Dupixent for Asthma, Maintenance User Reviews (Page 2)

• Bren
• Taken for less than 1 month
• January 23, 2022

"I started with Dupixent (300mg) over a month ago for severe asthma. Within several days both of my arms and hands felt like they had been slammed by a sledgehammer and both hands were constantly burning. The pain was indescribable. It only began to subside two weeks later, when the next dose was due. I decided to go for it and see if this problem would continue. Unfortunately the pain and burning in both arms and hands came back with a vengeance. I called my doctor and we both agreed to stop the Dupixent. Now the pain and burning are gone, thank goodness!"

• Collee
• Taken for less than 1 month
• July 23, 2021

"I've only used my 1st injection and had side effects 3 days after injecting. Depression, and now 1 week following the 1st injection My left eye is actually bleeding. I have an emergency appointment with my eye doctor Tomorrow. I hope this can be resolved."

• Anonymous
• January 1, 2021

"I have had severe asthma and asthma since infancy. The last several years with frequent fires/smoke I have had daily breathlessness and several ED visits with frequent steroid use for >1 month at a time. I noticed after a few months of being on the medication I can finally breath better. My breathlessness has gone from daily to a few times per week and resolves with rescue inhaler. This medication has greatly improved my quality of life over the past several months and I am finally able to exercise again. I am not going off this medication until I complete my maintenance allergy shots, unless I begin to experience some other side effect that’s worse than not being able to breath."

• Shell
• Taken for 1 to 6 months
• March 24, 2021

"Started Jan 2021 for asthma. I spent most of 2020 on antibiotics for sinus infections and prednisone for asthma. Blood EOS was nearly non existent on blood tests, literally 0.1. Started off fine, after 4 doses my blood pressure started going crazy, I was asleep 20 hrs a day (no exaggeration). Two ER visits in 2 weeks and admission for BP 213/121. No one could figure out why BP was flaring to stroke levels repeatedly. 24 hr BP cuff showed was spiking even while I was asleep. We stopped dupixent and 2 weeks later my BP is finally settled and I can make it a whole day without napping. Really sad as it was helping, I felt less wheezy and my stuffy nose went away. Lucky to all those that it’s helping.. me, I’m back to drawing board."

• David...
• July 12, 2021

"Was diagnosed with AERD / Samter's Triad 10+ years ago and have had asthma, skin issues, and chronic rhinosinusitus that was near deadly several times (went into anaphylactic shock). Was on a cocktail of drugs previously including prednisone when I would get sinus infections every 3-4 months. Have been on Dupixent now for about 4 months and it is literally life altering. Have nothing but positive things to say about this drug, it has been wonderful for me. In response to another person posting above about her son using it, the actual needle isn't what causes pain of injections (unless you hit bone with needle). The liquid being injected is what hurts and that is normal. Make sure you allow the drug to warm up for 30-45 minutes before injecting as per instructions. Also, if you inject it slowly but steadily it will lessen the pain."

• KDB
• December 12, 2021

"I’ve been using Dupixent for over 2 years and “yes” it does work on my asthma, but I still cannot understand why it burns so much going in. It feels like fire is going in. But I can’t stop using it. Recently my company changed our insurance company, and there was a 4 week stoppage. After missing dupixent for just one doses, my asthma kicked in and I was in trouble for those weeks off the drugs. My Trelegy helped out a lot, but I strongly recommend using this drug for asthma, and for those who are battling with COPD. It really does work."

• Drivi...
• May 9, 2020

"Someone asked does the Dupixent shot hurt. I am deathly afraid of needles and it is a very tiny prick. It will hurt going on if they administer it too fast. When I told the nurse she backed off and administered it slower and then it didn't bother me. I was just ask the nurse to slow or down. Btw this was my first round with the 2 injections"

• Dupix...
• Taken for 5 to 10 years
• February 17, 2024

"Using for asthma, better asthma control, no more exercise-induced, no ER visits, better seasonal allergy control, fewer sinus infections, still can get breakthrough bronchitis or asthma requiring oral steroids, still using Symbicort, side effect is dry eyes, extra monitoring by eye doctor, steroid eye drops & replacement tears."

• Asthma...
• Taken for 2 to 5 years
• August 20, 2022

"I was diagnosed with asthma at 50 after years of wheezing and terrible sinus infections (sense of smell was completely gone) and being treated every month with prednisone, antibiotics and Fasenra. Fasenera, did not do anything despite being on it for over one year. I was not getting better. My asthma doctor and ENT thought the sinus infections were related to my asthma so I had sinus surgery where they discovered and removed many polyps. Post sinus surgery , in about two months I was right back to the same conditions as before. Finally, frustrated and without recourse, I was put on Dupixent and about two weeks after the first dose (600mg) my nose started to clear and I could breathe without wheezing, particularly at night. Now, two years later , I have had no more sinus infections , the polyps are gone and have not used an inhaler in over two years. Dupixent has worked incredibly well for me and is highly recommended if you’re at wits end with sinus infections & asthma."

• Sicker...
• Taken for 1 to 2 years
• July 19, 2022

"I started Dupixent in 2020 and thought everything was good until April of 2022. April 11, 2022 I called for my refill. I finally got it refilled, and it became the worse day of my life. Since then I haven't gotten any refills because Dupixent refuses to pay Ingenio. I've gotten several $3349 bills, phone calls, emails, and texts. I've called all parties involved asking for management, NOTHING. Dupixent is telling me one thing while telling Ingenio something else. When I called Dupixent for the refill on 4/11, the rep from Ingenio said she wanted us on a recorded line so they would be liable incase something went wrong. I've asked for that recording and of course I have yet to get it. Dupixent and Ingenio are both horrible companies that don't help I would not recommend this product for anyone. It put spots on my legs. My knees became so weak they would swell and I couldn't walk. Don't use it for your safety."

• 2MTNTOP
• Taken for 6 months to 1 year
• June 26, 2023

"I went on Dupixent seven months ago, 300mg twice a month. It has worked wonders for my asthma and for nasal polyps. It pretty much cleared up both 100%. The problem is that I have developed hip pain in both hips. I am working with my doctor now to lower the dosage and hope that will help. I want to stay on the medicine but I am worried about the hip pain."

• Belinda
• Taken for 1 to 6 months
• June 12, 2022

"I almost died from my last asthma attack, I was rushed by ambulance to the hospital and put a mask forcing air and put on oxygen and steroids again, this has happen several times each year and getting worse. Literally overnight after injecting dupixent my oxygen saturation level has not decreased below 97. Amazing! Dupixent has saved my life."

• t2z1
• Taken for 1 to 6 months
• October 23, 2023

"Asthma - I am on my 4th injection after the loading dose and it is not working very well. My coughing attacks have reduced in severity but are still occurring. My breathing has not improved more than a trifle, and I am once again dependent upon my rescue inhaler a few times per day and especially at bedtime. I have had two severe and one very severe breathing attacks that have required me to use my Nebulizer to get my breathing back under control. I was switched to Dupixent from Tezspire and I am going to speak with my doctor about going back to the Tezspire since the time that I have been on Dupixent I have felt worse and it has barely touched my asthma symptoms."

• War...
• Taken for 1 to 6 months
• July 28, 2021

"I just took my second self injected dose. So far, no problems. Virtually painless and no side effects. My doctor has taken me off the prednisone and so far no exacerbations. Without prednisone I was in the ER about once a month. I hope I never have to go back on prednisone. Bad side effects."

• Anonymous
• August 3, 2022

"Dupixent is working well for me. However I was on vacation and one of my syringes broke so I called 10 different numbers to try and get a replacement in nobody ever called me back. I rely on this drug to breathe and I find it very disturbing that nobody ever called me back to follow up."

• Catki...
• Taken for 1 to 6 months
• July 3, 2022

"I have moderate, persistent asthma (steroid dependent) after trying NINE yes, NINE maintenance inhalers, and having a whole 2 months worth of prednisone & countless trips to the ER this past year, my lung dr finally gave me Dupixent. Within a month I feel better but hoping it’ll improve even more!! There are still triggers like cigarette smoke that set me off but I can control it now. I take 2 puffs of albuterol inhaler and I’m good to go. However only thing is I do notice that after taking it, about 10 days or so into the dose I’m on, I feel it wearing off!! But it helps a lot!!! :) so glad I have this drug. So far no side effects."

• Harry
• Taken for 6 months to 1 year
• July 20, 2023

"I tried Fasenra first but had a slight allergic reaction to it, so they switched me to Dupixent and that seems to be working fine. I did have a few weeks where my breathing was great, then the pollen started and the smoke from Canada wildfires came along, but all in all I think it has helped with my breathing issues."

• Nizam
• Taken for 6 months to 1 year
• November 10, 2021

"I had zero smell due to nasal polyps and had 2 surgeries that temporarily relieved the pain/situation but never got my smell back. Started Dupixent Feb 2021 and have never had any side effects and it has changed my life. I can not imagine going back to the many medications I was on before I found this solution. I was on Claritin a day, Breo, Flonase, astelin. Plus prednisone frequently when I would have allergy or give flare ups. Now I only take this one medication and do not need anything else. A blessing in my life for sure."

• Jeff
• December 28, 2021

"I have had really bad asthma since I was a kid and mild copd . I have been on symbicort and ventolin for my years. Using my Ventolin as much as 10 times a day. Also had to use prednisone on regular bases. Finally got put on Nucala a few years back and it definitely helped but would wear off before the next injection. My doctor switched me to Dupixent and my asthma is way better. Been on it for 12 weeks now. I suggest to go on the 300mg. It definitely works. All the best and happy breathing!"

• Anonymous
• Taken for 6 months to 1 year
• May 11, 2022

"Dupixent saved my life. I went for being horribly sick for many years not being able to breath, living on and off of a breathing machine, inflammation in all mucus membranes, to being 80 percent healthy! The shot can hurt immensely but is worth it!! I have Aspirin Exacerbated Respiratory Disease"

• JoJoCal
• Taken for 2 to 5 years
• November 5, 2021

"In Sep 2009 I collapsed in a parking lot and was rushed to the ER. They found that my entire left lung was full of “tumors” and removal of my lung was suggested. I refused and sought a proper diagnosis. Finally in Nov 2010 I was diagnosed with allergic bronchopulmonary aspergillosis. I was started on anti-fungals, high dose steroids (60 mg/ day for a year) and underwent a series of 17 bronchoscopies over about 2 years. I still had exacerbations multiple times per year often requiring hospitalization. I then was diagnosed with eosinophilic granulomatosus with polyangitis. My pulmonologist/immunologist started me on Nucala until Dupixent was FDA approved for asthma. After my 3rd month on Dupixent I was an entirely new person. I have completed 76 doses and have not needed another bronchoscopy. I have experienced severe eye sensitivity to light which has improved over time. The injection does burn but it pales in comparison to the lung pain I used to experience."

• Bob...
• Taken for 2 to 5 years
• March 23, 2022

"Prior to taking Dupixent, I was on a low maintenance dose of prednisone and on top of that required a high dosage burst of prednisone from 2 to 5 times a year to stabilize my asthma symptoms, specifically severe cough and shortness of breath (low peak flow). I had nasal polyps that required two prior surgeries and a history of frequent sinus infections. After a brief period of taking Dupixent I backed off the prednisone maintenance dose. For 2+ years I have not needed to take any prednisone to manage my asthma symptoms. I still cough but peak flow is perfect. No deterioration in nasal polyps and no significant sinus infections. I have had no noticeable side effects at all."

• Lynn
• Taken for 1 to 6 months
• January 22, 2022

"I have had severe asthma since birth. For the last few years I have developed remodeling of my lungs. Basically my lungs are damaged making it hard for me to breathe like emphysema. Like others I have to be on steroids a lot. I have tried a lot of meds and shots, nothing has worked. I've been on dupixent for a month. Still having problems breathing. I have noticed increased heart rate, especially the first few days after the shot, skin problems, aching in my joints, fatigue and now for 2 days my eye hurt, I can't see, poor vision very red, oozing and feels like a pencils in my eyes. I really want to give it a chance and hope the symptoms will go away."

• Pat
• Taken for 1 to 2 years
• September 12, 2023

"Dupixent has helped my asthma immensely. Prior to starting Dupixent, I needed steroids (Prednisone) almost monthly. Since starting Dupixent, I only needed steroids twice this year. I am also less short of breath. I had joint pain after the first two doses, but then none. I had injection site redness and bruising with the autoinjector. I switched to the syringe and had no reaction."

• BKC
• Taken for 1 to 6 months
• February 24, 2023

"This medication is like a miracle cure for my Asthma problems. I never cough like I use to and it has helped me to breath better. I have no shortness of breath when doing activities, such as walking or over exerting myself. This medication has made me feel so much better. However, now that I recently got on Medicare it is no longer covered. I can't afford to take this medication any longer."