Dupixent for Eczema User Reviews (Page 2)

• Art...
• Taken for 6 months to 1 year
• January 18, 2021

"I took this for 8 months to try and help with the brutal symptoms of topical steroid withdrawal. It gave me no relief whatsoever. It made my eyes so swollen and filled with discharge that I could barely see, and it also made me very weak. I am pleased some people get relief with this drug, however, if you are suffering from TSW, do not expect too much."

• Cha...
• Taken for 1 to 6 months
• September 10, 2019

"I’m 25 years old. I have had severe eczema since I was 18 months old. I was placed in multiple studies for new medications when they came out (ex. Protopic), which worked for a couple of years and then I built a tolerance and my skin got worse. Off and on steroids pretty much every month. I tried Dupixent for about 4 months, late 2017-2018. It cleared my skin completely, no restless nights, no scratching, no bleeding. It was perfect!! Until my eyes started flaring up. I don’t have perfect vision anymore, and the doctor suggested I get off the medicine in order to save my sight. I’ve been off of this medicine for about a year and a half. My skin is much worse now, and I'm contemplating going back on this medicine but staying in close contact with my eye doctor. I’m losing sleep again due to scratching and always exhausted. My skin is miserable and hurts to the touch, so I think it might be worth trying again."

• Peo...
• Taken for 6 months to 1 year
• April 20, 2019

"Absolutely life-changing! My son’s skin was painful, infected, and he literally could barely move or walk, much less have a normal life. After less than a year on Dupixent, he has his life back and can attend school and do normal physical activities. Bless the doctors who worked to develop this. It is amazing for sufferers of the severest form of disfiguring eczema that debilitated my son’s mind and body. ❤️"

• Lit...
• Taken for 1 to 6 months
• December 13, 2019

"I am 65 and have had eczema and asthma all my life. I was such a regular at my local dermatology clinic they gave me frequent flier miles and an invitation to their Christmas party each year. This year in August I got a bus pass and a new dermatological consultant. She is not only gorgeous, but she put me on Dupixent straight away. My skin cleared, the appalling itching stopped, the asthma stopped, and I am weathering the winter as a normal human being and not shivering and hugging the fire. Vaseline for the skin and hay fever remedy plus Optrex for the watery eyes do the trick. Yay! So far."

• Joe...
• Taken for 1 to 6 months
• September 1, 2019

"My teenage daughter has been dealing with eczema all her life. Inside her arms, back of her legs, and on her neck were the worst and main areas of her flare-ups. She’d scratch herself until she bled and scarred. We’ve tried all topical creams, over-the-counter types, lotions, soaps, bleach baths, and more. Nothing worked. After one injection of Dupixent, there was a significant improvement. Now, after applying her third injection, her skin is normal again, even during the hot summer season. I highly recommend this treatment as it is the only thing that has ever worked for my child. If you can get over doing the injections, then this will change your life."

• Lyn...
• Taken for 1 to 6 months
• July 16, 2019

"I have had severe eczema for about 7 years. Finally, I tried most everything and decided to try Dupixent. I had great success with it and also a significant problem. About 2 and 1/2 months in, I developed pain in my eye. I went to the doctor, and I have herpes simplex 1 in my eye. I have been off Dupixent, and I’m on several medications for the herpes in my eye for over a month and still have it. It also had gone into the underlying cornea, not just the surface. Two months ago, I stopped taking Dupixent. It really helped my skin - felt like a miracle - but at what cost? I don’t think I can risk my eye, but I have to tell you I am upset because I know Dupixent is a treatment, not a cure, and my eczema will come back. I feel even worse because I have to get off a drug that was really helping me. (I’m on Medicare, and I still have to pay almost $6,500 annually.)"

• Mar...
• Taken for 1 to 6 months
• July 28, 2018

"My first few doses were helping a lot, taking the itch away and clearing my skin. My 4th dose made my eyes very red, my dermatologist referred me to an ophthalmologist to check the pressure in my eyes. Pressure was okay, only some inflammation in the whites of my eyes. So I continued the Dupixent injections, red eyes and all, then I started getting small, red, pimple-like spots on my face along with redness. When my joints started aching after the 6th dose, I stopped Dupixent. It has been approximately 2 months, and the redness on my face is finally going away, my eyes cleared right after stopping Dupixent. I seem to think the dose was too strong for me. But there’s only 1 strength. I’m still itching and having breakouts and don’t know what to do at this point as nothing seems to work."

• Amb...
• Taken for 1 to 6 months
• January 14, 2020

"The medication started working within the first month. I noticed a significant reduction in my eczema, unless I drink a lot of alcohol. I am on month 5, and I am starting to have issues breathing. I am not sure if the medication is giving me anxiety (I'm not an anxious person). I also developed a stye for the first time. I will occasionally get numbness in my feet. The breathing has become such an issue that I do not think it is worth taking the medication."

• Sta...
• Taken for 6 months to 1 year
• April 17, 2019

"I’ve had eczema since I was tiny, and as I got older it just got worse. The hospital tried everything to make it better, such as light therapy, azathioprine, and other similar tablets, and they would improve me slightly for maybe 2 months, then back to the usual dryness and itching. Then finally, my consultant put me in touch with a company that does Dupixent, and it has transformed me. I can now just go to bed and go to sleep rather than 30 mins cream, 30 mins scratch, then sleep. I don’t have to hoover 2-3 times a day. I don’t have to carry creams everywhere I go. I can't recommend this enough to anyone with eczema! Injections were daunting for me, but no problems after being shown how to do it. I would say it generally isn’t painful, more uncomfortable, but it’s 100% worth it. The only reason it isn't a 10 is the side effects (itchy/watery eyes) can be infuriating, though the itch is only 1/10th of what my eczema caused me, so I’m happy with that trade."

• Cha...
• Taken for 1 to 6 months
• June 14, 2017

"I have had severe eczema since I was a child. Therapies included the usual prednisone, topical creams, and testing for everything under the sun. Desperate and searching online night after night for help, I came across the hospital a few years ago and began working with the doctor who led the groundbreaking eczema research to get this drug on the market. I knew within hours this drug was different-it was actually working! I am extremely lucky to have found medical team and their research on Dupixent. I am now itch-free and almost 100% clear; something I thought I'd never experience in my lifetime! God bless all the folks involved, including the clinical trials. The future is exciting for eczema cases. I am very, very, very grateful."

• SWG...
• Taken for 1 to 6 months
• March 16, 2019

"I just wanted to say that you need to give the Dupixent the full 16 weeks. I almost stopped. At the beginning, my head was so hot I started buying new pillows. My face turned pink. The itch subsided pretty quickly, then the body. Face and head took longer. I had a flare on my wrist that I tried to get rid of for 3 years! That is now a lot better at 16 weeks with spot treating. I still use a bit of Scalpicin once in a while. But the Dupixent definitely takes the edge off. I find if you just place the needle, it slips in by itself. You don’t have to stab yourself. Good luck."

• Kay...
• Taken for 1 to 6 months
• August 14, 2019

"I took Dupixent about 3 to 4 months. Did great on my eczema. But for my eyes, decreased my eyesight 2 times worse, and I’m already legally blind in one eye, and now my other eye is weak from the use of it."

• Bam...
• December 28, 2019

"I have received 3 injections and call it a lifesaver and miracle drug for me. My situation is a little different from most because my eczema was a result of stress. I never had it before until after the death of my brother, and then, 3 years later, it reoccurred after the death of my mother. I called it my living nightmare. No quality of life and had no sleep; cried due to nothing working, tried everything! I was awake most of the night and stood in front of my freezer door and would sit next to the fireplace in the middle of the night and then go to my garage and use my light. I could hardly wear any clothing and was confined to my house. Needless to say, eczema affected the quality of my life, and life was just too hard living in constant misery. It works great for me. I don’t want to stay on it long if I don’t have to. Mine was situational. I am very thankful to see results like I have. It has given me my life back!"

• CCH...
• May 3, 2017

"I have had eczema for my whole life. I am a woman in my mid-40s. It seems to be mainly stress-related and has been fairly awful the past 10 years. I stopped Kenalog shots about 6 years ago, my eyesight and joints were suffering. The past 6 years have been hell. My allergist helped get me this drug and even worked with the pharm rep to get a coupon for zero co-pay (using commercial insurance). I am thrilled to have had my first 300 dose just a few days ago. Within hours, my skin felt softer. I have read all the studies and it appears you will see max results between 30-45 days, so I will come back and write more. I do see my eczema clearing up -- I am very flaky on my face right now, so that is itchy, but the intense itch seems to have subsided."

• Abb...
• January 16, 2019

"Wow. I'm not sure where to even start! I have suffered with eczema my whole life (28 years old), recently turning into dermatitis eczema after an episode of eczema herpeticum. I have tried absolutely everything from steroid creams, UV lights, and was recently on azathioprine for 4 years, but no real change! I started on Dupixent last week, and I can honestly say this has been life-changing! I am actually managing to sleep through the whole night... I don't have to hoover my bed every morning because of dry skin, I don't itch constantly, and I feel 100% better in myself! I panicked at the thought of having to self-inject, but it was nothing.... I panicked over nothing, so if you're reading this and haven't had your first injection yet, please don't worry! Thanks again to whoever invented this medicine! You have changed my life for the better (and I'm only 1 week in)!!"

• Anonymous
• Taken for 1 to 6 months
• July 7, 2017

"I could describe my suffering for the past 43 years, but instead I'm going to sing the praise of what the next 43 years will be like. For the first time ever, my skin is clear, itch-free, and I sleep through the night. I've been on Dupixent for 4 weeks (just took 3rd injection yesterday)."

• Aan...
• Taken for 6 months to 1 year
• August 21, 2020

"I have severe eczema, and was on Dupixent for almost a year. I had no symptoms, however, it didn’t work. My skin was still constantly flaring up, and my dermatologist finally agreed that it was not helping, and if anything, seemed to be getting worse."

• San...
• August 24, 2018

"I was put on Dupixent in August of 2017. My dermatologist mentioned I would be the first patient she used it on. Two weeks in, I immediately noticed an improvement in my skin. My eczema flare-up covered my entire body, which I've never experienced before. The side effects mentioned to me were itchy eyes, conjunctivitis, cold sores. I stopped the Dupixent in October of 2017, so I took it for about 2 months, 4 injections in total. I decided to stop as I began to feel my lips forming a cold sore and my eyes were terribly itchy. While on Dupixent, the itch it caused my eyes was unbearable. In May of 2018, I visited my ophthalmologist again because my vision was slowly getting worse. There, I was diagnosed with having keratoconus, which is a condition where the eye is no longer round but bulging. This was said to be caused by excessive rubbing of the eye. There is no cure for this eye condition, just treatment. Your vision is constantly changing; I mean changing by the week."

• Dee...
• January 25, 2020

"I am happy to announce that since my first injection of Dupixent on December 26, 2019, I don't itch. The first week was hard, I stopped itching; then after a couple of hours, I itched a lot. Of course, I scratched, but I didn't get a rash. Then about 2 weeks later, an ugly rash developed. It looked different from the 'normal' rash that I'm used to seeing. Now, a month later, that ugly rash is still here, but I'm not itching. Hopefully, it will heal quickly, but did I say that I don't itch? I'm 45, and I have had eczema all of my life. People that have eczema know about the itch and how amazing it feels to scratch. For the first time in my life, I believe this is what normal feels like. No itching, no scratching means no rash. I can't wait to completely heal; Dupixent is giving me that opportunity."

• Anonymous
• Taken for less than 1 month
• June 26, 2017

"It's only been about 4 days since my first loading dose, and I am absolutely amazed at how much my skin has improved, and I'm feeling a lot less itchy. I've struggled with severe eczema since I was little, and to finally experience relief is really exciting and amazing. I'm so grateful and happy to finally be feeling better and to know that others who struggle can feel better too!"

• Mom...
• Taken for 1 to 6 months
• July 27, 2020

"I have been taking Dupixent for about 5 months for eczema. It's a wonder drug. No more itching. But I'm having some serious joint pain in both shoulders. I hear a lot of grinding and popping. I'm 73 and have a lot of arthritis. I think this might be a side effect. How long do you have to be off of Dupixent before the side effects begin to subside? Do the side effects go away at all?"

• K42...
• Taken for 6 months to 1 year
• March 3, 2023

"Just an update. It has been almost 2 years since stopping Dupixent after becoming blind in my left eye. Still no improvement. Eyes still so dry that I cannot open them in the morning and have to wake up 3 times at night to use artificial tears. My lifestyle has been greatly impacted. I can manage, and that’s about it. I am pleading with those considering taking this dangerous (miracle) drug. Do your homework! The doctors I encountered were mostly in denial about possible severe side effects. They did not even want to address it when it happened. I was pretty much on my own. So beware. Have your ophthalmologist check you out before you begin treatment. Be informed! My life is very likely forever impacted simply because I was so desperate for eczema relief. I trusted my cavalier dermatologist. What a colossal mistake! Now I have multiple problems. Dupixant was covered by my insurance, however, now I am paying the price."

• Kan...
• Taken for 1 to 6 months
• January 13, 2019

"I’m probably the only person who has had an adverse reaction to Dupixent. Somehow, after starting the treatment, my eczema has worsened, flaring up in places it’s never been before, flaking and even peeling all over my hands. I have seen no change in the amount of itching. I have done 3 injections and do not notice any good results at all. I will stick with it, though, because I still have some hope that this will help clear up my eczema. I'm hoping that because I started it during the cold and dry season, that it doesn’t work as well."

• Joh...
• Taken for 1 to 6 months
• October 7, 2019

"I have had eczema all my life since I was a kid, and absolutely nothing worked. I have been using Dupixent for about 3-4 months, and it worked immediately. I place the shot in my thigh bi-weekly, and I haven't seen any major side effects from taking it. I stopped using it for about 60-90 days because my skin was so clear, then my eczema came back in crazy fashion. So I got back on it, and a week later the flare is gone, and I'm happy to be back on it!"

• R W...
• Taken for 1 to 6 months
• February 11, 2019

"Life-saving. I am 60 years old. I have been suffering with eczema since I was 4. It took my dermatologist 6 months to talk me into taking Dupixent. I have tried every natural alternative but finally gave in. I can't believe how blessed and happy I feel. It is a bit scary at first, but nothing in comparison to the torture of eczema. All the sleepless nights, social isolation, thousands of dollars on anything that might help... no problems anymore. I have only a little eye redness, but I had eczema in my eyes on occasion, so this is manageable. My neck burns at times but isn't red, Cerave calms. So happy! Hopefully, my insurance and Dupixent drug company will keep the medications available to me. If you are on the fence deciding, don't wait. It was worth the try for me."