Dupixent for Eczema User Reviews (Page 5)

• Car...
• September 17, 2017

"I am 20 years old. I have had eczema since I was in the 7th grade, but it has recently, in the past 4 years, spread all over my body. I finally went to the dermatologist to see what my options were after trying creams and homeopathic remedies. I was on cyclosporine modified for a while, and it worked AMAZING until they tried to wean me off. It has never been the same since. I have been on Dupixent for almost a month now. I notice a difference in the texture of my eczema, but I SWEAR I get a new patch every day. I now have it on my sides, stomach, and hands. Places I have NEVER had it before. My derm said it takes a while to work, so I haven't given up hope yet, but so far I am not too impressed."

• Jul...
• Taken for 1 to 6 months
• March 26, 2018

"I was misdiagnosed with psoriasis at first and was put on several biologics that, of course, didn't work. Then, the right doctor and Dupixent, and my hands and feet, where the eczema had been for years, are now gone!! I am so happy! I started Dupixent on Nov 18, 2017, and just came back from the Caribbean, where I was able to walk in the sand and ocean!! Thanks for a medication that finally works for eczema!"

• JoJ...
• Taken for 1 to 6 months
• March 22, 2018

"I have been on Dupixent for a month now, and I have to say my life is anew. I suffered so badly from eczema (for all of my 48 years) on my feet that I couldn’t walk for 4 months out of the year. The eczema on my hands made it so I couldn’t button my children’s sweaters or wash dishes. Dermatologists and allergists were no help at all. They just plied me with Triamcinolone and Prednisone, to no avail. Patch testing was a wash. After taking the loading dose, I saw an immediate difference in how itchy I was - not one fire ant remained. It is amazing to not feel something that has been part of your existence for decades. My skin has been healing for the last month: smoothing out, losing the thickness of over-steroid ointment usage, losing the red, angry inflammation, peeling like I’ve had a slight sunburn. This drug has been a Godsend to me."

• twi...
• Taken for 1 to 6 months
• May 6, 2018

"My daughter was started on this, and it has been a miracle drug for her. We tried everything since she was 3 months old: prescription ointments galore, the best moisturizers, bleach baths, daily baths, different prescription meds. Nothing has helped her in all her years. After one month, there was a very noticeable improvement in her skin. Now, 2 months later, she only has some dark patches where she used to have eczema."

• Caz...
• November 12, 2018

"Injection worked for the first four months, and then not much improvement. Eyes were burning. I started in March 2018 and stopped in October. No more burning eyes, and actually after I stopped treatment, skin got better. I will never use it again, even though I had no cost. Better to just use the external ointment. It's no fun to poke your belly."

• Rox...
• Taken for 1 to 6 months
• July 21, 2018

"Been on Dupixent for about 12 weeks now. Giving myself biweekly injections, and my eczema that kept me up at night with scalp itching is gone! Have had a little bit of eye itchiness, but this is something I'm used to dealing with since I have allergies, etc. Skin looking basically normal... less big red bruises when I rub up against something too."

• mah...
• Taken for 2 to 5 years
• May 6, 2024

"I'd almost given up after suffering for 50+ years. Antibiotics weren't working or ones that should have I am allergic to. Steroids weren't making any progress in healing my skin. I had sores that never healed... ALL OVER MY BODY. I couldn't exercise as any sweat would cause inflammation and burning to the sores. My house had to be a precise temperature. Fast forward, I'm in my 5th year of zero wounds and I'm off my controller for my asthma. Do I have to be careful, yes, but I'm loving life instead of wishing to die to end the pain. 300 mg every 2 weeks, not fun to learn to inject yourself but manageable. I can see in the future that I will need to find new locations over time to inject it. Makes travel a little more challenging as I work around my refrigerated injection timetable but I'm a believer."

• Sam...
• Taken for 1 to 6 months
• April 23, 2018

"I love Dupixent! Before I started injections, I was beyond miserable. If there’s a worse word for it... I’ve been using Dupixent since January 17, 2018, and within the first day of taking it, I noticed a drastic change. The itch started to cease quickly, and all of my eczema patches started to dry up and peel off. After about a month, many of my active spots healed. The hyperpigmentation on my face, hands, and legs has lightened up. My derm said hyperpig can take a year to go away. I’m fine with that because I never thought I’d be able to look at myself in the mirror and not cry. I rejoice quite often because I have a normal life again. I can cook, clean, and go to work consistently without having to book an appointment. I do keep breaking out around my eyes, the temple of my head, and neck, but it’s not nearly as bad as it was 4 months ago. My eyes itch really badly sometimes, but my doctor gave me something for them. I’ll take itchy eyes over a complete body of hives anyway!"

• c-k...
• Taken for less than 1 month
• May 4, 2023

"One week after the starter dose, I lost all my energy, and all my muscles and joints completely shut down. I had cold sweats and could not swallow or eat. The injection sites are a 4 to 5-inch circle of inflammation. It was absolutely one of the worst experiences of my life, and I thought I was going to die."

• Kil...
• Taken for 1 to 6 months
• April 5, 2018

"I've had severe eczema my whole life (29 years old), and nothing seemed to work except prednisone. However, there are many long-term effects of prednisone. So I decided to look for an alternative. When I learned about Dupixent from my dermatologist, I was extremely eager to try it. After my first shot, I noticed that it took about a week to start taking effect. Now I'm about 4 months in and about 80% clear. I still get the occasional flare-ups, but it could be much worse. The other 20% may not be visually appealing, but at least I'm not in severe pain, so I'll take that as a win. All in all, Dupixent is amazing, and I hope that it can take me to 100%."

• dtr...
• Taken for 1 to 6 months
• June 15, 2021

"I had severe hand dermatitis for about 6 months prior to beginning Dupixent. My hands were so raw and constantly peeling and painful. It was so bad that I had to wear cotton or nitrile gloves day and night. I tried many different prescription topicals and OTC lotions. I had not had any skin issues prior to this, except occasional psoriasis on an elbow or knee in the winter. I began Dupixent in February, and it was better within a week! I cannot believe how quickly my hands stopped peeling. Three and a half months on Dupixent, and I have not had any more issues or side effects. I was able to get on the Dupixent assistance plan at no cost for the medication."

• ric...
• Taken for less than 1 month
• March 24, 2021

"This stuff, after two weeks, had little effect on my rash. It did, however, make me itch all over my body. I live on Benadryl to get by. So, for $10,000, all I got was constant itching and no evidence of curing my rash."

• bra...
• Taken for 2 to 5 years
• January 27, 2018

"Was in a clinical trial, and steadily the incessant itching went away. Have been on the drug for more than 3 years and have calm skin. Still prone to minor flares if I overheat or get too stressed. Initially had itchy eye rims, but now wash lids with baby shampoo in the shower, and it stopped. I carry mild steroid cream just in case I feel a sense of itching coming on. Oddly, I have increased thick hair growth - no hair thinning as before. Rarely get sick. Seem to heal faster. I sometimes feel as though the itch might be coming back just prior to my second shot of the month."

• Bob...
• February 23, 2021

"Dupixent is a miracle drug, completely curing my raw hands in a matter of weeks. I have less glowing reports on their patient assistance program, which provides a slow roll process to patients renewing annually. My eczema has returned while paper sits on a desk. 10 of 10 for the product managers, 0 of 10 for admin managers. It takes a village."

• No ...
• Taken for 1 to 6 months
• January 31, 2021

"I've had eczema on my legs, feet, and heels. I got the Dupixent injection four months ago, and it cleared up. But recently, I started itching again and starting to see the side effects: peeling, cracking, and dryness of the inner and upper eyelids. Just a few hours ago, my left lower eyelid (above my cheek) started getting loose and soft. My dermatologist told me there would be eye side effects. I've been waking up with my eyelids stuck together and crusty, I have to use a warm compress. From what I read, the main active medicine that clears the eczema is what makes the eyes break out. Not sure how long the side effects will last, it's only my first shot."

• Bir...
• Taken for 1 to 6 months
• January 28, 2021

"Have been trying to get my refill approved for a month. Call every week and get the same lines. They have everything they need, and it is being processed?!?! If you do not hear from us in a week, call us back. Six calls, same response."

• MzC...
• Taken for 1 to 6 months
• December 19, 2022

"I'm in Australia and commenced the treatment in September 2022, two injections to begin with and then one a fortnight. The results were fabulous and almost immediate. My skin was better than it had ever been, and even my hands, which have always had eczema, cleared up. The injections were painful, and there was no way I could've done it myself, so a nurse from the clinic did it. However, after two months (6 injections), I started noticing joint pains in my knees, elbows, and fingers, plus my eyesight was deteriorating. I consulted with an optometrist before starting the treatment and saw him immediately after ceasing it. His opinion was that the acceleration of my cataracts was abnormal, and he attributed this to the Dupilumab injections. In collaboration with my dermatologist, I immediately stopped the treatment, and it is now two months on. The joint pain has gone, but my eyesight is still the same, and my skin is starting to regress slowly."

• Anonymous
• Taken for 6 months to 1 year
• September 15, 2021

"I have had eczema since birth. I am now 68 years old. My dermatologist told me about wonderful results that had been achieved with this drug, and that the chance of side effects would be minimal. I was desperate to escape the topical steroid treatment, and so after a year, I cautiously moved forward. Within four months, my skin was clear, and I was free from chronic itching and rash. It was like a miracle. Then, 6 to 7 months into treatment with Dupixent, I experienced a sudden visual loss. I was hospitalized and had diagnostic testing. No significant findings, just told to discontinue Dupixent. It has been 4 months since stopping it. I was out of work for 3 months adjusting to this life-altering event. My left eye is still blind. My eyes stick together, and I use lubricant constantly. Recently, I was finally able to get some glasses that help my good eye. But everything is still hazy. I guess this is a long-term visual effect of the drug. That's the risk you take. So much for miracles."

• GF1...
• Taken for 1 to 6 months
• November 15, 2017

"I have had eczema my whole life. I started using Dupixent about 3-4 months ago and saw significant results within a few weeks. Recently, however, the redness and itchiness have been returning, and I am concerned. I read in the studies that 20% of the patients in the trial saw results initially (within 3-4 months) but then developed an immunity to the drug so that it was no longer effective. I hope that this is not the case for me. Hoping this is just a minor flare-up."

• Iye...
• February 8, 2018

"I've suffered from eczema my whole life. I am now 31 years old. It got extremely severe at age 21 (probably due to the introduction of alcohol) and have broken out from head to toe consistently every week. I've been prescribed ointments, prednisone, steroid injections in the hips, light treatment, and I even have a prescribed standing light bed (tanning bed) in my closet, nothing works. I'm now on my third injection, and my life has changed drastically. My skin is so smooth and is at 95% clear. I can now wear makeup without the dry, flaky skin at the end of the day. I have not called out sick due to my breakouts in over a month, which is rare because I used to about once every week. I used to suffer the consequences of a major breakout because of one or two alcoholic beverages, but I was able to have multiple this past week on vacation with no sign of a breakout. This drug literally erased 30 years of severe eczema!!"

• Jv1...
• April 4, 2021

"My first dose was in December. I had a really bad rash and hives within 24 hours that lasted about a week, 10 days. I also had some wheezing. However, my hand eczema (which was crippling and raw) started to clear up almost immediately. It remained clear for almost three months, so I didn't take the second dose until March. I had no side effects after the second dose. Hand eczema is 90% clear. I just took a dose today (one month from last). I hope this continues to work for me."

• Sag...
• Taken for 1 to 6 months
• January 12, 2025

"I have severe eczema. Previously, I was on methotrexate, which is not good for your liver long term. I got on Dupixent after a few years of being on methotrexate. After being on it for a few weeks now, it is helping! At first, I had a really bad flare-up, but that was also because I think I didn't put in the proper dosage, so make sure you follow the instructions correctly. But I haven't had any other issues besides minor flare-ups, which are starting to fade the longer I am on Dupixent. It doesn't drain my energy like how methotrexate did. I got Dupixent in pen form, which psyched me out at first because I couldn't see or control exactly when the needle would pierce my skin. But I figured it out. Overall, a pretty solid medication, but it can be hard to acquire depending on your insurance (especially if you live in the US)."

• Oce...
• August 23, 2022

"Age 30 - tried Dupixent for 3 months, 2 shots a month. Was essentially sick the entire time with a stinging, peeling, painful needle-feeling rash, getting rashes in places I never had before, was losing hair by the handful. Did help with body eczema a bit, but not worth the intense pain. I looked and felt like a burn victim. It was sort of a cycle - I would take the shot and be extremely sick for about twelve days, then have 2 somewhat okay days before I had to take the shot again. The only relief I ever felt was near the end of the cycle and when I stopped altogether. My quality of life and my mental health were in the toilet. The side effects were so bad it started to affect my job. Tried treating for fungal and demodex to see if it would help, and it never did. The rash was like a raised, red, hard-bordered rash that went down to my shoulders. Not as painful as the three years I did TSW, but I was younger then and that was 3 years long. Dupixent was just as painful for a shorter amount of time."

• caf...
• October 5, 2017

"I have been suffering from eczema for close to 6 years now, and I am now 52 years old. Most of my problems have been on my right hand, but it gets so severe my hand can't function. After my 4-week injection, I started to see flare-ups in new places: legs and around my waist, as well as serious inflammation on my upper chest and back of my neck (all new to me), and believe me, I did start to panic. Actually, my hand looked better than the other places, so I was happy and sad. I know someone else here posted the same experience. Anyway, had a 6-week injection yesterday, and now I am seeing results everywhere. I was losing hope, but I am now seeing light at the end of the tunnel. I will definitely provide updates a month later."

• Hel...
• Taken for 6 months to 1 year
• May 8, 2023

"I wish that I could upload photos for you all to see. My eczema is not allowing me to leave my apartment and enjoy life with my wife. Steroid creams are not working, and over-the-counter stuff hasn’t worked either. I refuse to use immunosuppressants because they could compromise my immune system response to infections. I was given a free year of Dupixent, and sadly, it has not made a difference in my life. On my first day visiting a new dermatologist, the doctor refused to perform a patch test or do any blood work, despite having a skin biopsy done at a previous clinic. She just wanted to do her own biopsy and was willing to wait until I had a severe eczema breakout. When I mentioned Dupixent, she immediately got the paperwork, and I was given a free year of medication. I have not had any improvements since using it. I’m currently in the process of detoxing from the medicine, and it is the most painful experience I’ve ever had in all the history of my skin flare-ups."