User Reviews for Dupilumab to treat Eczema
Brand names: Dupixent
Dupilumab has an average rating of 6.6 out of 10 from a total of 169 ratings for the treatment of Eczema. 54% of reviewers reported a positive experience, while 28% reported a negative experience.
Reviews for Dupilumab
Dupixent (dupilumab) "I started on Dupixent a year ago for my eczema. When I first set up the medication, I was told that I had no co-pay. Everything was going good until March of 2020 (no pun intended). I received a bill for just under $3,000.00 for my prescription for one month. I found out that there was an account set up by Dupixent that would basically cover not quite four months of their drug. After that account is gone the consumer is hit with an unrealistic monthly bill. If I had known this up front I would not of started on the medication. I feel that I and my doctor where mislead on this product. I have sent a letter to the company asking for help in paying this bill and I have heard no response. I would caution customers from starting this medication, as it will end up costing you in the end."
Dupixent (dupilumab) "This is actually for my son. He had eczema since birth. Highly allergic to everything. Has been on every drug on planet earth. Also had asthma. They finally approved Dupixent. I can't tell you how many days if school he had missed and the pain he had to endure all these years. But he has been on Dupixent for 2 years now. Completely clear of eczema and asthma. No side effects. He can go outside now eat whatever he wants. He is finally happy. So it isn't so horrible everyones body is different. Find out what works for you."
Dupixent (dupilumab) "I’m 22 & have been on Dupixant about 6 months. My skin has never looked better, but unfortunately my eyes have never been worse. My eye doctor sent me to a corneal specialist who said the drug is damaging my corneas so I have to stop taking it. It’s a great drug for your skin if you are lucky enough to avoid the eye issues. Hopefully they can tweak it to be effective without damaging the eyes. My eyes constantly watered, were oozy, extremely red, and recently caused blurry vision."
Frequently asked questions
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Dupixent (dupilumab) "I've had mild eczema since I was 11. My symptoms flared in my early 20s but rather than look at my stress levels I was prescribed the strongest newest drug on the market. I agreed to try it. Before even going on the drug, my increased eczema symptoms went away after I removed myself from an extremely stressful place. But I thought I should still try the drug. It helped at first, until I got flares around my mouth. Then my eye sight was affected. I quit after 6 months. Since quitting, I've had the worst eczema symptoms of my life. It effects my whole body. It used to only affect small, isolated areas. I blame dupixent. I do not believe this drug is fully understood. I sincerely hope this is rare but it should be noted that before using dupixent and after using dupixent my eczema symptoms are extremely different. I never used to itch, and now I suffer from itch. I never had it all over, now it affects every part of my body. I have been off the drug for a year and I am still struggling."
Dupixent (dupilumab) "I’ve had eczema on my hands for almost 50 yrs, since I was 17 yrs old. Prednisone & steroid creams would temporarily make it barely manageable. Itched like crazy all the time. Dermatologist gave me the starter doses of Dupixent & it was a miracle. Started clearing up right away. Had 2 more doses, then started having severe dry eyes & eye pain. Within one week my one eye was all red & had severe eye pain. Went to eye dr-ophthalmologist & I have peripheral ulcerative keratitis. Severe inflammation of the cornea of my eye. He said white blood cells are attacking my cornea, taking antibiotic drops & prednisone drops to get rid of the infection. I pray my eye will be ok. Stopped Dupixent immediately. So upset"
Dupixent (dupilumab) "I’d just like to let everyone know that if you have tried Dupixent, steroids etc all your life and your eczema is getting WORSE, it is most likely you have topical steroid withdrawal and need to let your body get rid of all the drugs and toxins without applying anything else."
Dupixent (dupilumab) "My little girl had severe eczema mixed up with severe psoriasis in other words the worst ever, severe skin condition . Every medication will work for one week. I try everything even change diet to all gluten free and natural. Almost in bankruptcy we were left 4 times a week at the doctors and 1 or 2 at the hospital. Severe bleeding at the bed blankets every morning. I felt helpless and one day she tells me she can't live like this anymore. I panic, we all panic but still one more year will pass more medicines, more steroids. Till finally she turn 12 and Dupixent was approved for kids her age. OMG with in the next day itching was reduce, a week past and her skin was showing improvement now almost 3 months there she has no open skin. She is healing she is able to sleep 8 hours. My inability to help my daughter is gone. I can see all her suffering is leaving her. Her look on life and experiencing going outside and the wonder is incredible. Now she this August 2019 was her first ever year in school. She is happy."
Dupixent (dupilumab) "I was one of the first to be put on Dupixent when it was approved - back in June 0f 2018. It worked very well for quite a while. I had severe eczema on the back of my neck , elbows, back of knees, and around my eyes. It cleared up pretty quickly after using dupixent for a couple months. Now however, for about the last 2 months, I have experienced the side effect on my eyes. My eyelids are constantly red, inflamed, and itchy. My eyes are constantly tearing. My dermatologist gave me a prescription eye drop to take - it has not worked. He said he does not think it is a side effect of dupixent, that he believes it is simply an eczema flair up, possibly due to the weather in New Jersey. The dupixent people disagree - they think it is a side effect of dupixent. So my dilemma is - do I stay on dupixent and continue the eye problems or go off dupixent. To be perfectly honest - the last month or so, it seems the dupixent has not been working as well."
Dupixent (dupilumab) "Been using Dupixent for over a year. Within 3 months of beginning use all signs of eczema were gone, clear skin, and has remained that way. I have experienced no side effects. It has been a miracle medicine for me. Very much intend continued use."
Dupixent (dupilumab) "I am 27 and have been suffering with severe eczema since I was 16 years old. From day one this disease completely took away my ability to live a full life. I will spare everyone here the emotional toll it took on me as well as difficulties in school, with friends, with family, because I know people dealing with this issue know how that is. After hundreds of doctor visits and many medications, my doctors began to give me cyclosporine intermittently throughout the year. This would calm my symptoms but they would immediately resurface when the pills were gone. Being fearful of what this was doing to my body my doctor brought up Dupixent and I decided to give it a go for the eczema. After four days my symptoms were about 80% gone. I have been on medication now for 2 months and have been able to live my life again. Where as before I would scratch 24/7 all day everyday it has been reduced to probably 5 minutes a day and very minor if that. Thank you to all who worked on this medicine and future biologics to come."
Dupixent (dupilumab) "The Dupixent hot line is worthless. No one there can answer a simple question about the medication. They literally sound like robots reading from a script. Managers unavailable to talk. I have decided this company is a joke and I do not trust taking the medication . Stay away."
Dupixent (dupilumab) "I've had severe eczema since I was born. My allergist recommended we try Dupixent. My life is something I've never ever known. No more constant itching No more scalding showers No more tossing and turning at night No more bleeding behind my knees and on my arms No more steroids It's easy, and absolutely works for me. My quality of life is so improved, it almost impossible to believe."
Dupixent (dupilumab) "My wife has eczema so used Dupixent for about six months and she suddenly started having irritated eyes which worsened over time. Her vision blurred and she needed to address those issues with several eye doctors. She obviously stopped using Dupixent and her vision has slowly improved after several months. She still needs to apply several different drops and ointments on a daily basis. It is unfortunate because Dupixent had significantly reduced her eczema and since she has stopped her injections, her rashes have slowly returned. Vision prevails!"
Dupixent (dupilumab) "I used Dupixent for a little over 4 Months, it cleared my skin completely. The skin on my body was baby soft and itching became occasional (like a normal person). Prior to Dupixent my skin was rashy, red, cracked, weeping, itching, burning, raw spots, almost EVERYWHERE since birth to 27. I discontinued Dupixent, got conjunctivitis twice, and got eczema on my face where I’d never had it before. My eyes were itchy, dry, red, and I was scared the moisture would never be restored. I also developed sores around my mouth, which was the last straw. I’m in Marketing and I need to look nice for work. I’m back to eczema everywhere and treating with tub on tub of steroid ointment........... praying for those who understand"
Dupixent (dupilumab) "I started this horrible drug Dupixent in April, 2020 for Pruritus nodularis and stopped it 3 weeks ago. It would cause me to sleep round the clock and could get nothing done as I couldn't get anything done. It also caused me to break out with scary eczema all over and caused the skin to peel off my hands and my heels. I had no life. Hope to spend a whole day awake soon. It did stop my severe itching at night but is now returning. Time will tell. This stuff is bad. Stay away from it!"
Dupixent (dupilumab) "This drug worked amazingly for 6 months. I felt like a normal human. It worked so well! However after 6 months I started getting horrible burning painful blotches on my neck at first. Then my face. Then my inner elbows. It hurt really bad that if I wore a long sleeve shirt to hide it, it would ache in pain. I decided to stop the drug as an experiment to see if it was caused by the drug. My dermatologist said no that it’s just an eczema flare. He didn’t really seem to have the time of day to listen to my concerns. He would just brush it off. After 3 months of stopping dupixent my skin went back to regular eczema that I was used to. I felt itchy again which was annoying but the horrible painful blotchy skin was gone on my face and neck. I waited a year before I decided to try dupixent again. I tried it and it worked but not as effective as when I first tried it. Again I started getting burning blotchy skin around my neck and face. It hurts and burns and aches. I decided to stop again."
Dupixent (dupilumab) "I am a female and have had eczema off and on since I was a child. I am now a much "older" woman and during the past couple of years, I've had constant eczema flareups around my eyes and eyelids, face and neck. Only Cortizone shots or Prednisone help to abate for a few days then the eczema comes right back! I've been getting allergy shots for almost a year now with no relief from my eczema or my other allergies. So my doctor has now prescribed the drug Dupixent... I had my first shots 5 days ago and my eczema has been itching even worse than before!!! Has anybody experienced such a situation? I am at my wit's end!... Help!!!"
Dupixent (dupilumab) "I have had eczema for 42 yrs now and was very excited to try this new medicine in place of the creams that are out there. I got the initial injection at the Drs office and was supposed to continue with 1 shot every two weeks at home. The mail order pharmacy contacted me to set up delivery. During their final speech they quickly say whatever the Dupixent CoPay Card doesn't cover you will be responsible for. That meant to me "hold on and find out the cost" I called Dupixent, they told me their Copay card covers $13,000/yr after that you are responsible. That would leave me with a CoPay of $29,000/yr!!!! What are you kidding me??? I have Blue Cross/Blue Shield and still over $3k for 2 shots a month. That is ridiculous. I cancelled my script, told the pharmacy to shred it. Who can afford that?? I have insurance and that is crazy. My In Vitro fertilization drugs cost less. Just a heads up to anyone out there. Ask before you agree. Know what the final costs are beforehand!!"
Dupixent (dupilumab) "Had eczema my whole life with asthma. Fixed both in one month with 2 shots per month of Dupixent. 3 months later my eyes got jacked so I stopped until I thought I needed it. Took it again 2 months later then again 4 months. Now it's been 9 months no shot and I'm fine. Best I've been in my life. See how long it lasts."
Dupixent (dupilumab) "This drug gave me my life back my severe atopic dermatitis, skin infections, and hives are gone. Had issues with eyes for first six months and almost quit. Used Eucrisa around eyes and got them under control. Now I only have to do minor spot treats every once and awhile. Thank goodness for this medicine. I was one miserable person before. I itched all day and night. I have my life back. So thankful!!!"
Dupixent (dupilumab) "I’m writing this for my son, who is 19 and has had eczema since he was about 13 months. We finally decided to try Dupixent, last month. Unfortunately the side effects for him after being given the (loading dose only,) has caused him to have a burning sensation, like an internal sunburn that still has not gone away. It’s been over three weeks . He like most people with eczema has a very high tolerance for skin pain. This has been really hard to watch him struggle with this side effect. PLEASE BE AWARE! I wished I would have found this site before the first dose, we would have reconsidered starting medication . We’re thankful at this point that’s all the effects he’s had from such a promising drug."
Dupixent (dupilumab) "I took this for 8 months to try and help with the brutal symptoms of Topical steroid withdrawal. It gave me no relief whatsoever. It made my eyes so swollen and filled with discharge that I could barely see and it also made me very weak. I am pleased some people get relief with this drug however if you are suffering from TSW do not expect too much."
Dupixent (dupilumab) "I have had eczema almost all my life and have tried every cream and light therapy and injections with nothing working , My asthma doctor told me about dupixent and I started to take the injections every 2 weeks , I saw some improvement early and after every injection it got better . It took longer then they said it would but after about 6 months I was totally clear. It has changed my life and anybody with eczema needs to take this drug because it works . I have been on dupixent now for almost 2 years and I am still eczema free ."
Dupixent (dupilumab) "I am 65 and have had eczema and asthma all my life. I was such a regular at my local Dermatology clinic they gave me frequent flier miles and an invitation to their Christmas party each year. This year in August I got a bus pass and a new Dermatological Consultant. She is not only gorgeous but she put me on Dupixent straight away. My skin cleared, the appalling itching stopped, the asthma stopped, and I am weathering the winter as a normal human being and not shivering and hugging the fire. Vaseline for the skin and Hay fever remedy plus Optrex for the watery eyes do the trick. Yay! So far."
Dupixent (dupilumab) "Have had eczema my whole life. Really got worse and could not get clear for about 3 years. Was prescribed Dupixent and got relief. After about 6 months, began having problems with my eyes. Was treated for conjunctivitis and dry eves. Had some relief but symptoms kept occurring over a 6 month period And my lips were also being affected so I discontinued Dupixent. My eyes and lips were red itching. Eye doctor diagnosed Floppy eye syndrome. Dermatologist diagnosed eye mites. Was treated for both with little relief. Told to use Vaseline on my lips. Haven’t worn my contacts for over 3 months. Finally went to a teaching hospital and and being treated for fungus on my eyes and lips. I am now getting better after 4 days. I think that I may finally have the correct diagnosis. I am able to keep my eczema under control with topical creams now. The Dupixent helped in the beginning but I feel that I was on it for way too long. I had also been getting small random rashes that have also gone away."
This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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- Drug class: interleukin inhibitors
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