Entyvio User Reviews & Ratings (Page 2)

• Fry...
• September 4, 2016

For Crohn's Disease "I have been on Entyvio for 13 months. It doesn't seem to be helping the diarrhea or urgency. I am fatigued all the time. I am having lots of joint pain and weakness (fingers, wrists, toes, ankles, knees). I trip/fall because my ankles roll, I drop things because my fingers won't keep a grasp. I have been tested for RA - negative. I don't think it is working, but my GI wants to try infusing every 4 weeks instead of every 8 weeks. To me, Entyvio is not worth the side effects."

• Mja...
• September 6, 2019

For Ulcerative Colitis "I used Entyvio for around 9 months for ulcerative colitis. Not only did I lose all of my hair, 2 years later it has not grown back. I am bald on the top right and entire back of my head. I also lost my eyebrow hair and leg hair. I had no results with this drug, and now I am devastated and depressed from being permanently bald."

• Cee...
• Taken for 1 to 6 months
• September 8, 2019

For Ulcerative Colitis "I am due for my 4th injection of Entyvio in a few days. Towards the end of the 2nd infusion, I started to feel worn out. Thought it must mean my body is in need of the 3rd. Since the 3rd infusion, I have been suffering with chronic fatigue. It is debilitating, which in turn messes with your mental health. Entyvio has almost eliminated my UC symptoms but at the price of my quality of life. Also experiencing hair loss & breakouts. My G.I. doctor says fatigue isn't a thing or a side effect, my case worker at YOURVANTAGE says it's a common side effect but to get 4 injections before stopping, my GP says maybe take a drug holiday... I'm at a loss as to what to do, but leaning towards stopping."

• Pau...
• Taken for 1 to 2 years
• October 19, 2019

For Ulcerative Colitis "I’ve tried just about everything for ulcerative colitis (UC) over the last 15 years. Most meds work for a while and then stop. After 12 months of Humira, which helped somewhat but was inconsistent, I started on Entyvio in April 2018. After the first 2 infusions, I felt much better. I was closer to remission than I have been in years after the week 6 infusion and continued feeling great for about a year. I’ve started having flares again, and my doctor is considering going to more frequent infusions to get me back on track. The only side effect was some joint pain in my hands and wrists. It was severe at times but completely went away once I was on the maintenance doses."

• Ale...
• March 15, 2017

For Ulcerative Colitis "I just wanted to write to thank everyone for their feedback and advice. My gut feeling was to not go in this even though drs told me Entyvio is the best, safest thing (apparently not). I have a friend who's decided to go on it about 3 infusions now and not well. Severe joint pain and sore bones throughout, as well as dealing with a rash and possible other autoimmune conditions that have not been verified yet if it's drug-related. All symptoms are since being on Entyvio. I'm so glad that I followed my instincts and not the drug's/Dr. Hoping for some better options that are safer for all of us!"

• Nin...
• Taken for 1 to 6 months
• February 26, 2020

For Ulcerative Colitis "I was diagnosed with Ulcerative colitis (UC) 22 years ago. I was on medicines including ASACOL until I reached a remission that lasted for seven years, and I thought I got back to normal and a flare-up would never happen again until the last 7 months when I had the surprising flare. After the colonoscopy, the doctor prescribed Prednisone, and I took it for 3 months, where I got better but with many side effects. They then said I must continue with Humira, as cortisone medicines must not be taken for so long. I started Humira and had 7 injections with no improvement until they decided I should change to Entyvio. On 24/01/2020 was my first infusion, and until now, my flare-up is getting worse with no improvement, and I feel so sick with severe abdominal pain and many bathroom visits a day."

• Car...
• Taken for 1 to 6 months
• April 29, 2019

For Ulcerative Colitis "I was on Entyvio for 6 months. I had no symptoms during my loading doses, and then it hit me like a rock! I have episodes of stroke-like symptoms. My hands would get sweaty, I get to where I feel like I'm going to pass out, lightheaded, overall weird feeling. I couldn't even drive to work because of the attacks. Muscle aches, flu-like symptoms, and chronic sinusitis. Missed several weeks of work from episodes. I also developed a rectal abscess. I had an MRI to see what's going on, and there's signs of minimal damage to my brain! I had none of this before Entyvio."

• Liz...
• Taken for 6 months to 1 year
• February 4, 2020

For Ulcerative Colitis "After 6 days of my first Entyvio infusion, I was symptom-free. My hair had definitely thinned, I don’t care, I feel alive again. I have been on it for 8 months. Life-saving for me. I’m 63, recently diagnosed. Tired after infusion, take 2 Benadryl and go to bed!"

• AKa...
• Taken for 1 to 6 months
• June 13, 2019

For Crohn's Disease "I have struggled with Crohn's disease for many years. I have been able to lead a normal life with Remicade IV every 8 weeks, it was the best med for me until now. Unfortunately, it stopped working. My GI doctor put me on Entyvio. I'm on my second dose and not happy. I'm very concerned. I'm having symptoms that set me back 15 years. I have nausea, vomiting, diarrhea, joint pain, skin lesions, headaches, blurred vision, and fatigue. I had to take off several weeks of work also. I would not recommend this medication. I'm working with my doctor now for a new plan."

• Sti...
• Taken for 1 to 6 months
• November 16, 2016

For Ulcerative Colitis "After being allergic to all mesalamine drugs, Remicade, and built up antibodies against Humira, I was hopeful after my 4th treatment that I was finally in remission. Then, the morning of my 5th treatment, I go into the doctor's office. About 15 minutes after my IV started, I began to feel really lightheaded. I had a tight chest, and my whole body felt heavy. This out-of-body feeling came over me, and I was fixated on one spot of the room. Next thing I know, I wake up to EMTs over me saying I had unresponsive pupils with hives. They said I was unresponsive to everyone around. I don't remember anything else until I got to the ER. If you start to feel dizzy, tell the nurse right away! Good luck to everyone."

• Tor...
• Taken for 1 to 2 years
• August 31, 2016

For Crohn's Disease "I have been on it for a little over 1 year. My Crohn's is better, but I now have severe liver disease. I had a CT scan 10 months ago with mild fatty liver. A recent CT scan revealed severe liver disease. I am so annoyed! Be sure to ask questions and do your research. I would have rather lived with Crohn's than with a ruined liver!"

• Joh...
• Taken for 2 to 5 years
• February 20, 2019

For Ulcerative Colitis "Was on the verge of having colon removed, having tried Humira and other treatments with no relief. After 3 months on Entyvio, started to get results. Symptoms are reduced but not eliminated. Quality of life is much improved. Have been on it over two years."

• Gan...
• Taken for 6 months to 1 year
• November 18, 2019

For Ulcerative Colitis "I have had UC since 2010. I took Lialda for years, then weaned off of it when I moved to Europe for a while. In December 2018, I had my 8 years since diagnosis colonoscopy, and my GI couldn't believe I wasn't in the hospital with how inflamed my colon was. I was in pain, but I learned to deal with it. Now, 7 months after starting Entyvio, I am wondering if the side effects are worth it. My colon is definitely better, but I am constantly tired, my bones hurt, and I always seem to get sick a week or so before every infusion and wonder if I'll even be able to get it. The pain in my joints can be unbearable. I am going to see a rheumatologist to see if they can help me get this under control since my UC is finally in remission."

• Fer...
• Taken for less than 1 month
• November 17, 2016

For Ulcerative Colitis "I have only had one infusion of Entyvio. Twelve hours after the infusion, the pain started. Severe colic-like pain. Shaking and trembling. Huge swollen legs and feet, which diuretics won't help. Very unsteady on my feet, loss of balance, and joint pain. They told me there were practically no side effects of this drug. I have been deceived."

• TJa...
• July 27, 2019

For Crohn's Disease "Started Entyvio because Dr. said Humira wasn’t controlling my disease based on my last colonoscopy, even though I felt great! A month later, I had a flare and was in the hospital. Five months after the first infusion, my hair started to fall out as if I was receiving chemo! Then I put on 20 pounds and can’t lose it to save my life. Now I’m constipated all the time. And as if this wasn’t enough, the insistent itching began along with the coughing and sneezing. Dr. got tired of hearing me complain and did another scope, and my intestines are worse than they were before! Going to try Stelara next. Unfortunately, Entyvio stays in the system for ages."

• Cha...
• December 26, 2017

For Ulcerative Colitis "DO NOT TAKE ENTYVIO!!! That is, of course, unless you want your immune system to shut down and be unable to fight off even the littlest common cold. Not to mention the crazy amount of debilitating side effects: headaches, sore muscles, major fatigue, restless leg syndrome, feeling like you want to throw up out of the blue, back pain, and coughing. Oh, and if you do happen to get a cold while you're already experiencing these side effects, you might as well multiply the pain by 3 and prepare for a very long recovery as your body is too weak to fight off any disease. As for my colitis symptoms... Entyvio almost TRIPLED my symptoms!! Constant diarrhea, non-stop abdominal discomfort, and literally you are up all night. AVOID BY ALL MEANS!"

• Han...
• March 13, 2019

For Crohn's Disease "Entyvio caused a lot of pain to my body. My joints started popping out of place. Started with my toes popping out of socket, I would have to pop them back in a couple of times a day for over a month. My hip dislocated, shoulder, fingers, and jaw pop out of socket. I had hundreds of knots form in my back. I ended up being hospitalized for several days due to a partial bowel blockage, this was several months after starting Entyvio, so it should've been fully built up in my system. Entyvio was absolutely terrible in all aspects for me, and I would never recommend it for anyone. Don't waste your time, money, and health on it."

• Bp8...
• August 26, 2018

For Crohn's Disease "Have been on Entyvio for over a year, without question, it has saved my life. I struggled on and off for 30 years. My last flare-up was the worst, unable to work or function outside the house for 3 years. After a year, I am 100% able to work and enjoy a normal life."

• Bil...
• Taken for 2 to 5 years
• September 12, 2018

For Crohn's Disease "Have been on Entyvio for well over 2 years. Crohn's is under control, with the last colonoscopy showing significant improvement in the large intestine. Have some pain now and then, but nothing to stop me from getting on with life. Only side effect I've experienced is being a little tired in the evening after the infusion. Fortunately for me, I live in the UK, and my treatment is covered by NHS."

• Bra...
• January 19, 2021

For Ulcerative Colitis "This is the first UC drug that I've seen an immediate and significant improvement from. It has given me my life back. After a nasty flare over a long period of time, Entyvio had me feeling better within the first few weeks. I have been in remission for over a year taking this every 8 weeks, this is the longest remission streak I've ever had since being diagnosed 15 years ago. For a day or two after the infusion, I am VERY tired, have some joint pain and headaches, but they are relatively mild compared to a UC flare. I also find if I am sufficiently hydrated before and after the infusion, the side effects are far less severe."

• Dor...
• Taken for 1 to 6 months
• October 16, 2016

For Ulcerative Colitis "I thought Entyvio might have been the next best treatment, after I could no longer take Remicade and Humira. I started the injections in May, and my ears started to bleed a week after the injection. After a month on the medication, I have full-body itching. Lastly, after five months on the medication, I am also sneezing and have patches of dark red, angry rashes that are the size of a silver dollar. I would highly recommend close observation on this medication and speak to your doctor right away when any of these side effects occur. In my case, they are only increasing with more exposure."

• Ser...
• Taken for 1 to 6 months
• May 28, 2019

For Crohn's Disease "The positives: my bowel movements have slowed down considerably. I have not lost weight. Less gut pain and urgency to use the toilet. The negatives: I feel uncomfortably hot sometimes, fatigue (although I have to say I am getting iron infusions because I’m anemic), gas can be bad (take Protonix, Gas-X, and Xantac). I was on prednisone when I started Entyvio. Prednisone is heaven to me, but it is difficult coming down. I am afraid of this very strong drug, but I developed antibodies to Humira. Skipped any treatment for weeks and went into Crohn's Hell. (I wanted to stop eating.) No problems during and after injections. Did get a mother of a sinus infection when I got the last Entyvio injection early: 6 instead of eight weeks. I am having my eight-week injection soon. We’ll see. If this one doesn’t agree with me, that will be it. But, I have to eat at least and not lose weight fast. I can drop 10 lbs just like that when my Crohn's is active!"

• Hal...
• February 13, 2017

For Ulcerative Colitis "I haven't been able to tolerate any drug during the 5 years I have been officially flaring and diagnosed with UC. Despite this, I know I had this nasty thing for the past 20 years. To put it plainly, Humira worked for 2 months, then failed. Now Entyvio worked for 1 month maybe and seems to be placebo now. I oscillate between very bad bloating and constipation and then diarrhea. Since on Entyvio, I am unable to sleep laying down from the pain, and I have no ability to form a normal stool - it's either diarrhea or it's pencil thin or pebble-like. I do not feel like this medicine works and is just another step in the long journey toward surgery. I hear how biologics help people, but I remain unconvinced."

• Kat...
• Taken for 6 months to 1 year
• June 16, 2019

For Ulcerative Colitis "I have had UC for over 10 years. Was taking Asacol, which worked for years, then stopped working. I have been on Entyvio for 6 months. It has helped my UC, but after a couple months of treatment, my knees were swelling. I am having so much pain in my knees now, I have trouble walking. I am stopping Entyvio, it’s not worth crippling myself."

• lan...
• Taken for 6 months to 1 year
• November 30, 2016

For Crohn's Disease "I was on Remicade for several years. I recently switched over to Entyvio. It seemed to be helping, but the benefits only lasted about 6 weeks. My Dr. just added Methotrexate to help boost the effectiveness. So far, seems to be working better than Remicade. That said, everyone and every case is different. It comes down to you working with your doctor(s) to find the best plan for you. Don't give up, keep trying."