Fycompa User Reviews & Ratings (Page 3)

• Phi...
• Taken for 1 to 6 months
• May 6, 2022

For Epilepsy "A little background for context first: 39-year-old male with right temporal lobe epilepsy. Focal point evolving to secondarily generalized convulsive tonic-clonic seizures. Over 15 years of uncontrolled seizures. I had 3 open brain surgeries since March 2020, two temporal lobe resections and a hematoma evacuation. Continuing to have convulsive seizures, every six weeks on average. Current AED regimen: 150 mg Briviact 2x daily and 6 mg Fycompa nightly. I have been on Fycompa for 6 weeks now and continue to have focal point seizures and occasional G.T.C. seizures. The first and primary side effect I noticed was overwhelming sedation. Even for seizure drugs, I’ve never been so “drugged” feeling. I take it before bed and wake up extremely sedated. I’ve noticed that it takes about 16 hours from dosing until I can function. It also messes with my stomach and gives serious balance and gait problems after dosing. I wouldn’t recommend this drug for anything but a last resort treatment."

• fyc...
• Taken for 1 to 6 months
• February 29, 2024

For Epilepsy "Pros: seizure-free for 3 weeks, best I've gotten in a long time. However, this is on polytherapy with two other medicines. Cons: extremely irritable, more than I have ever been, biting myself in anger sometimes. Sometimes in anger, I imagine killing my dog when he's annoying me, however, I retain reason and know that would not be a good thing. Periodic extreme vertigo to the point of being unable to walk. Despite these side effects, my view of right/wrong has not changed, and I am not actually considering doing these things. However, I find myself thinking about these things far more than I should, over and over, for most of the day. Excellent medicine... if these side effects go away after a few more weeks."

• Ahm...
• Taken for 10 years or more
• May 30, 2022

For Epilepsy "Before anything, many thanks to the organizers of this wonderful website. I've only been taking this medication for 10 days and gone from 2 ml to 4 ml. I was greatly affected by (abdominal gas, difficulty defecation, increased appetite, severe pain in the lower back, and pain in the left side of the body from the shoulders to the feet). I tested it with Vitamin B12 and saw improvement. I've taken many medications before, most recently and still Vimpat, which has greatly affected my memory and focus. Friends call me Alzheimer's. My main problem is the seizure after ejaculation and sex. I then go into insomnia for a period of between 1 week to a month, and then the seizure comes after eating any meal directly or at bedtime. I have not yet found a doctor who can determine the causes and know the final treatment."

• Sar...
• Taken for 5 to 10 years
• April 14, 2025

For Epilepsy "I am on 4 mg of Fycompa every night. I rate this drug extremely high as it has stopped my seizures for 7 years now. The side effects regarding dizziness, sleepiness, and hunger come shortly after taking the drug. I immediately go to sleep once I've taken it as I cannot function properly once the drug is working. I believe that the side effects I experience for that short while every night are well worth it for being seizure-free."

• not...
• Taken for 1 to 6 months
• September 18, 2017

For Epilepsy "This medicine has made me more angry than usual, and it doesn't help with my seizures. It also makes me sleepier than usual."

• Dha...
• Taken for 5 to 10 years
• May 7, 2017

For Epilepsy "Started on this medication during its study phase. Just makes me really tired and in a 'fog' in the morning. If still up an hour after taking it, I sometimes feel 'drunk', balance is altered."

• Eva...
• Taken for 2 to 5 years
• November 1, 2019

For Seizures "Fycompa is the best anti-seizure medicine I have ever had. I had a grand mal in 1969. I have been on countless ones over the years."

• Bca...
• Taken for 1 to 6 months
• February 15, 2021

For Seizures "It’s one of the most HORRIBLE DRUGS OUT THERE!!!! DON’T DO IT!!! Absolutely foul."

• nev...
• January 6, 2017

For Epilepsy "Frequent bowel movements, later diarrhea, especially during the morning. Hard to tell if it helped my seizures, as I had 4 seizures in a 5-month period."

• Kw6...
• Taken for 1 to 6 months
• March 26, 2022

For Epilepsy "This is a very good medicine for epilepsy, but it makes me hungry, off balance, and sleep for almost 10 hrs."

• Dha...
• Taken for 5 to 10 years
• April 19, 2017

For Epilepsy "I started on it during its study phase. The only side effects are it makes me very tired, and it does take me longer to wake up. I think it is an awesome medication."

• Ros...
• Taken for 6 months to 1 year
• October 28, 2021

For Epilepsy "This is the worst drug for kids. The side effects are real. I do not recommend it for anyone, it causes mental problems. This is an awful drug and should not be on the market."

• Hei...
• June 7, 2024

For Epilepsy "I had daily seizures until Fycompa. Thank God for Fycompa."

• Anonymous
• Taken for less than 1 month
• June 30, 2022

For Epilepsy "Good med. I like it. It has helped me a lot. It has not been a problem as far as side effects. I feel pretty good and have had no problems since I started taking it."

• Ker...
• Taken for 1 to 6 months
• May 25, 2022

For Epilepsy "Was on it one month and stopped. Worst med I’ve ever taken. Caused severe memory and concentration issues. Was even let go from my job due to the side effects."

• Anonymous
• Taken for 1 to 2 years
• April 9, 2022

For Epilepsy "I had to increase the mg slowly and have found it made me extremely tired or dizzy when not taken with food. Overall, I have gone from 5 seizures a month to 2 in the past 8 months and am on 6 mg."