Entyvio User Reviews & Ratings (Page 5)

• Anonymous
• Taken for 5 to 10 years
• August 17, 2023

For Ulcerative Colitis "Prior to receiving Entyvio, several other medications, including at least 3 other biologics, stopped working within a few months. Entyvio got my ulcerative colitis under control so that I almost felt normal again. However, I received Entyvio infusion every 6 weeks rather than the standard 8 weeks. Testing showed my body was depleted of Entyvio after 6 weeks. The 6-week regimen brought the condition totally under control. My doctor's office was calling me their poster child for excellent Entyvio control. The above was deliberately written in the past tense because due to some unfortunate circumstances I did not receive Entyvio for over 7 months. I am now back at the loading position to get back on Entyvio. I had my zero-week infusion two days ago, appointments for week 2 and week 6 infusions, then return to the every 6-week regimen."

• Jas...
• Taken for 2 to 5 years
• September 19, 2023

For Ulcerative Colitis "I've had UC for 25+ years, most of my adult life, hospitalized once. I've taken ASACOL for many years and tried several other oral medications that I thought were working okay, as I'd only have a few flare-ups per year. Most wouldn't be acute long enough for me to request steroids to combat the flare-up. After consultation with a new GI doctor, I followed his recommendation to try a biologic, and Entyvio was the choice. It has been about 3 years now that I haven't had a single flare-up, and I've never felt better! Entyvio has changed my life with zero side effects. I am very satisfied with the medication. Thank you!"

• Far...
• Taken for 6 months to 1 year
• August 17, 2021

For Crohn's Disease "Been on this for just under a year now and seems to be doing the trick. Cimzia was no longer working, and that was after Remicade and Humira. Running out of options, it seems, but luckily this drug seems to be working well."

• Hen...
• June 27, 2024

For Crohn's Disease "Entyvio working well now after 9 weeks with no side effects to speak of. I was ready to try Stelara if the Entyvio didn't kick in by week 10. As I understand it, Entyvio works incredibly well in 15 percent of patients, almost like a cure for Crohn's. Not as great for others who get on it. Such a relief to feel strong and positive again. To be more active without fighting fatigue and inflammation... and those terrible nights. I've started to test it out with some high fodmap foods which I would've never done two weeks ago... with great success. Regular exercise and alternative therapy and oils definitely help to boost the Entyvio, get me through the transition and lift mood. Fingers crossed... and no more prednisone."

• Kev...
• Taken for 2 to 5 years
• March 15, 2022

For Crohn's Disease "I have been receiving Entyvio infusions for about three years for a Crohn's diagnosis of 40 plus years. I generally feel good but am plagued by frequent bowel movements - two to five times per day. Keeping a normal weight for my height is a challenge, as it is a daily struggle to eat enough to replace nutrients lost during my daily purging. My current colonoscopies show that inflammation in my small intestine is 'stable,' meaning it hasn't improved or gotten worse. When I first went on Entyvio, I was told my Crohn's was in remission. Now I'm questioning whether Entyvio has run its course and it's time to try another treatment. I would rate the effectiveness of Entyvio at about a 4. If the number of bowel movements were to improve, I would rate it close to an 8 or 9."

• Anonymous
• Taken for 2 to 5 years
• March 24, 2022

For Crohn's Disease "I’ve had Crohn’s since 1968. I’ve been on sulfasalazine, prednisone, Bentyl, amitriptyline, Parnate, and Remicade. Prednisone worked, but the side effects impacted my joints. Second surgery in 2006. Started Imuran. It worked okay, but not great. At my age, the doc said lymphoma potential was becoming a possibility. So I started Entyvio. It’s been over two years. I have my life with no issues except getting the infusion every 8 weeks. No side effects. A colonoscopy after 2 years showed over 90% reduction in inflammation. The biggest issue is losing 2 feet at the end of the small intestine, which resulted in needing B-12, D, E, K, and iron. BMS down to two a day unless I have certain spices, fatty meat, or anything deep-fried. No medicine works for everyone, but this one has worked for me."

• Pee...
• Taken for 2 to 5 years
• March 10, 2024

"The infusions have helped my pouchitis and cuffitis tremendously. I'm finally down from 20+ bowel movements daily to about 10 and under, depending on the day. I should qualify this though, as I do have to take Imodium daily, taking a minimum of 2 in the am and 2 in the pm, with additional as needed throughout the day. I have these infusions every 8 weeks, and depending on the speed of my clinic's pharmacy, I'm usually in and out in about 2 hours. The downside is that I have developed significant side effects from Entyvio. I now have eczema, which is very frustrating and difficult to treat. I also have daily headaches, and they have never been an issue for me before, so I don't appreciate having to take Tylenol every day. The third frustrating side effect is increased gas. You can really hear the movement in what's left of my small bowel, and it can be very embarrassing when I'm out in public."

• Anonymous
• Taken for 1 to 6 months
• October 13, 2021

For Ulcerative Colitis "I had really thick hair. I started Entyvio, and it made my hair shed so much that I lost probably 30% of my hair. I wasn't too concerned about it at first because I used to have to get my hair thinned because I had so much hair. I stopped Entyvio 3 months ago, and my hair is still thinner than it used to be, and I am still shedding probably more than the average person, but not nearly as bad as when I was on it. I could put my hands through my hair and see so much falling out. Entyvio stays in your system for at least a month after your last dose, so I'm hoping my hair will become healthier again. I'm on Humira now, so hopefully it doesn't cause it too, but it's gotten MUCH BETTER being on Humira. Also, Entyvio didn't work for me for UC, it only has a 40% success rate. I was on it for 6 months."

• car...
• Taken for less than 1 month
• November 7, 2023

For Ulcerative Colitis "So far, so good. I've only had three treatments. This is the third drug in this category I have been given. Side effects so far are tiredness and a mild headache for about a week post-infusion. The drug is effective in controlling symptoms of ulcerative colitis."

• Mim...
• Taken for 1 to 2 years
• October 30, 2023

For Ulcerative Colitis "I was on Entyvio for almost 2 years. The truth is, it was the only treatment that worked for me and put a stop to my symptoms. However, the joint pain was unbearable. Over the months, I began to have severe allergic reactions. I felt so tired after every IV of Entyvio that I couldn't stand up from my bed. I also started to feel facial paralysis and other severe pain, and I had to give it up. It's effective, but you have to decide how long to endure because the side effects are very strong."

• for...
• July 25, 2021

For Crohn's Disease "Diagnosed with Crohn's and started Entyvio a year and a half ago. My inflammation markers have been trending down this whole time, and I am now in remission. This drug works very well for controlling my Crohn's. I did not have any remarkable or lasting side effects from Entyvio until recently. After my 16th infusion, I started getting a rash around my eyes, itchy eyelids, and flaking skin. The dry skin patches have now spread to around my ears and mouth. If this side effect can be managed, I will have no issue with this drug."

• Tra...
• Taken for 1 to 2 years
• September 9, 2023

"Entyvio has changed my life, so please understand that any of my side effects or experiences are 100% worth it for me. I have had this disease my whole life. I was finally diagnosed at 25. I’ve had on-and-off bouts of active, severe disease and long stretches of remission. In 2021, I had the absolute worst flare of disease in my life. I was severely anemic, I could not function due to weakness, diarrhea, and pain. I’m 55 and work hard to not let my health rule my life, but I felt like I was dying. I didn’t want to start a med like Entyvio because I figured I would need to stay on it forever if I did. I had some long conversations and decided it was the best option. I hate the steroids, and I was really too sick to decline the new meds. Within three infusions, I was so much better. I have continued to improve. My side effects are this: flushed skin and rash 1-2 hours after my appointment, I take Benadryl. Headache, body pain, gas, bloating, exhaustion for 48 hours. Entirely worth it."

• Don...
• Taken for 1 to 6 months
• September 27, 2023

For Crohn's Disease "I started Entyvio some 26 weeks ago and I've experienced relief. I noticed diminishing symptoms from Crohn's disease around week 3. I did experience some discomfort prior to the second infusion at 8 weeks as well as just prior to the third. My gastroenterologist has now scheduled the infusion every 6 weeks and I look forward to full remission."

• Jon...
• Taken for 1 to 2 years
• May 19, 2023

For Crohn's Disease, Maintenance "Post-ileocolectomy surgery, Entyvio was prescribed for maintenance. The initial 8-week dosage was increased to every 4 weeks after blood work revealed insufficient concentration. A colonoscopy after 6 months revealed no polyps, no inflammation, and no ulcerations. I suffered no side effects. Note: Entyvio was prescribed after 5 years on Humira when blood work revealed the TNF blocker was no longer effective. Since Entyvio is administered by infusion at the hospital, it is covered by Medicare Part B, not Part D, and the copay is covered by a Medigap policy (AARP United Health Care)."

• dan...
• Taken for 1 to 6 months
• June 3, 2023

For Ulcerative Colitis "Started on Entyvio in March 2023. Have had no real side effects, just a little tired the day after the infusion and a slight headache the day of. I am in the third quarter of the first 8-week break. Have had some issues during this period with soreness inside my lower abdomen, not sure if it is related. I usually have well-formed stools and less frequent bowel movements, although I have had some diarrhea when I experienced soreness in my abdomen."

• Mar...
• Taken for 1 to 2 years
• September 16, 2022

For Crohn's Disease "My son started Remicade and did not work, then we started Entyvio and has been on Entyvio for over a year. He had an ileostomy surgery, unfortunately, his colon had many polyps. This medicine works slow, really slow. It has controlled his symptoms. The side effects on him: loss of hair, stuffy nose, his hands shake after the infusion for a few days, joint pains, then they go away. Compared to Stelara, which I’m terrified to use based on the horrible side effects-depression, mental issues, etc.-I prefer to have this one. I know some people don’t react to it. Do good luck! This illness is uncontrollable! Hate it."

• Pat...
• Taken for 2 to 5 years
• May 17, 2022

For Ulcerative Colitis "Entyvio has worked very well for me with no noticeable side effects. I was in bad shape when I started on this med. I have taken infusions every 8 weeks for about 2.5 years, and I am very grateful for this medication."

• Ros...
• May 2, 2021

For Crohn's Disease "Entyvio did help me. Took almost 2 years, but now they won't help with insurance copay, and I cannot take it anymore. It is way too expensive. I am really so angry this has happened. I never thought I could not get the meds I need."

• Deb...
• Taken for 1 to 6 months
• September 25, 2021

For Ulcerative Colitis "Had serum sickness on Remicade due to an extended gap in treatment, after failed treatment to conventional therapy. Rash and fever to Humira. I did very well on SYMPHONI. But... insurance refused to pay for the monthly injections (Medicare/supplement) 3 doses in. So I had fatigue, hot flashes, minimal joint pain. Good results so far. I don't like going to the office for infusions when self-injection was going well. The company that produces this drug refused financial assistance. I retired from nursing after 46 years in a hospital setting."

• Anonymous
• Taken for 1 to 6 months
• October 18, 2021

For Ulcerative Colitis "I have received my first three infusions, and my hair is falling out so badly. I have lost at least half my hair. I used to have thick, beautiful curls. I was so sick before the Entyvio. It’s working, but after the third infusion, I experienced joint pain that made it difficult to walk, fatigue, and aches that felt like the flu was setting in. Symptoms continued for two solid weeks. I just wish my hair would stop falling out. I wake up in the middle of the night thinking about it. I’m 47 and devastated that I am on my way to being bald."

• Mat...
• Taken for 1 to 2 years
• March 22, 2020

For Crohn's Disease "My husband started Entyvio a year ago at the recommendation of a new GI doctor. Four months ago, he got Giardia, two weeks ago, he got Shigella. He is now in the worst Crohn's flare of his life. The GI doctor at the local hospital said that based on the amount of inflammation, this drug has never worked. Don’t try this drug! Doctors are only interested in the amount of kickback they are getting from the drug company."

• Dsr...
• Taken for 1 to 2 years
• August 25, 2023

"Nasal congestion, two months of sinusitis, chronic cough, frequent sore throat with fatigue. Tendency to upper respiratory infections. On the positive side, reduced needed dose of budesonide. Note that I am an elderly patient over 80."

• G...
• Taken for 2 to 5 years
• December 26, 2024

For Ulcerative Colitis "It saved my life. I thought I was on my way out. My doctors tried everything. Nothing worked. Until I saw an ad on TV about Entyvio. I told my doctor about it, and soon enough I was getting infusions. Now I inject myself every two weeks. It works great. I have total respect for the scientists that made this drug. As for side effects, none. And if I get side effects, bring it on. Nothing like UC that was messing up my life. Entyvio, thank you, thank you, thank you."

• dig...
• Taken for 5 to 10 years
• January 31, 2025

For Crohn's Disease, Maintenance "Life changing. Found out I had Crohn's. Got really sick. From 300 pounds to 94 pounds, was taken in for surgery, lower and upper GI was removed. Been taking Entyvio for 8 years. Was removed off Entyvio for two years and now sick again, going in to be scoped. Will know soon if it's grown or if it's still gone. But something is telling me it's back. I pray Entyvio works again."

• Bob...
• Taken for 2 to 5 years
• September 11, 2024

For Crohn's Disease "I had to have the infusion time frame decreased. I have it every 6 weeks. Blood tests were done to show I was not retaining enough of it between 8-week infusions. The doctor had to do them and submit to have insurance cover the shorter time frame."