Trokendi XR for Epilepsy User Reviews

Rating: 7.0

Trokendi XR has an average rating of 7.0 out of 10 from a total of 3 reviews for the treatment of epilepsy. 67% of reviewers reported a positive experience, while 33% reported a negative experience.

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Jam...
February 18, 2020

"I have seizures but also suffer from severe migraines that became more and more frequent. My neurologist started me on this medication. I was also on 400 mg Neurontin and was previously on Keppra. I’m now up to 100 mg daily of the Trokendi with the Neurontin, and my headaches are almost completely gone! I’ve suffered from migraines almost all my life! I feel them try to come once in a while when severe weather is coming or when my hormones are fluctuating, but they never fully become a complete migraine. I haven’t experienced the brain fog I’ve heard about, but I do get tingly nerve sensations in my feet, hands, and face occasionally. No mood swings, my mood is actually more stable. Hope this helps someone. Also, I don’t have frequent seizures, so I can’t really say if it helps with that. My seizures are triggered by traumatic stress, so it’s more of a preventative."

10 / 10

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lon...
Taken for 10 years or more
April 5, 2024

"I have used this medication for over a decade with excellent results. No seizure activity. No perceptible side effects. Dosage of topiramate ER 50 mg 2X daily. No drug interactions unlike tegretol. No skin issues unlike dilantin. Very benign."

10 / 10

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Dav...
Taken for 1 to 6 months
April 1, 2023

"No other medication has ever brought my seizures to a stop other than Trokendi XR. I was very excited because of this positive reaction to Trokendi - NO seizures! Yet as the months moved on, my side effects became more and more apparent. I lost my appetite and physical energy, which led to the beginning of depression! I became anorexic and lost over 20 pounds in about 3 months. My weight went from 160 pounds to 138 pounds. The worst part or side effect was I lost all my physical energy!! I became jello. I was always tired. I had so much fatigue and felt the need always to sleep. I had no desire to do anything. I was becoming depressed because of this, my life was not the same anymore. This scared me greatly because I had enjoyed my life, I was an active person who became a couch potato with no desires or pleasures in life. Because of these side effects (mainly lack of energy), I had to stop taking Trokendi and go back to having seizures."

1 / 10

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