Entyvio and Diarrhea: What Users Say

• Fry...
• September 4, 2016

For Crohn's Disease "I have been on Entyvio for 13 months. It doesn't seem to be helping the diarrhea or urgency. I am fatigued all the time. I am having lots of joint pain and weakness (fingers, wrists, toes, ankles, knees). I trip/fall because my ankles roll, I drop things because my fingers won't keep a grasp. I have been tested for RA - negative. I don't think it is working, but my GI wants to try infusing every 4 weeks instead of every 8 weeks. To me, Entyvio is not worth the side effects."

• AKa...
• Taken for 1 to 6 months
• June 13, 2019

For Crohn's Disease "I have struggled with Crohn's disease for many years. I have been able to lead a normal life with Remicade IV every 8 weeks, it was the best med for me until now. Unfortunately, it stopped working. My GI doctor put me on Entyvio. I'm on my second dose and not happy. I'm very concerned. I'm having symptoms that set me back 15 years. I have nausea, vomiting, diarrhea, joint pain, skin lesions, headaches, blurred vision, and fatigue. I had to take off several weeks of work also. I would not recommend this medication. I'm working with my doctor now for a new plan."

• Cha...
• December 26, 2017

For Ulcerative Colitis "DO NOT TAKE ENTYVIO!!! That is, of course, unless you want your immune system to shut down and be unable to fight off even the littlest common cold. Not to mention the crazy amount of debilitating side effects: headaches, sore muscles, major fatigue, restless leg syndrome, feeling like you want to throw up out of the blue, back pain, and coughing. Oh, and if you do happen to get a cold while you're already experiencing these side effects, you might as well multiply the pain by 3 and prepare for a very long recovery as your body is too weak to fight off any disease. As for my colitis symptoms... Entyvio almost TRIPLED my symptoms!! Constant diarrhea, non-stop abdominal discomfort, and literally you are up all night. AVOID BY ALL MEANS!"

• Hal...
• February 13, 2017

For Ulcerative Colitis "I haven't been able to tolerate any drug during the 5 years I have been officially flaring and diagnosed with UC. Despite this, I know I had this nasty thing for the past 20 years. To put it plainly, Humira worked for 2 months, then failed. Now Entyvio worked for 1 month maybe and seems to be placebo now. I oscillate between very bad bloating and constipation and then diarrhea. Since on Entyvio, I am unable to sleep laying down from the pain, and I have no ability to form a normal stool - it's either diarrhea or it's pencil thin or pebble-like. I do not feel like this medicine works and is just another step in the long journey toward surgery. I hear how biologics help people, but I remain unconvinced."

• SZ0...
• Taken for 6 months to 1 year
• October 16, 2018

For Crohn's Disease "I've been on Entyvio now for nine months. Since I've been on the medicine, I only experience Crohn's symptoms about once every week and a half in the evening around bedtime. At that time, I have diarrhea, but after emptying, I feel fine. I no longer am concerned about going out and eating or leaving the house and having an emergency with diarrhea; however, for the last two weeks plus, I've been fighting cold symptoms, and although I may be a little better, I am beginning to wonder if I will ever get over the cold. After reading the experiences of others, I am wondering if the Entyvio is complicating my recovery."

• Lin...
• February 8, 2018

For Crohn's Disease "Just had second treatment. My treatments have been every 2 weeks. Crohn's is still the same, no pain relief at all. One hour after infusion, nausea starts, diarrhea, joint and muscle pain, stomach pain, hot flashes, tired but trouble sleeping. Not sure if this is right for me."

• dan...
• Taken for 1 to 6 months
• June 3, 2023

For Ulcerative Colitis "Started on Entyvio in March 2023. Have had no real side effects, just a little tired the day after the infusion and a slight headache the day of. I am in the third quarter of the first 8-week break. Have had some issues during this period with soreness inside my lower abdomen, not sure if it is related. I usually have well-formed stools and less frequent bowel movements, although I have had some diarrhea when I experienced soreness in my abdomen."

• Joe...
• March 13, 2018

For Ulcerative Colitis "I have tried almost every medicine there is, even Entyvio, but one medicine that I guarantee will help you is taking Suboxone. Please take my advice when you have a whole film of Suboxone, cut them into 4 slices, take just a quarter. I guarantee you that the diarrhea, the pains, and everything else will go away. Suboxone for ulcerative colitis has been a miracle drug for me and has helped me be in remission for about 4 years. Now I had it when I was 23, I took Suboxone at the age of 24, and I have been amazed. Suboxone is used to treat people with addiction, but it can be a miracle drug for other sicknesses. Please take my advice and at least give it a try, I promise you it will work better than any drug. The doctors have no idea what works because they are not rocket scientists and they don't have what we have. We, on the other hand, know what works and what doesn't."