Have had several flare ups when I take 10-15mg steroids for a couple of days. Plaquenil has helped me a lot, initially I had a job to get out of bed, so tired, every joint and muscle ached and hurt, but this has reduced over time, I still get terrible pains in my joints, suffer severe reaction if i don't use 50 sunscreeen all the time, but my quality of life has increased 65%, I am now on reduced plaquenil of 200mg per day, steroids as and when I get a flare up."
jude the prude April 25, 2016
14 users found this comment helpful.
Plaquenil (hydroxychloroquine): "I had only had a mild SLE flare about 30 years ago. I had plenty of the discoid lupus symptoms, but they were easily controlled with avoiding the sun and using sunscreens,especially in the last 20 years. I developed another auto-immune problem about 15 years ago.(gluten intolerance or or possible CD.) I ate the "gluten-free" Cheerios when they hit the shelves about 6 months ago, and almost killed myself, as they were not gluten free. This touched off a SLE flare of unbelievable proportions! Practically every joint in my body was hurting SO badly,and I had fever and fatigue and did not respond to NSAIDs. Placquenil has been my lifesaver! Adhering to an anti-inflammatory diet for a month helped, also. The price-worth it."
Barb-Also (taken for 1 to 6 months) January 23, 2016
26 users found this comment helpful.
Plaquenil (hydroxychloroquine): "I started this med as I have both RA and Systemic Lupus. It did nothing for me and we added Methotrexate, still no benefit. Added Enbrel, no better. My eyesight was beginning to fail so I stopped all of them. My weight ballooned up by 25lbs!! I have found no mainline meds to help and had to turn to Traditional Chinese Medicine for relief. Works great for me. I am still hoping to find something in the regular vein of meds to help and not hurt me. My insurance will not cover the help of the Traditional Chinese Medicine that is helping. What's up with that?"
CTT October 13, 2015
34 users found this comment helpful.
Plaquenil (hydroxychloroquine): "I first went on Plaquenil in 2004, due to unbearable finger and wrist joint pain for 5 months, which was diagnosed as Lupus (after a sky-high ANA test and some other tests and diagnoses). I was told it would take 3-ish weeks to kick in, and it did, right on schedule. Almost overnight, I went from not able to hold a soda can or open a door to being 100 % pain free. I was on Plaquenil for 4 years, during which time I was in complete remission, so in 2008 I discontinued it. In 2015 Lupus reared its ugly head again, this time with Pleurisy. Got back on Plaquenil and after the requisite waiting time, it got the problem under control (not 100%; maybe 50 %). I love Plaquenil but my advice to others is to be very patient and give it time to work."
LarryF June 11, 2015
73 users found this comment helpful.
"I was diagnosed with lupus and rheumatoid arthritis four years ago. The doctor told me to take hydroxychoroquine and told me to stick to that medicine or my lupus would return. Ever since then I have been doing great. I do have a few side affects but none of that matters to me because I got my childhood back. - Angel Aguillon 14yrs old 04/08/15"
Angelisback April 9, 2015
38 users found this comment helpful.
"Its been a year and half on hydroxychloroquine at the high dose at first, which gave me brown urine, headache, and no appetite. Doc cut the dose in half, and I was okay, except for irritated tummy. I asked if I could again cut dose in half, which worked out to like 100mg a day. I felt like my old self, but doc thought too low dose. I turned down prednisone all together, and waited out the hydroxychloroquine. I saw the rheumatology doc the other day and took a list of concerns, he said not related to lupus...(burning skin in private area, tummy issues, brain fog, dry mouth at the front, and a few others). I had culture on urine and nothing...but bilirubin in urine and trace ketones too, so gonna double check that out. Rheumatology thinks I should go off this."
DeeGlp (taken for 1 to 2 years) January 18, 2015
17 users found this comment helpful.
Plaquenil (hydroxychloroquine): "I would recommend this to anyone. I was put on Plaquenil in April of 2012 for Lupus symptoms, constant pain( mostly in my legs) extreme fatigue and overall ill feeling. Within 2 months of taking Plaquenil the pain and fatigue had subsided, not completely but has greatly improved over the last year and half & my health and immune system has also improved and I went from being sick ALL the time to very rarely sick. It has been a Godsend for me. I wouldn't advise taking the medicine on an empty stomach it will make you sick & nauseous all day long."
osborne113 (taken for 1 to 2 years) October 29, 2014
95 users found this comment helpful.
Plaquenil (hydroxychloroquine): "I am a RN and have been diagnosed with undifferentiated connective tissue disorder. I was initially very hesitant to start medication due to the side effects. I have been on the medicine for three years. I have had increased joint mobility and decreased swelling. I do have my eyes examined every six months. Glad I weighed my options and gave it a try."
chelle1989roses October 5, 2014
102 users found this comment helpful.
Plaquenil (hydroxychloroquine): "I experienced a rash over my entire body about 2-3 weeks after starting taking this medicine. I don't really know if it would have worked for me or not."
new to sle (taken for less than 1 month) August 19, 2014
37 users found this comment helpful.
Plaquenil (hydroxychloroquine): "This medication worked great for me except for some stomach upset which was I tolerating because I wanted to stay off Prednisone. However, three weeks into taking the medication, I developed an allergy to it and broke out in hives all over my body. So I had to discontinue, sadly. Very sorry not to be able to take this medication as it seems the best one for controlling my Lupus with the least side effects."
Rosinavos July 23, 2014
48 users found this comment helpful.
Plaquenil (hydroxychloroquine): "I have been taking 200mg of Plaquenil daily for 2yrs now. I still have many days a wk when my entire body hurts. My eye doctor cautioned me not to go to a higher dose for the protection of my eyes. Recently, my daughter noticed a film over half of one eye, which I could not see and my vision is generally not as clear. May not be the right medicine for me."
PBHi (taken for 2 to 5 years) May 29, 2014
59 users found this comment helpful.
Plaquenil (hydroxychloroquine): "I have been on this medication for about 12 years now. It seems to work very well but as the years have gone on it doesn't work quite as well as it used to. That's why I only rate it at an 8. There was a time when my insurance was messed up, and I didn't have the money to pay for my medications. I could definitely tell the difference when I was not on this medicine. I would definitely recommend it."
small town mom May 28, 2014
65 users found this comment helpful.
"Male 66 who has been on this drug for 10 years. Without it my life as I know it would be gone! Took about 3/4 months to fully work and change my blood chem. back to normal as it was WAY out. dsDNA rate last check was down to 70. Now I travel the world in remote areas, walk more than 5 miles in the jungle heat and feel like my old self (well as much as I can being another decade older) ;-)"
One Who Knows (taken for 10 years or more) October 29, 2013
53 users found this comment helpful.
"Ive taken this on and off and for 7 years and it helps with my joint pain and hair loss. It just takes time so be patient. The fatigue is almost gone as well."
ljks mommy January 16, 2013
39 users found this comment helpful.
Plaquenil (hydroxychloroquine): "For mild cases of lupus (meaning no organ involvement) I would say this works perfectly fine. Reduces fatigue and joint pain from a 10 to about a 2 depending on weather conditions. If you are active and maintain a healthy diet I would say fatigue and pain are at a nil while taking Plaquenil. It takes maybe a few months to get the dosages correct with your level of pain and fatigue."
Mrs. Boss Ross February 19, 2012
116 users found this comment helpful.
Plaquenil (hydroxychloroquine): "I was diagnosed with Discoid lupus in 2009 and I began using Plaquenil once I stopped breastfeeding. Initially, the only difference I noticed was my hair stopped falling out. After taking Plaquenil for a less than a year my face and neck started turning black. My dermatologist is convinced that Plaquenil is the culprit and just recently confirmed it. Between my rheumatologist and dermatologist they're trying to find the right medicine that will work. I've been using bleaching creams for about 9 months and they haven't worked well. I tried to come off Plaquenil but I experience bad headaches and hair loss."
Anonymous December 24, 2011
56 users found this comment helpful.
Plaquenil (hydroxychloroquine): "I love this medicine. It has helped so much with the arthritic pain. No side effects for me. I have eye check ups every six months. Give a try!"
preocupada December 10, 2011
74 users found this comment helpful.
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- Drug class: antimalarial quinolines
Other brands: Plaquenil
- Hydroxychloroquine Sulfate (AHFS Monograph)
- Hydroxychloroquine Tablets (FDA)
- Hydroxychloroquine (Wolters Kluwer)