Dupilumab for Atopic Dermatitis User Reviews (Page 4)

• JennH
• Taken for 1 to 6 months
• January 25, 2022

Dupixent (dupilumab) "This is my first time on an injectable biologic and I was especially scared after reading some of these reviews. But in summer of 2021 I had topical steroid withdrawal (TSW) after 30+ years of using one or another steroid on my face and body. When I stopped the steroids my face swelled up so badly urgent care thought I was stung by a bee. The swelling would be accompanied by extensive itching and weeping that would make my face swell even more and then finally crust over painfully before subsiding, only to happen again 5 days later. Dupixent saved my life because even though it was clear I had to quit steroids, the side effects from the withdrawal were so traumatic and frightening. The first month of Dupixent wasn't easy - my face and chest area turned beet red and was itchy/hot the first month. But once that subsided I had the best sleep of my life as I didn't wake up itching! I'm in my 4th month and the redness/hot feeling is completely gone. No other side effects. Give it a try!"

• Cannon
• Taken for less than 1 month
• July 6, 2021

Dupixent (dupilumab) "I have suffered from Dermatitis since birth and tried everything known to man to treat it. A few months ago this drug become affordable in Australia. I started a few weeks ago after waiting a few months to see my specialist. I have slept for 8+ hrs 3 nights in a row which I have not done since I can remember. My skin does not feel like i am a crocodile and is 50+% better already. I have been able to move my neck without pain and pick stuff up from the ground. I have even done some star jumps to celebrate with minimal pain. No side affects as yet so fingers crossed my life has changed. THANK YOU DUPIXENT!!!!!!!"

• Later...
• Taken for less than 1 month
• January 24, 2018

Dupixent (dupilumab) "I am have had congenital iycthiosis lamellar all my life, my condition has become unmanageable the past year and a half, my Dr feels I have a strong component of atopic dermatitis...and today I had my first injections, thank you for this site, it gives me hope for a better tomorrow. I hope to be back with positive progress! !"

• Anony...
• Taken for 1 to 2 years
• August 23, 2022

Dupixent (dupilumab) "Getting the shot injected is quite painful but 100% worth it. Usually whenever my eczema get extremely bad I take the shot and all the eczema goes away COMPLETELY leaves my skin looking perfectly normal. Definitely recommend if you have eczema :)"

• ND Mama
• Taken for 1 to 2 years
• March 9, 2024

Dupixent (dupilumab) "Dupixent is the miracle I have always hoped for. I’ve had moderate-severe eczema (atopic dermatitis) since infancy with almost every area of skin affected. I have spent my entire life (34 years) on various topical steroids or topical calcium inhibitors, without success. I have been on Dupixent for approximately 12 months now. For the first time in my life, I have nearly full relief from itchiness & my skin is approximately 85% cleared up. The only areas that have not cleared up are seborrheic dermatitis on my scalp, eyebrows, & eyelids. All my other body areas have healed. I will note that my eyelid eczema is no worse than it was prior to Dupixent, nor am I experiencing other negative side effects involving the eyes. Before this medicine, the sensation of itchiness was relentless, maddening, a constant source of anxiety & frustration. So it is no exaggeration for me to say that this newfound relief from itchiness has been a miracle. This medicine has changed my life for the better. Thank you."

• elior...
• Taken for 6 months to 1 year
• February 22, 2024

Dupixent (dupilumab) "I have dyshidrosis on both of my hands, and it's the only thing that has ever worked for me. I'm also not actively sick while taking it, and in general, there are very few side effects. I will say, injecting it hurts a lot. I have to get help with using it due to this because I wouldn't be able to hold it in otherwise. Another thing is that the liquid sometimes leaves a bump where it was injected, but it goes away, which I've noticed after losing some of my body fat. It's normal, but interesting to note."

• Alan
• Taken for 1 to 6 months
• June 14, 2023

Dupixent (dupilumab) "Major improvement in skin condition. Dermatitis (sufficiently severe to make walking difficult and painful) has been reduced to point where almost full use has been restored, after approximately five months. No obvious side effects. Some itching still persists, but is now managed with salicylic acid ointment. Use is expected to continue indefinitely. Dupixent has, overall, been a very successful treatment."

• surf1...
• Taken for 1 to 6 months
• November 7, 2017

"Started Dupixent 6/1/2017 while on cyclosporine and my Derm weaned me off the cyclosporine after 3 months (tri-trate) and went completely off cyclosporine 10/1/17. Still administering the shots twice monthly and while my skin looks much better my itching is still very bad waking me up at night. I'm convinced that as I warm up during my sleep that the itching starts. I will not go back to any topical steroids since I developed a tolerance to all of them eventually getting stronger and stronger ones until I suffered RSS and had a devil of a time with that (exfoliative dermatitis) that had me scratching so bad that my skin was oozing to the point that my kidneys almost failed. In conclusion skin looks much better I'm constantly bleeding."

• Thomas...
• Taken for 1 to 6 months
• June 29, 2023

Dupixent (dupilumab) "I have dealt with severe itching with sores on my head for a very long time. I started Cobatsol last year, which helped but would not stop it. I would use Cobatsol for 2 weeks and skip a week or so, and it would be right back. My doctor introduced me to Dupixent a month ago. At that time, I was given the starter dose, and within a few days, my scalp was nearly free of sores and itch. Dupixent amazed me at how quickly it worked. Finally, I have relief."

• aaa
• Taken for 1 to 2 years
• January 3, 2022

"Been on dupilumab 300mg biweekly for 2 years. I saw an immediate effect within 48 hours of the first 600mg dose. It stopped the oozing on my face which instead adopted bright red, very itchy patches. My skin overall felt like it dried out very quickly and also felt like it was being stretched. Over the course of a few weeks, the red patches died down in colour somewhat but then developed on my main body more. These red patches were itchier than any eczema I've had before but never oozed, at least. 2 years later, it hasn't stopped my facial eczema flaring up and oozing again, but the side effects remain. My main body has discoloured patches, some bright red (the more recent itchy patches,) some which have died down to brown (at which point they are less itchy). I get the impression that these side effects will last for months if not years after I stop dupilumab. My eyes feel itchy/drier more often and have gotten slightly worse since my last eye test. I will be moving to RINVOQ asap."

• Cathy...
• Taken for 2 to 5 years
• April 5, 2024

Dupixent (dupilumab) "DUPIXENT has been a true miracle in my life along with my dedication to my dermatologist. After flares of severe eczema and being misdiagnosed, I finally found a doctor who diagnosed my condition and prescribed DUPIXENT. From the initial doses, I had immediate improvement within days! My scratching and itching subsided, and my anxiety level improved. Before DUPIXENT, I was scratching the blood out of my legs. I couldn’t sleep, and I was in misery. Truly, I believe my dermatologist and DUPIXENT saved my life. I have been using DUPIXENT now for over two years, and my eczema has all but stopped! I am beyond grateful!"

• DD1
• Taken for 1 to 6 months
• July 27, 2023

Dupixent (dupilumab) "Medicine works well but the dosage pain is unreal. Terror for 10 seconds and it's over. The needle is not the problem. The amount of drug going in is the issue. But 10 seconds every other week is a small price to pay for the benefits of the drug."

• Mike
• Taken for 1 to 2 years
• September 18, 2023

Dupixent (dupilumab) "It is a miracle drug that cured my lifelong skin problems. The only downside is that the only pharmacy that I can use is CVS Specialty. They were reliable at first, but it has gotten so unreliable that I can't count on it to be delivered on time to take it. We frequently spend days ahead of the delivery date trying to get it here on time, and it doesn't show up. I found this in a search for an alternative medication that I don't have to get from CVS. You will love the product, but hate the service. Everyone at CVS customer service has been nice. They just can't reliably deliver the product. Think AT&T customer service. The longer I deal with them, the worse it gets."

• DAVE
• Taken for 6 months to 1 year
• October 6, 2021

Dupixent (dupilumab) "Started on Dupixent in January 2021 for severe dermatitis. The drug was working wonderfully. My skin had never been clearer, things were going great. In July I switched jobs and had no insurance for 60 days. I immediately called dupixent and was told there was a program they would put me on. I called several times over the course of two months with no answers. NO ONE could tell me where my case was in the process. Now I have insurance again and still can't get the Dupixent. Hours and hours of phone calls and can't get a straight answer. In the meantime my skin is worse then ever. Every time I call I get the runaround about what needs to happen next. I have done everything on my end and still no Dupixent. I have never dealt with more incompetent people. Good drug, but terrible customer service. I will be looking for a different treatment."

• Ryan...
• Taken for 1 to 2 years
• January 28, 2024

Dupixent (dupilumab) "Took Dupixent for around a year. It did clear up my skin for the most part. I had about 70 percent of my skin covered in rashes. Dupixent cleared up all of the eczema but caused psoriasis on about 10 percent of my body. The injections are ridiculously expensive and painful. Insurance stopped coverage because of the side effects."

• High...
• Taken for less than 1 month
• September 24, 2023

Dupixent (dupilumab) "My condition encompasses full body itching (excluding hands, feet, and scalp.) It has been 1 year of misery, itching till skin bleeds, then opening scabs, doctor visits, skin biopsies, blood tests, medications, ...hopelessness, all while working long hours in healthcare. Today, I am less than 2 weeks into my 1st of 2 loading doses of 2x300mg injections by a provider. I can hardly wait the 5 days before my 2nd loading dose of the same - 2x300mg injections by a provider. No negative reaction to date. Experienced a noticeable lessening of itch that 1st day. Each day the itching makes itself known. Sometimes intense. But, not as constant as it was. I have to keep my skin clean, and oiled (avocado affordable from w.m. grocery store. Creams cause sweat. Sweat brings on intense itching.) I will be injecting myself with the Dupixent pen, eventually. I fear needles. But, don't care. Because this may work. Will learn more at my next allergy office visit in 5 days. Hope this helps others, too."

• Barbara
• Taken for 1 to 2 years
• October 22, 2021

Dupixent (dupilumab) "My problems with Eczema started in 2010 it was a slow process, years later it advanced so bad I would wake up at night with extreme itch with horrible lesions. I used icepacks at night when it decided to attack me at night, I would take a thin cloth put icepack on my arm and tied it on my arm, after 20 min it stopped, but I cant do that every night, Dupixent came along it was like thank heavens, I'm happy no itch and no lesions but it does lower immune system. If it does tha , what if a cancer cell develops? How will my body fight off with good cells? I got covid this year and was put in the hospital, so to say this there is pros and cons. This did help my eczema but I still worry about the side effects later."

• Wig
• Taken for 1 to 6 months
• June 11, 2019

Dupixent (dupilumab) "Dupixent has not cured my eczema or made it any better. It has caused my breakouts to be more severe and occur more often. I now have two infected and dry eyes also due to the shots."

• cgs
• Taken for 1 to 6 months
• August 29, 2019

Dupixent (dupilumab) "Started in May 2019. Stopped taking August 2019 due to scalp itching and major hair loss."

• blues...
• September 4, 2019

Dupixent (dupilumab) "I've been on this since Feb of 2019 and I love it no side effects, hands have not broken out in so long"

• Love...
• September 26, 2017

Dupixent (dupilumab) "After nearly two years of severe itching and bleeding from scratching myself, all symptoms have subsided. Dupixent has changed my life! And no side effects!!"

• Hendo
• Taken for 6 months to 1 year
• January 19, 2021

Dupixent (dupilumab) "Dupixent stopped the itch and my sores have healed completely. My skin is 99% clear. Have not had any side effects or adverse reactions."

• Lenner
• Taken for 6 months to 1 year
• October 26, 2019

Dupixent (dupilumab) "I wasn't able to walk, or use my hands before this treatment. It has truly given me my life back. I have lost 30 pounds just because I CAN take a walk if I want to....incredible med."

• JTano
• Taken for 1 to 6 months
• May 2, 2018

Dupixent (dupilumab) "Way too expensive for Medicare patients. My co-pay was $987 per month after Select Health covered 66%. Gave up waiting for it work after 4 shots over 6 weeks."

• Pipey...
• Taken for 1 to 6 months
• February 6, 2022

Dupixent (dupilumab) "I am just about to get my 6th shot of Dupixent. I'm very sad to say its not working on me at all."