Levothyroxine for Hashimoto's disease User Reviews (Page 4)

• Pat...
• August 28, 2017

Levothyroxine "43-year-old female, 5'7", 76 kg. I used to be 56 kg, and in a matter of 2 years, I reached 80 kg after quitting smoking. I also had a plethora of other problems, among which were lethargy, extreme fatigue, and depression. My doc discovered by accident my TSH was 10, plus huge antibody values. Started me at 50 mcg Synthroid and I went up from there. I am now at 175 mcg, a huge dose, and feel fantastic. My blood values are low, TSH, upper limit T4. I kind of talked my doc into increasing the dose, as his choice was 125 mcg and I felt that was too low. I finally have the energy to go to the gym. I feel like my old self. I LOVE Synthroid and I hope he won't lower it for me."

• Dee...
• September 6, 2015

Levothyroxine "I was so excited to find this medication. I had previously been on Synthroid and its generic for over 20 years with no problems and suddenly became intolerant with debilitating side effects. We tried adding Cytomel, which caused terrible heart palpitations, and then tried Armour, also causing terrible heart palpitations and chest pain, both meds were reduced greatly with the same effect. I finally found Tirosint and did wonderfully on it for over 6 months. Then my stomach had severe issues. Through specialists and so many tests, treatments, and a whole lot of money, we finally stopped Tirosint on a whim. I'm all better stomach-wise, but out of options otherwise. Since even compounded T4 uses fillers, I have no more options."

• Hhe...
• Taken for less than 1 month
• March 6, 2018

Levothyroxine "So I’m still very new to trying Tirosint. I started on 100 mcg, which I personally felt was way too much! I had my doctor send over for a lower dose of 25 mcg. It is still too new to really say besides it makes me cold, where without it I’m hot or having hot flash-type symptoms. I really want to know why the company packages it in an odd number. A pack is 28 and not 30. My pharmacy is charging for a 30-day pack, but I’m getting 28 days' worth???? Is there some class action suit needed to be taken on the drug company or CVS pharmacy?!?"

• Pga...
• Taken for 6 months to 1 year
• January 14, 2022

Levothyroxine "Like many, I was doing amazing on Nature Throid until about 2017, and since then I have bounced from no medication and from Tirosint and Synthroid. Synthroid has been the worst decision of my life! I feel so sad and depressed, which probably has to do with a 40 lb weight gain after switching to synthetic meds. I truly wished this worked for me!"

• Far...
• December 4, 2018

Levothyroxine "My doctor recently changed my T4 medication from Synthroid to Tirosint. Even though we lowered the dose to 100 mcg from 110, I feel like it is still high. I am going to try taking it every other day to see how that works and do a blood test in a couple of weeks. Anyone with the same experience?"

• Dee...
• Taken for 10 years or more
• December 9, 2020

Levothyroxine "Nope. Euthyrox is not viable for Hashimoto's. I’ve asked for the pharmacist to continue dispensing the green generic tablets because of severe fatigue, headaches, weight gain, yada, yada, yada this medicine delivers. It looks like it may work for a couple of folks here but not the majority. Even if the pharmacist or doctor looks at you like you have no clue, every one of us realizes that fine line with levothyroxine. Even in ultra-low dosages, sensitive Hashimoto's patients know right away. I don't feel like garbage, so I pass."

• kin...
• Taken for 10 years or more
• December 28, 2019

Levothyroxine "When the medication was made by Johnson-Stevens, it worked very well. I’ve been on it for over 10 years. The past couple of years, something changed and it stopped working. After taking it in the morning, I had a metallic taste in my mouth and it made me very tired. I will report these side effects to the FDA. Had to switch to another brand made in Austria, but it works very well."

• Jen...
• Taken for less than 1 month
• May 7, 2019

Levothyroxine "I have been taking Tirosint for a week, and it makes me feel great! More energy, sense of well-being, and less water retention. I have no side effects until now. I am Italian, and in Italy, the price is 7.40 euro (8.30 $) for a one-month supply. I take a package with 30 (not 28!), 50 mg each. So I can't understand why you pay so much, and I'm sorry for you."

• Hap...
• Taken for 6 months to 1 year
• July 20, 2019

Levothyroxine "I am allergic to the binders in most meds. Tirosint has been a game changer for me. My thyroid med no longer makes me sick. It is very pricey here, $153.00 was for a 28-day supply, now has changed to a 30-day supply. (I do not have insurance currently.) With insurance, I was paying $83.00 a month."

• Anonymous
• Taken for 5 to 10 years
• May 9, 2012

Levothyroxine "Thyroid supplements are really hard on my stomach, and I couldn’t take them for long. I found out most have lactose in them; Levothroid does not. If you’re lactose intolerant or have digestive problems, I would highly recommend trying Levothroid. Going on 6 years now and no ill effects."

• A12...
• Taken for less than 1 month
• June 8, 2016

Levothyroxine "Thyroid was removed a year ago for papillary cancer, been on levothyroxine since. Gained 20 pounds on generic levothyroxine and felt awful, would wake up with a puffy face and eyes even though blood tests showed in range. My endo just switched me to Tirosint, and after one week I feel so much better. My face and legs are retaining less water, the last time I felt this good was prior to my thyroidectomy. I have celiac and Crohn's, which probably caused absorption issues. I also hate dairy, and generic levothyroxine has a dairy base, go figure."

• ang...
• March 9, 2010

Levothyroxine "I have been on Synthroid for a while, and when I started having stomach issues, I could no longer tolerate pills. My endo doc changed me from Synthroid to Levoxyl, and I couldn't tolerate that either. Now I'm on injectable, what a relief to know I have options!"

• Cor...
• Taken for 1 to 6 months
• October 29, 2020

Levothyroxine "Started Synthroid 50 mcgs on August 25th, 2020. I was 6’3" at 266 lbs. It is now October 28th, 2020, and I have lost 49 pounds. My weight is 217 lb. If you have Hashimoto's disease, I highly recommend the paleo or AIP diet. All I did was diet and take my meds every day at 9 a.m. on an empty stomach with water. I would then wait until 12 before I would eat lunch to make sure all of the meds absorbed. My antibody count is still unreadable, so I have to up my dose to 75 mcgs now. Needless to say, this medicine seems to do its job. But your diet is nearly as important."

• Ger...
• Taken for 6 months to 1 year
• July 30, 2015

"This medication was a Godsend! I am 49, had no idea I had Hashimoto's until I went to the endocrine doctor and begged him to put me on hormone replacement therapy because I felt awful all the time. He saw warning signs on a previous blood test I took with me on my first visit, had more tests done, and there it was. He started me on 25 mg, then over time increased it to 50, 75, and now I am on 88 for the past 2 weeks. All this happened in about a 7-month period. My life has completely changed, no more PMS, no more hormone fluctuations, much easier to lose weight, and I don't yo-yo all the time, better mood, more energy, overall a much better quality of life. I have struggled for almost 30 years, and no more. No side effects, maybe low libido, reduced sex drive."

• Ash...
• Taken for 5 to 10 years
• February 7, 2019

Levothyroxine "Totally agree with Babs. My prescription price doubled, and now I cannot afford the medication. Not sure what happened starting in 2019, other than the company doubling the price and insurance companies refusing to cover the difference. My insurer dropped it from their covered prescriptions totally. Such a shame. This will really mess with those that depend on this medication."

• Mar...
• August 15, 2008

"I have Hashimoto's disease and have been taking levothyroxine for approximately 4 years. My dosage was recently raised from 88 mcg to 137 mcg. I cannot sing the praises enough about this medication. I have not experienced any side effects and feel better most of the time. I have learned to control my weight issue with diet and exercise, the weight loss is slow, but at least it's working. Before I was diagnosed, I was always tired, would sleep most of the time, could not concentrate, became forgetful, and had an incredibly painful headache on the back of my head. I'm so glad this drug is available."

• Mar...
• Taken for 2 to 5 years
• October 5, 2017

Levothyroxine "After being diagnosed with Hashimoto's (awful idiopathic urticaria/welts from being touched), I was told to try generic Synthroid. My rashes disappeared. Months later, I did a self-trial and came to find out it caused my awful acid reflux (so bad I was screaming and wrenching in pain), so it was a choice of off Synthroid totally or try Tirosint. My TSH and other levels are great and no more daily acid reflux. Thank you, Tirosint!"

• ST1...
• Taken for 1 to 6 months
• May 27, 2020

Levothyroxine "Started taking Euthyrox over the past few months after being switched from a previous generic. Heard that this brand of levothyroxine is priced as a generic, which saved me money. Currently finding more stable TSH levels and appreciate the compliance packaging."

• Sam...
• Taken for 1 to 6 months
• February 27, 2021

Levothyroxine "I find it interesting to read some of the comments that are posted on this site. In my experience with thyroid disease, I have experienced different pharmacies carrying different levothyroxine made by different companies. They all carry a similar side effect profile. With that said, my experience has been positive. I have seen better numbers. I used to take a product made in Puerto Rico, and I found my TSH would go all over the place, and I would take this faithfully. Euthyrox has improved my numbers, simply put. I appreciate that Walmart carries this. I realize everyone's experience can be different. Mine has been a positive one, and I like paying $4/month. I remember the days of paying over $100 on Synthroid. My numbers are fine, and the side effects are what I've always experienced before on different levo products."

• Yog...
• Taken for 10 years or more
• April 19, 2023

Levothyroxine "I have had Hashimoto's disease for 33 years. I have taken Tirosint for 13 years. I have allergies to dyes and other excipients in medications. I tried other brands, generic and natural, but Tirosint has worked well for me. If my dose needs adjustment, they offer 13 to 25 mcg options to make transitioning up or down easier on my body. Always advocate for yourself. It's your body, you know how you feel. Speak up!"

• Tir...
• Taken for 5 to 10 years
• June 24, 2024

Levothyroxine "I've been taking Tirosint since 2013. It changed my life. I attempted to go back to Synthroid and completely went backwards in my treatment, which caused my metabolism to slow down and my organs weren't functioning well. I'll never change from Tirosint again. I did have an issue when it changed to Tirosint or whatever the company is called, and the taste was horrible. I relapsed to the point I had to take time off of work. I gained 25 lbs within 4 months. I'm still fighting to get myself back to normal. I did report it. Hoping things change soon since I'm fighting harder than ever to feel the way I did before the changes. Insurance sometimes covers a small amount, but it's mostly out of pocket."

• Sav...
• Taken for 2 to 5 years
• March 18, 2021

Levothyroxine "I was diagnosed with Hashimoto's at the age of 18. I started on TIROSINT 50 but wasn't doing anything at all, my TSH was exactly the same. I jumped up to 75 and still no change. Finally, after 4 months, I got up to 100, and only then did my TSH start dropping. As of today, I maintain a TSH value of 2 with TIROSINT 100. I want to point out that the prices that all of you state seem quite marked up. In Greece, I pay 8.50€-8.80€ for a month's worth of supplies (1 box of 30 capsules TIROSINT 100). I've read that you can pay up to 80-100$ for 84 days' worth, which is insane! And it's not covered by health insurance in Greece. It's crazy how much markup you have to pay! For me, it's kind of weird, and I get quite uncomfortable thinking that I'll have to depend on this medicine for the rest of my life. I can't imagine myself taking this for like 40-60 years every day. In my 2.5 years using TIROSINT, I had 0 issues with it."

• WWa...
• Taken for 1 to 2 years
• April 1, 2019

"Levothyroxine worked for about 1 month. I felt better when I first started taking it. My T4 numbers improved. Then, gradually, any benefits from this drug faded. After a year on Levothyroxine, I now feel terrible...sleepy, low energy, weight gain. All the familiar symptoms came roaring back. The doctor never tested my T3 levels. I found a new doctor, who told me long ago that Levothyroxine would not work, that some people do not convert T4 to T3, and she has prescribed Armour Thyroid. I start that tomorrow."

• Djm...
• Taken for 1 to 6 months
• December 9, 2022

Levothyroxine "Do not take it! I was switched from Levo when I moved states. I was miserable for the 2 months I was taking Euthyrox. I had extreme exhaustion, I would take the meds in the AM and be back in bed for hours after. I would get exhausted doing laundry. More exhaustion than when I was pregnant. Extreme depression, and my hair was falling out. Also, the weight gain. I found this website, and it made me not feel crazy, but it was, in fact, the medication. My family doctor told me my numbers are in range, that it couldn’t possibly be the medication causing all this, and that I needed a “happy pill.” This is as I’m crying in his office, begging for something different. He then agreed to put me on Synthroid. It was more expensive, but it is what it is. He had told me my mono came back… Listen here, 2 days being on Synthroid and I got my life back! 2 weeks on, and I was running around Disney not needing a nap! Do not take this crap!"

• Ang...
• Taken for 1 to 2 years
• February 17, 2023

Levothyroxine "Tirosint-SOL literally saved my life. I am very chemically sensitive and have tried every medication for my thyroid that is available. I would have horrible reactions with pain throughout my body upon taking any tablets or capsules for my hypothyroidism. My TSH would be off the charts, as high as 100, as I was deathly sick. Even the Tirosint gelcap made me ill. As a last resort, my doctor wanted to try the liquid Tirosint. For the first time in 30 years, my level was normal. I am deeply frightened now that it is not available due to a recall. I pray it will come back on the market."