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User Reviews for Repatha

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

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Condition Avg. Ratings Reviews Compare
High Cholesterol, Fa...ial Heterozygous
8.0
   
18 reviews 17 medications
High Cholesterol, Familial Homozygous
6.8
   
4 reviews 11 medications
High Cholesterol
5.0
   
52 reviews 51 medications
Cardiovascular Risk Reduction
3.0
   
1 review 10 medications
Summary of Repatha reviews 5.8 75 reviews

Reviews for Repatha

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For High Cholesterol "I have been on Rapatha for 14 months. At first I was thrilled, with 2 heart stents and very high cholesterol it was a answer to my prayers. But I have been on antibiotic 17 times since starting this drug. I suffer from a UTI for at least 3 days after injection. I have had to go on Rx eyedrops due to irratated runny eyes I have suffered with upper respiratory infections, sinus infections, nasal swelling, back pain and what I believe is permanent pain and weakness in my legs. I have been in the ER 5 times with spiked BP and heart palpitations When telling my doctors cardiovascular and IM they both say they do not believe my symptom really annoyed and ready to see a lawyer. DO NOT USE THIS DRUG"

Trixie (taken for 1 to 2 years) April 11, 2018

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For High Cholesterol "Within one week after taking an injection I began having constant palpitations for a month. Had labs drawn to make sure my potassium wasn't depleted which it was normal. My cardiologist said the repatha. would not have caused the palpitations but I had never had lasting palpitatons before. So, I do not want another injection."

   
1.0

daizy (taken for less than 1 month) March 28, 2018

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For High Cholesterol, Familial Heterozygous "I have had the characteristic sinus burn shortly after injecting Repatha each of the three times I’ve taken it. I have been on it now for seven weeks. After six and a half weeks, I noticed a red patch of skin, about 2.5” in diameter, with raised bumps. I have no way of knowing if it is a reaction to Repatha. If it is, I don’t think it’s serious because of its late appearance. It manifested six weeks into the therapy and several days after the last injection. Has anyone else experienced this?"

JF (taken for 1 to 6 months) March 21, 2018

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For High Cholesterol "Since my doctor told me there were no side effects with this drug I was convinced that my back pain, hip, and leg pain must be from some other problem. When the pain became so severe I went to an orthopedist who took X-rays and couldn’t find any abnormality other than severe weakness in my left side and suggested I use a cane! Nothing helped with pain. I started developing hand weakness and even had trouble opening jars! I started to suspect that maybe my doctor was wrong but he insisted that there were NO reports of this side effects with this drug. I stopped the drug anyway and after 8 months of pain my symptoms are subsiding! Hopefully, this drug has not caused any permanent damage."

   
1.0

Barbara M (taken for 6 months to 1 year) March 20, 2018

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For High Cholesterol "I took one shot of Repatha. I began to sweat profusely, could not swallow. I felt like I was shot in the left side of my head. Blood pressure soared to 200/102 and I still cannot control my blood pressure with three blood pressure medications after two years. Blood sugar went over 400. I began to choke and could not breath. My breast began to grow. I am a male yet I began to go through what seem to be female menopause. Doctors kept telling me it is a new drug and they have no idea how to treat it. I was told it is a monoclonal antibody made from a rodents spleen. My pituitary gland as well as thyroid are damaged. I continue to have menopausal symptoms. I have seen numerous doctors and been admitted into hospitals but nothing helps. I am having other issues. The suffering goes on. Pain in my head, trouble swallowing, sweating, mood swings,high blood pressure, high blood sugar, swollen breasts, high thyroid levels. It is like my body is fighting against itself."

   
1.0

AngD (taken for less than 1 month) March 18, 2018

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For High Cholesterol "Repatha cut my ~200 LDL in half to ~100 with no other drugs. It also significantly lowered my TriG and raised my HDL. I'm in my 50's with treated heart disease. Stent in one of my coronary arteries. I've tried every statin and most of them twice. The statins all gave me side effects: serious brain fog and/or muscle aches. Thus Repatha is a life saver for me. I have had no side effects with Repatha--I am very pleasantly amazed. The injections are easy but its key to allow it to warm up fully to high end of room temp to allow it to thin out and inject easier. I took the other Praluent for about 5 months with similar results. It was a little faster and easier to inject with less sting. Key is to pinch your fat fold at injection site so you don't feel it. Since I'm not on a government insurance of any kind both PCSK9 companies supplemented my insurance with a copay card so I only pay $5/month. I'd still like to get my LDL below 70 (ideally below 50 even) thus the 9 out of 10 stars"

Loren C March 15, 2018

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For High Cholesterol "After taking Repatha for several months and developing intense neck and shoulder pain I discontinued the medication for several months. The pain got better. My Dr. convinced me to try it again. After 2 injections I developed extreme muscle weakness, pain in my shoulders, knees, rash, sinusitis. After an extremely embarrassing experience at Disneyland where I couldn't get out of the Matterhorn ride because I had absolutely no strength in my legs I discontinued Repatha. I will never take it again. Extremely pain and muscle weakness vs high cholesterol. I'll take my chances with the high cholesterol."

   
1.0

Britt March 15, 2018

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For Cardiovascular Risk Reduction "Took one injection and LDL did go down to 50. However, had constant cold symptoms, bad sore throat, couldn't sleep and just felt miserable. Back to taking red yeast rice and bergamot where I can get my LDL under 80. Not great for someone with stents but really don't have any other really good alternatives."

   
3.0

Rfe (taken for 1 to 6 months) March 14, 2018

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For High Cholesterol, Familial Homozygous "Tried repatha and suffered a number of side effects. There was a lot of pain and swelling at the injection site. Later that evening suffered pretty severe abdominal and back muscle pain, headache, exacerbation of asthma symptoms, and general malaise. Most of these symptoms continued for 5-7 Days. The symptoms were very similar to those I suffered after taking several flu shots. Figured there might be some connection, and discovered they both contain polysorbate 80; an emulsifier. Will not be taking this drug again."

   
1.0

Mickey (taken for less than 1 month) March 10, 2018

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For High Cholesterol "I started taking Repatha in late Nov or early Dec 2016 my LDL dropped dramatically. But after the 2nd week the pain started. It was excruciating. Shoulders, knees and hands were intolerable. Couldn’t turn on a table lamp. Couldn’t hold a toothbrush. I literally and truly thought I was dying. I quit the drug after 3 injections, possibly 4. It took months, if not longer, to recover. Not sure if some problems I have today are not caused by Repatha. I took Repatha because my doc increased my Crestor dose and I couldn’t tolerate it. I convinced my doc to let me now take half tablet of the lowest available dose of crestor. I started taking it every other day and am now up to half a tablet daily. It is working and I have tolerable pain and muscle weakness."

   
1.0

Tom S March 5, 2018

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For High Cholesterol "So much pain after I started taking Repatha. Lowered my cholesterol but you have to decide if you want to die from pain or high cholesterol. So many side effects from this stuff but heart doctors only see cholesterol numbers they don't worry about pain. "

   
4.0

Bettyboop (taken for 1 to 2 years) March 5, 2018

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For High Cholesterol "I began experiencing back pain after the first injection. I have had 3 injections and the back pain is escalating. I am seriously considering stopping therapy before the pain gets worse. I cannot tolerate the oral statins due to muscle pain. Now I am unsure what the next step should be."

Anonymous (taken for 1 to 6 months) February 17, 2018

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For High Cholesterol, Familial Heterozygous "Drug definitely works if you can live with horrible side effects they started @after 3 rd injection and progressively worsened including severe back and shoulder pain, fingers, and joints. Also upset GI tract 2weeks after last injection I am still in great pain and hope this has not ruined my quality of life - I have stopped the med and notified the company and FDA of these side effects"

   
8.0

Lvpsr (taken for 1 to 6 months) February 7, 2018

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For High Cholesterol "Not 100% sure the drug caused my issue's but the timing of symptoms correlates. I applied the 1x a month product to my right leg on November 5th and within 7 days developed twitches in calf in my right leg followed by stiffness and weakness in leg. I applied the 2nd dose in my left leg and 7 days later developed twitches weakness and tightness in my right leg. Reflexes very hyper. Progressively worsened over time. Recently began stretch exercises that have significantly reduced symptoms.. especially the tightness . Hopefully this will pass. I won't be taking anymore cholesterol drugs beyond natural remedies ginger and turmeric. When reading the Amgen study that was probably biased in favor of the drug since they profit from it, more people died on the drug then the placebo. Incredibly doctors are prescribing it. The same can be said for statins as the nih did a study of millions of people and the people on statins life expectancy declined. Healthcare in America is owned by big pharm."

Taxmeless February 2, 2018

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For High Cholesterol "My total cholesterol was over 600, on Repatha 370. . LDL was 570, on Repatha 240. HDL 40’s. Repatha certainly dented my numbers but, I now have horrible back pain, that’s getting worse w/each injection. I’ve been prescribed PT. I will not continue Repatha if it’s going to take out my back. What exactly is it doing to my body?!"

   
2.0

Mlmb January 9, 2018

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For High Cholesterol, Familial Heterozygous "I have been on Repatha for 12 months, I had 1 hour sleep a night for 2 months but back to normal now. Before I started it I was not able to do any lifting without collapsing through heart disease, I can now do anything I used to and recently underpinned my house, by hand, it seems like a miracle drug but my cholesterol seems to be going back up it started at 9 went down to 4.1 after starting Repatha but is now 5.3 still ok but worried about the future, will it keep going up again. I am now starting to get pain in my knees I live in England so receive the drug on the NHS SO I don't know the cost of the drug"

   
7.0

Dhdmk January 6, 2018

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For High Cholesterol, Familial Heterozygous "The first injections were fine. Then I started having muscle, joint, and overall body pain which was very severe. Continued on drug several more months and although chlolesterol lowered from total 212 lb to 158 lb the pain has become unbearable. I stopped after 6 months and a month later only moderate improvement of body pain. I hope the muscles are not damaged"

dotla (taken for 6 months to 1 year) January 1, 2018

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For High Cholesterol "Started shots every two weeks in May 2017. Within a month I had a severe sinus infection. Dr. said allergies were bad for everybody and there was a lot of people suffering. Took two months worth of injections and I couldn't keep from having a stuffy nose and allergy symptoms. Cholesterol dropped from 250 to 140 but have trouble breathing and nose keeps plugging. I quit for a month and symptoms got better so I took another injection. This was my last. 6 months now and I have such nose swelling that I now have to have an operation to try and open my nasal passages. Miserable! Want to bring lawsuit for no sleep in a month and fight every minute to breathe through my nose."

   
1.0

Lee D. (taken for 1 to 6 months) December 25, 2017

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For High Cholesterol "Cardiologist gave me samples of repatha pending ins approval. Brought Ldl down from 169 to 69 with no side effects. Insurance denied coverage now going through a program which hopefully will provide the medicine."

   
10

Steady "eddy" December 23, 2017

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For High Cholesterol "My LDL has gone from 9.1 to 1.37 in 16 months. Yes..from 9.1 to 1.37! Unable to take oral statins my cardiologist recommended and I'm so glad she did! Thank you!"

   
10

L.A. (taken for 1 to 2 years) December 20, 2017

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For High Cholesterol "I have been taking this drug bi monthly for 2 months. The initial runny nose side effect was an irritant, but went away after a month. The muscle and back pain, however, has continued and gotten much worse. I will most likely be discontinuing this drug. Here it is a week before Christmas and I am hosting my entire family throughout the holidays with this debilitating pain. Ugh!"

   
2.0

Anonymous (taken for 1 to 6 months) December 17, 2017

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For High Cholesterol "I cannot take statins due to allergic as well as flu like symptoms so I was hoping Repatha would be a godsend. Well that didn’t happen. Soon after taking Repatha, after each injection, I experienced the following debilitating reactions: severe lower back pain, knee pain, extreme pain under both feet, and severe dry eyes! And what’s crazy is the fact that I had to get cortisone injections as a nerve block in my lower back to counteract this medication. And it didn’t work! This really conveys what Repatha can do to your body and it’s negative side effects! Seek alternatives please."

Sara Stephany December 15, 2017

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For High Cholesterol "After severe muscle and joint pain following my third injection I discontinued use of Repatha at the end of Sept. 2017. It is now the middle of December 2017 and although the pain has subsided somewhat the use of my right leg has been severely compromised. I feel the sensation of an electric shock 24x7 that moves around my right leg. I have repeatedly contacted Amgen for info. Specifically I asked whether symptoms would subside or whether I would have this permanently. They repeatedly said "call your doctor". Well the doctors don't know because this is a relatively new medication. Repatha has refused to answer any of my questions directly and has provided NO support. It seems they really don't want to know about this. BE CAREFUL!!"

Steve Mac (taken for 1 to 6 months) December 11, 2017

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For High Cholesterol "It was suggested that I try Repatha, as I had issues with Lipitor, Advicor, Crestor, and Zetia. I have had multiple heart stents, with the last stent installed in Dec of 2016, and was considered high risk. My cholesterol was at 192, HDL 39, and LDL 70. After taking Repatha, cholesterol was reduced to 96, HDL raised to 44, and LDL lowed to 52. Along with the good change in the blood test numbers, I have found myself with the following issues: mild headache, runny nose, scratchy throat, leg and stomach cramping, lower back and neck pain, flu like symptoms and heart palpitations. I just feel really lousy. I took three injections (two weeks apart), and then stopped. Five weeks later, I took another injection, and this is how I feel."

Ron B December 7, 2017

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For High Cholesterol "I started taking 1 injection/mo. in July of 2017. It brought my numbers down immediately....Total cholesterol 157, HDL 58, LDL 77...not bad from where I was. Then after the 2nd injection in August, I started getting severe pain on my right inner thigh, then left inner thigh. Kind of like an electric shock, so bad, I had to stand up right away. I tried one more injection in Sept 2017, and then decided to stop. After 2 weeks, of being off Repatha, the pain had gone. It hasn't come back, but I have not had an injection since Sept 2017, and it is now Dec 5th. Going back for blood work, and I'm sure my cholesterol will be back to 250. I can't tolerate statins, so I'm back to square 1."

   
2.0

RonG1 December 5, 2017

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