Dupilumab for Eczema User Reviews (Page 3)

• Bano
• February 6, 2020

Dupixent (dupilumab) "I have had eczema most of my life. It went away when I was 8 but came back at 13. I suffered horribly for a couple of years. Over 50% of my body was covered in eczema and kept getting worse as I got older. Nothing worked. I started dupixent in July 2019. At first, I experienced major dry eye and a couple cold sores. These side effects only lasted a couple months and then completely resolved. My eczema completely cleared up within 2 weeks of use. Unfortunately as of lately, rashes have been coming back. I have mild spots on my wrists, fore arms and shoulders, but lately the rash has been absolutely brutal on my neck and jaws. I am hoping it is just the weather, but dupixent should not be allowing this to happen at all. I still recommend this medication because it has resolved 80% of my issues. I plan on discontinuing the medication this summer just to see what happens, as I do not want to be on it forever— Overall I have had a good experience with it."

• Anonymous
• Taken for 1 to 6 months
• November 8, 2019

Dupixent (dupilumab) "I’ve had eczema all my life and it recently started getting so bad over the summer. I itch severely when my body temp increases. I went on antibiotic all the time just to get rid of the flare ups until my dermatologist told me about dupixent. I have seen such a dramatic change. It is so amazing to not be itchy every single minute of the day and to have such clear skin on my body. It only started working after two shots but wow it is amazing. I thank dupixent everyday for feeling confident in my skin again."

• Stevo
• Taken for less than 1 month
• April 11, 2019

Dupixent (dupilumab) "I received my loading dose in March of 2019. One week to the day my right eye developed a corneal edema. I can't say I'm really surprised cause I've had eye problems since thinning corneas ten years ago. I've been on two medications; prednisolone AC and Muro128. Four days on the medication for the corneal edema and my eye is clearing up but still cloudy. My skin did clear up within a week but the not having my eyesight isn't worth the trouble. Other than the eye problem, I've had no other negative reactions. I don't plan on getting another dupixent shot."

• Sjones
• December 10, 2018

Dupixent (dupilumab) "I had 3 dupixent injections, within 4 days my skin was so much better, I was amazed. However, it was short lived as I got double pink eye and horrible chapped lips and sores around my lips. Its horrible! I haven't taken the medication since March 2018, and I still have residual side effects! And my eczema is now worse than its ever been. I hope the side affects go away and stay gone."

• Possu...
• Taken for 1 to 6 months
• September 21, 2019

Dupixent (dupilumab) "After only 6 shots I had no flare ups, and felt great! But, 2 weeks after my 6th shot, my eyes started pouring water, itching like crazy, very irritated and red. As I've never in my life had that occur, I can only attribute it to the dupixent, especially after reading up on it some more and reading peoples reviews with the same side effect. It has been 2 months since I've had a shot and my eyes are not any better, despite prescription drops, allergy tablets, etc."

• Itchy
• Taken for 6 months to 1 year
• August 19, 2019

Dupixent (dupilumab) "Hello, I am very sensitive to medications in general. From day one I noticed a decrease in energy level, plus I would start sweating doing anything (going up flight of stairs). But it did take away my eczema! it was a hard decision for me to go off of it after about 7 months because we all know what it is like living with eczema. But I hate side effects! Now, still searching for that wonder medication without the side effects."

• Clear...
• Taken for 1 to 2 years
• August 22, 2018

Dupixent (dupilumab) "Dupixent has completely changed my quality of life. Like many, I've had severe eczema since infancy that only worsened as I got older. I'd tried everything from topical steroids to acupuncture, eventually resorting to nausea-inducing antibiotics (cefadroxil) once my flare-ups became so severe that I would break out in constant skin infections and had to take weeks off work at a time. It's been a year since I've begun using Dupixent, and my skin is 95% clear. While I still have very minor redness behind my knees and neck, my skin overall has elasticity and softness, and I no longer have flare-ups of any kind. I can wear the clothes I want, sleep through the night without itching--but most importantly, be confident in myself again. People who didn't know me before Dupixent actually stop and tell me how beautiful my skin looks. I highly recommend others who have severe eczema or AD to ask their doctors about Dupixent."

• Nicole
• Taken for 6 months to 1 year
• April 25, 2018

Dupixent (dupilumab) "Dupixent has been life changing for me. I was diagnosed at age 6 and I am currently 32 years of age. I have severe eczema and typically dress completely covered to prevent the stares, questions and comments. I have not been able to wear my wedding ring for 7 years because of the dyshidrotic eczema. on my hands. I have never been bowling with my children, the oldest being 12. I have a hard time allowing anyone to touch me because my skin is so hypersensitive, it drives me insane. I have never slept all the way through the night. My self esteem is highly affected and exercise is nearly impossible with the sweat pouring and irritating the wounds. Sometimes, just getting out of bed, walking, or taking a shower is enough to send me to tears. Dupixent has given me a new life. It has given me life back. I now know what all eczema took from me and I am forever grateful for the opportunity to be on this medication."

• Thank...
• Taken for 6 months to 1 year
• July 3, 2018

Dupixent (dupilumab) "After 44 years of debilitating eczema, all I can say is thank you. I’ve never had clear skin despite heavy continuous use of steroids. I had lost partial use of my fingers due to so many cracks and scar tissue. My skin was always red and infected and my poor wife suffered so much because of my eczema. After 10 months on Dupixent I can tell you I have regained total use of my hands and I don’t have a cut or crack on my whole body. When you live your whole life with bad eczema you get used to nothing really working and just kind of give up. Dupixent has given me a quality of life I never thought I would have! My only concern is when I get dropped from the Dupixent My Way Program and then my insurance will not cover it. I can’t afford the $2900 a month. I just prey that doesn’t happen. Seriously, thank you to all the researchers and doctors who have come up with this amazing drug!"

• Zia...
• Taken for 1 to 6 months
• April 21, 2018

Dupixent (dupilumab) "I’ve been suffering from eczema my entire life. In the past few years I’ve had major break outs, really major. You know, the ones when you can’t sleep, stop scratching, and you’re covered in sores. Nothing works, not even rounds and rounds of prednisone where the only thing you get are horrible side effects. Ugh! No fun. I’ve taken Dupixent 5 times so far, one being the initial dose of 2 units and the other 3 self-administered and it’s been a miracle for me. I also suffer from hideous asthma (of course) and my side effect from Dupixent has been NO asthma episodes! Already! I feel like I’d imagine a normal person feels. I CAN BREATHE AND DO THINGS! And I’m not dying of asthma attacks all the time. I’d LOVE to kiss the manufacturer AND work for the company as a spokesperson. There aren’t enough stars to rate Dupixent as high as I want to. It really is magical unicorn fairy dust!!"

• CRYSTAL
• August 24, 2019

Dupixent (dupilumab) "I had on onset of eczema a year ago, that started small but kept spreading bad. Nothing helped much except prednisone and cyclosporine. Even the cyclosporine started not to work 100% My doctor suggested Dupixent. I have been on it three months. My rash with bumps went away, however it was replaced with flat patchy red skin spots that BURN and can itch. For the most part in the same areas my previous rashes were. Face, neck, chest, stomach and arms. The severity seems to go up and down as far as how bad they are. For some reason it’s worse than ever and those patches are noticeable. Not sure if my body is still getting use to it, or it’s not going to work fully. I still prefer this over the other eczema rashes and itching, but just seems to be worse. Still going to continue it and pray it completely clears up. Not sure if anyone else has this? My eyes are definitely itchy and can burn but I already had been on a prescription eyedrops for allergies that seem to help."

• Dano
• November 12, 2018

Dupixent (dupilumab) "I wanted to share my experience with Dupixent and hope this will help others. I have had severe eczema since I was a baby. I used many cortisone creams & ointments. I began to see that cortisone was less effective & I worried about long term absorption. Dupixent was recommended. I am on month 4 of using and all I can say is Wow. The first month or so, it was hard to see an immediate difference with my skin but I noticed a significant difference in regards to itch. I was less itchy, and hardly any scratching. I saw my skin begin to heal. By month 3, I saw a significant improvement with my skin. Another positive is that Dupixent makes my allergic responses milder (sneezing, itchy watery eyes, etc.) I know that every individual may have a different experience & reaction with this medication, & it might not work for everyone. I would strongly suggest at trying this for a couple of months if nothing else is working. To me, it has been life changing and I don't say that lightly."

• Sandy
• Taken for 1 to 6 months
• January 15, 2020

Dupixent (dupilumab) "I have received 4 injections so far and have already noticed weight gain and cellulitis above my ankle. Have had chest pain and tiredness. It worked for my eczema and did what it was supposed to do but want to stop it and hope it doesn’t come back."

• Female
• Taken for 6 months to 1 year
• January 13, 2020

Dupixent (dupilumab) "I have been taking Dupixent for 7 months. I was diagnosed with Eczema after a year long battle with 70% of body covered. Most severe on hands, which skin/nails peeled off. Since using the eczema is confined to forearms, top of thighs as well as face and neck. 90% of face is covered and is constantly peeling, flaking and is severely itchy. Eyes and ears and into hairline are covered about 60% in any given month. I am still using some steroid creams as well as protopic. I am seeing an allergist,(negative on the patch testing)as well as a dermatologist. Prior to my diagnosis, I had no problems with eczema. I am 62 years old and am totally discouraged. The injection site on the last 2 injections have left me severely bruised. I have had weight gain of 14 lbs, and my shoulders and legs as well as my back ache constantly. I was only approved for 1 year with no copay, after that it will be $690 per month. I don’t know if I will continue."

• Shay
• March 5, 2019

Dupixent (dupilumab) "I just developed eczema within the last 3 years and would literally cry because nothing would help. I have developed very low self esteem and would not go anywhere. I started the injections about 2 months ago and the rashes have subsided. I feel when I get into the week in between my injections I start getting itchy and red. Steroid cream helps at this time. I feel this medicine would be better if it was weekly instead of biweekly. My eyeballs literally itch like crazy after the injections but that goes away after a couple days and subsides after a dose of Benadryl. I still get pretty dry skin but nothing lotion does not help. I am not scratching myself until I literally scratch all the skin off which I was doing previously! I will say that with this injection I am feeling 80% better. I do not think I will ever be 100% again but this is WAY better than a year ago!!"

• Gigi
• Taken for 1 to 6 months
• February 4, 2019

Dupixent (dupilumab) "I had eczema my entire life and from middle school and up until May 2017 I had control over it and you could not tell I had it. Something changed in 2017 and I had the worst flare up that I can even imagine. Finally I started dupixent in Nov 2018. It has changed my life. I used to be embarrassed to go places bc my skin was so red and bad. Now I’m almost as clear as I used to be. The only negative side effect was that it caused blurry vision and an eye infection. Went to the eye dr and fixed that. Haven’t had any problems since. Another downside is the cost. Luckily I got dupixent myway or I would’ve been paying $3000 for my refills. I currently pay nothing"

• John...
• Taken for less than 1 month
• October 10, 2017

Dupixent (dupilumab) "I've had eczema my whole life but the past 2 years have been the worst and I'm 30. It's been life changing and so debilitating. My dermatologist said I was the worst case she's ever seen after 20 years in dermatology. I mean everywhere, tried to everything, scratching constantly, all night, in meetings, after the shower, I've lost sleep, cried a lot, been miserable. I've been on Dupixent for two weeks and my skin has never felt so smooth!! Cleared up about 85% of my rashes after about 4 days after my first dose. When I sweat no itch which is so rare. I don't wake up to dry flaky skin everywhere. I'm so happy and amazed, I hope it keeps workin like this because my quality of life is gonna be so much better. God this stuff is great!!"

• CCHRa...
• Taken for 1 to 6 months
• September 26, 2017

Dupixent (dupilumab) "I wrote back in May and wanted to follow up since it has now been 4 months. My allergist was a bit disappointed as I still have some eczema -- I am about 70 percent clearer. I haven't been using any steroid creams so maybe with those we would see better results. I did go through a crazy flaky period on my face/scalp/arms. I finally used some tar shampoo and tea tree oil to get through that it lasted a good 8 to 10 weeks. My skin does feel much softer, my husband has commented several times. I think the most noticeable thing for me is the ITCH IS GONE. That alone is worth the shots to me. I wish I had better luck with clearer skin. We don't realize how much we scratch ourselves without even thinking, until we stop."

• ACM
• August 8, 2017

Dupixent (dupilumab) "I am a 42 year old mother of three and I have been having issues with eczema for the last 4 years. It covered 75% of my body. Just like one of the posts on here, I tried EVERYTHING!!! I took all the medications, creams, light treatment, I was willing to try any and everything. I went to several doctors and they just could not offer me any help, until my last doctor. She did all the usual testing first, then she suggested the dupixent. She said that it was new and I was like, sign me up. I have been on it since June and I cannot be happier. My skin has cleared up 85% and it's getting better by the day. I am more than satisfied with the outcome and I highly recommend it! Give it a "shot"!"

• Baza
• Taken for 1 to 6 months
• May 6, 2019

Dupixent (dupilumab) "I have a lot of pressure in my legs and they are very painful. The skin is very dry and scaly. The eczema is now worse on parts of my body compared to before treatment, skin still itchy. I also have ITP (immune thrombocytopenic purpura) that means my white bood cells attack red blood cells and this has made my blood even thinner, so I am bleeding all the time when I scratch. ITP makes my nails brittle and sharp so I cannot help with the problem of scratching my skin. I believe this medication makes my blood even thinner. Need to get off it and back to methotrexate please."

• Calvin...
• August 23, 2017

Dupixent (dupilumab) "I have now been using Dupixent for about a month. I've had eczema for my whole life (all 48 years). Treatments I've previously used were cortisone creams (Diprolene & Clobetasol), antihistamines, regular application of emollients, anti itch creams, bleach baths. All just reduced flare ups but nothing ever made my eczema truly better. It has always been present even when most allergens were not present (i.e., in the winter). Dupixent is supposed to take several months to work, but I noticed that my skin was clearing up 4 days after the initial loading dose. Since then my skin has continued to show improvement with dramatically reduced redness and progressively less itchiness."

• Anonymous
• Taken for 1 to 6 months
• June 24, 2017

Dupixent (dupilumab) "I've been on this medication for about 2 months now after an extreme flare up. I have never experienced my skin so clear in my entire life. I can actually wash my hands for the first time in years, it blows my mind. I am switching from Anthem to UHC so I really hope they will cover it."

• niknak
• Taken for 2 to 5 years
• April 19, 2021

Dupixent (dupilumab) "I've had eczema all my life and was a constant battle between pills and creams. Nothing seemed to help for more than a week or so. After hearing about dupixent, I was hesitant to get an injection every other week. However, after a few injections I started to notice and feel the difference. The injections do hurt very bad. The medicine burns going in. I had my mother give it to me in my arms for about 2 years. Now they they just came out with the auto inject pen, I just got some samples from my doctor before switching over completely. With the pen, I give it to myself in my thigh. It still hurts badly, but it is worth it. I do fear about having kids in the future and getting off of it or if it will have side effects on my baby. Overall, good medicine - just wish it didn't hurt so dang bad!!"

• MZano
• Taken for 1 to 6 months
• December 10, 2018

Dupixent (dupilumab) "Dupixent has honestly changed, and possibly saved, my life. I had eczema covering my hands for over a year, to the point where it was painful to touch anything or type on a keyboard (something required everyday at my job). I had trouble cooking, because to prep food I often needed to wash it, which caused major pain on my hands. I was embarrassed to shake other people's hands. I was embarrassed to be in public. I tried every steroid cream, I tried diet changes, I saw multiple dermatologists. Getting approval for Dupixent was a bit of a hassle, but in the end, it turned my life around. I now have occasional small patches of eczema, but for the first time in my life I've had months where none of the skin on my hands is broken. It's miraculous, and I just pray that it continues to work! I've had some eye dryness and a cold sore or two as side effects, but the benefits far outweigh these effects."

• Dano
• February 21, 2021

Dupixent (dupilumab) "I received my 1st injections of Dupixent. I developed itchy eyelids. 3 days later I had a red rash on one of my arms. That went away. The eczema itch really hasn't changed any. In fact the eczema looks worse, I am not that impressed with this drug. This is rather disappointing."