Cenobamate and Headaches: What Users Say

• Anonymous
• Taken for 1 to 2 years
• October 24, 2022

For Seizures "My daughter failed 10 medicines and a VNS, and this is finally the thing that worked for her. She has not had a seizure in over a year. It does have side effects (fatigue, headache), but better than the others she has been on. Most importantly, this one has had no mental health side effects such as depression, anxiety, or anger."

• Chr...
• Taken for 2 to 5 years
• July 9, 2024

For Seizures "Xcopri has been the only seizure med that has helped me become seizure-free for the first time in 25 years. My doctor added it with Briviact, and I take Klonopin during my menstrual cycle (7 days). I do get headaches a lot and feel lightheaded often, but other than that, I feel like it's a good medication. I do feel like my reaction time is slow. Not sure if it's the medication or all combined, who knows, but for the most part, it's helped me very much!"

• mdb...
• Taken for less than 1 month
• July 20, 2025

For Seizures "Let me start by saying: ask your doctor to be honest about side effects and then list the pros versus the cons. My experience has been terrible, side effects that include nausea, abdominal pain, constipation, headaches, double vision, and severe dizziness. Add the fact that certain migraine medicines (Qulipta, Nurtec) interact with Xcopri was the deal breaker, but I tried to push through the first 3 weeks and failed. I was unable to do so because the side effects weren't worth adjunctive therapy. New isn't always the best."