Fycompa and Hallucinations: What Users Say

• gra...
• Taken for 6 months to 1 year
• September 27, 2014

For Seizures "My boyfriend started this medication for better seizure control. He has had personality changes, confusion, aggression, hostility, delusions, depression, and severe thought problems that caused him to have antipsychotic and antidepressant medication increased because of existing bipolar disorder. Our relationship is about over because of this medication. We will see the neurologist ASAP to see if he can get off this medicine. Scared because it's addictive. He had similar reactions to Vimpat with suicidal thoughts."

• Mam...
• Taken for less than 1 month
• March 16, 2016

For Epilepsy "My daughter has had refractory epilepsy for 20 years. She tried this drug in addition to the Vimpat and Topamax she is already taking. Huge mistake! Week 2, she became catatonic, delusional, and terrified. Her dad, brother, and I helped her through it. Called her neurologist and stopped the drug immediately. We are on day one without the Fycompa, our morning was consumed with a psychotic episode, but after an hour and a half, she came around. Lucky for her, she doesn't remember much, if anything, of these events. I highly recommend you do your research before considering this drug. In my opinion, it shouldn't be on the market."

• Mam...
• Taken for less than 1 month
• March 16, 2016

For Epilepsy "My daughter has had refractory epilepsy for 20 years. She tried this drug in addition to the Vimpat and Topamax she is already taking. Huge mistake! Week 2, she became catatonic, delusional, and terrified. Her dad, brother, and I helped her through it. Called her neurologist and stopped the drug immediately. We are on day one without the Fycompa, our morning was consumed with a psychotic episode, but after an hour and a half, she came around. Lucky for her, she doesn't remember much, if anything, of these events. I highly recommend you do your research before considering this drug. In my opinion, it shouldn't be on the market."

• Tak...
• Taken for less than 1 month
• April 14, 2017

For Epilepsy "In short term, it made me crazy! At first, it controlled my seizures, which had been under control, but I had some breakthrough seizures. I had a complete personality change. Didn't trust anyone. Pretty much 90% of the side effects that were on the warnings. After I read the pharmaceutical information, I wondered how the FDA approved this drug. And when I was having to be weaned off the drug, it was hell. Hallucinations, shakes, sweating. I assume what a drug addict would go through. I can't believe I am the only person who has experienced this. After this, I of course was given another medication. Ever since I was given this medication, I have had memory loss. My seizures have increased. Were over 6 years under control."

• dan...
• March 29, 2017

For Epilepsy "I did a 6-week trial of this, and it made me psychotic for about 2 hours once I had gotten my blood level up. High as a kite, aggressive, and talking backwards. So I went off it and had terrible withdrawal in the form of depression and suicidal thoughts. I have temporal lobe epilepsy, and I think I am on the more psychotic end of the spectrum, so I was more vulnerable to those side effects. I was a second-degree black belt at the time. I judge all drugs by my ability to do a decent back kick without falling over. It failed the back kick test as well."

• Mar...
• Taken for 1 to 2 years
• July 22, 2020

For Epilepsy "So I’ve been on Fycompa 4 mg for maybe 2 years, and it’s done a wonderful job against my seizures. Until the past 2 months, I’ve experienced 4 instances of déjà vu auras and a different type of aura I’ve never experienced. More of a hallucinating, double vision, lifting of the head feeling? Sort of like a roller coaster, and you feel your eyebrows go up. Anyway, my girlfriend said I’ve experienced that before, after a grand mal seizure. So my doctor upped the Fycompa to 6 mg. The first morning after taking it the night before, I felt intensely high. Very similar to the morphine I was given as a minor after surgery! Very sleepy feeling, and tingly body sensations that made me want to go limp. While my head just felt lifted in a sense. Slight dizziness and couldn’t focus on tasks. I know it’s getting used to the meds, but I don’t know if I’m comfortable taking a med that can make me feel high like that. Please let me know if you have experienced this before!"