Entyvio User Reviews & Ratings (Page 3)

• Mik...
• Taken for 1 to 2 years
• August 3, 2020

For Crohn's Disease, Maintenance "Taking Entyvio every 8th week. Experiencing extreme fatigue, tiredness, depression, lack of 'drive'/brain tiredness. Sometimes I feel better for the last 2 to 3 weeks of the time period. Due to the Covid-19 situation, I had to wait an additional 2 weeks for my dose in April, and during this period, all these side effects went away."

• Car...
• Taken for 6 months to 1 year
• June 10, 2019

For Ulcerative Colitis "The neurologist told me Humira caused my chronic daily migraines, so the GI switched to Entyvio. I was already in remission due to Humira, and 6 months later on Entyvio, I continue to be doing fine. Other than a scratchy throat for the first couple of days after the infusion (and migraines gone!), I have experienced no other side effects. So far, I am happy, however, once I’ve been on it several years without a flare, it will truly determine if it is working."

• Anonymous
• May 12, 2017

For Crohn's Disease "Very pleased with Entyvio. I've been in remission, and the medication is working very well for me for the last 2.5 years. I do experience bad side effects that last about 24 hours after infusion, including severe fatigue, headache, and all-over body pain. I have to say the pros outweigh the cons for me."

• Jun...
• Taken for 1 to 6 months
• June 6, 2017

For Crohn's Disease "I decided to discontinue after the 4th infusion. Very expensive, which might have been worth it had it improved diarrhea. Instead, with each infusion, ulcers in my mouth flared worse (they were already there - Crohn's in the mouth), severe fatigue, all-over body pain, worsened sinus problems, weird tendon-like pain in hands and feet, all of which got worse and lasted longer with each subsequent infusion. My last infusion's symptoms lasted for weeks!"

• All...
• Taken for 2 to 5 years
• May 20, 2019

For Ulcerative Colitis "Have been on vedolizumab for over 2 years now, and it has been amazing at eliminating all gut-related symptoms (I have Ulcerative Colitis). But over the 6 months or so, though, I've been experiencing weird and horrendous neurological symptoms: tingling, crawling, and burning, as well as pain and weakness. Seriously considering trying a new drug."

• Con...
• Taken for 1 to 6 months
• December 21, 2018

For Ulcerative Colitis "Entyvio has been a miracle for me! I had ulcerative proctitis that spread, and my symptoms were terrible, especially in the morning, and were causing me depression, fear, and withdrawal from people. Within 2 IV doses, I noticed a profound reduction of all symptoms. Right now, I am 95% symptom-free. I have not had any side effects except noticeable hair loss. I’m not sure if the hair loss is from the prednisone I was taking for 3-4 months until a week before I started Entyvio."

• T D...
• Taken for 1 to 6 months
• June 14, 2022

For Ulcerative Colitis "BEWARE! Intravenous Entyvio, 2020. 46 y.o. UC. Tried many medicines, this one destroyed me. First, the doctor did not obtain a 100% full informed consent on the drug, on its risks and safety, studies, etc., instead, he oversold the product. The drug has no more than a 34% effect, it only works for 1/3 of the UC patients, and it comes with an obscure side note to doctors on 'known risk' for PML, i.e., a neurological injury-disease related to MS, i.e., lethal if not urgently attended. I lost my job as a programmer, good career, income, safety, and future, and I have to deal with severe multiple side effects. The doctor never followed an emergency protocol, as advised by the producer. The producer plays safe and lies by omission/transparency to the doctor. The drug is dangerous to produce for use. The immediate side effects were: paralysis, back pain, itchiness, eye infection even today, extreme fatigue, cannot move nor be active, nor deal with daily chores, cannot function at all."

• Pri...
• Taken for 1 to 2 years
• May 13, 2018

For Crohn's Disease "I have been on Entyvio for about a year and have had good results, although I did not see any reduction in pain until after the 4th infusion. I was on Humira for 8 years before it stopped working, at that point, I stopped taking medications for 3 months - that was a mistake. Was in pain all the time. I do have some minor joint pain, but that could be just me aging. I also have a lot of mucus in my throat, but that may only be my lifelong struggle with bad allergies. Everyone's body metabolizes and reacts differently. Some of the reactions that people are having are listed as side effects, and to contact the doctor immediately. Overall, I believe this drug is working for me, although I don't like putting it in my body and would like to try something more natural, but I am afraid the pain will return."

• SZ0...
• Taken for 6 months to 1 year
• October 16, 2018

For Crohn's Disease "I've been on Entyvio now for nine months. Since I've been on the medicine, I only experience Crohn's symptoms about once every week and a half in the evening around bedtime. At that time, I have diarrhea, but after emptying, I feel fine. I no longer am concerned about going out and eating or leaving the house and having an emergency with diarrhea; however, for the last two weeks plus, I've been fighting cold symptoms, and although I may be a little better, I am beginning to wonder if I will ever get over the cold. After reading the experiences of others, I am wondering if the Entyvio is complicating my recovery."

• Big...
• Taken for 1 to 2 years
• August 20, 2019

For Ulcerative Colitis "Been using Entyvio for two years for ulcerative colitis. It has not helped my UC. My doctor will not stop giving it to me even though it is doing nothing. Next appointment is next week, and I plan to stop using it or find another doctor."

• Aro...
• August 14, 2019

For Ulcerative Colitis "I am an ulcerative colitis (UC) patient and have a pouch. I was on Remicade and recently switched over to Entyvio. I have only had two infusions so far and have also lost a LOT of hair. I couldn't tell if it was due to Entyvio or because I was flaring. I have had phases where I have lost hair. But nothing like this. Has anyone had this issue when they first started the drug, and over time, the hair has come back? I have not noticed any improvement in my symptoms, hoping to see some changes once I get my third."

• Cro...
• Taken for 5 to 10 years
• March 19, 2024

For Crohn's Disease "This drug has been the best medicine for Crohn's that I’ve tried. I’ve had serious side effects from other immunosuppressant drugs, but not Entyvio since it specifically targets the gut. I have mild fatigue after my infusion, which only started 8 years after I first got on it. It’s been great and I hope it continues to work wonders! In my case, if a drug works, it works at 100%, and if it doesn’t, it’s at 0%, so my Crohn’s symptoms have either been extremely severe (constant hospitalizations/surgeries) or nonexistent. My symptoms are nonexistent on Entyvio. But then again, everybody is different and it may have no effect on some people."

• Anonymous
• Taken for 1 to 6 months
• February 15, 2018

For Ulcerative Colitis "Been on now for 5 months. Symptoms returned 2 months in. Dr. wants to give it a good try, so I'm back on Cortiment and awaiting a scope that he only has time for in June. Lost a lot of hair, which is somewhat devastating for a woman who wants to feel normal and keep disability invisible. Dizziness and muscle weakness to the point of gym workouts not recovering for days. So now I'm torn because if I stop the meds and he does a scope in June, he could say, 'Well, we don't know if it worked, you didn't give it enough time.' It's a mental drain always trying to fix yourself, and I think most people here wouldn't buy a fancy car if they won heaps of money but rather diagnostic equipment, if it was possible to see what's really going on in their bodies. The unknown sucks. Getting naturopathic medicine and support and trying a ketogenic diet along with FODMAP and medical marijuana to help cope with the depression. I hope it's enough to keep me off these meds."

• Anonymous
• Taken for 1 to 2 years
• January 18, 2020

For Ulcerative Colitis "Developed UC and started Entyvio about 3 years ago. Hair immediately started falling out. Also, severe sleeplessness and hot flashes. Days of not sleeping, or if I did, it would only be for 2 or 3 hours. Had 20 to 30 hot flashes a day in the last year I took it, and they would last at least 4 to 5 minutes, then I would get really cold. My UC was completely under control, but the side effects were more than I could tolerate. Started Humira about 8 months ago but have already had 2 flares. Now I don't know why the gastro doctor didn't start me on Humira instead of Entyvio."

• Cas...
• November 13, 2015

For Crohn's Disease "I have not been on it long enough. But it did control my diarrhea, not the pain. I was told because of my new diagnosis of Irritable Bowel Syndrome along with Crohn's Disease, they are stopping the infusions to see if the pain is not a side effect from it. This is all I know about it so far. I hope this helps a little."

• jbr...
• Taken for 2 to 5 years
• June 15, 2019

For Crohn's Disease "I've been on Entyvio for aggressive Crohn's for 3.5 years, and it has been great. It has erased my Crohn's symptoms completely. However, I want to switch to something that doesn't interfere with the immune systems, as I have had Chronic Fatigue Syndrome for 4.5 years and can't exercise without getting sick for days. I think that there is a connection to biologics and CFS, which my cause appears to be caused by the Epstein-Barr virus. Lowered immune system, latent virus becomes activated, etc."

• Had...
• Taken for 1 to 6 months
• March 18, 2023

For Ulcerative Colitis "Started first infusion in November 2022. All bleeding stopped for good within 2 days of first infusion. After 4 infusions, I was told after a mini colonoscopy that I was in remission. Each infusion, the side effects got better. I felt like a truck ran me over for a week after the first infusion. Now, after my 4th, I get a little achy in the hips and knees that went away after a couple of days. I have been able to absorb vitamins and now feel overall healthier."

• Anonymous
• Taken for less than 1 month
• August 17, 2017

For Crohn's Disease "Only on my second injection, migraine so bad I get nauseous, ears ringing, hear my heartbeat in ears all the time. It's elevated constantly, light hurts my eyes, dizzy, head goes black for seconds. Only going bathroom every three days. Scared to take my next dose."

• Ste...
• September 2, 2019

For Ulcerative Colitis "I started Entyvio for UC as soon as it hit the market. I became steroid resistant and just started Entyvio as my first biologic as it looked like it would have a better safety profile. Has been great for my UC, with no significant G.I. symptoms. However, after about 2 years, I started having tremors on awakening and muscle fasciculations. Not sure if from Entyvio or not. Have stopped all other medications and had an MRI, sleep study, EMG, nerve conduction tests. Restless leg syndrome. Neurologists so far do not think it is Parkinson’s or ALS. Have had slight progression of symptoms for 2 plus years, but G.I. doctors nor the neurologists think it is related to the Entyvio and think I should continue using it. However, I feel stupid for not trying to go off the medication and starting Remicade or Humira for a year or 2 and see if symptoms resolve, although scared they might not work or lead to some other complications."

• MAC...
• Taken for 1 to 2 years
• March 31, 2018

For Ulcerative Colitis "This is my third medicine we have tried for my colitis. I had a severe reaction to Remicade after using it for two years. I then was put on Cimzia, which didn't work. I then was put on Humira, which didn't work. This medicine is my last resort, and it has saved my life."

• Car...
• Taken for 1 to 6 months
• November 8, 2023

For Crohn's Disease "So far, so good. I am beginning to notice some good changes in my bowels and overall health. This is also the first time I am using this medicine. The Entyvio is given by IV on a rotating basis, sometimes every other week or every month. The Entyvio seems to be working so far, so I am grateful for my doctors recommending Entyvio. I don't want another surgery. I have had a total of 3 and 3/4 feet removed since 1967. I am so done with surgery. LOL! I do know that the Entyvio does make me feel much better. I actually feel much better after the IV of Entyvio. I've only had 4 IVs so far and many more dates ahead. I am looking forward to these. I feel that the additional IVs are going to put this thing in my body to rest, for the rest of my life! I have had no side effects from Entyvio. My body actually feels so much better after the medicine is fully in my body. My body actually is starting to respond to the Entyvio. I can't say this enough, 'Entyvio' is working!"

• Sco...
• June 26, 2017

For Crohn's Disease "Two years on it. Now having liver issues. Colon on recent colonoscopy was clear. Endoscopy showed esophageal varices stage 1. Fibroscore Labs showed stage 4 fibrosis. Fibroscan the same. Fatigue, general and gut pain continues. Weight is stable but can't gain. Energy low. May need a med break."

• Sam...
• Taken for 6 months to 1 year
• June 26, 2020

For Crohn's Disease "Entyvio never worked for me. I never had any joint pain, so that was good, but I had 7-8 doses until I changed to Xeljanz. Entyvio gave me severe fatigue, and not so much on Xeljanz... also seeing improvement now."

• Acr...
• Taken for 5 to 10 years
• November 9, 2019

For Crohn's Disease "I was put on ENTYVIO after my colon was removed and J pouch surgery and still had symptoms involving the pouch and area just above the pouch. I have been on ENTYVIO for 6 years. I started at 8-week intervals, but over the last 2 years have had to go from 8 weeks to 6 weeks, now at 4 weeks due to symptoms returning before the next dose. Testing showed that at 4 weeks the level of ENTYVIO in my system was far below the recommended level. I hope that it continues to work for me. I started on Remicade in 2005 when I was diagnosed with U.C. I was on it a few years but ended up failing completely to help symptoms. I was then put on Cimzia, which I did not respond to at all. I then was put on Humira. I was on it until 2010 when thyroid cancer was found. After the thyroid was removed, I was put on ENTYVIO. Due to the cancer, I can't have immunomodifier medications. From Oct 2010 till early March 2013, I was on oral medication, Azacol I think it was, or I was on that prior to the colon surgery."

• Sun...
• April 7, 2018

For Crohn's Disease "I've suffered from Crohn's for over 50 years. Experienced a major flare-up in May 2017. Taken off current meds and prescribed 20 mgs of prednisone. Health improved immediately. Started tapering down until I was down to 5 mg in March, at which time I started the first injection of Entyvio. I am down to 1 mg of prednisone now. Have had two injections to date and scheduled for a third in April 2018 to be followed by another in June. I realize I have to give the biologic a chance to work, but I have not noticed anything positive from the treatment to date. Always fatigued with low appetite and joint pain. Sometimes I wonder if it wouldn't be in my best interest to simply go on prednisone and feel good for a few years. My GI is very optimistic regarding Entyvio, so we will have to see what happens from here."