Levothyroxine for Hashimoto's disease User Reviews (Page 2)

• Mar...
• April 18, 2016

"Tirosint has been the best med I've taken for Hashimoto's thus far. I tried Westhroid, which is NDT (because I've read such good things about it online), and it was terrible. I went hyperthyroid in a big way and had a panic attack at work. Immediately went back to Tirosint. I also take compounded T3 as needed, which is extremely helpful. I do hate that I have to pay out of pocket for it each month (BCBS FEP), but it's worth it to feel normal. It's also important to add that I am completely gluten-free and heavily limit my processed sugar and dairy intake, that has been crucial in the healing process, and no thyroid medication will solve your problems if you have a poor diet."

• Tin...
• January 6, 2023

"Tirosint Sol has given a consistency in efficacy. Other 'natural' brands were always being recalled for either too little or too much thyroid. I kept having issues of heart palpitations when the other brands I was taking had too much thyroid, and other times I would be sluggish and have brain fog when there was too little. A month or two later, after the fact, I would get a notice that the batch of thyroid NP or Armor Thyroid was being recalled. It was a roller coaster. So with the Tirosint Sol, it has given me consistency, and the solution I feel is more quickly absorbed. I wish they would come out with something similar to a glucose monitor for thyroid levels so that one could monitor their thyroid hormone levels throughout the day."

• Toa...
• December 6, 2018

"I was on Nature-Throid, but I had trouble taking the two doses every day, so it was not working for me. Tirosint is only one dose per day (I take 200 mcg). I am a 35-year-old female and have a 5-year-old. Before Tirosint, my energy levels were always low, I felt like a walking zombie. Nature-Throid worked okay, but no big improvements. On Tirosint, I can get through the day without feeling like I will crash when I get home. I struggled after giving birth, my libido went down the drain. Tirosint has done wonders for my sexual health in the short 3 weeks I’ve been on it. I also have absorption problems, and Tirosint is best for people who have lactose intolerance and absorption issues. I love Tirosint. It’s a blessing, truly. I am 5 feet and 177 lbs (obese because of thyroid). Tirosint has also helped me eat less. I only lost one lb so far, but honestly, the weight loss is secondary, the fact that I don’t feel dead AND my libido is back is more than enough three weeks into it."

• Luv...
• March 22, 2015

"Just switched from Synthroid. I had been on Synthroid for about 9 years. No fillers. No brain fog. So far, I feel really good. A lot more expensive. But I don't care. A lot more energy. Much better medicine. Try it!"

• LoL...
• Taken for less than 1 month
• October 23, 2020

"I have had Hashimoto's for 8 years. Tried Levoxyl, Synthroid, Armour thyroid. Finally went to generic since they all seemed about the same and the cost was far less. I felt great, very stable TSH, etc. Walmart switched to Euthrox with my last refill, and I feel absolutely horrible. Low energy, weight gain, complete brain fog, and many, many more. Since it was a new med, I alternated it every other day with my old generic and this. Felt okay, so I switched to Euthrox daily and honestly feel as if I am taking NOTHING. Glad to hear it seems to be an almost universal complaint. I plan on visiting Walmart tomorrow to see if there is anything they can do about replacing this horrible medication."

• Anonymous
• December 10, 2011

"If you are taking Synthroid and you are still depressed, overweight, or losing hair (all symptoms of hypothyroidism, which this drug treats) then your dose is still not high enough. If your doctor tells you that you are 'within the normal range,' switch doctors - if you are still having symptoms, then your dose should be higher. I have been on this medication for several years now and as long as I'm on the right dose, I feel fine. I know I need an adjustment when I start to get tired and depressed. Those are the two most obvious symptoms for me (as well as hair loss). I have used low-carb diets effectively (New Atkins for a New You is good - has a section for vegetarians) to lose the weight I had gained when my thyroid became inactive."

• dan...
• November 14, 2020

"I was switched from my normal levothyroxine to Euthyrox recently because Walmart pharmacy switched me (without asking me). I was told the blister pack was a better option because it maintains the freshness of the medication, which is supposed to make it work “better.” My TSH typically sits around .9-1.2, and now I’m at 3.69 as of last week. The only thing that has changed is my medication! I’ve felt terrible - very cold, lots of crushing headaches again, joint pain, fatigue... I’m afraid it’s from switching over to this med. I’m calling my endocrinologist to try and move my rx to a different pharmacy to see if I can get off the Euthyrox."

• Luc...
• Taken for 1 to 6 months
• June 27, 2023

"Switched over from taking Levo 125 and now taking Tirosint 125. My main issues with Tirosint are chronic insomnia followed by a long list of other symptoms. Overall, I cannot even function on this medication as a person. I am currently getting insomnia on Tuesday morning, 27th June 2023, at 2:44 am. Here are some of my notes about how I feel on Tirosint right now, daily insomnia, awkward anxiety, depression, brain fog, feeling out-of-place in public, and feeling out-of-place at home. Multiple times, I've had panic attacks and have had to take a walk in my neighborhood just to shake off this dreadful feeling of doom. Also, I'm really cold all the time. Either this medication works TOO WELL OR IT DOESN'T WORK AT ALL. I took Tirosint 150mcg in the past, and it was enjoyable, but these current batches of Tirosint have caused me nothing but suffering. I've tried taking Tirosint at least 4 different times over the past 5 months. Stay with Synthroid or Levo."

• Not...
• December 11, 2020

"Walmart switched my prescription from levothyroxine to Euthyrox about 4 months ago. I noticed that I had been feeling off for a long time but chalked it up to 2020 blues. I started having terrible heart palpitations, though, and knew something was wrong. Went to GP, and she put me on an anxiety med. I didn’t think to tell her that they switched the prescription because the pharmacist told me it was the same medication. The palpitations continued, and they got so bad that my husband started looking up reviews for everything I take, including vitamins, and found out that this drug causes heart issues. I called my doc and got it switched back. The pharmacy tried to give me Euthyrox again and said that they have to special order the levothyroxine and it costs 5x as much as it used to. This sucks."

• Tha...
• Taken for 1 to 6 months
• November 3, 2020

"I was on Levothyroxine for three years. Three months ago, Walmart (without permission) changed my prescription to Euthyrox. At the time, I didn't think it would matter, so I took it as I had my previous med. I started having leg and hip pain - then extreme brain fog - tingling and numb extremities - depression. I went to the doctor and was told my levels were within range. The doctor stated he had not heard of Euthyrox. Nothing has changed in my life (other than COVID), but the med. I called Walmart, and they told me they could no longer get Levothyroxine. The pharmacist explained that Euthyrox was much better in foil packs and would not lose its purpose as Levothyroxine would once it was open. After reading other comments, I'm switching back and to another pharmacy."

• dav...
• Taken for 2 to 5 years
• September 6, 2017

"Synthroid is only one of the four hormones produced by the thyroid. So it produces about the expected mediocre result. For me, it was worse than mediocre, it was horrible, leaving me essentially bedridden for almost 3 years. This company has a bad record, and pressure is put on docs to use this stuff exclusively. Why aren't we offered other options at the start?"

• Pen...
• Taken for 1 to 6 months
• April 3, 2019

"After nature thyroid and Armour seemed to not be working, I was put on Tirosint by my endo. I felt great the first week or so, but since then I’ve had heart palpitations, fast heart rate, swollen legs and ankles, hair falling out, and in the short 2 months I’ve been on it, I put on 13 lbs. While all these symptoms were going on, my TSH was 0.20, which meant I was very hyperthyroid."

• Mis...
• Taken for 2 to 5 years
• October 1, 2018

"I've been taking generic (levothyroxine) for 2.5 years. I took it for a little while about 4 years ago, but I didn't keep up with my health as I should have. My TSH was 58.8, and I started on 50 mcg. After seeing my GP and now an endocrinologist, I am now up to 150 mcg, and the last TSH was 0.99. I have had no side effects from either Synthroid or the generic. The medicine does what it's supposed to do. My hair grew back, the fog lifted, I got my energy back, severe muscle pain went away, joints no longer hurt, and my cholesterol went down from 280 to 200. I take it in the morning but don't follow any rules. The endo just said to take it. I usually take it with my vitamin D, prescription Pepcid, and vitamin C. I take it with coffee or milk. The endo said it really didn't matter, just take it because not taking it is not an option."

• Mim...
• Taken for less than 1 month
• September 19, 2018

"I've tried several different thyroid meds for Hashimoto's, and this is the worst I've felt by far! I couldn't go to the bathroom, couldn't eat, couldn't sleep, felt a lump in my throat, gained weight, was freezing cold, and ended up in the ER because of my stomach pains. I switched back to Armour Thyroid, but now need to see a gastroenterologist because my stomach is still suffering because of that dreaded Tirosint!!!!!"

• Hyp...
• Taken for 5 to 10 years
• November 7, 2013

"6+ years on Synthroid, and this is what I have to show for it. Used to be a size 12, now a 28, no periods, pain all over, hypo symptoms still, mental and mood symptoms (anxiety, depression, mood swings). My growth hormone is only 40 and my FSH is 78. I can't have children. Finally switched to Cytomel, it broke me out and still had the same symptoms as above. My level was over 20 last they checked. Just got a prescription for Armour, hoping I finally get my life back."

• Hop...
• October 18, 2013

"I was on this medication for about two weeks or so, and within the first couple of days, it made me feel extremely anxious and depressed. I felt as if I was not in control of my emotions. As if this was not bad enough, I also felt an uncomfortable sensation in my neck and experienced trouble sleeping."

• Anonymous
• October 2, 2009

"Synthroid has changed my life - from 16 hours/day in bed to being an active medical school student. The only side effect I have experienced is dry eye in the mornings, but that is fine with the use of artificial tears. I used Synthroid for my Hashimoto's and now continue to use it post-thyroidectomy. I only use the Synthroid name brand because generics could be made at different labs and will not be exactly the same every month. Talk to your doctor about using generics. My doctors only prescribe the name brand for me because it is important to have constant thyroid hormone levels."

• Mea...
• February 4, 2019

"Taking Levoxyl for about 6 months, and unfortunately not working for me. The stomach pain is unbearable at times and unpredictable. Hair loss, spasms, vivid dreams, headaches, that horrid brain fog. (Hashimoto causes hair loss, including the medication. Make sure your iron levels are optimal.) These are just a few of a long list of side effects. Took Synthroid for about 2 years, and it worked to some degree, but hair loss was a nightmare and the lactose coating was a no for me-continuous digestive issues. Digestive issues with Levoxyl is enough to get me to seek other treatment."

• Jou...
• February 20, 2017

"I was started on levothyroxine, then Armour, and my symptoms were worse than before medication. Tirosint literally gave me my life back. Then new insurance made me try Nature-Throid. Back to the same misery that plagued me the better part of the year. Whatever the cause or effect in chemistry, I am immediately changing back. Brain fog, sore muscles, lethargy, fatigue, constant hunger, weight gain. Never again will I try another medicine."

• Big...
• November 16, 2019

"Hypo/Hsahis - 42 years. I recently moved, and I went to an endocrinologist who looked at the last several years of labs and advised she could see I was not absorbing meds, so she put me on Tirosint. My TSH was 14.99. Three weeks later, my TSH was 0.78. After that, depression, anxiety, irritability, mood swings, and major bathroom issues around the clock for a month. Went to the Mayo Clinic to figure this out, and after two months on Tirosint, my TSH was 43.2. No one believes I am taking meds. Yes, I am. Mayo put me on NP Thyroid last week. Tirosint had already done its damage to my gut. I ended up in the ER Monday with severe stomach pains, bloating, pressure, pain, and bleeding. A CT scan revealed ulcerative colitis. I took the med as prescribed. The doctor that prescribed it to me called me and told me that she can clearly see I stopped taking my medication over two weeks ago. No. I have no thyroid, my Hashis attacked it, and it is no longer there. I am 100% dependent on thyroid replacement now."

• Anonymous
• August 21, 2012

"I have been on Synthroid now for 4 years. I wasn't able to take the generic Levothyroxine because it caused me high blood pressure. I was shocked to find out I had thyroid disease. My dosage continues to go up, I'm on 125 mcg now, and just had my TSH checked, and it's again on the low end (which I can tell because of fatigue, weight gain, hair loss). I demand my thyroid to be tested every 4 months. When it's in the middle of the 'normal' range is the only time I feel good!"

• Bab...
• Taken for 1 to 2 years
• January 23, 2019

"The Synthroid 75 stopped working after 11 years. I went back to Unithroid as my PPO plan said I had to document response. It was awful trying to get out of bed, paying attention to my tasks, remembering where I filed or put stuff. I felt like my self was in another universe. The PPO plan approved Tirosint, and gradually the cloud lifted. I've been on the same dose for over a year, and I've done well, although there are times that I think I could do better based on the medication level. My problem is that in 2019 the price went from $515 for a three-month supply to $1,423 for a three-month supply. So I guess I have to go back to higher levels of Unithroid. So freaking sad."

• Anonymous
• Taken for less than 1 month
• July 12, 2012

"Suffering for years from all symptoms of hypothyroidism, and my mother has Hashimoto's. Finally, the doctor did thyroid tests. My thyroid peroxidase ASB level was 170, but Free T4 and T3 were within the normal range. The doctor prescribed 100 mg Synthroid to start. Wow! In three days, I could tell a difference. I rated Synthroid 8 out of 10. Time will tell if I have side effects, but for the time being, after one week on Synthroid, I feel like a new person."

• Ano...
• Taken for 1 to 6 months
• July 19, 2019

"Was diagnosed with Hashimoto's about 2 months ago. I would wake up feeling very fatigued, and I would have to take a power nap at work before I could drive home. I had seen the endocrinologist, and he put me on 50 mg of Synthroid once a day. After about two weeks, I felt great, I was back to my normal self minus the weight I gained (10 lbs in 2 weeks). Now, all of a sudden, I woke up this past Monday with a migraine and no appetite. Today is Friday, still battling the migraine and have lost 7 lbs. Every time I think of food, I want to vomit. Had labs done, and everything came back normal. Body feels very hot, and a lot of sweating. Doc lowered me to 25 mg on Wednesday, but still no changes in headache or appetite."

• Anonymous
• June 24, 2010

"I was on this medicine for about 6 months, and in that time, I felt worse than when I wasn't taking it. It took the migraines away, but I still had muscle aches, fatigue, hair loss, dry skin, brittle nails, and more. The huge symptom I had on this medicine that bothered me was the depression. I felt dread and doom every day. I couldn't take it anymore, so I stopped taking it, then I went to a different doctor who prescribed me Armour."