Entyvio and Hot Flashes: What Users Say

• JDa...
• August 19, 2019

For Crohn's Disease "My Crohn's was diagnosed in 1978. Started Entyvio in June 2019. Have had the 3 loading doses and am now on the 8-week infusion schedule. Although my Crohn's symptoms have abated, I am experiencing unpleasant side effects: constant joint pain, especially in the neck and shoulders; severe headaches; blurred vision; cuts not healing; hot flashes; chills. Not happy about the side effects, but they are better than the severe abdominal pain and diarrhea."

• Anonymous
• Taken for 1 to 2 years
• January 18, 2020

For Ulcerative Colitis "Developed UC and started Entyvio about 3 years ago. Hair immediately started falling out. Also, severe sleeplessness and hot flashes. Days of not sleeping, or if I did, it would only be for 2 or 3 hours. Had 20 to 30 hot flashes a day in the last year I took it, and they would last at least 4 to 5 minutes, then I would get really cold. My UC was completely under control, but the side effects were more than I could tolerate. Started Humira about 8 months ago but have already had 2 flares. Now I don't know why the gastro doctor didn't start me on Humira instead of Entyvio."

• The...
• October 20, 2016

For Crohn's Disease "Started Entyvio in the middle of a flare-up. I've had the most side effects from this one as compared to all past treatments. Frequent moderate-severe sinus headaches. Flushing, hot feeling. Took 9 months before we saw improvement, but I was also on budesonide, which might have been the cause of the improvement. Unfortunately, it just doesn't seem worth it. I've heard better results for UC patients."

• Lin...
• February 8, 2018

For Crohn's Disease "Just had second treatment. My treatments have been every 2 weeks. Crohn's is still the same, no pain relief at all. One hour after infusion, nausea starts, diarrhea, joint and muscle pain, stomach pain, hot flashes, tired but trouble sleeping. Not sure if this is right for me."

• Deb...
• Taken for 1 to 6 months
• September 25, 2021

For Ulcerative Colitis "Had serum sickness on Remicade due to an extended gap in treatment, after failed treatment to conventional therapy. Rash and fever to Humira. I did very well on SYMPHONI. But... insurance refused to pay for the monthly injections (Medicare/supplement) 3 doses in. So I had fatigue, hot flashes, minimal joint pain. Good results so far. I don't like going to the office for infusions when self-injection was going well. The company that produces this drug refused financial assistance. I retired from nursing after 46 years in a hospital setting."

• TLC...
• Taken for 1 to 2 years
• June 23, 2025

For Crohn's Disease "I've been on Entyvio for 1 1/2 years, at first, it seemed to help. I was able to go shopping without worrying about bathroom trips, but now I'm experiencing more bathroom trips, but in the middle of the night. My belly wakes me up at 2:30, 3:30, by 4:00 I just stay up. So I'm not getting any sleep and my butt is on fire, I'm miserable. I also have been experiencing hot flashes, aches in my joints, and a cough with mucus in the back of my throat. I'm afraid to say anything to my doctor. I hate this disease, I feel like I'll never be normal again."