Zometa and Bone Pain: What Users Say

• Sun...
• March 30, 2018

For Osteolytic Bone Lesions of Multiple Myeloma "I started Zometa IV once a month for 6 years after having 2 stem cell transplants. Diagnosed with multiple myeloma 12 years ago. During the last 2 years of Zometa, I developed osteonecrosis in my jaw, BRONJ, after having a tooth extracted. That led to a domino effect, causing all my lower teeth to need to be removed. I was a 48-year-old woman when first diagnosed with MM, Stage 4. I was very physically active and had teeth. I opted to stop taking Zometa as soon as the first tooth extracted showed difficulty in healing. I am now almost 60 years old and have been off Zometa for 4 years and have had no bone fractures or breaks. I had the achy bones and the cruddy feeling for a few days. Be fanatical about oral hygiene."

• Jan...
• December 11, 2016

For Osteoporosis "Had the infusion - 15 minutes - 4 days ago. On the day, felt fine. The next day, thought I was dying, chills, fever, nausea, whole body/bones/joints extremely painful. Woke up every hour and had to drink water. Day 3, felt a lot better and managed to go to work. Day 4, I feel fine. Not sure how effective it will be, will have to have a bone scan in a year's time!"

• Ste...
• Taken for 2 to 5 years
• January 8, 2017

For Osteolytic Bone Lesions of Multiple Myeloma "I started on Zometa about 3 years ago. At first, it was every three months, but over the past year I have it every 4 weeks. The side effects vary almost every time, sometimes it's aching bones or muscle pain, and I usually feel weary to the point that I stay in bed all day. The effects usually hit me on the second day after having the infusion and only last for one day. Today is Sunday, and I had the infusion on Friday, so as I write this, I'm feeling pretty rotten, but come tomorrow I'll be feeling much better, so it doesn't worry me at all... and it's a lot better than having my bones snapping just because I've lifted something that's too heavy."

• boo...
• January 25, 2012

For Osteolytic Bone Metastases of Solid Tumors "I dreaded the side effects and had none. I had the intravenous infusion three days before Christmas 2011 and was scared that I would be flattened by the supposed side effects like flu-like symptoms, bone ache, and so forth and was pleasantly surprised. I am having my second one in just ten days' time and hopefully, it will be a repeat of the first one."

• Nan...
• Taken for less than 1 month
• March 18, 2021

For Osteolytic Bone Metastases of Solid Tumors "My oncologist, for some reason, changed my medication from Exgiva to this medication. I have been having the worst side effects ever. I have bone pain, stomach pain, fever, and chills. I am on the 5th day, and I’m still experiencing chills and fever. I would never take this medication again. I just wonder how long this is going to last. If I ever get better."